Life is hard enough,don't go through life with pain that’s keeping you clutching the steering wheel. Join me as I share with you my life of living chronically grateful while living with chronic pain.
The body always knows what to do to heal itself. The challenge is listening and doing what your body needs.
I was diagnosed with Osteoarthritis in 2012, Avascular Necrosis aka Osteonecrosis in my knee in 2014 and Factor V Leiden hetero, and Spondylolisthesis 2016
Health Advocate-Health Activist-World Changer
Love photography, cooking, hiking, walking ,traveling and learning to live a new normal since my diagnosis.
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Support Group Avascular Necrosis/Osteonecrosis Support Int’l
Awareness for Avascular Necrosis & Other Conditions of The Bone and Joints
Avascular Necrosis Awareness Day November 29 – working with elected officials to get this recognized in all states
Avascular Necrosis-Osteonecrosis Knowledge and Education
That small organ that releases bile to aide in digestion is a great thing until it becomes angry, very inflamed and turns on you repeatedly no matter how much you change your diet.
Then it’s like a organ from hell.
I recently had gallbladder removal surgery and I am so glad I did it took way to long to get it removed, but I think after age 55 doctors must be afraid your gonna die in the table so they order every test known to man as a prerequisite to having surgery.
In the meantime I’m suffering every blasted day, afraid to eat for fear of another attack. This shit has been honing on since August 2020 and I am glad I am now post op.
I apologize for being not as active but the pain was just more than I can take on top of the every day pain I live with from bone and joint issues. But thankfully I am now on the mend and I will be seeing you all again soon.
If you have a low back problem and you’ve been told you have spondylolisthesis, you should learn all you can about it, and the simple measures you can take to protect your low back health.
I have had a back problem since I was 12 when I fell during track practice in jr high school, my foot actually got caught up on a hurdle and I landed on my tailbone.
It didn’t phase me much as a kid, it became really bothersome in my 20s which was in the 1980s and it really seemed to get worse in 2001 after I was rear ended and then pushed into the car in front of me while I was sitting at a red light.
Throughout the years I did what doctors told me, try this and that here do this, no do that some doctors were just rude and just thought because I was in my 20s in the 1980s I was looking for pills. I hate pills. None of them listened to what I was saying.
Those are the doctors I fired. How dare they assume that because of my age I was a drug seeker.
I mean they could have at least gave me an X-ray or MRI of my back they just assumed ……and I was dismissed or offered a cortisone shot and if I refused which I did I was ignored and called a non compliant patient. I swear this went on for at least a year or two.
Also after my car accident it got to where I could hardly hold a cup without it falling out of my hand.
I thought the problem was me. I thought maybe I am not explaining myself or my symptoms right.
If only I could just find the right combination of words, maybe then doctors would understand and listen and not think I am a pill seeker and provide me with the treatment I needed. I’m just asking to look at it take an X-RAY or an MRI DO SOMETHING!
I didn’t want any damn pill, and I sure as hell didn’t want a short of cortisone. I rarely took an Advil let alone any other pill.
Pills always seemed to have more complications connected to them then they were worth.
Yes I was one of the nerds that would read any inserts, or talk to a pharmacist about any meds and often left without the pills prescribed because often the side effects were not worth it at the time.
In the 1980s I was a young mom who didn’t wanted to feel in the fog, I drove her to school, dance class and just would never chance the effect of a pill to kill my day…..plus my 1st husband was abusive so I had to be on guard at all times.
But that’s a story for another time.
When I finally went to a doctor that actually listened to me I was thrilled she was an Osteopath she gave me exercises that would help the back and muscles, she sent me for an x-ray had me walk and said my gait was off so I got and insert for my shoe that she made foe me free out of foam, she also told me my one leg was 1/2 inch different in length so she made me an insert for heal 1/4 inch thick dense foam, it helped for awhile but didn’t take away all my pain.
I was sad when she moved to another state and she referred me to a PT.
For years my pain was improved but not gone, I followed and completed my exercises daily or a few times a week as I was told by my PT was told it was most likely arthritis , then osteoarthritis but one day in 2005 I was really hurting and my Doctor scheduled me for an MRI vs X-ray as I was having more and more pain.
I was told I most definitely had osteoarthritis but little did I know I had something worse that I didn’t find out for years later, even though it was written in my chart.
I actually had something called Spondylolysis in My L5 S1 area and also above it.
What is spondylolysis?
A spinal disorder in which a bone (vertebra) slips forward onto the bone below it.
Spondylolisthesis risk factors include sports that put stress on the bones in the lower back, such as gymnastics , track and field and football. Genetics may put some people at increased risk.
I was also diagnosed with Spondylolysis – Spondylolysis. Pars defect. Stress fracture. These three terms are used interchangeably, all referring to the same condition. Spondylolysis is a stress fracture through the pars interarticularis of the lumbar vertebrae. The pars interarticularis is a thin bone segment joining two vertebrae. It is the most likely area to be affected by repetitive stress. This condition is fairly common and is found in one out of every 20 people.
What are the symptoms of spondylolysis?
Spondylolysis doesn’t always have symptoms. When it does, the only symptom is usually back pain.
The pain often gets worse with activity and sport, and is more notable when bending backward.
Generally, the pain doesn’t interfere with everyday activities. If it persists, it is recommended to seek medical attention.
It’s very bothersome when I walk more than say a mile. It also hurts when the weather changes.
What are the risk factors for spondylolysis?
Being human and walking upright is the most basic risk factor for spondylolysis.
The natural inward curvature of the lower back puts stress on the pars interarticularis.
Certain sports that involve excessive or repetitive bending backward may increase the risk of spondylolysis.
Examples include gymnastics, football and soccer.
Young athletes may sometimes develop spondylolysis as a result of over use and hyperextension of the lower back. Genetics could also be a risk factor for some people.;
If you have long-lasting, localized low-back pain, it could be due to spondylolysis.
An X-ray is sometimes sufficient to defect a stress fracture. However, if pain persists despite rest and physical therapy, additional imaging may be necessary.
Your doctor may need to order an MRI, a CT scan or SPECT scan of spine for a definitive diagnosis.
Spondylolysis treatment focuses on managing the pain and helping you return to your daily activities. This condition doesn’t typically put you at risk for spinal cord injury or nerve damage.
Depending on the degree of pain, treatment options include:
Rest/break from sports
Nonsteroidal anti-inflammatory drugs
Physical therapy for muscle strengthening and general conditioning
A lumbar brace
Surgery to repair the fracture is rarely needed, as the pain is expected to fade over time in most cases.
Surgery for Spondylolysis
Surgery may sometimes be an option for adolescents with lumbar spondylolysis. The fracture can be repaired by using a strong titanium screw. This surgery is done by making a 2- to 3-inch incision in the middle of the lower back. The screw is placed to secure the two sides of the fracture together, providing some compression across the area. Then a bone graft (a piece of bone from elsewhere in the body) could be used to further support the repair.
The surgery takes three hours, followed by two or three days in the hospital for recovery.
I will pass on any surgery unless it’s a must!!!
Your doctor may also recommend a surgical procedure such as spinal fusion if it’s found that spondylolysis has caused your vertebra to slip forward. This slippage is called spondylolisthesis, which is a different but related condition.
Mine has slipped forward and yes it’s a nagging constant all day just about every day pain.
Spondylolisthesis Is Not The Same As A Slipped Disc—But Does Involve Slippage
Slippage is a key element of spondylolisthesis.
They like using the word “slippage” because it conjures up a visual image of what’s happening in the body. He explains, “When you have spondylolisthesis, one of the vertebrae—the bones that make up your spine—slips out of place over another.”
However, it’s not the same thing as a slipped disc.
It’s gotten to the point that, I have lived with so much pain all the time the average person would be in agony and I am still doing what I can throughout my day. I would probably try to run a marathon if I had a totally painful day.
Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .
I saw our community struggle in new and ways besides living and dealing with daily pain.
People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.
They became more isolated than ever before. They and their family members faced job losses and financial hardship.
As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.
But on the plus side we went virtual on Zoom
Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.
It’s a year most are happy to see come to an end.
But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.
In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.
I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.
I got to stay in a great city and tour the beautiful historical city of Washington D.C
We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.
Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.
We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.
We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.
We saw our neighbors and communities come together to support one another in their time of need.
Despite the news only showing negativity there was a lot of positive happening.
2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.
I don’t know what 2021 will bring;
I’m hoping it will be a fantastic year.
I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year
Today is a special day for me , it’s the second annual Avascular Necrosis Osteonecrosis Awareness Day.
The am still working hard to get every state to work with the others so we all have one date to raise awareness and bring recognition to the painful disease called Osteonecrosis which goes by several others names.
It’s a slow yet rewarding experience
More people are learning about Osteonecrosis , what it is how you get it in many cases. And that’s what it’s all about. To get people to listen to us, learn about it. That way we can get better options for treatment and pain.
Some of the faces of AVN women is this picture
Legg Calves Perthes – Avn children
Kienbock’s Disease Avn wrist
Kümmell disease Avn in vertebrate
ONJ Osteonecrosis of the Jaw
and so many more …….
Osteonecrosis is a disease caused by reduced blood flow to bones in the joints. In people with healthy bones, new bone is always replacing old bone. In osteonecrosis, the lack of blood causes the bone to break down faster than the body can make enough new bone. The bone starts to die and may break down.
You can have osteonecrosis in one or several bones. It is most common in the upper leg. Other common sites are your upper arm and your knees, shoulders and ankles. The disease can affect men and women of any age, but it usually strikes in your thirties, forties or fifties.
At first, you might not have any symptoms. As the disease progresses , you will probably have joint pain that becomes more severe. You may not be able to bend or move the affected joint very well.
No one is sure what causes the disease. Risk factors include
Long-term steroid treatment
Having certain diseases, including arthritis and cancer
Doctors use imaging tests and other tests to diagnose osteonecrosis. Treatments include medicines, using crutches, limiting activities that put weight on the affected joints, electrical stimulation and surgery.
Can you imagine how empowered our female ancestors felt in 1920?
Finally given the right to vote after fighting before it for so long.
I know the I feeling I get when I vote whether it’s a major or minor election.
The sense of pride and empowerment and yet humbled that my voice , all our voices will be heard and count.
Women were always told they belonged at home , in the kitchen with no voice allowing their husbands to speak for them.
I was lucky enough to get to go to Washington D.C in February 2020 and speak on Capital Hill for Rare Week 2020.
I stayed a few days and visited all the Smithsonian Centers
It was emotional for me to see how many brave women fought for the right to vote. Just think it’s only been 100 years. And for many African American women it’s only been only 35-40 years because even thought the ratification of the 19th Amendment happened in 1920. Not all states allowed blacks to vote.
The 19th Amendment did not eliminate the state laws that operated to keep Black Americans from the polls via poll taxes and literacy tests nor did the 19th Amendment address violence or lynching. Some African-American women will vote with the 19th Amendment. Some are already voting in California, New York and Illinois where state governments have authorized women’s votes. But many Black women faced the beginning of a new movement for voting rights in the summer of 1920, and it’s a struggle they will wage alone because now the organizations that had led the movement for women’s suffrage were then disbanding.
Voting today is happening because of our strong grandmothers great grandmothers and great great grandmothers who stood up to others holding them back
They were jailed , beaten when all because they voiced their opinions all for wanting to be included.
People wanted to silence them because of their own fears. ‘The Night of terror’: The suffragists who were beaten and tortured for seeking the vote. The women were clubbed, beaten and tortured by the guards at the Occoquan Workhouse. … The suffragists dubbed their treatment Nov. 14, 1917, as the “Night of Terror,” and it helped galvanize public support of the suffrage movement.
These brave selfless independent women were thinking and fighting for the future generations of women. And so today it is our duty to honor their fight and go and vote for what ever candidate you identify with and their policies.
Personally I don’t care who you vote for. Just vote.
We needed their example and because of the suffragists we women all over this great nation get to vote.
They ( men and many women alike) didn’t think women should be involved in politics.
We women have come a long way and yet still have a long way to go.
No matter if we agree or disagree on whom to vote for the important thing is to vote.
It’s the most and least we can do for our country.
To all these young women who get to vote for the first time today co congratulations and thank you for doing your part.
The male guards at the Northern Virginia prison manacled the party’s co-founder Lucy Burns by her hands to the bars above her cell and forced her to stand all night. Dorothy Day, who would later establish the Catholic Worker houses, had her arm twisted behind her back and was slammed twice over the back of an iron bench.
The guards threw suffragist Dora Lewis into a dark cell and smashed her head against an iron bed, knocking her out. Lewis’s cellmate, Alice Cosu, believing Lewis dead, suffered a heart attack and was denied medical care until the next morning.
The suffragists dubbed their treatment Nov. 14, 1917, as the “Night of Terror,” and it helped galvanize public support of the suffrage movement.
So many women and men live with this painful disease and now maybe a confirmation via blood test is not to far off.
What is fibromyalgia?
Fibromyalgia (fi·bro·my·al·gi·a) is a condition that causes pain all over the body (also referred to as widespread pain), sleep problems, fatigue, and often emotional and mental distress. People with fibromyalgia may be more sensitive to pain than people without fibromyalgia. This is called abnormal pain perception processing. Fibromyalgia affects about 4 million US adults, about 2% of the adult population. The cause of fibromyalgia is not known, but it can be effectively treated and managed.
What are the signs and symptoms of fibromyalgia?
The most common symptoms of fibromyalgia are
Pain and stiffness all over the body
Fatigue and tiredness
Depression and anxiety
Problems with thinking, memory, and concentration
Headaches, including migraines
Other symptoms may include:
Tingling or numbness in hands and feet
Pain in the face or jaw, including disorders of the jaw known as temporomandibular joint syndrome (also known as TMJ)
Digestive problems, such as abdominal pain, bloating, constipation, and even irritable bowel syndrome (also known as IBS)
What are the risk factors for fibromyalgia?
Known risk factors include:
Age. Fibromyalgia can affect people of all ages, including children. However, most people are diagnosed during middle age and you are more likely to have fibromyalgia as you get older.
Lupus or Rheumatoid Arthritis. If you have lupus or rheumatoid arthritis (RA), you are more likely to develop fibromyalgia.
Some other factors have been weakly associated with the onset of fibromyalgia, but more research is needed to see if they are real. These possible risk factors include:
Sex. Women are twice as likely to have fibromyalgia as men.
Stressful or traumatic events, such as car accidents, post-traumatic stress disorder (PTSD)
Repetitive injuries. Injury from repetitive stress on a joint, such as frequent knee bending.
October is National Domestic Violence Awareness Month today we learn about Power and Control
Domestic violence is a pattern of behaviors used to gain or maintain power and control. At The Hotline, our frame of reference for describing abuse is the Power and Control Wheel developed by the Domestic Abuse Intervention Project in Duluth, MN. In the diagram below, the Power and Control Wheel assumes she/her pronouns for the victim and he/him pronouns for the perpetrator, but the abusive behavior that it details can happen to people of any gender or sexuality.
The wheel serves as a diagram of tactics that an abusive partner uses to keep their victims in a relationship. The inside of the wheel is made up of subtle, continual behaviors over time, while the outer ring represents physical and sexual violence. Abusive actions like those depicted in the outer ring often reinforce the regular use of other, more subtle methods found in the inner ring.
What is the difference between Influenza (Flu) and COVID-19?
Influenza (Flu) and COVID-19 are both contagious respiratory illnesses, but they are caused by different viruses. COVID-19 is caused by infection with a new coronavirus (called SARS-CoV-2) and flu is caused by infection with influenza viruses.
There are some key differences between Flu and COVID-19.
COVID-19 seems to spread more easily than flu and can cause more serious illnesses in some people. It can also take longer before people show symptoms and people can be contagious for longer. Another important difference is there is a vaccine to protect against flu. There is currently no vaccine to prevent COVID-19. The best way to prevent infection is to avoid being exposed to the virus. More information about differences between flu and COVID-19 is available in the different sections below.
Because some of the symptoms of flu and COVID-19 are similar, it may be hard to tell the difference between them based on symptoms alone, and testing may be needed to help confirm a diagnosis. Flu and COVID-19 share many characteristics, but there are some key differences between the two.
While more is learned every day, there is still a lot that is unknown about COVID-19 and the virus that causes it. This page compares COVID-19 and flu, given the best available information to date.
Both COVID-19 and flu can have varying degrees of signs and symptoms, ranging from no symptoms (asymptomatic) to severe symptoms. Common symptoms that COVID-19 and flu share include:
Fever or feeling feverish/chills
Shortness of breath or difficulty breathing
Runny or stuffy nose
Muscle pain or body aches
Some people may have vomiting and diarrhea, though this is more common in children than adults
Flu viruses can cause mild to severe illness, including common signs and symptoms listed above.
How long someone can spread the virus that causes COVID-19 is still under investigation.
It’s possible for people to spread the virus for about 2 days before experiencing signs or symptoms and remain contagious for at least 10 days after signs or symptoms first appeared. If someone is asymptomatic or their symptoms go away, it’s possible to remain contagious for at least 10 days after testing positive for COVID-19.
Both COVID-19 and flu can spread from person-to-person, between people who are in close contact with one another (within about 6 feet). Both are spread mainly by droplets made when people with the illness (COVID-19 or flu) cough, sneeze, or talk. These droplets can land in the mouths or noses of people who are nearby or possibly be inhaled into the lungs.
It may be possible that a person can get infected by physical human contact (e.g. shaking hands) or by touching a surface or object that has virus on it and then touching his or her own mouth, nose, or possibly their eyes.
Both flu virus and the virus that causes COVID-19 may be spread to others by people before they begin showing symptoms, with very mild symptoms or who never developed symptoms (asymptomatic).
While COVID-19 and flu viruses are thought to spread in similar ways, COVID-19 is more contagious among certain populations and age groups than flu. Also, COVID-19 has been observed to have more superspreading events than flu. This means the virus that causes COVID-19 can quickly and easily spread to a lot of people and result in continuous spreading among people as time progresses.
While remdesivir is an antiviral agent that is being explored as a treatment for COVID-19 and is available under an Emergency Use Authorization (EUA), there are currently no drugs or other therapeutics approved by the Food and Drug Administration (FDA) to prevent or treat COVID-19. Studies are in progress to learn more.
Can you feel that storm coming in your knees? Back pain increases with a cold front? So can lots of people with arthritis. Some doctors think that these stories of weather causing joint pain are old wives’ tales, but science is backing up the phenomenon.
Are You Weather Sensitive?
Some people are definitely more sensitive to weather and specifically the changes in the weather than others. .
So it is more important that we take steps now to limit the onset of more pain and potential and joint damage. Here are a few helpful ways to try and
limit our seasonal symptoms:
• Increase vitamin consumption—a good diet is foundational to your fight against joint pain and damage, but diet may not be enough. Some studies suggest that arthritis patients don’t get enough Vitamin D, so it is important to load up on Vitamin D-rich foods. Many experts recommend that you take pill supplements of Vitamins D, E, A and K for optimal joint health.
• Stay hydrated I am terrible at getting enough water especially if it’s cooler dehydration puts unnecessary stress on our joints. Drinking liquids regularly ensures that there is enough lubricant in your joints and that your joint tissue is operating at peak performance. There is also some evidence that lack of hydration may make you more sensitive to pain.
• Remain warm—it is important to keep your joints as protected from the cold as possible. Wear extra layers when going outside to mitigate any damage the cold may inflict on you. I personally love Thermacare Heat wraps I buy them in bulk because when winter hits this is the only thing I truly can count on to keep my joints warm for hours . I put one on and go shopping a small walk and don’t feel as if my joints are going to snap.
• Maintain activity levels—you may not feel like going for a walk in a rain or snow storm, but you should still keep active. Lack of use can lock up joints and aggravate pain symptoms, so continue with your stationary bike or yoga even in the cold weather months.
• Warm water—whether it is swimming in a heated pool or soaking a hot bath, water can do wonders for your joints. The penetrating warmth can loosen stiff joints and alleviate joint pain. After soaking, gradually re-acclimate to the cold to prevent a shock to your system.No doubt I miss taking a bath so for me a warm shower also helps.
• OTC medications—depending on how severe your joint pain is, your doctor may recommend over-the counter medications like Tylenol or aspirin. Many of these medications can prove just as effective at relieving pain and inflammation as more potent prescription drugs. Always discuss all of the drugs you take with your physician beforehand. And now they have Voltaren gel sold over the counter to rub on sore bones.
• Massage therapy—many patients suffer from muscle pain as well as pain from their joints. Long-term pain can produce muscle contractions, but a massage can help relax tense muscles as well as stiff joints. There is also a powerful endorphin rush following a massage that will provide considerable pain relief.
• Restful sleep—many people experience changes in sleep patterns when the day shortens or lengthens. Maintaining a restful sleep schedule is critical to healthy joints and pain mitigation. Stick to your regular sleep schedule as much as possible. If you are having difficulty, discuss your remedy options with your doctor.
• Physical therapy—if you are not already seeing a physical therapist for your joint health, then a new season may be the ideal time. Not only will you learn more about how to limit joint damage and optimize your health, but the therapy sessions should improve your joint function and pain symptoms.
• Remember Always talk to your pcp or ortho before starting or stopping anything new.
Disclaimer this blog is for entertainment purposes only and is never to be taken as medical advice.