Official Proclamation Avascular Necrosis -Osteonecrosis Awareness Day is November 29,2019 and every year after.

Finally Avascular Necrosis-Osteonecrosis has an official awareness date. The date is November 29 I have been working on proclamations for several months and I am in the process of getting the awareness day Nationally recognized as well. I have been advocating for over 5 years on Avascular Necrosis -Osteonecrosis and I am proud and grateful... Continue Reading →

Rare Conditions Stink: But Being A Patient Leader & Advocate Is An Honor

Here’s what really stinks about having something that is called a rare disease/disorder First you probably won’t find it in any regular medical textbook or learn about it in detail in any medical school. Really ? Trust me I have looked I stumble on a paragraph here and there, but even it stinks as it... Continue Reading →

Could use your assistance

I need you to help me get to my goal Link For Petition2Congress To Make October Osteonecrosis Awareness Month I have started a petition to get the rare disease Osteonecrosis recognized by asking for an awareness month week or day. If they won't allow a month. I could use as many supporters as possible to... Continue Reading →

Osteonecrosis of the Knee

Osteonecrosis of the Knee I have Avascular Necrosis “AVN” or Osteonecrosis “ON” are the terms used to describe parts of your bones that die. Most commonly this occurs in the knee shoulder and hip, but also can occur in the ankle and other bones and joints including the jaw. I was diagnosed with Osteonecrosis in... Continue Reading →

Joint Pain

 Congratulations !  If you’re like me you are one of the 30 million adults in the United States who suffer with joint pain, you know the pain often is debilitating. It can keep you from staying active and limits your mobility and it even makes daily chores seem impossible. What you might not know is... Continue Reading →

Steinberg Stages

Many who suffer with Avascular Necrosis-Osteonecrosis are unaware of the many stages the disease progresses to This will be helpful so the patient and doctor can have a better idea if what form of treatment or surgical procedure would be best for the patient. As a patient myself with Osteonecrosis in my knee I make... Continue Reading →

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