Face mask awareness

Many asked to get them for awareness so here they are  Osteonecrosis Avascular Necrosis Awareness  Masks and where to find them. Afterburner FX  Hubbard Ohio  Ribbon AVN mask  Or Skull AVN Mask Afterburner FX  I make nothing off of their sale just want to do my part to get awareness masks out there. They areContinue reading “Face mask awareness”

Official Proclamation Avascular Necrosis -Osteonecrosis Awareness Day is November 29,2019 and every year after.

Finally Avascular Necrosis-Osteonecrosis has an official awareness date. The date is November 29 I have been working on proclamations for several months and I am in the process of getting the awareness day Nationally recognized as well. I have been advocating for over 5 years on Avascular Necrosis -Osteonecrosis and I am proud and gratefulContinue reading “Official Proclamation Avascular Necrosis -Osteonecrosis Awareness Day is November 29,2019 and every year after.”

Having A Rare Condition Stinks: But Being A Patient Advocate Is An Honor

Here’s what really stinks about having something that is called a rare disease/disorder First you probably won’t find it in any regular medical textbook or learn about it in detail in any medical school. Really ? Trust me I have looked I stumble on a paragraph here and there, but even it stinks as itContinue reading “Having A Rare Condition Stinks: But Being A Patient Advocate Is An Honor”

Could use your assistance

I need you to help me get to my goal Link For Petition2Congress To Make October Osteonecrosis Awareness Month I have started a petition to get the rare disease Osteonecrosis recognized by asking for an awareness month week or day. If they won’t allow a month. I could use as many supporters as possible toContinue reading “Could use your assistance”

Understanding Bone Marrow Edema-Linked To Osteonecrosis

Good Morning Pain Warriors Around The World It is time to educate on the various causes of Avascular Necrosis-Osteonecrosis So twice a week we will post some educational info on a cause with links Today Its Bone Marrow Edema What is Bone Marrow Edema? Bone marrow edema is a condition when excess fluids in the… Continue Reading →

Osteonecrosis of the Knee

Osteonecrosis of the Knee I have Avascular Necrosis “AVN” or Osteonecrosis “ON” are the terms used to describe parts of your bones that die. Most commonly this occurs in the knee shoulder and hip, but also can occur in the ankle and other bones and joints including the jaw. I was diagnosed with Osteonecrosis inContinue reading “Osteonecrosis of the Knee”

High Heels When You Have Bone Problems

Not the best idea I had, but let’s be real I’m 5’3 and I needed to wear heels 👠 or my pants would be dragging all over the floor. Also I can fudge my way through hemming pants but I’d do much better if I owned a sewing machine. But I since I wore theseContinue reading “High Heels When You Have Bone Problems”

Joint Pain

 Congratulations !  If you’re like me you are one of the 30 million adults in the United States who suffer with joint pain, you know the pain often is debilitating. It can keep you from staying active and limits your mobility and it even makes daily chores seem impossible. What you might not know isContinue reading “Joint Pain”

What Is Bone Marrow & What Does It Actually Do?

Ever since I was diagnosed with several bone problems I have become fascinated by the human body and the bones are just a small portion of just how marvelous our body is. Science is  constantly making new discoveries about the human body. Fact: Did you know The Smallest Bone in the Human Body is inContinue reading “What Is Bone Marrow & What Does It Actually Do?”

Steinberg Stages

Many who suffer with Avascular Necrosis-Osteonecrosis are unaware of the many stages the disease progresses to This will be helpful so the patient and doctor can have a better idea if what form of treatment or surgical procedure would be best for the patient. As a patient myself with Osteonecrosis in my knee I makeContinue reading “Steinberg Stages”

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today. Here’s how you can also nominate others who educate, advocate and make a difference! Click link below WEGOHealth Awards and Nomination Info WEGOHealth Awards LinkContinue reading “WEGOHealth Awards and How to Nominate Others”

Breathing and Prayer For Wellness

Are on the verge of a meltdown, your feeling an impulsive urge to yell, scream, cry,? Do you know that every time you lose your cool, you are giving away your power.  I know it’s often easier said than done But, when we react impulsively and unconsciously we become a victim of the circumstances; weContinue reading “Breathing and Prayer For Wellness”

The Food Your Eating Could Be Making Your Pain Worse.

Before you take one more bite or swing into that fast food place stop and consider how it affects your health. I have osteoarthritis (OA) and Osteonecrosis and what I eat definitely effects my levels of pain and inflammation. So I started to help myself by eating mostly plant based but I am a flexitarian.Continue reading “The Food Your Eating Could Be Making Your Pain Worse.”