Posted in Advocate, Awareness

September is Pain Awareness Month

Understanding more about the underlying causes of pain can help improve treatments and alleviate suffering

Each September, pain specialists and advocates across the country raise awareness about issues related to chronic pain during National Pain Awareness Month. Did you know that chronic pain affects more than 100 million Americans. that’s 1/3 of the USA population living with some form of pain.

That to me seems unacceptable. We have in 2021 rejenerative medicine and various treatment options from prolotherapy to prp to A2M to stem cell.

Plus we have many biologics and lets not forget there are still the traditional pain pill that help – yet so many doctors seem to not offer any longer thanks to the US government’s campaign to stop them it’s seems and a special thanks to all those who are addicted to opioids like heroine,fentanyl .

That may sound cruel, but you know there are many responsible people that can take a pain pill and not become addicted.

I also don’t like the US government to interfere with my private doctor patient relationship. The government has no business in my opinion telling doctors what they should be doing.

Understanding more about the underlying causes of pain can help improve treatments and alleviate suffering. Johns Hopkins researchers are working on everything from the molecular causes of pain to the latest advances in pain treatment.

What You Need to Know

  • Nearly 100 million Americans experience chronic pain —more than those who have diabetes, heart disease and cancer combined.
  • Pain is a warning sign that indicates a problem that needs attention.
  • Pain starts in receptor nerve cells located beneath the skin and in organs throughout the body.
  • Living with pain can be debilitating and adversely affect everyday life.

Arthritis

Arthritis refers to over 100 different conditions ranging from autoimmune disease to normal joint inflammation.

Back Pain

According to the National Institutes of Health, eight out of ten people will have back pain at some time in their life.

Headaches

Millions of people get crippling headaches, and there are dozens of different headache types — but receiving the right diagnosis is key to getting the right treatment.

Find a Pain Specialist

You don’t have to live through your pain alone. There are pain centers, programs, and clinics that are made up of teams of specialists who aim to ease your pain, and allow you to live in as much comfort as possible.

Wishing you all a happy blessed and pain free day.

Deb

Posted in Advocate, Awareness, Bone Health

VIM Pain Mgmt App from The Arthritis Foundation

This is a really good app, it’s new released by the arthritis foundation just a couple weeks ago. 

It’s a great way to connect with others that understand what it’s like to live with pain. 

It provides tips to help ease the stress and anxiety that come with chronic pain. 

Discusses various treatments from diet to meditation, to acupuncture to prp and stem cell injections to joint replacement .

The app tries to help those living in pain have options to have a better quality of life. It helps track your pain so you can discuss this with your doctor or surgeon.

It also gives you ways to register to get connected with National and at Some point Local connect groups in your area . All this is free. Ypu can even link to the podcast. 

I am the Facilitator for the Boardman Ohio LIVE Yes Connect. I try to provide support, and patient education via information as well as guest speakers as well as group interaction. 

Right now we are on zoom, but will be at some point back face to face as well as remain on zoom also. I think zoom is good because you can attend right from your hone or work or pulled over in your can. 

That’s why I volunteer for the Arthritis Foundation, they provide so much to so many. 

Give it a try…. one of the best apps I have. 

If you use it. Use the same email as your arthritis.org email for Live Yes Connect. That way you can be up to date and linked to all great things the AF has to offer in one easy app. 

Wishing you all a pain free day

Deb

Posted in Advocate, Arthritis, Awareness, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain

How I Use Meditation and Palming To Help My Pain

So I have been meditating for over 18 months. It has helped me learn to quiet my mind. Focus on my breathing and start taking back some control of my pain.

It sure did pay off last week.

I fell after another bowman lost her balance her cane went sliding and she also grabbed onto me as for me to stop her fall.

That did not happen.

As with any time I am feeling pain I try to meditate the pain away.

Sometimes it works fantastically sometimes it just calms me which is also good.

Here are the steps I take to help meditate my pain away

Step 1: Stabilize your mind

Step 2: Identify the area where you feel pain.

Step 3: Focus your mind to the pain sensation in the area.

Step 4: Notice if the pain sensation changes.

Step 5: If your mind wanders, gently bring your mind back to the object of your meditation, which is a focused awareness on pain.

Mind stabilization can be achieved with mindfulness meditation, described as “a simple mental exercise, which develops mindfulness and concentration by paying attention on a chosen object (for example, taste of food or activity you wish to focus on) and holding the attention for a period of time. Mindfulness meditation does not necessarily require sitting but can be practiced while eating, walking, running, commuting, and doing other activities. This mental exercise also helps develop an ability to sustain mindfulness for prolonged time.”

Here are helpful tips for quieting an unquiet mind:

  • Meditate for only two minutes (gradually move to 3,4,5,15… minutes)
  • Use a timer to remind you of an end of a meditation session.
  • Instead of trying to stop, welcome it whatever arises.
  • If you cannot concentrate on the object of your meditation, pay attention to the thoughts and stories occurring in your mind instead.
  • If you cannot meditate while sitting, meditate while walking,hiking,running,laying down at night, eating etc….

Say to your self

I am

Breathe in I breathe out am – do this a few times then add I am pain free, I am healing, I am well.

When I’m finished doing this for a few minutes at the end I rub my hands together get them warm and gently place the palms of my hands on my eyes. It feels so good. You can then rub your head.

Feeling the energy in your body going to help your pain.

Palming helps the eyes

Palming: Palming, which was originally invented by Tibetan yogis, is done in darkness with the palms cupping the eyes. Palming soothes the optic nerve, which is often irritated. Sit in a darkened room with your elbows leaning on a table. Relax your back and shoulders, rub your hands together vigorously to warm them, then place your palms over your eyes. Don’t press the eye sockets and don’t lean on the cheekbones. Visualize total blackness, the most relaxing color for the brain, and breathe deeply. Let the blackness permeate everything: your eyes, your whole body, the room you sit in, the city, the state, the continent, the planet, the stars, the universe.

You may see all kinds of lights, which is an indication of irritation in the optic nerve. In fact, you may not see total darkness until you have completed several palming sessions. Palm for as long as is comfortable.

Meditation and Palming

I find this not just relaxing but I feel centered , calm , content and I have less pain when I do this 2x a day, for just 10 minutes.

Here are the links I used and still use sometimes

I am – guided meditation by Wayne Dyer https://youtu.be/BoE4QjMiHys

Palming for relaxing and helping eyes

Posted in Advocate, Avascular Necrosis, Awareness, Bone and Joint Health, Bone Health, Osteonecrosis, Patient Leader, Rare, WEGOHealthAwards2019

Having A Rare Condition Stinks: But Being A Patient Advocate Is An Honor

Here’s what really stinks about having something that is called a rare disease/disorder

First you probably won’t find it in any regular medical textbook or learn about it in detail in any medical school.

Really ? Trust me I have looked I stumble on a paragraph here and there, but even it stinks as it lacks real information ,studies.

Secondly you probably won’t find any books you can buy that really tell you about your condition:

So I wrote a booklet it’s about 15 pages and I’m in the process of making it larger.

And ya know what really stinks is –  good luck finding a support group in your local home town.

I’m trying to change all that. I will get into that later.

And because you gave is a condition that in not that known , heard of  or taught about , what stinks is it can take many years before even figuring out what is the cause of this condition.

So it will be classed as idiopathic – There may be years of pain low moderate and severe possibly, possibly blood samples, many doctors that don’t listen to you or that just don’t believe you’re in pain , test after test referral after referral and many give out these clueless stares at you on behalf of specialists before even being diagnosed with a rare disease.

You know they are probably thinking why was I the one to get this patient…I can’t help them he’ll I don’t even know what they have or how they ended up with it.

Because your disease/disorder is rare, you just cannot be an average patient getting treatment or physical therapy.

Usually you end up playing the role of doctor and educator when visiting family or friends hell even seeing some healthcare professionals.

Sure you’re grateful for any opportunity to educate and raise awareness yet it becomes so damn frustrating when you see a medical professional and it appears you know more than they do.

Which brings up the next issue that stinks  – finding a good educated medical professional who knows, really knows about your condition and has actually treated more than a handful of patients in their entire career and one that doesn’t just try to use you as an experiment unless I want too.

Or worse just dismisses you and your concerns and questions.

What I also find frustrating and this really stinks are the doctors that are closed minded, just because they don’t know or understand my condition they are not open to alternative or newer forms of treatment.

I mean it’s not like they are paying for it. Nor did they look any of the research up that I have mentioned or left for them on more than one occasion. They even have the nerve to get passed off when you say you want and will try something new.

There are many things that stink about having a rare condition : But there is  the one thing  that doesn’t  stink about being rare …..  It’s the community we have.

I have a FB support Group for Osteonecrosis- and there are only approximately 12-15000 new cases a year in the USA diagnosed and 50,000 worldwide.

Because we are rare, we stick closely together. My rare  community  is fantastic— both patients and loved ones are fantastic and like our own family— they are the glue that helps me and others when we feel pain, become overwhelmed or just suffer the loss of our mobility, our career because of the condition, a significant other leaves us because they cannot take always seeing many of us in pain or unable to work.

I never planned on starting the support group but after all the things I came across when I was diagnosed I wanted others to have a place of hope, education and information and FB gave me that platform.

Our group now has a booklet we give free to all new members its mailed to them worldwide:

We have a Nationwide Directory with doctors that are educated and experienced in treating Osteonecrosis and some help find out the cause. Our group is working on a worldwide directory as well.

We have guest speakers (orthos, naturopaths, doctors that preform prp and stem cell injections)

I am very proud of our group.

So what is Osteonecrosis you ask?

Osteonecrosis

Osteonecrosis, also known as avascular necrosis (AVN), aseptic necrosis or ischemic bone necrosis, is a disease resulting in the death of bone cells. If the process involves the bones near a joint, it often leads to collapse of the joint surface and subsequent arthritis due to an irregular joint surface. The exact cause is unknown.

Osteonecrosis usually affects people between 30 and 50 years of age; about 12,000 people develop osteonecrosis each year in the United States. 50,000 worldwide.

Osteonecrosis affects both men and women and affects people of all ages. It is most common among people in their thirties and forties. Depending on a person’s risk factors and whether the underlying cause is trauma, it also can affect younger or older people.

 

My very 1st blog post –  Why I became an Advocate and Patient Leader

There is also a link to the booklet in the above post

Here is About Me contains all my links About Me My Links

Link To Avascular Necrosis Osteonecrosis Info AvascularNecrosisEducation.com

I am honored that people actually nominated me for the Wego health awards .

I am up for a few awards from WEGOHealth for my advocacy and there are so many amazing advocates I am blessed to be among them.

WEGOHealth Award Nomination Please Vote

Thank You

Deborah L. Andio

wwwChronicallyGratefulDebla.com

 

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