Giving Tuesday

Today is GIVING TUESDAY and I want everyone to research a charity before just giving to one. Some charities no longer seem to be running. Example The NONF - which I used to donate and be a member of Since 2017 they haven’t filed a tax return so they are no longer active So I... Continue Reading →

Thank You Proud Moment

Thank you to Youngstown Ohio Mayor Jamael Tito Brown and Senator Michael Rulli and Senate President Larry Obhof What an honor Help me raise awareness today and please like and share this post. Thank You. 1st annual #AvascularNecrosis #Osteonecrosis #AwarenessDay #November29 https://www.vindy.com/news/local-news/2019/11/city-state-recognize-poland-woman-with-rare-disease/

My Favorite Things Gift Guide Adults

Gift Guide at all price points My Favorite Things Under 100.00Tory Burch Foundation Seed Box Gift them something that gives back with Tory Burch's annual Seed Box. The limited-edition box features a curated selection of products made by female entrepreneurs—including a scarf designed by Tory Burch—all packaged in a pretty floral box so you can... Continue Reading →

Meet Julie Croner

To Our Dear Readers Often being diagnosed with a rare disease is not easy , it can often  leave you feeling alienated  exhausted and at times discouraged. We often end up having more questions than answers.   There also is very little to no public attention when you have a rare disease/disorder such as fun... Continue Reading →

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