Osteonecrosis – The Pain and Learning What It Is

Welcome to ChronicallyGratefulDebla

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Hi and Thank you for dropping by :  I am Deborah L. Andio and I am new at this blogging thing so bear with me. I am starting this blog because I want to raise awareness  and share my experience since being diagnosed with several conditions

Osteoarthritis

Osteonecrosis in Knee from Trauma

Hashimoto Thyroiditis Hypothyroidism

Factor V Leiden

Spondylolethesis L 5 S 1
Im focusing today on Osteonecrosis

My Diagnosis

I  was diagnosed in 2014 after my was injured from exercising and I felt like I was stuck in the knee by lightening.

It dropped me almost to the floor so of course I called my doctor went in and he thought i may have torn my meniscus.  I tried pt for a few weeks and a couple cortisone injections over 3 months but it kept getting worse. The pain was nothing else I had ever imagined or experienced.

I insisted he stop giving me injections as its not helping  and I suggested he look to see whats going on in knee as its worse after several weeks .

He said we would get X-ray well that just shown up that my Osteoarthritis  hasn’t progressed thankfully. OK so that’s not worse yet my pain is so intense I can hardly concentrate  at times. It has me not able to work , at first I went  down to Part Time but now I can barely walk  feet with out feeling like a knife is being jammed in my knee….

I am now scared and go back to doctor and I am pissed off, I have to stick to my guns here and not allow him to dismiss me or my pain.

I broke down and asked him for something for pain and he looked at me as if I was some junky. I told him look I have been your patient for over  years I wouldn’t ask if I was not hurting a lot. I also told him if you would get off his ass and try to help me figure out why I’m still hurting maybe we can treat this correctly.

He apologized and said we need an MRI and he gave me a script for  pain pills.

A week later I get MRI and a few days later I go back to dr’s to hear results and he said I think we need to get you in to a orthopedic asap.

Ok well then lets go…

So days later was the soonest i can see this ortho

He immediately said I review you MRI and your knee looks like butter. Butter I ask thinking wtf is that mean….

He then told me I had osteonecrosis in my rt knee and eventually I will need a knee replacement, he also confirmed the medial meniscus tear of the femoral condyle.

I asked can we fix the meniscus he said no it would cause more problems. So I asked whats the plan of action he said when your knee collapses we will replace it until then lets give you a kenalog …..it will help pain . So I agreed.

So i got the shot and asked him so what is osteonecrosis he said it when the bone dies.

All I heard was death…..I got very scared I asked what was in that shot as my knee is on fire he said cortisone…….

I’m like no way those make my pain worse

He then suggest i return in a few weeks and shifted my ass out the door.

No personality no explanation of what was happening or what i could do to my knee nothing………another dismissive docttor..

I  get in my car and i just cried , what is happening to me. Will this pain ever go away ?  Why have i neverheard of this osteonecrosis before.

And that’s where I chose to become a leader and pioneer for this cause…

Its a rare condition but you can get it many ways  yet it falls under rare disease

For the next few months day in and day out I read, spoke to many doctors some knowledgeable and some I wouldn’t want fixing a stuffed animal let alone my knee.

I found ut that more doctors know very little about this than are knowledgeable…

Thats how my awareness and advocacy started for Osteonecrosis aka Avascular Necrosis.

My plans were to gather all my info start a support group not a gossip page but an actual page where you can learn, I wanted to list good qualified doctors and eventually write a booklet and book and I am proud to say I have done all but the book  but I am working on that.

I am proud of my booklet that/s finished i mail it free to members of my group to help them see they are not alone and they can share it with family friends and doctors and they also can gain real understanding of what we go through. Because unless you have , you have no idea how painful it is.

Song Of The Day   Rob Thomas Published on Oct 1, 2009 The official video of “Her Diamonds” from my album ‘cradlesong’.

 

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So help me raise awareness if you like my post come back often, subscribe and have others subscribe as well.

I will discuss many issues and health education on various subjects

Like Eating to fight pain

Treatments

Recipes

Diets

General stuff

I so appreciate you taking the time from your day to read this and hopefully join me regularly …

Butterfly Ribbon (3)_resized

Now if you dont know what osteonecrosis is

Read here  I wrote this awareness Booklet  this is what I share and I want you to learn about it also

AVN Awareness Booklet

Osteo meaning bone and necrosis means death .
Most commonly this occurs in the knee, hip, shoulder, ankle, elbow,hand ,wrist but also can occur really anywhere else in your body that you have a bone   or joint . Including the jaw and spin

I started a fb support group because I know so many are suffering worse than I am and I am determined to make a difference.
If you have Osteonecrosis aka Avascular Necrosis or know someone please share the link to the support group and this blog
The AVN /ON Facebook group above is a private group, which I administrate and I also have some fabulous women helping me run it as well.
 This is a wonderful forum to ask questions, give our experiences and ideas but not medical advice  and help connect with others from all over the world.
The formal name of my f b support group is
We like to talk and educate share stories and jokes funny pictures and experiences we are not a gossip group and we have rules.
We also require anyone wanting to join to answer  three questions if they fail to answer them they are denied.
My other links
Thank You and God Bless you and I hope you have a pain-free day
Much Love

Debbie

 

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All files, art , logos and information contained in this Website or Blog are copyright by Deborah L Andio ©Debla2016 ,and may not be duplicated, copied, modified or adapted, in any way without my written permission.

Your use of my  Website, Blog or Booklet or Book does not constitute any right or license for you to use our service marks or trademarks, without the prior written permission.

Our Content, as found within our Website, Blog and Services, is protected under United States and foreign copyrights. The copying, redistribution, use or publication by you of any such Content, is strictly prohibited. Your use of our Website , Sharing of Blog, Logo’s Art Booklet or Book  does not grant you any ownership rights to my Content.

 

 

 

 

Song In Blog –  You’re Gonna Be Ok (Lyric Video) – Brian & Jenn Johnson | After All These Years. I own no rights or the song I just find it supportive and Inspirational

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