Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Cancer, Cardiovascular, Chronic Pain, Coping with Stress, Disclaimer, Ease your Stress, Energy, Happiness, Inflammation, Life, Meditation, Mindfulness, Pain, Sleep Better, Thoughts, Uncategorized

Relax and Help Pain & Anxiety Through Various Techniques

I used to be stressed all the time. Especially when trying to manage life with one or two chronic conditions.

Now it’s occasional stress and pain all depends…..

But I have found some relief and I believe it’s because I have learned to relax using a variety of methods. My favorite is breathing 4-7-8 I read about this from Dr Andrew Weil .

This is followed by the five-step procedure listed below:

1 Exhale completely through your mouth, making a whoosh sound.

2 Close your mouth and inhale quietly through your nose to a mental count of four.

3 Hold your breath for a count of seven.

4 Exhale completely through your mouth, making a whoosh sound to a count of eight.

5 This is one breath. Now inhale again and repeat the cycle three more times for a total of four breaths.

Dr Andrew Weil emphasizes the most important part of this process is holding your breath for eight seconds. This is because keeping the breath in will allow oxygen to fill your lungs and then circulate throughout the body. It is this that produces a relaxing effect in the body.

I personally find it relaxing and you can use it anytime you feel stress and or anxiety.

I’ve tried a few things and this is the topic for today.

Daily I use

I use breathing 4-7-8i

I also am grateful for everything

Weekly

EFT Tapping (more about that below)

I also practice mindful meditation a few days a week when I walk especially.

I want to share with you ways that helped me, and maybe they can help you.

Make sure you get the ok from your doctor before starting anything new.

Relaxation Techniques
Using the Relaxation Response to Relieve Stress

For many of us, relaxation means zoning out in front of the TV at the end of a stressful day. But this does little to reduce the damaging effects of stress that add to disease and poor health. To effectively combat stress, we need to activate our body’s natural relaxation response.

You can do this by learning and practicing relaxation techniques such as deep breathing, meditation, rhythmic exercise, and yoga.

Adding one or all of these activities into your life can help really reduce your everyday stress, and it will boost your mood, and improve your mental focus and physical health.

What is the relaxation response?
When stress overwhelms your nervous system, your body is flooded with chemicals that prepare you for “fight or flight.

Your stress response can be lifesaving in emergency situations where you need to act quickly. But when it’s constantly activated by the stresses of everyday life, it can wear your body down and take a toll on your-health both physical and emotional.

I was at my Naturopath’s a few months ago and she did what she called tapping. I felt this sense of peace and relief, like a huge weight was lifted from my shoulder.

If you’re like me and many other people, you feel trapped, whether it’s due to daily stress , work or school stress, family stress , stress that comes with having a chronic condition etc…we all can get caught in this cycle. The Stress Cycle

You’re tired of feeling sad, depressed, anxious, discontent, and unwell. You’re sick of the expensive and ineffective treatments. You’re fed up with relinquishing the power over your health and happiness to doctors.

You want to be your best, living a life that is filled with peacefulness, joy, and fulfillment, from day to day and moment to moment.

Tapping

Meditation

Yoga

Deep Breathing

These can all help I will post some links below to help you learn more.

No one can avoid all stress, but you can learn to how to counteract its detrimental effects in the body mind and spirit.

The relaxation response puts the brakes on stress and brings your body and mind back into a state of equilibrium.

When the relaxation response is activated, your:
heart rate slows down
breathing becomes slower and deeper
blood pressure drops or stabilizes
muscles relax
blood flow to the brain increases

In addition to its calming physical effects, the relaxation response also increases energy and focus, combats illness, relieves aches and pains, heightens problem-solving abilities, and boosts motivation and productivity. Best of all, anyone can reap these benefits with regular practice.

There is no single relaxation technique that is best for everyone. The right relaxation technique is the one that resonates with you, fits your lifestyle, and is able to focus your mind and interrupt your everyday thoughts to elicit the relaxation response.

You may even find that alternating or combining different techniques provide the best results.
How you react to stress may also influence the relaxation technique that works best for you:

The “fight” response. If you tend to become angry, agitated, or keyed up under stress, you may respond best to stress relief activities that quiet you down, such as meditation, progressive muscle relaxation, deep breathing, or guided imagery.

The “flight” response. If you tend to become depressed, withdrawn, or spaced out under stress, you may respond best to stress relief activities that areenergize your nervous system, such as rhythmic exercise, massage, mindfulness, or power yoga.

The immobilization response. If you’ve experienced some type of trauma and tend to “freeze” or become “stuck” under stress, your challenge is to first rouse your nervous system to a fight or flight response (above) so you can employ the applicable stress relief techniques. To do this, choose physical activity that engages both your arms and legs, such as running, dancing, or tai chi, and perform it mindfully, focusing on the sensations in your limbs as you move.

Deep breathing
With its focus on full, cleansing breaths, deep breathing is a simple yet powerful relaxation technique. It’s easy to learn, can be practiced almost anywhere, and provides a quick way to get your stress levels in check. Deep breathing is the cornerstone of many other relaxation practices, too, and can be combined with other relaxing elements such as aromatherapy and music. All you really need is a few minutes and a place to stretch out.

How to practice deep breathing

The key to deep breathing is to breathe deeply from the abdomen, getting as much fresh air as possible in your lungs. When you take deep breaths from the abdomen, rather than shallow breaths from your upper chest, you inhale more oxygen. The more oxygen you get, the less tense, short of breath, and anxious you feel.
Sit comfortably with your back straight. Put one hand on your chest and the other on your stomach.
Breathe in through your nose. The hand on your stomach should rise. The hand on your chest should move very little.
Exhale through your mouth, pushing out as much air as you can while contracting your abdominal muscles. The hand on your stomach should move in as you exhale, but your other hand should move very little.
Continue to breathe in through your nose and out through your mouth. Try to inhale enough so that your lower abdomen rises and falls. Count slowly as you exhale.
If you find it difficult breathing from your abdomen while sitting up, try lying down. Put a small book on your stomach, and breathe so that the book rises as you inhale and falls as you exhale.

Mindfulness meditation
Rather than worrying about the future or dwelling on the past, mindfulness meditation switches the focus to what’s happening right now, enabling you to be fully engaged in the present moment.

By focusing your attention on a single repetitive action, such as your breathing, other forms of mindfulness meditation encourage you to follow and then release internal thoughts or sensations. Mindfulness can also be applied to activities such as walking, exercising, or eating.
A basic mindfulness exercise:
1. Sit on a straight-backed chair or cross-legged on the floor.
2. Focus on an aspect of your breathing, such as the sensation of air flowing into your nostrils and out of your mouth, or your belly rising and falling.
3. Once you’ve narrowed your concentration in this way, begin to widen your focus. Become aware of sounds, sensations, and thoughts.
4. Embrace and consider each thought or sensation without judging it good or bad. If your mind starts to race, return your focus to your breathing. Then expand your awareness again.

Rhythmic movement and mindful exercise
The idea of exercising may not sound particularly soothing, but rhythmic exercise that gets you into a flow of repetitive movement can be very relaxing. Examples include:
Running
Walking
Swimming
Dancing
Rowing
Climbing
For maximum stress relief, add mindfulness to your workout
While simply engaging in rhythmic exercise will help you relieve stress, if you add a mindfulness component on top, you’ll get even more benefit.
As with meditation, mindful exercise requires being fully engaged in the present moment—paying attention to how your body feels right now, rather than your daily worries or concerns. In order to “turn off” your thoughts, focus on the sensations in your limbs and how your breathing complements your movement.
If you’re walking or running, for example, focus on the sensation of your feet touching the ground, the rhythm of your breath, and the feeling of the wind against your face. If your mind wanders to other thoughts, gently return to focusing on your breathing and movement.
Visualization
Visualization, or guided imagery, is a variation on traditional meditation that involves imagining a scene in which you feel at peace, free to let go of all tension and anxiety. Choose whatever setting is most calming to you, whether it’s a tropical beach, a favorite childhood spot, or a quiet wooded glen.
You can practice visualization on your own or with a therapist (or an audio recording of a therapist) guiding you through the imagery. You can also choose to do your visualization in silence or use listening aids, such as soothing music or a sound machine or recording that matches your chosen setting—the sound of ocean waves if you’ve chosen a beach, for example.
Practicing visualization
Close your eyes and imagine your restful place. Picture it as vividly as you can—everything you can see, hear, smell, taste, and feel.

Just “looking” at it like you would a photograph is not enough. Visualization works best if you incorporate as many sensory details as possible.
For example, if you are thinking about a dock on a quiet lake:
See the rise or set
Hear the birds singing
Smell the pine trees
Feel the cool water on your bare feet
Taste the fresh, clean air
Enjoy the feeling of your worries drifting away as you slowly explore your restful place. When you are ready, gently open your eyes and come back to the present.
Don’t worry if you sometimes zone out or lose track of where you are during a visualization session. This is normal. You may also experience feelings of heaviness in your limbs, muscle twitches, or yawning. Again, these are normal responses.
Yoga and tai chi
Yoga involves a series of both moving and stationary poses, combined with deep breathing. As well as reducing anxiety and stress, yoga can also improve flexibility, strength, balance, and stamina. Since injuries can happen when yoga is practiced incorrectly, it’s best to learn by attending group classes, hiring a private teacher, or at least following video instructions. Once you’ve learned the basics, you can practice alone or with others, tailoring your practice as you see fit.

If you’re unsure whether a specific yoga class is appropriate for stress relief, call the studio or ask the teacher.
Tai chi
If you’ve seen a group of people in the park slowly moving in synch, you’ve probably witnessed tai chi. Tai chi is a self-paced, non-competitive series of slow, flowing body movements. By focusing your mind on the movements and your breathing, you keep your attention on the present, which clears the mind and leads to a relaxed state.
Tai chi is a safe, low-impact option for people of all ages and fitness levels, including older adults and those recovering from injuries. As with yoga, it’s best learned in a class or from a private instructor. Once you’ve learned the basics, you can practice alone or with others.
Self-massage
You’re probably already aware how much a professional massage at a spa or health club can help reduce stress, relieve pain, and ease muscle tension. What you may not be aware of is that you can experience many of the same benefits at home or work by practicing self-massage—or trading massages with a loved one.
Try taking a few minutes to massage yourself at your desk between tasks, on the couch at the end of a hectic day, or in bed to help you unwind before sleep. To enhance relaxation, you can use aromatic oil, scented lotion, or combine self-message with mindfulness or deep breathing techniques.

Start a regular relaxation practice
Learning the basics of these relaxation techniques takes regular practice to truly harness their stress-relieving power.

Most stress experts recommend setting aside at least 10 to 20 minutes a day for your relaxation practice I mean we surely can find 10 minutes….If you’d like to maximize the benefits, work toward 30 minutes to an hour…I am still working on this myself. I’m good for 15 minutes.

Tips for making relaxation techniques part of your life
Set aside time in your daily schedule. If possible, schedule a set time once or twice a day for your practice.

If your schedule is already packed, remember that many relaxation techniques can be practiced while you’re doing other things.

Try meditating while commuting on the bus or train, taking a yoga or tai chi break at lunchtime, or practicing mindful walking while exercising your dog.

Just don’t practice this stuff when you’re sleepy. These techniques are so relaxing that they can make you very sleepy I have fallen asleep many times when learning to meditate or use sounds to help me relax.

However, you will get the most benefit if you practice when you’re fully alert.

Expect ups and downs. Don’t be discouraged if you skip a few days or even a few weeks. Just keep trying.

If you exercise, improve the relaxation benefits by adopting mindfulness, try focusing your attention on your body. If you’re resistance training, for example, focus on coordinating your breathing with your movements and pay attention to how your body feels.

Now tapping this provides relief from chronic pain, emotional problems, disorders, addictions, phobias, post traumatic stress disorder, and physical diseases. I read Tapping is newly set to revolutionize the field of health and wellness, the healing concepts that it’s based upon have been in practice in Eastern medicine for over 5,000 years.

Like acupuncture and acupressure, Tapping is a set of techniques which utilize the body’s energy meridian points. You can stimulate these meridian points by tapping on them with your fingertips – literally tapping into your body’s own energy and healing power.

The basic technique requires you to focus on the negative emotion at hand: a fear or anxiety, a bad memory, an unresolved problem, or anything that’s bothering you. While maintaining your mental focus on this issue, use your fingertips to tap 5-7 times each on 12 of the body’s meridian points.

Tapping on these meridian points – while concentrating on accepting and resolving the negative emotion – will access your body’s energy, restoring it to a balanced state.

You may be wondering about these meridians.

Put simply, energy circulates through your body along a specific network of channels. You can tap into this energy at any point along the system.

This concept comes from the doctrines of traditional Chinese medicine, which referred to the body’s energy as “ch’i.” In ancient times, the Chinese discovered 100 meridian points. They also discovered that by stimulating these meridian points, they could heal.

Call it energy, call it the Source, call it life force, call it ch’i… Whatever you want to call it, it works.

In some ways, Tapping is similar to acupuncture.

Like Tapping, acupuncture achieves healing through stimulating the body’s meridians and energy flow.

However, unlike Tapping, acupuncture involves needles! “No needles” is definitely one of the advantages of Tapping.

Here is a video of how to begin tapping to ease pain another video is to help anxiety

For Pain Relief. https://youtu.be/5hYE0Wt4Sxs,

https://youtu.be/tQRQn1NpkzA ,

Tapping PainRelief

Pain relief Tap version 2

All About EFT Tapping https://youtu.be/ZfZBHWSbrsg

Tapping helps to heal-many parts of your life TEDx

TEDx Tapping https://youtu.be/ZfZBHWSbrsg

Some other links for meditation

Meditation For Pain https://youtu.be/r3qBlVfPzXo

Tibetan Sounds Meditation https://youtu.be/RgqxZU6_qOY

Help chronic pain and disease https://youtu.be/gaY4m00wXpw

Yoga for beginners with disabilities Yoga if disabled https://youtu.be/tyeMFy9KkTY

Posted in Awareness, Disclaimer, Energy, Happy New Year, Mindfulness

Digital Detox For 2018

Digital Detox For 2018

Don’t let cell phones run your life and unplug once in awhile.

Learn to put that cell phone down and live in the present.

Stop worrying about what everyone else is doing on social media and enjoy your life right now.

Turn off your notifications for most if not all apps.

You must get detached from your cell phone.

Balance your life improves health

Get rid of toxic people on social media. People you follow who you think are your friends and really are not unfollow or unfriend them.

Get rid of all those fb pages you liked.

Rules to have a better quality of life and better sleep.

1-No phone in bedroom unless an emergency

2-No phone use while eating dinner

3-Shut your phone off for 30 minutes to 1 hour a day. To focus on you read a good book, meditate, exercise color, take a relaxing bath ……

Put the phone down

Apps that help you

1-Digital detach-Tracks your usage …do you even realize how much your on that phone and social media???

2- Onward

Go for a walk or clean the house without your phone being right there.

When you ignore the people near you to talk and view what people are doing far away you may have a problem

High School,College, Parents when you are so attached to your cell phone you ignore people around you means you have a problem.

But….. it’s effecting HS and College Kids because it’s making them more reliant on virtual communication while inhibiting their ability to converse in person. 

Meaning they can’t communicate well face to face !!

While the practicality of cell phones is unparalleled, the reliance students have on them is unhealthy.

Nomophobia is a term abbreviated from the phrase “no mobile-phone phobia,” meaning “fear of being without a mobile device, or beyond mobile phone contact.”

Posted in Ancestry, Disclaimer, exercise, History, Meditation, Mindfulness, Thank You, Thoughts, Uncategorized, Weather, Winter

A Treasure In My Home Town- A Need Your Vote

I love Millcreek Park

It’s located in Youngstown Ohio-and I Love Lanterman’s Mill

Link to vote for my photo

Link to vote

http://woobox.com/bq82rg/gallery/bXZRTqzp9Kc

Voting ends 12/20/2017

Lanterman’s Mill One of Mahoning County’s most historic landmarks, Lanterman’s Mill was built in 1845-46 by German Lanterman and Samuel Kimberly. Restored in 1982-85 through a gift from the Ward and Florence Beecher Foundations, this community treasure represents one of the many pioneer industries developed along Mill Creek and operates today as it did in the 1800s, grinding corn, wheat, and buckwheat.

Visit Lanterman’s Mill and step into the past. Observe the pioneer ingenuity involved in the early production of meal and flour, smell the sweet aroma of freshly ground grains, and feel the rumbling vibrations of the massive stones as the various grains are ground. You can also Browse the gift shop located in the Mill to find unique items and charming wares made by local artisans. They have stone-ground cornmeal, buckwheat, and whole wheat flour that are preservative-free and can be purchased in the gift shop and at local participating stores.

You can Call them at 330.740.7115 for information regarding their stone-ground flours and meal. Download a brochure for delicious recipes using your Lanterman’s Mill products.

Here’s a picture I took today while walking. My walk wasn’t to long today because it was only 15 degrees Fahrenheit out.

And a quick video.

Photo and video taken by me

Deborah Andio

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Food, Food Is Thy Medicine, Foodie, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Pain, SPONK, StopTheClot, Thyroid

Pain Chronic Pain

Once we accept the reality of the current moment (no matter how unpleasant it may be) for what it is, and not what we wish it were, we can turn our attention to ways to improve it. This I find true in any situation.

Living with chronic pain can throw your life upside down.

It’s hard to believe that I can and have managed my rare disease Osteonecrosis (knee) pain. And my Osteoarthritis pain.

But the pain of spondylolisthesis somedays is truly unbearable. It can just take a fabulous day day and screw it all up.

Today is one of those days.

I try to stay busy , and positive when I really would like to go somewhere and just scream at the top of my lungs.

I don’t think my neighbors would appreciate it. So I bang away at the keyboard.

Since the weather in NE Ohio has changed I am having more and more days in pain.

And in the days when all the above hurt I’m down right miserable. Thank Hod that hasn’t happened yet , but then fall and winter have only begun….

I’m grateful today it’s just my back although it feels as if I have been kicked in my L5S1 several times.

Besides having spondylolisthesis I also for the past decade or longer been dealing with osteoarthritis and osteonecrosis since 2014.

If you don’t know what they are I will explain below.

Osteoarthritis

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

In normal joints, a firm, rubbery material called cartilage covers the end of each bone. Cartilage provides a smooth, gliding surface for joint motion and acts as a cushion between the bones. In OA, the cartilage breaks down, causing pain, swelling and problems moving the joint. As OA worsens over time, bones may break down and develop growths called spurs. Bits of bone or cartilage may chip off and float around in the joint. In the body, an inflammatory process occurs and cytokines (proteins) and enzymes develop that further damage the cartilage. In the final stages of OA, the cartilage wears away and bone rubs against bone leading to joint damage and more pain.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85. Lucky me I developed Osteoarthritis at age 45.

One in 12 people 60 years or older have hand OA.

Osteonecrosis What it is….

Osteonecrosis of the Knee. Osteonecrosis of the knee (also known as avascular necrosis) and if in the knee from a meniscus tear also called Ahlbacks Disease is a painful condition that occurs when the blood supply to a section of bone in the femur (thighbone) or tibia (shinbone) is disrupted.

I have Osteonecrosis of the medial femoral condyle due to a meniscus tear in 2014. Strange no one wanted to fix it or have any treatment plan.

This pain is like no other. Your area of Osteonecrosis is ice cold yet it often can feel like it was hit by a lightening bolt.

Weather plays a huge factor for me and my pain. I used to love winter now I can barely tolerate a cool fall day. I dread winter.

I get sick of being in pain. If it’s not the knees it’s back or hands it’s just enough to jack up my day or make things more difficult than they already are.

I have found that plant based lifestyle has helped my osteoarthritis and osteonecrosis a lot. I can’t understand why I haven’t lost a ton of weight though. I mean I don’t eat half the unhealthy calories I used to . But hey the doctors says it’s a slow thyroid.

I just wish these 40 lbs would come off it would also help my bones.

But maybe that will just take time.

If you haven’t tried a plant based lifestyle I would highly recommend it.

My cholesterol numbers are fantastic and all my doctors are impressed especially since I rarely need pain medication vs taking 2 a day like I did 3 years ago.

I truly believe that food can be your medicine or your poison.

The choice is yours.

I will be posting a lot of info and recipes

I don’t always eat perfect but life is about compromise and I follow a 90 / 10 rule.

It’s ok to have a cookie or small cupcake just make sure you eat as best as you can most of the time .

Living food is the way to go.

It may not take away all your pain but wouldn’t it be a benefit if it took away a lot of it ? And made it more managed?

Absolutely!!!

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Food Is Thy Medicine, Inflammation, Mindfulness, osteoarthritis, Pain, Positivity, Uncategorized, Weather, Winter

Knee Pain In The Winter

Knees not feeling great this time of year?
Do you need a thermometer to let you know when the temperatures change outside?
Or do your joints painfully serve as your weather forecast? Unfortunately, for many who suffer from osteoarthritis or other inflammatory conditions, cold weather can cause havoc on already vulnerable parts of your body.
What causes the pain?
The Barometric pressure drops in winter. Researchers believe that when this happens, inflamed areas of our bodies (knees, hips, hands, elbows, and shoulders) swell. Swelling can irritate nerves, which results in increased pain.

Also low vitamin D levels add to pain

You may need more of the sunshine vitamin, suggests new research from the Clinical Journal of Pain.

Compared to those osteoarthritis sufferers with adequate vitamin D levels, those short on D reported significantly more knee pain and loss of function, according to the study data. Those results held regardless of a person’s weight, although the obese study participants were more likely to suffer from a vitamin D deficiency.

There are several different ways low D might mess with your knees, roughly 42% of Americans are dangerously low when it comes to vitamin D. You get most of your D from sun exposure.

A simple blood test from your doctor can determine whether you’re low in the vitamin, If you’re deficient, taking a vitamin D supplement for several months can help you raise your levels. While it’s difficult to get too much D, the amount you need depends on your weight and body composition. Your body stores vitamin D in the fat cells, meaning those with greater amounts of body fat require more of the vitamin to limit pain and loss of function.

Another good reason to keep vitamin D levels in good range is low D doubles your risk for dementia.

Ways to Keep knees warm and ease pain this winter
Thermacare heat wraps
I love these they help pain and keep my joints warm which allows me to move easier

Eat a balanced diet I have personally had great pain relief since changing to mostly plant based diet.

Follow a healthy diet by including seasonal fruits, vegetables, nuts grains,seeds .

It is essential for people who are already suffering from joint and knee pain to include foods rich in Vitamin K, D and C (like oranges, spinach, cabbage and tomatoes) into their diet; as they play an important role in the production of cartilage and helps the body absorb calcium thus strengthening the bones.

I also have learned hydration is also important for pain relief. Try to drink plenty of water or herbal teas, like nettle tea , chamomile ,ginger tea as our dehydration reduces flexibility, which can increase the chances of injury. Supplements with vitamin D or fish oil is recommended as it is rich in omega 3 which helps decrease inflammation. Stay away from unhealthy drinks. Alcohol, tea, coffee, and other aerated drinks reduce the amount of calcium you absorb, and weaken bones.

Swap your caffeine-fuelled drinks with water and fresh juices.

Stay Active
Exercise regularly. It not only helps you lose weight but also increases flexibility and strengthens the muscles that support the knee ( walking, swimming or cycling). Your knees experience about three to four times your body weight when you walk, so lose weight to help your knees.
Always check with your Doctor before starting any new exercise.

Fun Fact :

Keep your feet warm. Your big toe is your body’s thermostat, so keep it warm and your whole body will be warm.

.

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Baking, Blessed, Bone Health, Breakthrough Crew, BreakThroughCrew, Candy, Cardiovascular, Chronic Pain, Clinical Trials, Croatian Family, Delicious, Desserts, Diagnosed, Disclaimer, Eat Healthy, Endocrinologist, Factor V Leiden, Family Tradition, Opinions, Thoughts, Uncategorized

Blogs

I think I will be starting a new blog just for recipes

Opinions? I really want your opinions

Since I am a health leader and advocate who lives with several chronic conditions

Should I focus on just that or have a mix

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Happiness, Mindfulness, osteoarthritis, Osteonecrosis, StopTheClot, Uncategorized, WegoHealth

Walk To Be Spontaneously Happy

Walking is an ideal daily exercise for a wide variety of reasons – including its beneficial impact on body, mind and spirit!

Walking as a way to get daily exercise, it can help strengthen major organs in the body, promote bone density , boost the immune system, lead to a more positive outlook and more.

If your new to exercise always clear it with your doctor. Don’t over do it. Gradually build up to it.

I gave bone problems Osteonecrosis,Osteoarthritis and Spondylolisthesis. I was told to limit my weight bearing but just standing is weight bearing, and then one doctor told me exercise all I want it will help your knee collapse faster !! WTH needless to say he was fired.

But I do need to move.

I started out with 10 minutes after a couple weeks 15 minutes snd so on.

Some days I can walk 40 minutes other days 15 depends on pain level.

When I’m in a lot of pain which usually comes with winter and cold months.

I ride my recumbent bike at least 15-30 minutes a day.

But walking clears the head, gets us in touch with nature it gets me from a funk to happiness

Spontaneously Happy

I used to love winter now because of my bones I really dread it.

If you can’t walk , if in a wheelchair or scooter getting out in nature is still good for the soul.

Photos and Video I took in Millcreek Park in various locations of park .

I really miss hiking : but for now walking will do.

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Food, Homemade Syrups,Tinctures,Rubs, Inflammation, Life, Meditation, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision, WegoHealth

I Am A Patient Leader to Help and Empower Others ~ WEGOHealth Awards 2017

 I would really appreciate your vote. Please read my story and why I became a patient leader and advocate. ThankYou.

I am so excited to announce that I have been nominated for several of the WEGO Health Awards in the

6th

Annual WEGO Health Awards.

WEGO Health is a mission driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.

Click link below to learn more about their

Patient Leader Network.

https://awards.wegohealth.com/nominees/12801

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice.

With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100,000 yep one hundred thousand inspiring Patient Leaders who raise awareness, share information, and support their communities but often without recognition.

I was diagnosed with osteonecrosis also known as avascular necrosis in late 2014. I was told it was due to the trauma I suffered to my knee(medial meniscus tear)

I remember how I felt, I remember how afraid I was and also a feeling of hopelessness.

If doctors couldn’t help or fix me or even try what was I to do.

I never want anyone to feel that way starving for answers to questions about a new diagnosis and no place to go and no one willing to take the time to explain your new diagnosis. I new others had to be feeling the same way as I was and what an awful feeling that was . Sure I have support from my family but they don’t really understand the pain no one can unless you have it.

So I started the support group Avascular Necrosis/Osteonecrosis Support Int’l to be a safe haven if you will, for anyone that suffers from the disease. On occasion we also allow a family member in the group if the member is comfortable with that so they can also see how this disease/disorder effects people, so they can learn from awareness and education, to have an idea just the type of pain their family member has.

The physical and psychological effects can be debilitating and isolating. Especially when you have what I refer to as a flare up of pain. You can’t plan to go to that wedding next month, you don’t know how you’ll feel in an hour.

The pain can be constant day and night pain or come at any time out of nowhere or in waves and they’re quite perturbing. It’s like a hot lightning bolt and a sledge hammer hitting you at the same time and it can be shocking to those around you,because you end up maybe screaming or yelling,sometimes swearing or just overall mood change because the pain is so intense words truly cannot describe. Some words are hot stabbing shooting debilitating and yet frozen , tourniquet like cutting off your blood supply cold pain that’s what we feel.

Its not just the pain that affects us , but also the sadness or depression that can often come with it. When we think about the future and pain gets in the way of all our plans expectations, it’s a bit shattering.

Everything seems to sort of fall apart and right now you can see only the broken image of the new you .

It’s like looking in a shattered mirror all these different fragments that no longer make you whole.

My life became very fragmented and it was a moment to moment thing because I didn’t know how I would make it through that particular day or make it through what’s going to happen tomorrow. When I was first diagnosed my mind was all over the place.

I’m not terminal but I felt like I was , because my life as I once knew it was done…over.

No doctor I saw had any plan of action to help me in fact I was told we will wait until the joint collapses then replace the knee . Talk about mind blowing!

Osteonecrosis took my career in optical which I loved. It took my hiking in the woods away which I enjoyed. It limits me which I hate. But it’s also given me a new purpose and that is spreading awareness, discussing new treatments, the chance to educate , and reaching out to others. I am a patient leader and activist. Making the invisible, visible

If you allow it, the pain and mental shit you go through when you live in pain and with a rare disorder to boot whether it’s constant or sporadic it can be toxic to the mind and soul sucking.

God forbid don’t ask for pain meds.

When I was first diagnosed my first Ortho said the pain will get intense as if it wasn’t already but I don’t give pain meds. I wondered how bad will it get? I’m already in such pain I can barely stand it. Thankfully my family doctor gave me some pain medicine.

It helped but I don’t want to take it. I’d much rather find out how to fix me.

I’m not some junkie looking for a fix, hell I don’t even want to be at a doctors office.

I would much rather be working or frankly doing anything but sitting in a doctors office.

There is so much stigma that goes along with having chronic pain .

The generalization that everyone is claiming they are in pain just to get drugs is unfair and incorrect, and I think we have to be very careful because pain for most of us is invisible,to others.

When we are out of balance mind ,body , and spirit it makes it so hard to focus.

It makes anything and everything worse.

So we have to change our mind set,respect and do what we can to help our body,and interact with others.

Usually I think people will find that in a support group even if they don’t talk they can listen to people who have the similar experiences, frustrations , challenges,pain, treatments or lack of treatment availability or just simple acknowledgement of I know what your going through, many days is a great help.

And it’s very hard to find that outside a support group.

I never insist a new member speak unless they want to. Some are just so devastated by the diagnosis that they have no words. When I see a new member especially a newly diagnosed one, my heart just knows how much fear they have and how afraid they are. I always let them know that can say anything here and it will remain here. But if they are not ready that’s fine to.

I also offer to send them a copy of a booklet I wrote about avn/on.

I know later their words will come. Right now they need to know they are not alone.

I also raise awareness by several

FB pages

Instagram

Twitter

Personal Blog on word press and blogger

Chronicallygratefuldebla.com

That’s why I am a patient leader and activist.

Here is the link to my WegoHealth profile.

I would appreciate your vote.

You can vote daily up until September 1, 2017.

Here is link

https://awards.wegohealth.com/nominees/12801

Thank you

Current Nominations in The 6th annual WEGO Health Awards

#WEGOHealthAwards

#PatientLeader

Please share this if you would be so kind.

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What is osteonecrosis?  The term literally means bone death -osteo =bone necrosis=death.

Posted in Arthritis, Bone Health, Disclaimer, Life, OA, osteoarthritis, Pain, Rheumatoid Arthritis

Arthritis

Arthritis and related diseases can cause debilitating, life-changing pain. According to the Centers for Disease Control and Prevention, more than one-third of the adults who have arthritis report that it limits their leisure activities and work. And 25 percent of them say it causes severe pain (seven or higher on a zero to 10 point scale).

There are more than 100 different forms of arthritis and related diseases. The most common types include osteoarthritis (OA), rheumatoid arthritis (RA), psoriatic arthritis (PsA), fibromyalgia and gout. All of them cause pain in different ways.

Osteoarthritis
In osteoarthritis (OA), the protective cartilage inside the joint breaks down. This makes movement of affected joints more difficult and painful. In time, bones of the joint may rub directly against one another, causing severe pain. Pain can also come from parts of your joint other than the cartilage, such as bone, synovium and ligaments. The intensity of OA pain varies from person to person and can range from mild to severe.

Rheumatoid Arthritis
In rheumatoid arthritis (RA), the joints and other organs are attacked by the body’s own immune system. The immune system normally protects a person from viruses, bacteria and other invaders. In people with autoimmune diseases like RA, it becomes overactive and attacks healthy tissue. In the case of RA, the immune system primarily goes after the lining of the joints, called the synovium. Over time, the persistent inflammation breaks down the joint and damages it permanently.

Pain in RA can come from other parts of your joint besides the synovium, such as bone and ligaments.

Psoriatic Arthritis
Psoriatic arthritis (PsA) is an autoimmune inflammatory disease in which the immune system attacks the body, causing inflammation and pain. PsA affects the joints, causing arthritis; the connective tissue where tendons or ligaments attach to bones, causing enthesitis; and the skin, causing psoriasis.

Fibromyalgia
Fibromyalgia is considered a central pain syndrome. This means that the brain and spinal cord process pain signals differently. A touch or movement that doesn’t cause pain for others may feel painful to you (this is called allodynia). Something that is mildly painful to someone without fibromyalgia may hurt you even more (this is called hyperalgesia).

Fibromyalgia is characterized by widespread pain. It may come and go or be constant. Besides pain, fibromyalgia is associated with other symptoms, such as fatigue, sleep problems, inability to concentrate and mood troubles.

Gout
Gout is a form of inflammatory arthritis, but it does not cause body-wide inflammation like RA or PsA does. In gout, uric acid crystals are the problem. If your body produces too much uric acid or if you are unable to remove the excess fast enough, it can build up in the blood (called hyperuricemia). Excess uric acid can form crystals in your joints. This results in extremely painful joint inflammation. Gout usually strikes in the large joint of the big toe, but can also affect other joints. With a gout flare, you can go to bed feeling fine and wake up with excruciating pain.

Lupus
Lupus is an autoimmune inflammatory disease that affects many parts of the body, including the joints, kidneys, skin, blood, brain and other organs. It can cause joint pain, fatigue, hair loss, sensitivity to light, fever, rash and kidney problems.

Back Pain
Back pain can be a symptom of several forms of arthritis and related conditions, including ankylosing spondylitis, psoriatic arthritis and fibromyalgia. Most back pain, however, is the result of some type of injury, such lifting or bending improperly, a sports injury or an automobile accident.

Other Musculoskeletal Pain
Soft-tissue rheumatic conditions can also cause pain. In these conditions, muscles, connective tissues such as tendons and ligaments, and bursae become inflamed and painful.

#Arthritis #Osteoarthritis #Rheumatoid #Arthritis #Gout #PsoriaticArthritis

More links to various forms of Arthritis
http://www.medicinenet.com/script/main/alphaidx.asp?p=a_1

ChronicallyGratefulDebla.com
🌷

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Factor V Leiden, Flush not Blush, Happiness, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, Support Group, Hope, Uncategorized, WegoHealth

From Optometric Tech /Optician To Professional Patient & Patient Leader

If you have a chronic condition or illness you may already know and understand what it feels like to be a professional patient.

Between the physical pain and symptoms and emotional symptoms, the constant doctor appointments in search of that one person knowledgeable enough to help vs refer you to yet someone else and the numerous tests and procedures (not to mention having to keeping track of all of it & all the bills that go with it ) having a chronic condition can become a full-time job and to be honest it’s more exhausting than a good day’s work.

Speaking of work.
You may find yourself needing to cut back on hours at work , go to part time or stop working altogether.

Although this may be a necessity for you and your health, other people don’t always understand why you’re not working.
They may have these crazy misconceptions that you’re now somehow slower , lazy on vacation or lucky not to have to go to work .

Those of us with chronic conditions know, this is so wrong .
And we need to say this for those who don’t understand what we feel or go through. Maybe then people will be less judgmental.

So here is what most people don’t know or understand about not working due to chronic condition or illness.

I personally would much rather be at work.
People look so surprised when I tell them that, some act as if I’m off on some luxurious vacation.
They have no idea that I’m probably home.

So yes, I’d rather be at work because being at work means I’m healthy again.

Logically I know that one good day doesn’t mean I have to ability to hold my full time job again , but its nice to hope I will be back to work someday.

I wish people knew how much I miss my job. I stayed far longer than I should have and probably did more damage to my knee than I needed to, because it was such an important part of my life.

I lost 90 percent of my social life when I left my career and now being at home mostly all day every day is incredibly isolating, not to mention how guilty you feel not doing your part. Every day I hope that I’ll be able to work again someday soon , there are only so many episodes of a tv show a person can watch , I am writing a book and I do take classes.

Being on disability and trying to get the best treatment is a full-time job.
I fill out paperwork constantly new doctors , more questions than answers.

Researching new treatments and the cost only to find great new Like about stem cell injections helping my Osteonecrosis but then being let down seeing that it’s 5-10k and never covered by insurance.

Then the frustration and sadness sets in because I live in America and I paid into Medicare and my share of taxes. And yet the government continues to hold up proven treatment that could help tens of thousands and yet some countries allow the cost of stem cells for their patients.

I also think many people see me and because I wear a little makeup and curl my hair, I think she doesn’t look disabled or ill. They don’t see me on the days I can barely move .
The days I need help going to the store because it gets so cold in the winter here in Ohio I am literally like concrete and in a great deal of pain.
Thank God Giant Eagle grocery store has a new shop for you curbside express.
You will be utilizing it this winter.

I try to be positive even when I’m in pain. I have a disease that is called Osteonecrosis due to trauma to the bone which has left me with a lack of blood supply to the knee.If you don’t have AVN/ON you won’t ever understand my pain.
I also have Spondylolisthesis L5S1 spine issues.
And Osteoarthritis another painful bone condition then add Spondylolisthesis,Hypothyroidism and Rosacea to the mix

Even though I get disability I do feel guilt now and then. I feel like I’m not contributing financially to my marriage and to be honest I miss working and making my own money.

My husband reminds me that he loves me and I would be doing the same for him if it were reversed and he’s right.

Being home all the time can be really lonely. If I had the energy and the physical stamina to be out and work, everyday life would be more fun again.

The isolation from limited human interaction is challenging so I started to take a few classes here or there, attend a seminar for this or that and meet new people. I’m going to be a health coach.

I find things to keep me and my mind busy.
I have a support group for Osteonecrosis.

I find that the spondylolisthesis is the more st painful of the few conditions I have, and the pain from Osteonecrosis is being managed mostly but it has its flares.

Osteoarthritis the stiffness is really indescribable.

But I make my own pain rubs and herbal remedies you can find many in this blog. But more will be in my book.

I became a patient leader and advocate.
I wrote a booklet about the Avascular Necrosis/Osteonecrosis
And I blog and I’m writing a regular ebook and it should be completed by the end of the year.
link to blog ChronicallyGratefulDebla.com

I would love to find a decent work from home job.

Trust me, I would love to hold down a regular job in the optical field again.

No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem.

People always want you to be there for them, but are they ever there for you? Most of the time no.

I’m bored out of my absolute mind. I loved working and until my pain got bad, my job actually took my mind off it for the most part.

So next time you see your friend or family member that’s on disability don’t envy them.

Maybe remember to call them a little more often.

And let’s hope someday the government will help people get their life back by adding stem cell injections to all forums of insurance.

Posted in Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Inflammation, Osteonecrosis, Support Group, Hope, Uncategorized, WegoHealth

Avascular Necrosis/Osteonecrosis

Avascular necrosis (AVN), or more correctly “osteonecrosis”, is a generic term referring to an ischaemic death of the constituents of bone.

AVN has a wide variety of causes and can affect nearly any bone in the body. Most sites of involvement have an eponym associated with avascular necrosis of that area, and these sites are discussed individually as each site has unique clinical, etiologic and prognostic features.

The terms ischaemic and avascular necrosis are typically reserved for subchondral osteonecrosis, whereas bone infarct refers to medullary osteonecrosis.

Epidemiology

There is no single affected demographic as the underlying predisposing factors are varied.

Pathology

Infarction begins when the blood supply to a section of bone is interrupted. Once an infarct has become established, just as in other tissues, there is a central necrotic core, surrounded by an ischaemic zone, the inner portion being ‘almost dead’ and the outer portion being hyperaemic. Beyond this is normal viable marrow. Between the normal and the ischaemic zone that demarcation occurs with the development of viable granulation separating dead tissue. This leads to the double line sign on MRI.

When the infarct is subchondral, a wedge of tissue is typically affected, the apex of which points towards the centre of the bone.

Aetiology
•trauma (fracture or dislocation)
•Increased pressure inside the bone
• HIV
• Lupus
•Cancer
•Caissons disease
• Blood Clot disorders,haemoglobinopathies, e.g. sickle cell disease
•pregnancy-related AVN
•radiotherapy,chemo
•connective tissue disorders and vascular issues
•renal transplantation
•corticosteroid excess (both endogenous and exogenous)
•pancreatitis
•gout
•Gaucher disease
•alcohol and smoking

Mnemonics: STARS, PLASTIC RAGS

Eponymous names for specific sites of avascular necrosis
• Ahlback disease: medial femoral condyle, i.e. SONK
• Brailsford disease: head of radius
• Buchman disease: iliac crest
• Burns disease: distal ulna
• Caffey disease: entire carpus or intercondylar spines of tibia
• Dias disease: trochlea of the talus
• Dietrich disease: head of metacarpals
• Freiberg infraction: head of the second metatarsal
• Friedrich disease: medial clavicle
• Hass disease: humeral head
• Iselin disease: base of 5th metatarsal
• Kienbock disease: lunate
• Kohler disease: patella or navicular (children)
• Kummel disease: vertebral body
• Legg-Calvé-Perthes disease: femoral head
• Liffert-Arkin disease: distal tibia
• Mandl disease: greater trochanter
• Mauclaire disease: metacarpal heads
• Milch disease: ischial apophysis
• Mueller-Weiss disease: navicular (adult)
• Panner disease: capitellum of humerus
• Pierson disease: symphysis pubis
• Preiser disease: scaphoid
• Sever disease: calcaneal epiphysis
• Thiemann disease: base of phalanges
• Van Neck-Odelberg disease: ischiopubic synchondrosis

Location specific sub-articles for avascular necrosis:
•hip avascular necrosis
•scaphoid avascular necrosis

Radiographic features

Radiographic changes alter with the stage of AVN – see Ficat staging, Steinberg classification.

Radiograph

In general, there is initial minor osteopenia, followed by variable density. Gradually microfractures of the subchondral bone accumulate in the dead bone, which is unable to repair leading to the collapse of the articular surface and the crescent sign of AVN. Eventually the cortex collapses and fragments, with superimposed secondary degenerative change.

MRI

MRI is the most sensitive (~95%) modality and demonstrates changes well before plain films changes are visible.
•diffuse oedema: oedema is not an early sign; instead, studies showed that oedema occurs in advanced stages and is directly correlated with pain
• reactive interface line is a focal serpentine low signal line with fatty centre (most common appearance and first sign on MRI)
• double line sign: serpiginous peripheral/outer dark (sclerosis) and inner bright (granulation tissue) on T2WI is diagnostic
• rim sign: osteochondral fragmentation:
•secondary degenerative change

Nuclear medicine

Bone scintigraphy is also quite sensitive (~85%) and is the second option after MRI. It is a choice when multiple sites of involvement must be assessed in patients with risk factors, such as sickle cell disease. The findings are different accordingly to the time of the scan:
• early disease: often represented by a cold area likely representing the vascular interruption
• late disease: may show a “doughnut sign”: a cold spot with surrounding high uptake ring (surrounding hyperaemia and adjacent synovitis)

Treatment and prognosis

The goal of treatment is to reduce the load on the affected part and to promote revascularisation. Treatment varies with location and includes:
•conservative: anti-inflammatory, analgesia, and reduced/non-weight bearing
•core decompression
•joint replacement for end-stage disease

Practical points
• MRI and bone scintigraphy have high sensitivity, with MRI studies being the first line for AVN assessment

See also
•differential diagnosis of erosive arthritis
•monoarticular arthropathy

Monoarticular arthropathy can result from a number of causes:
•infectious arthritis
•gout
• HADD (hydroxyapatite deposition disease)
•traumatic arthritis
•secondary osteoarthritis
•avascular necrosis
•PVNS
•synovial osteochondromatosis
•osteochondritis dissecans

What Research Is Being Done to Help People With Osteonecrosis?Some goals of research are to learn more about:How many people have osteonecrosis

Risk factors for osteonecrosisWhy steroids cause osteonecrosisThe role of genesHow to diagnose the disease earlyBetter treatments for osteonecrosisWays to improve hip replacementHow mechanical factors such as the alignment of hips, knees, and ankles affect treatment success.For More Information About Osteonecrosis and Other Related Conditions:
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information ClearinghouseNational Institutes of Health1 AMS CircleBethesda, MD 20892–3675Phone: 301–495–4484Toll free: 877–22–NIAMS (226–4267) TTY: 301–565–2966Fax: 301–718–6366Email: NIAMSinfo@mail.nih.gov Website: http://www.niams.nih.gov

Links can be found below and at
http://www..ChronicallyGratefulDebla.com

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Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Chronic Pain, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Flush not Blush, Food, Gluten Free, Happiness, Herbal, Homemade Syrups,Tinctures,Rubs, Inflammation, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision

Get To Know Me

Hi, I'm Debbie and I have Avascular Necrosis/Osteonecrosis, It's a rare disease/disorder where you have a temporary or permanent loss of blood supply to the bone.
I developed my avascular necrosis/osteonecrosis after I suffered a meniscal tear. I'm lucky and very grateful because the doctors don't feel it will go to any other joints . Others including small children are not so fortunate.

We need more research on so many levels and trials.

I love to learn.
I love to educate
I love to help people realize their is always hope.
I have started to go to a more plant-based diet to help the pain caused by inflammation.

However I still will eat meat once a week no more than 2x a week.

I also personally take supplements all ok'd by my PCP

Vitamin D varies from 2000 to 5000 iu a day based on lab results

CoQ10 400mg a day

CuraMed Curcumin 375mg my
Ortho had me start with 1 in a.m and 1 in p.m for the first week, then take 1 a day.

Krill Oil – Not Fish oil
I buy Antarctic Krill Oil Platinum by 1MD because it's top quality.

Krill and fish oil similarly contain EPA and DHA, but they differ in the way that the omegas are bonded. The omegas in krill oil are mostly bonded to phospholipids while in fish oil they are bonded to triglycerides. The fat cells in humans are also in phospholipid form. A study done on the metabolic effects of krill oil concluded that the omega-3s from krill oil may be more readily and effectively absorbed after ingestion and distribution into the bloodstream.

I have gone from eating food that really wasn't that healthy to eating mostly plants real food. To help my body by giving it the best nutrients possible.
I have to say my pain has decreased.
I will have a cheat day now and then.
But when you get used to eating good healthy food anything other than that just doesn't taste as good.

So I will be posting various recipes on my main blog and sometimes here as well , ones that I tried and loved as well as some information about myself and about Osteonecrosis aka Avascular Necrosis and a few other things

I Research a lot of things
Osteoarthritis
Osteonecrosis
Spondylolisthesis
Factor V Leiden Heterogeneous
Hypothyroidism
Rosecea
Clinical Trials
Stem Cell and Prolotherapy

I love history and being outdoors

One thing I know I will do again someday is hike . Since diagnosed with Avn I haven't lived or hiked as much as I used to do to limitations because of bone problems.

I love learning and applying new things into my own life.

I truly believe we can help our pain and diminish symptoms and heal our own body most of the time if not all the time.

We just need the right tools and the know how.

My Links

Facebook Main Profile https://m.facebook.com/public/Deborah-Andio

Main Blog ChronicallyGratefulDebla.com

YouTube Awareness Videos https://m.youtube.com/user/debbieandio

New Blog on Google 3/8/2017 http://chronicallygratefuldebla.blogspot.com/2017/03/hello-i-am-debbie-andio-i-am-blogger.html

Link to Mini Fact Videos http://cortanavideo.trade/user/UC1RtmEwtWKC8w9EgE2IwOFg

Twitter https://mobile.twitter.com/debbiea001

Instagram https://www.instagram.com/debbiea_1962

FB Information and Awareness Pages Bone info and Joint of the Day https://m.facebook.com/AvascularNecrosisRareDiseaseDayFeb29/

ON/AVN https://m.facebook.com/Osteonecrosis-Avascular-Necrosis-Support-913679995417381/

ON/AVN https://m.facebook.com/ONAvascular-Necrosis-Knowledge-752404224891578/

Recipes https://m.facebook.com/YummyGoodness/

Facebook Link https://m.facebook.com/ChronicallyGrateful.Me/

NewMorning Talk Anyone who wants to do a f b live via a guest message me. Various topics health, pain, food https://m.facebook.com/MorningTalk.Healh/

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Gluten Free, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Rosacea, StopTheClot, Support Group, Hope, Uncategorized

My Sleeping Giant Called Chronic Pain.

Not everyone knows what it is like to suddenly one day be told by a doctor you will have chronic pain for probably the rest if your life.
I've been blessed with a few painful diagnosis, I say blessed because I know I will help others because of my diagnosis.

Osteoarthritis 2010
Osteonecrosis 2014
Spondylolisthesis 2016
Hypothyroidism 2002
Rosecea 2017

Shock is one of the best words I can use to describe how I felt when that happened to me.

Today I discuss Osteonecrosis

When I began facing the symptoms of Osteonecrosis aka Avascular Necrosis , I was in shock the day I was diagnosed.
I just couldn't believe that a torn meniscus could lead me down this path.

One day I was fine and then the next day, I was in my bed due to intense debilitating pain.
I had a job as an optometric tech/optician that I loved.
I just never knew I would encounter something so life changing all because of a torn meniscus that ended up with me having AVN/ON.

I pictured myself being at my job for a long time, I want to retire at 59 not 51 and certainly not because I had to.

I felt as if this rare disease/disorder called Osteonecrosis had drastically altered my vision and goals and my future career.
I began to feel uncertain about my life and the plans I was making for it. My anxiety seemed to be off the chart.

When someone tells you that Osteonecrosis is bone death all you seem to hear , at least in my case is death.
My heart raced, thoughts of being in a wheelchair flashed in my mind.
This went on for a few weeks to maybe a few months.
I had to get a grip and come to terms with this. Even though my family and friends were supportive I felt terribly alone.

No one really knew how I felt and words couldn't describe that constant pain I was in.
I often refer to it as being hit by a hot lightening bolt over and over.

I woke up one day after my torn meniscus ended up with me developing Osteonecrosis and could barely walk and I could not focus when people were talking to me because my mind kept jumping around trying to figure out what I could do to help myself. How can I get some of my life back, how to get this pain to ease or just go away.
I want to get back to things I love like work, walking and hiking, living.

Through trial and error I learned what to do and what not to do for the most part. But I still get days even weeks where the pain returns to let me know it's still there, lurking like a stalker in the background.

My AVN/ON is better some days than others. The first 2 years honestly was constant pain 24/7 it was so bad I couldn't work anymore. I could not go up steps period. I could barely function.
I wasn't one to take pain pills all the time, even though I had them.
I asked my ortho for alternative ideas
He suggested CuraMed.

I started to take Terry's Naturally CuraMed 375 mg a day x 2 a day for the first week , then once a day since.

As well as Vitamin D because I was severely deficient,and a few other medications that was prescribed by my doctors.

I was taking all the other supplements before the CuraMed and honestly with in 2 weeks my pain eased up enough to notice. It was still there but not as severe.

I also read about raw and plant based food to help the pain. Amazing..

Then after about a month there were days I had very little pain ,pain still present like a dull ache and I was so thrilled to be able to at least go to the grocery store and come home and not cry or feel defeated.

I had to have a umbilical Hernia repaired and was told stop all Supplements!
I wasn't thrilled about this but understand why.

With in 3 days of not taking my supplements my pain comes back with vengeance .
Are you kidding me?!

I hate that I am unable to predict it. After a 3 years of enduring this pain off and on I am still amazed at how rapidly my condition can change.

I take my supplements everyday but sometimes the pain does put me in check. It yells HEY LADY…..
I'm still here.

Yesterday I had a flare up the pain was overwhelming so frustrating.
I'm still in pain today just not as bad as yesterday.
When I limp it throws off everything and then the Spondylolisthesis in my L5 starts acting up. I get numb when I sit. So some kind of nerve issues happening.But ya know I don't even worry about that right now.

The pain is like a sleeping giant. You never know when the beast will awaken. But look the frick out when it does.

Besides physical pain also can come body image issues, due to limited mobility and possible weight gain or loss with a chronic condition.

Limited mobility and those who have to take medications just to be able to survive takes a toll on your weight. Be it steroids which is horrible for people with AVN in fact it's been known to cause AVN . I am grateful that my avn/on was due to trauma.

I gained weight because I'm not anywhere near as active as I was yes I changed my diet but still the body has to move, and in my opinion prolonged use of any rx or supplements can have a big effect on a persons weight. Plus I have Hypothyroidism which has its own set of issues.

But because of AVN/ON , exercise may be limited or barely exist, because sometimes just getting out of bed in the morning feels like you just climbed for days in the Appalachian mountains. I have learned that no matter how much pain I'm in , I have to move some or I will feel worse.

Unfortunately mood swings can happen especially if pain is severe and often debilitating. It really sucks.

You can feel it like a light switch inside you clicks.
But 10 min later if pain is gone or subsided you can be relaxed and happy.

I really hate pain. And I hate feeling moody I like to be happy.

I started keeping a combination food/pain diary.

My food/pain diary is used to monitor levels of pain over a an extended period of time to see if I had possible triggers for my pain.

I know it might sound very weird and kind of scientific, but just think about it,say last week you had intense pain and then it was gone and say you ate a different food maybe there's a correlation between the two.

If you have a condition where you experience pain off and on for weeks or months,years you will remember that pain on January 1 or July 28th.

So if you keep a food/ pain log maybe the pain is brought on by an allergic reaction to something in a particular food.

Then you know to stay away from it.

I'm not saying it's 100 percent accurate but for me it's helped tremendously.
However somedays my body just has pain especially winter months. I used to love winter now I dread it.

Speaking of cold,I also have this freezing cold feeling in the knee that has the Osteonecrosis in it.

It feels like it's always cold , but when it really hurts it feels like it's been outside on a cold Ohio day for about 3 hours in 10 degree weather.
And the only relief I get is propping it up and applying a ThermaCare heat wrap.

That's why I track my pain , food, weather. I look for triggers.

I will post my pain tracker sheet tomorrow.

What is Avascular Necrosis/Osteonecrosis?

Osteonecrosis is a disease caused by reduced blood flow to bones in the joints. With too little blood, the bone starts to die and may break down.
Osteonecrosis is also known as:
• Avascular necrosis
• Aseptic necrosis
• Ischemic necrosis.
Osteonecrosis is most often found in the hips, knees, shoulders, and ankles. You may have osteonecrosis in one or more bones.

In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured.

In osteonecrosis, bone breaks down faster than the body can make enough strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down.

You may not be able to bend or move the affected joint very well, and you may have pain in the joint.

Who Gets Osteonecrosis?
Osteonecrosis can occur in people of any age, but it is most common in people in their thirties, forties, and fifties.
What Causes Osteonecrosis?
Osteonecrosis is caused when the blood flow to the bone decreases, but why this happens is not always clear. Some known causes of osteonecrosis are:
• Steroid medications
• Alcohol use
• Injury
• Increased pressure inside the bone.
Risk factors for osteonecrosis are:
• Radiation treatment
• Chemotherapy
•. Smoking
• Kidney and other organ transplants.
Osteonecrosis is more common in people with illnesses such as:
• Cancer
• Lupus
• HIV
• Gaucher’s disease
• Caisson disease
• Gout
• Vasculitis
• Osteoarthritis
• Osteoporosis
•. Pregnancy
•. Blood disorders Like Factor V Leiden, Factor Viii, and Sickle Cell disease.

Osteonecrosis can also affect people for no known reason, even if they have no other health problems.
What Are the Symptoms of Osteonecrosis?
When osteonecrosis first begins, you may not have any symptoms. You may start to feel pain when you put weight on a joint with osteonecrosis. As the disease gets worse, you may have more pain and the joint may hurt even when you rest. Pain may be mild or severe.
If the bone and joint start to break down, you may have severe pain and not be able to use the joint. For instance, if you have osteonecrosis in the hip, you may not be able to walk. The time from the start of symptoms to losing use of the joint can range from months to more than a year.
How Is Osteonecrosis Diagnosed?
To diagnose osteonecrosis, your doctor will take your medical history and do a physical exam. Your doctor may then order one or more tests to see which bones are affected:
• X ray
• Magnetic resonance imaging (MRI)
• Computed tomography (CT) scan
• Bone scan
• Bone biopsy
• Measure of the pressure inside the bone.
Treatment helps more if the disease is diagnosed early.
How is Osteonecrosis Treated?
Treatment helps to keep bone in joints from breaking down. Without treatment, most people with the disease will have severe pain and limited movement within 2 years. To decide on the best treatment, your doctor will find out:
• Your age
• The stage of the disease
• Where and how much bone has osteonecrosis
• The cause, if known. If the cause is steroid or alcohol use, treatment may not work unless you stop using those substances.
The goals in treating osteonecrosis are:
• To improve use of the joint
• To stop further damage
• To protect bones and joints.
For early stage disease, doctors may first order nonsurgical treatments. If they do not help, surgery may be needed.
Nonsurgical treatments
Nonsurgical treatments may relieve pain in the short term, but they do not cure the disease. One or more of these treatments may be used at the same time.
• Medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) are used to reduce pain and swelling. For people with blood clotting problems, blood thinners may be used to prevent clots that block the blood supply to the bone. If you take steroid medications, cholesterol-lowering drugs may be used to reduce fat in the blood.
• Taking weight off the joint. Your doctor may suggest that you limit your activity or use crutches to take weight off the affected joint. This may slow bone damage and allow some healing. If combined with NSAIDs, it may help you avoid or delay surgery.
• Range-of-motion exercises. Exercise of the joints with osteonecrosis may help increase their range of motion.
• Electrical stimulation. Research has shown that this can prompt bone growth.
•Prp injections and or stem cell injections A2M or prolotherapy in early stages 1 -2.
StemCell Stage 3 as long as bone has not collapsed
Surgery
In time, most people with osteonecrosis need surgery. There are four main types of surgery used for osteonecrosis. Your doctor will decide if you need surgery and what type is best for you.
• Core decompression surgery. Lowers pressure inside the bone to increase blood flow to the bone.
• Osteotomy. Reshapes the bone to reduce stress on the damaged joint.
• Bone graft. Takes healthy bone from one part of the body and uses it to replace diseased bone.
• Total joint replacement. Replaces the joint with a manmade one.

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