Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, DNA, Eat Healthy, Factor V Leiden, Happiness, Homemade Syrups,Tinctures,Rubs, Inflammation, Mindfulness, OA, Osteonecrosis, Positivity, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, WegoHealth

~Health  Awards ~ Advocate Nominee 

I was notified about a month ago I was nominated for a few awards in a few categories for awareness I vowed when diagnosed with avn /on I would never want anyone to feel as alone and scared as I did in 2014. 

https://awards.wegohealth.com/nominees/12801

My Ortho who diagnosed me really never took the time to even explain to me what I had, or come up with any positive plan of action. He did say when I asked when the plan was …..we will wait until your knee collapses and the replace it !!

Are you frickin kidding me!! That was his plan of action.

Well thank god my knee still is hanging in there and no sign of collapse and when it does happen if that happens he won't be doing surgery.

After the initial shock and grief I went through for what my life was and what may now be I vowed to be a world changer The Ortho also failed to tell me how rare this is and when I did my own research and found out how rare it was rare, it  left me feeling even more alone.

Sure my husband was and family were supportive but they had no clue what I had 

I also have a few other medical issues 

Osteoarthritis Spondylolisthesis Hypothyroidism , Factor V, Rbbb.

And I advocate for all and then some. 
I don't want anyone who was diagnosed with anything to ever feel alone. 

But when you have an orphan disease it just makes it harder some days to deal with. 

It's not like heart disease or cancer where there is constant education, awareness and research being done. 

I hope to change that. Osteonecrosis aka Avascular Necrosis had no cause ribbon so I made them, designed them. Now we have one

There was little information I changed that, I wrote a booklet for patients who have or are just diagnosed with Avascular Necrosis/Osteonecrosis 

I stay up to date on new treatments, trials

I also compiled an ongoing list of doctors not just locally but world wide who are knowledgeable in Avascular Necrosis/Osteonecrosis.

I am so honored to have been nominated 

I was nominated for 8 or 9 different categories and I am asking for your support(vote).

I would greatly appreciate it. 

Also there are so many other wonderful nominees maybe you could also give them a vote as well
Here is how it works 

Click below link

You will come to my wegohealth leader profile 

When you click endorse you will have the option to share it you don't have to but thanks if you do. 

It will then take you back to endorse screen so you can vote for the next award I am nominated for. 
As an advocate for Osteonecrosis and a few others things, like Osteoarthritis,Spondylolisthesis,Hypothyroidism, Heart Disease I take pride in all the research I do to raise awareness. 


I am a voice and resource in a rare community for those of us who are suffering with Avascular Necrosis/Osteonecrosis the orphan disease most people have never heard of unless your diagnosed.
I have the honor this year again of being nominated for many of the categories 16 health awards this year as a member of wegohealth.

Thank You In Advance. 

https://awards.wegohealth.com/nominees/12801

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, DNA, Eat Healthy, Factor V Leiden, family, Inflammation, Jamberry Nails, Laparoscopic Surgery, Life, OA, Osteonecrosis, Rare Disease Day, Stem Cell, StopTheClot, Uncategorized, WegoHealth

If you like my logo I’d appreciate a vote 

I just entered a  contest; help me get to the top of the leaderboard! 

I have Avascular Necrosis/ Osteonecrosis and the condition/disease is rare, so rare there was no cause ribbon for anyone to identify with. 

I created a few varieties and now the AVN community finally has a ribbon. 

My goal is to educate and provide hope and support to anyone suffering from this condition.
Mine was caused by trauma to the knee (medial meniscus tear) in 2014. 

So what is Avascular Necrosis? 

Avascular necrosis (AVN), also called osteonecrosis, aseptic necrosis, or ischemic bone necrosis, is a condition that occurs when there is loss of blood to the bone. Because bone is living tissue that requires blood, an interruption to the blood supply causes bone to die. If not stopped, this process eventually causes the bone to collapse.
Avascular necrosis most commonly occurs in the hip. Other common sites are the shoulder, knees, shoulder, and ankles. But AVN can attack any bone or joint anytime and age is not a factor 

Who Gets Avascular Necrosis and What Causes It?
As many as 20,000 people develop AVN each year. Most are between ages 20 and 50.  But young children are also affected it’s called Leg Calves Perthes 

For healthy people, the risk of AVN is smaller than someone with an underlying cause.  

Most cases are the result of an underlying health problem or injury. Possible causes include:

Dislocation or fracture of the thigh bone (femur). Tear in meniscus, tear in shoulder, etc…

This type of injury can affect the blood supply to the bone, leading to trauma-related avascular necrosis. AVN may develop in 20% or more of people who dislocate a hip.

Chronic corticosteroid use. Long-term use of these inflammation-fighting drugs, either orally or intravenously, is associated with 35% of all cases of nontraumatic AVN. 

Although the reason for this is not completely understood, doctors suspect these drugs may interfere with the body’s ability to break down fatty substances. These substances collect in the blood vessels making them narrower  and reduce the amount of blood to the bone.

Excessive alcohol use. Much like corticosteroids, excessive alcohol may cause fatty substances to build in the blood vessels and decrease the blood supply to the bones.
Blood clots, inflammation, and damage to the arteries. All of these can block blood flow to the bones.
Other conditions associated with nontraumatic AVN include:
Gaucher’s disease, an inherited metabolic disorder in which harmful quantities of a fatty substance accumulate in the organs

Sickle cell disease

Pancreatitis, inflammation of the pancreas

HIV infection

Radiation therapy or chemotherapy

Autoimmune diseases

Decompression sickness, a condition that occurs when the body is subjected to a sudden reduction in surrounding pressure, causing the formation of gas bubbles in the blood

Symptoms of Avascular Necrosis

In its early stages, AVN typically cause no symptoms; however, as the disease progresses it becomes painful. At first, you may experience pain when you put pressure on the affected bone. Then, pain may become more constant. If the disease progresses and the bone and surrounding joint collapse, you may experience severe pain that interferes with your ability to use your joint. The time between the first symptoms and collapse of the bone may range from several months to more than a year.
Treatment for Avascular Necrosis
The goals of treatment for AVN are to improve or ensure function of the affected joint, stop the progression of bone damage, and reduce pain.
The best treatment will depend on a number of factors, including:
Your age

Stage of the disease

Location and amount of bone damage

Cause of AVN

If the cause of your avascular necrosis is identified, treatment will include efforts to manage the underlying condition. For example, if AVN is caused by blood clots, your doctor will prescribe medications to dissolve clots. If inflammation of the arteries is responsible, your doctor may prescribe anti-inflammatory medicines.
If avascular necrosis is caught early, treatment may involve taking medications to relieve pain or limiting the use of the affected area. If your hip, knee, or ankle is affected, crutches may be necessary to take weight off the damaged joint. Your doctor may also recommend range-of-motion exercises to help keep the affected joint mobile.
While these nonsurgical treatments may slow the progression of avascular necrosis, most people with the condition eventually need surgery.
Surgical options include:
Bone grafts, which involve removing healthy bone from one part of the body and using it to replace the damaged bone

Osteotomy, a procedure that involves cutting the bone and changing its alignment to relieve stress on the bone or joint

Total joint replacement, which involves removing the damaged joint and replacing it with a synthetic joint

Core decompression, a procedure that involves removing part of the inside of the bone to relieve pressure and allow new blood vessels to form

Vascularized bone graft, a procedure that uses the patient’s own tissue to rebuild diseased or damaged hip joints; the surgeon first removes the bone with the poor blood supply from the hip and then replaces it with the blood-vessel-rich bone from another site, such as the fibula, the smaller bone located in the lower leg.
Link 
http://s.heyo.com/63eaad?media=54ef7658-1bbb-4e5d-865e-dfc25fb4bbb6

Posted in Ancestry, DNA, Family Tradition, Family Tree, Life, Uncategorized

Ancestry DNA

So because a have a couple of  mysteries in my family. And just the love of history I have , I  decided to do an Ancestry DNA 

I got the test in November 2016 and did nothing with it until February-March 2017

Well I finally took test and results are coming in.

Family Mysteries 

Who was my grandmothers birth parents

(She was adopted)

From what I was told 

The Cleveland Protestant Orphanage Asylum on St Clain Avenue in Cleveland Ohio between 

1901-1910

She was given an adopted name and a hint of her middle name. 

St Clair was a hint about the place she was adopted from. 

I also heard many years ago her name may have been Bessie.  (Unsure if true)

I was told she may have been from most likely German decent. (Also unsure)

She has always gone by the birthday of 

July 9 1902

I spoke to Orphanage in Cleveland which is now called BeechBrook and they can’t tell me anything unless I know her birth name
That really let the wind out of my sail because they have her info. 

So I have to find another way I guess. 

And I have a lot of info on her as I knew her. And I also have info 

Im related to the founders of Youngstown Ohio

Where I grew up. 

Mystery 

Next mystery is on my fathers side

His father was illegitimate 

So I have no idea who his father was

They were from the former Yugoslavia 

Now Croatia

Zagreb-Velika Gorica area

He has his mothers last name. But not his fathers. No mention of the fathers name at all. 

I also have a couple other wild things from my fathers side 

Mystery 

Some one a female burned at stake hundreds of years ago …. I wonder why..
So stay tuned.  

If your great at research and family history I would love tips

Stay tuned…..