Thank you for dropping by and taking time to read my blog.
I’m Debbie. Patient leader, advocate, blogger, author, member of WEGO Health for years and world changer. I was diagnosed with osteoarthritis s at the age of 33, Isthmic Spondylolisthesis at age 38 and Osteonecrosis aka Avascular Necrosis at age 50. I am no stranger to pain.
One of the hardest things I’ve ever been told is that I would be living with osteonecrosis pain the rest of my life That was a hard time in my life; processing my osteonecrosis diagnosis, the pain was the worst pain I had ever felt, and it was constant. It was one disappointment after another trying to get answers and treatment options with no answers. I was told by several orthopedic doctors to wait until my knee collapses to get a replacement and until then just live with the pain or do as little as possible to save the joint.
For 3 months, I did what they doctor said. I did nothing, except go to work and come home I sat around, placed limits on what I could or could not do, I missed living, this was just existing. That was unacceptable, But it became so hard to work I had to go on disability. Being on disability was really was a jolt to my confidence, and I felt like I had nowhere to turn for real life information about dealing with AVN.
So, a couple months later, I started a support group and a blog. I started my own support group because if I felt this lost so did others. I also started a blog just to get to have something to do and later I wrote a booklet for those diagnosed with osteonecrosis aka Avascular Necrosis so they could have the information I did not.
I wanted to empower others. It is important to me to help others with Arthritis, Osteoarthritis, Osteonecrosis, Spondylolysis and Spondylolisthesis to make sure they are educated, inspired, encouraged, and empowered because there are always options and new treatments from what we eat to control pain to prp and stem cell injections.
No one should have to live in constant pain.
For me, a patient leader is ‘someone who is affected by life-changing injury or disability or illness one who influences to create change and teach empowerment.
Everywhere I look, power is neutralized and or buffered. We are patted on the head, told to be a good patient, and listen to the doctor. But when will the doctors stop and listen to us?
I have always been interested in power and justice for others. This started when I went from being a domestic violence survivor with my first marriage to becoming the Community Group Leader-Speaker who spoke to thousands of women about regaining their power, how to finally leave a violent situation, teaching teens to know the signs of what an abusive boyfriend looks like, rape crisis advocate. I also became a DV shelter manager for 10 plus years.
When I was diagnosed with a few conditions over the years I saw how dismissive patients are treated and rarely heard. If you spoke up, you were labeled difficult or non-compliant. The aim of empowering and educating others is to help them develop self-awareness, self-care and promote the understanding that patients can be equal partners in their healthcare decisions.So they know they do matter.
More About Me
The Chronically Grateful Debla blog – was born in a time when my physical pain and unanswered questions seemed to be at an all time high. This site started as an outlet for me during a time of chronic debilitating pain that stemmed from one diagnosis after another and quickly this blog became so much more.
I realized that my struggles, my story, my life with chronic pain could become more than just about me, but it also about helping others who are also living with chronic pain especially Osteoarthritis and Osteonecrosis pain.
I’ve allowed myself to be vulnerable and open in my personal posts, inspirational, and hopeful.
This blog has allowed me to reach others in a way I never had before, I did not realize how many people live in pain and have many of the same questions I had.
Each post I share not only helps me, but gives me the opportunity to help someone else.
ChronicallyGratefulDebla is my proof that our struggles and questions are real and no matter who you are,where you are from, it brings us together and we become more empowered.
I am proud to be a patient leader and advocate
I blog about many things From Health -Wellness -Coping with joint and bone pain -New Treatment options – Learning to eat healthier to control my pain, have less inflammation and a better quality of life.
Thank you so much for stopping by
Wishing you all a pain free day
My Links To Follow
Word press Main Blog ChronicallyGratefulDebla.com https://wordpress.com/view/chronicallygratefuldebla.com
Word press Avascular Necrosis Education Blog – https://avascularnecrosiseducation.wordpress.com
Support Group for Avascular Necrosis-Osteonecrosis https://www.facebook.com/groups/DeadBoneDiseaseAVN/
Info Page on Bone and Joints https://www.facebook.com/AvascularNecrosisAndBoneDiseaseAwareness/
Personal Twitter https://mobile.twitter.com/debbiea001
Personal Instagram Deborah Andio
Instagram Awareness Page ChronicallyGratefulMe