Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Hashimoto, Hypothyroidism, Life, osteoarthritis, Osteonecrosis, Pain, SPONK, Stem Cell, StopTheClot, Support Group, Hope, The Mighty, WegoHealth, WEGOHealthAwards, wellness

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today.

Here’s how you can also nominate others who educate, advocate and make a difference!

Click link below

WEGOHealth Awards and Nomination Info

WEGOHealth Awards Link To Information

Think about the advocates and influencers you see leading Facebook groups, blogging about their health journey, speaking up and giving insights to healthcare companies, presenting on national stages, and running Twitter chats.

Patient Leaders have started non-profits, published podcast episodes, and authored books – there is no shortage of Patient Leaders’ contributions to the world, so let’s recognize as many of them as we can for their talents, contributions, and commitment.

Feel free to add their names and web info also in my comment section! And they can get some recognition here to !

Have a Great Day Everyone

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Bone Health, Chronic Pain, Ease your Stress, Eat Healthy, Endocrinologist, Factor V Leiden, Food Is Thy Medicine, Gluten Free, Hashimoto

Hashimoto

I was diagnosed with hypothyroidism in 1996 I was 34 and I really have never felt myself since then.

I always try to live a decent life kind to others , help in my community and I’d rather be happy than mad or sad.

But ….. I still always felt fatigued, more tired than I should be.

Actually if I’m honest with myself it seems as if the symptoms just get worse more intense.

 

I have asked countless doctors over the last 20+ years to check me for Hashimoto Disease because the countless adjustments to synthroid , levothyroxine and now armour just isn’t helping , it helps for a couple months then adjustments happen and I just feel worse .

 

Finally tested and diagnosed

April 2018 w/ Hashimoto

 

Sure everyday I wake up happy

But I soon feel

exhausted

fatigued

sluggish

winded

My skin is dry, my eyes are dry, my mouth is dry, my hair is dry and thinning.

 

I have this constant feeling on my throat as if a thumb is pressing on it.

 

We won’t talk about the weight gain over the last 20 years. I mean really between this and osteoarthritis -osteonecrosis I just get overwhelming-some days

But what sucks is the inability to lose the weight

So time to change the way I eat again ….

I have already gone to mostly plant based now I have to try and go gluten free.

As Hashimoto is linked to gut as is most auto immune conditions.

Hashimoto vs Hypothyroidism

This common question can be confusing to even veteran thyroid patients.

 

Let’s clear up the main difference: Hashimoto’s thyroiditis is a disease; hypothyroidism is a condition.

 

In the United States, hypothyroidism is most commonly caused by Hashimoto’s thyroiditis, but the two terms are not interchangeable.

 

Hashimoto’s thyroiditis is an autoimmune disease that affects your thyroid gland. It is sometimes known as Hashimoto’s disease, autoimmune thyroiditis, or chronic lymphocytic thyroiditis. In Hashimoto’s, antibodies react against proteins in your thyroid gland, causing gradual destruction of the gland itself, and making it unable to produce the thyroid hormones your body needs.

Diagnosis

I had to insist on this test because I was blown off for years by several doctors when I asked for this test.

 

 

High levels of antibodies against thyroglobulin (TG) and thyroid peroxidase (TPO), detected via blood test

 

Hashimoto’s typically involves a slow but steady destruction of your gland that eventually results in the thyroid’s inability to produce sufficient thyroid hormone—the condition known as hypothyroidism. Along the way, however, there can be periods where your thyroid sputters back to life, even causing temporary hyperthyroidism, then a return to hypothyroidism. This cycling back and forth between hypothyroidism and hyperthyroidism is characteristic of Hashimoto’s disease.

 

 

So, for example, periods of anxiety/insomnia/may be followed by periods of depression/fatigue/weight gain.

In some cases, the onset of Hashimoto’s and elevation of antibodies will be accompanied by a variety of symptoms, including anxiety, difficulty sleeping, fatigue, weight changes, depression, hair loss, muscle/joint aches and pains, and fertility problems, among others.

 

 

Ultimately, however, the autoimmune attack on the thyroid typically makes the gland slowly less able to function, and eventually, the thyroid becomes underactive.

 

So I wonder in 1996 did i have Hashimoto? When i was diagnosed with hypothyroidism ? Or did it morph into this…..

 

More to come as I learn to get this under control……

 

thyroid

 

 

 

 

 

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Endocrinologist, Factor V Leiden, Hashimoto, Hypothyroidism, Inflammation, Lemon, Sunshine

Sunshine Blogger Award

I am always humbled and honored when someone nominates me for a blogger award.

Out of so many bloggers, you thought of me.

Thank you, Christine , for nominating me for the Sunshine blogger award.

Thank you for sharing your information and knowledge to the world. I hope you enjoy your retirement

Here are the rules:

• Thank blogger(s) who nominated you for the blog post and link back to their blog if possible.

• Answer the 5 questions the blogger asked you.

• Nominate 5 new blogs to receive the award and write them 5 new questions.

• List the rules and display Sunshine Blogger Award logo in your post and/or blog

1. Is it sunny where you are today? Today no it’s raining in Ohio

2. Why did you start your blog? I started blogging to bring awareness to disorders like Osteonecrosis-Osteoarthritis-Hypothyroidism-Now Hashimoto and how eating healthy can combat pain and inflammation

3. How long have you been blogging?

About 2 years but I’m still learning as I go.

4. Give us some information on your platform. I wrote about my health challenges and how I am changing how I eat to feel better.

5. What food reminds you of sunshine? Anything made with lemons.

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Factor V Leiden, Inflammation, Osteonecrosis, Pain, Rare Disease Day, RareDisease, SONK, SPONK, The Mighty, Uncategorized, WegoHealth

Rare Disease Day Is Today

Rare Disease Day 28 February 2018

#ShowYourRare

#AvascularNecrosis

#Osteonecrosis

#RareDiseaseDay

Debbie in TheMighty2016

https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/

http://www.ChronicallyGratefulDebla.com

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Cardiovascular, Chronic Pain, Coping with Stress, Diagnosed, Eat Healthy, Energy, exercise, Factor V Leiden, Food Is Thy Medicine, Heart Disease, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Positivity, SONK, StopTheClot, Thoughts, Uncategorized, Vision, Weather, WegoHealth, Winter, Women

1 year ago I decided to take my health back

Happy Anniversary To My Health….

I was always pretty healthy ….until I wasn’t.

I gained weight , injured my knee gained more weight was diagnosed with one thing after another and it was really exhausting.

First osteoarthritis and hypothyroidism at age 45

They torn meniscus age 51

Then thanks to the meniscus tear Osteonecrosis set in my knee….

Then she 53 diagnosed officially with spondylolisthesis and a bilateral pars fracture

I had the spondylolisthesis before but my former PCP never told me I had it. But I seen it on an old Mri.

The pain every where was exhausting and some days it still is.

But I decided the heck with all these doctors and I decided to eat mostly plant based but I do still eat chicken fish or turkey now and then and rarely beef.

I ride my recumbent bike 2x a day and I walk when I can. And some days even when I should rest I go walk anyway.

Today’s pictures and videos are from my morning walk : and it’s also one year ago I quit smoking……so it’s a great day !

Pain or no pain I’m not going to just sit around.

Sitting is death

Moving is life

And ya know after I’m done I feel so much better.

1 year since I’ve quit smoking after being a smoker for 40 years. My lungs are feel better my walking speed has improved my distance has improved

1 year since I started eating a healthy mostly plant based but I’m not a vegan and it’s good clean healthy real colorful food . I am using food as medicine in a way to fight pain and inflammation . Now sure I eat a cookie or 2 now and then just not every day. And all my other choices are good so I don’t deprive myself of a treat now and then.

And for having Osteonecrosis,Osteoarthritis, Spondylolisthesis with a bilateral pats fracture in my L5 S1 I feel pretty darn good today even in this cold weather.

Just need to drop some weight one step and one day at a time.

I have taken my life back and no one is going to stop me !

Tomorrow I may be in pain and that’s ok. I can accept that but as long as I know I am doing all I can to combat my pain and keep my body moving and providing it with the best nutrients possible(most of the time)

It’s a win win for me ,one day at a time !

Keep your meds , keep your cigarettes keep your junk fast food.

Body Heal Thy Self

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Food, Food Is Thy Medicine, Foodie, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Pain, SPONK, StopTheClot, Thyroid

Pain Chronic Pain

Once we accept the reality of the current moment (no matter how unpleasant it may be) for what it is, and not what we wish it were, we can turn our attention to ways to improve it. This I find true in any situation.

Living with chronic pain can throw your life upside down.

It’s hard to believe that I can and have managed my rare disease Osteonecrosis (knee) pain. And my Osteoarthritis pain.

But the pain of spondylolisthesis somedays is truly unbearable. It can just take a fabulous day day and screw it all up.

Today is one of those days.

I try to stay busy , and positive when I really would like to go somewhere and just scream at the top of my lungs.

I don’t think my neighbors would appreciate it. So I bang away at the keyboard.

Since the weather in NE Ohio has changed I am having more and more days in pain.

And in the days when all the above hurt I’m down right miserable. Thank Hod that hasn’t happened yet , but then fall and winter have only begun….

I’m grateful today it’s just my back although it feels as if I have been kicked in my L5S1 several times.

Besides having spondylolisthesis I also for the past decade or longer been dealing with osteoarthritis and osteonecrosis since 2014.

If you don’t know what they are I will explain below.

Osteoarthritis

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

In normal joints, a firm, rubbery material called cartilage covers the end of each bone. Cartilage provides a smooth, gliding surface for joint motion and acts as a cushion between the bones. In OA, the cartilage breaks down, causing pain, swelling and problems moving the joint. As OA worsens over time, bones may break down and develop growths called spurs. Bits of bone or cartilage may chip off and float around in the joint. In the body, an inflammatory process occurs and cytokines (proteins) and enzymes develop that further damage the cartilage. In the final stages of OA, the cartilage wears away and bone rubs against bone leading to joint damage and more pain.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85. Lucky me I developed Osteoarthritis at age 45.

One in 12 people 60 years or older have hand OA.

Osteonecrosis What it is….

Osteonecrosis of the Knee. Osteonecrosis of the knee (also known as avascular necrosis) and if in the knee from a meniscus tear also called Ahlbacks Disease is a painful condition that occurs when the blood supply to a section of bone in the femur (thighbone) or tibia (shinbone) is disrupted.

I have Osteonecrosis of the medial femoral condyle due to a meniscus tear in 2014. Strange no one wanted to fix it or have any treatment plan.

This pain is like no other. Your area of Osteonecrosis is ice cold yet it often can feel like it was hit by a lightening bolt.

Weather plays a huge factor for me and my pain. I used to love winter now I can barely tolerate a cool fall day. I dread winter.

I get sick of being in pain. If it’s not the knees it’s back or hands it’s just enough to jack up my day or make things more difficult than they already are.

I have found that plant based lifestyle has helped my osteoarthritis and osteonecrosis a lot. I can’t understand why I haven’t lost a ton of weight though. I mean I don’t eat half the unhealthy calories I used to . But hey the doctors says it’s a slow thyroid.

I just wish these 40 lbs would come off it would also help my bones.

But maybe that will just take time.

If you haven’t tried a plant based lifestyle I would highly recommend it.

My cholesterol numbers are fantastic and all my doctors are impressed especially since I rarely need pain medication vs taking 2 a day like I did 3 years ago.

I truly believe that food can be your medicine or your poison.

The choice is yours.

I will be posting a lot of info and recipes

I don’t always eat perfect but life is about compromise and I follow a 90 / 10 rule.

It’s ok to have a cookie or small cupcake just make sure you eat as best as you can most of the time .

Living food is the way to go.

It may not take away all your pain but wouldn’t it be a benefit if it took away a lot of it ? And made it more managed?

Absolutely!!!

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Food Is Thy Medicine, Inflammation, Mindfulness, osteoarthritis, Pain, Positivity, Uncategorized, Weather, Winter

Knee Pain In The Winter

Knees not feeling great this time of year?
Do you need a thermometer to let you know when the temperatures change outside?
Or do your joints painfully serve as your weather forecast? Unfortunately, for many who suffer from osteoarthritis or other inflammatory conditions, cold weather can cause havoc on already vulnerable parts of your body.
What causes the pain?
The Barometric pressure drops in winter. Researchers believe that when this happens, inflamed areas of our bodies (knees, hips, hands, elbows, and shoulders) swell. Swelling can irritate nerves, which results in increased pain.

Also low vitamin D levels add to pain

You may need more of the sunshine vitamin, suggests new research from the Clinical Journal of Pain.

Compared to those osteoarthritis sufferers with adequate vitamin D levels, those short on D reported significantly more knee pain and loss of function, according to the study data. Those results held regardless of a person’s weight, although the obese study participants were more likely to suffer from a vitamin D deficiency.

There are several different ways low D might mess with your knees, roughly 42% of Americans are dangerously low when it comes to vitamin D. You get most of your D from sun exposure.

A simple blood test from your doctor can determine whether you’re low in the vitamin, If you’re deficient, taking a vitamin D supplement for several months can help you raise your levels. While it’s difficult to get too much D, the amount you need depends on your weight and body composition. Your body stores vitamin D in the fat cells, meaning those with greater amounts of body fat require more of the vitamin to limit pain and loss of function.

Another good reason to keep vitamin D levels in good range is low D doubles your risk for dementia.

Ways to Keep knees warm and ease pain this winter
Thermacare heat wraps
I love these they help pain and keep my joints warm which allows me to move easier

Eat a balanced diet I have personally had great pain relief since changing to mostly plant based diet.

Follow a healthy diet by including seasonal fruits, vegetables, nuts grains,seeds .

It is essential for people who are already suffering from joint and knee pain to include foods rich in Vitamin K, D and C (like oranges, spinach, cabbage and tomatoes) into their diet; as they play an important role in the production of cartilage and helps the body absorb calcium thus strengthening the bones.

I also have learned hydration is also important for pain relief. Try to drink plenty of water or herbal teas, like nettle tea , chamomile ,ginger tea as our dehydration reduces flexibility, which can increase the chances of injury. Supplements with vitamin D or fish oil is recommended as it is rich in omega 3 which helps decrease inflammation. Stay away from unhealthy drinks. Alcohol, tea, coffee, and other aerated drinks reduce the amount of calcium you absorb, and weaken bones.

Swap your caffeine-fuelled drinks with water and fresh juices.

Stay Active
Exercise regularly. It not only helps you lose weight but also increases flexibility and strengthens the muscles that support the knee ( walking, swimming or cycling). Your knees experience about three to four times your body weight when you walk, so lose weight to help your knees.
Always check with your Doctor before starting any new exercise.

Fun Fact :

Keep your feet warm. Your big toe is your body’s thermostat, so keep it warm and your whole body will be warm.

.

Posted in Arthritis, Avascular Necrosis, Bone Health, Cancer, Cardiovascular, Chronic Pain, Factor V Leiden, Great American SmokeOut, Heart Disease, Uncategorized

Great American SmokeOut

Every year, on the third Thursday of November, smokers across the nation take part in the American Cancer Society Great American Smokeout event. Encourage someone you know to use the date to make a plan to quit, or plan in advance and then quit smoking that day. By quitting – even for 1 day – smokers will be taking an important step toward a healthier life and reducing their cancer risk.

The American Cancer Society’s Great American Smokeout is an annual event that encourages smokers to make a plan to quit smoking .

The 42nd annual Great American Smokeout will be held today November 16, 2017.

About 36.5 million Americans still smoke cigarettes, and tobacco use remains the single largest preventable cause of disease and premature death in the world. While cigarette smoking rates have dropped (from 42% in 1965 to 15.1% in 2015), cigar, pipe, and hookah – other dangerous and addictive ways to smoke tobacco – are very much on the rise. Smoking kills people – there’s no “safe” way to smoke tobacco.

Quitting smoking has immediate and long-term benefits at any age. Quitting is hard, but you can increase your chances of success with help. Getting help through counseling or medications can double or triple the chances of quitting successfully.

Benefits of Quitting Smoking Over Time

It’s never too late to quit using tobacco. The sooner you quit, the more you can reduce your chances of getting cancer and other diseases.

Within minutes of smoking your last cigarette, your body begins to recover:

20 minutes after quitting

Your heart rate and blood pressure drop.

(Mahmud A, Feely J. Effect of smoking on arterial stiffness and pulse pressure amplification. Hypertension. 2003;41(1):183-187.)

12 hours after quitting

The carbon monoxide level in your blood drops to normal.

(US Surgeon General’s Report, 1988, p. 202)

2 weeks to 3 months after quitting

Your circulation improves and your lung function increases.

(US Surgeon General’s Report, 1990, pp. 193, 194, 196, 285, 323)

1 to 9 months after quitting

Coughing and shortness of breath decrease. Tiny hair-like structures that move mucus out of the lungs (called cilia) start to regain normal function in your lungs, increasing their ability to handle mucus, clean the lungs, and reduce the risk of infection.

(US Surgeon General’s Report, 1990, pp. 285-287, 304)

1 year after quitting

The excess risk of coronary heart disease is half that of someone who still smokes. Your heart attack risk drops dramatically.

(US Surgeon General’s Report, 2010, p. 359)

5 years after quitting

Your risk of cancers of the mouth, throat, esophagus, and bladder is cut in half. Cervical cancer risk falls to that of a non-smoker. Your stroke risk can fall to that of a non-smoker after 2 to 5 years.

(US Surgeon General’s Report, 2010 and World Health Organization. Tobacco Control: Reversal of Risk After Quitting Smoking. IARC Handbooks of Cancer Prevention, Vol. 11. 2007, p. 341.)

10 years after quitting

Your risk of dying from lung cancer is about half that of a person who is still smoking. Your risk of cancer of the larynx (voice box) and pancreas decreases.

(US Surgeon General’s Report, 2010 and US Surgeon General’s Report, 1990, pp. vi, 155, 165)

15 years after quitting

Your risk of coronary heart disease is that of a non-smoker’s.

(World Health Organization. Tobacco Control: Reversal of Risk After Quitting Smoking. IARC Handbooks of Cancer Prevention, Vol. 11. 2007, p. 11.)

These are just a few of the benefits of quitting smoking for good. Quitting smoking lowers your risk of diabetes, lets blood vessels work better, and helps your heart and lungs.

Life expectancy for smokers is at least 10 years shorter than that of non-smokers. Quitting smoking before the age of 40 reduces the risk of dying from smoking-related disease by about 90%.

Quitting while you’re younger will reduce your health risks more, but quitting at any age can give back years of life that would be lost by continuing to smoke.

Are there benefits of quitting that I’ll notice right away?

Kicking the tobacco habit offers some rewards that you’ll notice right away and some that will show up over time.

Right away you’ll save the money you spent on tobacco! And here are just a few other benefits you may notice:

Food tastes better.

Your sense of smell returns to normal.

Your breath, hair, and clothes smell better.

Your teeth and fingernails stop yellowing.

Ordinary activities leave you less out of breath (for example, climbing stairs or light housework).

You can be in smoke-free buildings without having to go outside to smoke.

Quitting also helps stop the damaging effects of tobacco on how you look, including premature wrinkling of your skin, gum disease, and tooth loss.

I quit 10 months ago after a family member had a heart attack and I had a stress test running in a treadmill that I passed but barely.

You owe it to yourself and to your family to live your best life.

I am so glad I quit. I breathe better , and although my bones still ache I don’t have the consent debilitating pain I had a year or two ago and I know that because I stopped smoking is a Factor.

Our home doesn’t stink of cigarette smell, our clothes our hair.

I actually hate the smell of cigarettes now and can’t believe I used to smell like that.

Give it a try…..

And here’s a note for all you weed smokers out there….

One of the few things scientists know for sure about marijuana and cardiovascular health is that people with established heart disease who are under stress develop chest pain more quickly if they have been smoking marijuana than they would have otherwise. This is because of complex effects cannabinoids have on the cardiovascular system, including raising resting heart rate, dilating blood vessels, and making the heart pump harder. Research suggests that the risk of heart attack is several times higher in the hour after smoking marijuana than it would be normally.

Thinking of chilling out kicking back and lighting up a joint?

Think again.

A new study from Boston’s Beth Israel Deaconess Medical Center and Harvard Medical School says marijuana increases the risk of having a heart attack within the first hour of smoking to five times that of non-smokers.

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Eat Healthy, Factor V Leiden, Inflammation, Osteonecrosis, The Mighty

My Story From The Mighty

I have a rare, degenerative bone disease called osteonecrosis, or avascular necrosis (AVN). It is a painful, debilitating disease without a cure. Many doctors don’t know how to treat it. AVN essentially cuts off the blood supply to the affected bone and the bone begins to die, becoming necrotic.

“Osteo” means bone and “necrosis” means death. It is most often found in the hips, knees, shoulders, and ankles and sometimes spine. You may have osteonecrosis in one or more bones. It can strike at any age, any gender. In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured. In osteonecrosis, bone breaks down faster than the body’s ability to make strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down. You may not be able to bend or move the affected joint very well, and you may have intense pain in the joint.

For the newly diagnosed, here is some information I hope you will find helpful. First of all, you are not alone. We know what it’s like to first hear you have osteonecrosis. I recall I was in shock the day I was told, as I never heard of the disease. I was told it was “bone death” and it seemed like I was frozen in time and disbelief when I heard these words. So what the heck does all that mean? Am I dying?

The answer is no, but one or more of the bones are.

At the time, my orthopedist had told me nothing more and sent me on my merry way. Gee, thanks. I do wish there was more research on this disease, and maybe someday there will be. It’s sad when many doctors get frustrated because they don’t know all that much about the disease either. We definitely need more studies. To try and find answers, I rushed home and sought out my old friend “doctor” Google. I cried, got pissed off and wondered “why me?” Why was this happening to me? I was only 51 at the time, (I’m now 53), so I asked the doctor about the plan of action, in order to try and get on with my job and my life. I was told at 51 I was “too young” for knee replacement, so let’s wait until knee collapses,as they only last 10-15 years, so for now I would have to deal with it. I still haven’t had any surgery. I did have steroid injections, which later I was told can make it worse. Then I read steroids are a cause for Osteonecrosis!😳

strong>The doctors predicted the osteonecrosis came from trauma to my knee when I tore my meniscus exercising. (I always knew exercise was hazardous to your health!) It took me several weeks, if not months to really get over the shock of it all. I have learned now to accept it and just make the best out of it.< strong>I do plan on getting PRP injections as my AVN has changed very little in two years, although pain is greater. The MRI and X-rays show a slight change, which is a good thing, but the pain is really exhausting.< strong>Sometimes I see my pain as a sign of weakness or a personal defect I should be able to overcome, but deep down I know I have to be strong, as I deal with this pain every single day. Oftentimes, I try to ignore it and go about my day, but it’s not that easy. Even when I try to push it to the back of my head to focus on cleaning, cooking or work, the pain starts to scream again leaving me frustrated and at times defeated. This is when the issue of self-esteem can come into play, as I just don’t feel like the same kind, loving hard working person I know I am. It’s difficult with osteonecrosis to do what you want with your time, even when you try. Either one knee doesn’t bend, or your hip, so you become frustrated, as simple things like cleaning the bathtub are now challenging.< strong>AVN pain isn’t just constant pain, though that would be more than enough for anyone to handle. The truth is the pain can bring about other health issues, or is caused by an underlying health issue. When you are in pain it can be very hard to think beyond the pain and see the big picture. You may not realize it could be making you tired, sleepless, cranky, and ruining your concentration and self-esteem. Sometimes all of this can cause you to isolate yourself. If you love someone who is struggling with this rare disease, learn about the disease so you can recognize the symptoms easier. Try to show a little extra compassion, as you now know why they are feeling that way. After all, it could happen to you.< strong>Although I hate this being in limbo feeling, I am carrying on as best as I can and you can as well. My advice is to seek out doctors knowledgeable about AVN, check for underlying causes and eat a good, clean diet. Try to find ways to help ease your pain. Don’t stop living, but be more cautious and try not to over do it. You will have great days and days that may suck. You have to be able to forgive yourself on those days you aren’t able to do anything. Never allow your condition to get you so “down in the dumps,” you have a hard time crawling out.< strong>And lastly, it’s great to have a support group. It’s crucial. I have been fortunate to have family, friends and a whole community of others in similar circumstances. I started a support group and people from several countries with this disease have joined. While people in your family and friends might not be able to fully understand the disease, we do. We have it and you are never alone.< strong>To stay strong, something I always reference back to is this saying:< strong>Fate whispers to the warrior, “you cannot withstand the storm.”And the warrior whispers back,< strong>“I am the storm.”< strong> < strong>Update — it’s been 3 years since my diagnosis and 1 year+ since I wrote that article —I did have a Prp injection and it has helped. Diet and eating real food no processed has helped most of all. < strong>More info coming soon < strong>https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/?utm_source=search&utm_medium=site&utm_term=Osteonecrosis%2520< a href=”https://themighty.com/author/deborah-andio/”>Deborah Andio< strong>

< strong>I’m finding the new me. < strong>Stay tuned more to come …..

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Food, Happiness, History, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Osteoporosis, Pain, SONK, SPONK, Stem Cell, StopTheClot, Uncategorized, WegoHealth

Bone & Joint Action Week October 12-20

Bone and Joint Action Week is held annually October 12-20 with activities focused on disorders including arthritis, back pain, Osteonecrosis,Osteoarthritis trauma, pediatric conditions, and osteoporosis. The themes and their related activities are designed to raise awareness worldwide about prevention, disease management and treatment.

Statistics on Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Frequency depends on the site involved. The most common site is the hip; other locations include the carpals, talus, and humerus. In most countries, exact figures on incidence and prevalence are unknown.

One Japanese survey estimated that 2500-3300 cases of AVN of the hip occur each year; of which, 34.7% were a result of corticosteroid abuse, 21.8% to alcohol abuse, and 37.1% to idiopathic mechanisms. A French study reported AVN in 4.3% of allogenic bone marrow transplant recipients.

Race: No racial predilection exists except for AVN associated with sickle cell disease and hemoglobin S and SC disease, which predominantly are diagnosed in people of African and Mediteranean descent.

Sex: The male-to-female ratio depends on the underlying cause, although primary AVN is more prevalent in men. The overall male-to-female ratio is 8:1.

Age: Age at onset depends on the underlying cause. Primary AVN most often occurs during the fourth or fifth decade and is bilateral in 40-80% of cases. On average, women present almost 10 years later than men.

Risk Factors for Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Avascular necrosis has several causes. Loss of blood supply to the bone can be caused by an injury (trauma-related avascular necrosis or joint dislocation) or by certain risk factors (nontraumatic avascular necrosis), such as some medications (usually steroid basesd), steroid abuse in general, blood coagulation disorders like sickle cell, Factor V, FactorViii, MTHFR, eNOS and more, chemo and radiation infections in the Bone vascular issues such as vascularitis or alcohol abuse. Increased pressure within the bone also is associated with avascular necrosis. The pressure within the bone causes the blood vessels to narrow, making it hard for the vessels to deliver enough blood to the bone cells.Many deep sea divers get Avascular Necrosis from a condition known as the bends. Gaucher disease.

Progression of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Hip Stages of avn-on

1-4

The natural history of osteonecrosis is directly linked to the size and level of the necrosis. Very small lesions (involvement of less than 15% of the femoral head) may resolve without any further treatment. Conversly, lesions involving greater than 50% of the femoral head progress to collapse, and ultimately require in total hip arthroplasty.

Symptoms of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

In the early stages of avascular necrosis, patients may be asymptomatic. However, as the disease progresses most patients will begin to experience joint pain; at first, only when putting weight on the affected joint, and eventually even when resting. Pain usually develops gradually and may be mild or severe.

If the level of necrosis progresses further and the bone and surrounding joint surface collapse, pain may develop or dramatically increase.

The pain may be severe enough to limit the patient’s range of motion in the affected joint.

In some cases, particularly those involving the hip, disabling osteoarthritis may develop.

The period of time between the first symptoms and loss of joint function is different for each patient, ranging from several months to more than a year.

How is Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis) Diagnosed?

In the earliest stages of Avascular necrosis plain x-rays are often normal. A magnetic resonance image (MRI) is the key that allows us to detect AVN at its earliest stage.

Osteonecrosis develops when the blood supply to a segment of bone is disrupted. Without adequate nourishment, the affected portion of bone dies and gradually collapses. As a result, the articular cartilage covering the bone also collapses, leading to disabling arthritis.

Osteonecrosis of the knee can affect anyone, but is more common in people over the age of 60. Woman are three times more likely than men to develop the condition.

Risk Factors

It is not always known what causes the lack of blood supply, but doctors have identified a number of risk factors that make someone more likely to develop osteonecrosis.

Injury. A knee injury—such as a stress fracture or dislocation, meniscus tear, bruised patella or combined with some type of trauma to the knee, can damage blood vessels and reduce blood flow to the affected bone.

Oral corticosteroid medications.

Many diseases, such as asthma and rheumatoid arthritis, are treated with oral steroid medications.

Although it is not known exactly why these medications can lead to osteonecrosis, research shows that there is a connection between the disease and long-term steroid use. Steroid-induced osteonecrosis frequently affects multiple joints in the body.

Medical conditions.

Osteonecrosis of the knee is associated with medical conditions, such as obesity, sickle cell anemia, and lupus.

Transplants. Organ transplantation, especially kidney transplant, is associated with osteonecrosis.

Excessive alcohol use.

Overconsumption of alcohol over time can cause fatty deposits to form in the blood vessels as well as elevated cortisone levels, resulting in a decreased blood supply to the bone.

Chemo therapy and radiation Non-traumatic osteonecrosis of bone is recognized as a potential complication in solid-tumour cancer patients receiving treatment with cytotoxic chemotherapy.

Regardless of the cause, if osteonecrosis is not identified and treated early, it can develop into severe osteoarthritis. And for some with osteoarthritis before avn the disease is even more painful.

Knee stages of avn-on

1-4

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Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Cardiovascular, Chronic Pain, Delicious, Eat Healthy, Factor V Leiden, Flush not Blush, Foodie, Hypothyroidism, Inflammation, Life, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Uncategorized

Basics To Use Food As Thy Medicine

The few basics you need to know to help pain management due to chronic inflammation with food .

1. Eat the rainbow: Consume 10-12 servings of vegetables each day , and make a couple of those servings fruit, if you like.

2. Cruciferous veggies such as broccoli, Brussels sprouts, cabbage and cauliflower are best.

3. Restrict dairy and grains: Eat dairy products in limited quantities. When choosing grains, stay away from simple carbohydrates with refined sugar.

4. Opt for whole grains, including barley, buckwheat, oats, quinoa, brown rice, rye, spelt and wheat.

5. Avoid red meat: Eat red meat the way most of us eat turkey right now a few times a year. Have it on very special occasions, very infrequently. Instead, include fish as the “meat” or eat vegetarian main dishes. Chicken is neutral not harmful but not beneficial in the anti-inflammatory sense.

Get down to your ideal weight; weight loss on its own is anti-inflammatory.

Get daily exercise in the form of walking.

Manage your stress.

It is the overall diet and lifestyle and not just the individual foods, that control inflammation.

“For a chronic pain patient like me who was suffering, I went slightly extreme form of the diet so that was no red meat, no flour or sugar or simple carbohydrate and no dairy.

I did that for a month.

I do eat chicken or tuna once a week now. Beef maybe every other month.

I listen to what my body is saying now.

Before I just planned dinner and we ate whatever. It was delicious then but it was all the wrong foods or to much of them and not enough good clean healthy living food.

Now we eat for life.

#EatForLife

More ways to help chronic inflammation is to exercise. I know it’s hard when your in pain. But our body’s were meant to move. We have to move.

Exercise is an added benefit, particularly if people are overweight. “If there is any extra weight, you will need to try to lose it, I’m in that boat also. I need to drop a good 40lbs . But when I was first diagnosed with all these bones issues I was in so much pain I couldn’t move. I could barely think and function.

Ultimately, what we all need to know is that inflammation comes from a biochemical reaction initiated by your immune system or wound-healing coagulation system.

Specific foods can promote or shut down the inflammatory cycle.

For instance, simple carbohydrates like cakes,pies,sugar,chips,crisps,promote it, while good clean carbohydrates like fruits vegetables shut it down.

Don’t be afraid of carbohydrates just eat the good healthy ones 85 percent of the time then you can indulge now and then in a piece of pie.

Nutrition that supports a lifestyle rich in anti-inflammatory foods is the key to anti-inflammation and chronic pain management,

Although there are no magic foods, putting the right combination of foods into your diet can produce remarkable results.

I never knew until I took a class you should never really eat meat and potatoes together at a meal.

And it’s best to eat your fresh fruit by itself as a mid day snack.

Now let’s talk nightshades

I love many of them and eat them often and it doesn’t make my pain worse.

Nightshade vegetables are members of the Solanaceae family of flowering plants. Most nightshade plants aren’t edible such as tobacco and the deadly herb, belladonna.

A handful of nightshade vegetables, however, are edible and well-known staples in our diets, including:

tomatoes

eggplant

potatoes

peppers

All nightshade plants contain compounds called alkaloids. One alkaloid found in nightshade vegetables, solanine, may be toxic in large quantities or in a green potato. There’s no evidence solanine is harmful in typical food amounts. And solanine isn’t only found in nightshades—blueberries, huckleberries, and artichokes contain it, too.

Thanks to anecdotal evidence, nightshade vegetables have earned a bad reputation for causing inflammation in the body.

But not everyone with painful joints who eliminates nightshades from their diet experiences pain relief and some evidence suggests that the nutrition content of nightshades may help with arthritis symptoms.

What the research says about nightshade vegetables and arthritis

According to the Arthritis Foundation, the belief that eating nightshade vegetables worsens arthritis is a myth. They claim people with arthritis may benefit from the high nutrition content in nightshades.

For example, researchers in one 2011 study found that inflammation and DNA damage was reduced in healthy men who ate yellow or purple potatoes, which are nightshade vegetables, for six weeks.

Health benefits of popular nightshades

Most nightshade vegetables contain an abundance of nutrients. They’re also readily-available and easy-to-prepare. In some cases, the benefits of eating nightshade vegetables may outweigh any inflammation risk.

1. Peppers

Peppers, including bell peppers and chili peppers, are low in fat and calories.

They’re a good source of nutrients such as:

vitamin C

fiber

vitamin K

B vitamins

The capsaicin in chili peppers may relieve arthritis pain by reducing a specific pain transmitter in your nerves called Substance P. Capsaicin, which is a common ingredient in many pain-relieving creams. It may cause mild burning or a skin reaction when applied topically.

2. Potatoes

The white potato often gets a bad rap because it’s a starchy carb, but all varieties of potatoes are nutritionally-dense. They can be a part of a healthy diet when eaten in moderation and not fried or slathered in butter and sour cream.

Potatoes are fat-free and a good source of fiber. Fiber helps to keep you fuller longer so you may eat less. Since they contain sodium and potassium, potatoes also help keep your electrolytes in balance.

They’re also a good source of:

vitamin C

vitamin B6

niacin

manganese

iron

copper

folate

The healthiest potato is a baked potato. Add herbs and a dollop of Greek yogurt instead of butter and sour cream. Don’t be shy about trying different varieties, especially since pigmented potatoes may give you an anti-inflammatory bang for your buck.

3. Tomatoes

Technically, tomatoes aren’t a vegetable; they’re a fruit. They contain all four of the carotenoid antioxidants, which include:

lycopene

beta-carotene

alpha-carotene

lutein

Lycopene is the most powerful carotenoid. It’s thought to help prevent some types of cancer, help prevent heart disease, and boost immunity. Some research has shown tomatoes have anti-inflammatory abilities, although more research is needed. 

Tomatoes are a good source of:

vitamin E

vitamin A

potassium

calcium

vitamin K

vitamin B

Add fresh, diced tomatoes to a green salad or make fresh tomato juice. Tomatoes are delicious in vegetable soup and chili, too.

4. Eggplant

Like tomatoes, eggplant is also a fruit. It has no fat or cholesterol. Eggplant isn’t high in any one vitamin or mineral, but it contains small amounts of most essential vitamins and minerals.

According to one 2015 study, eggplant stalk extract may help reduce inflammation. More research is needed to determine if eggplant fruit has the same abilities.

To enjoy eggplant in your diet, go beyond a fat- and calorie-laden eggplant Parmesan casserole. Instead, try sprinkling sliced eggplant with olive oil and herbs, then roasting or grilling. You can also steam eggplant, or add sautéed slices to your favorite veggie pizza.

This is not medical advice this is based on how I eat to help my pain.

As well as just a few studies showing how good food is.

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Endocrinologist, Factor V Leiden, Inflammation, OA, Osteonecrosis, Stem Cell Injections, Thyroid, Uncategorized, Vision

People With Chronic Pain Are Suffering While Addicts & Junkies Are Being Coddled.

What does it say when heroin and opioid addicts are given better treatment than a person living with chronic pain?!

Now please don’t go thinking I lack compassion and am being cruel honestly it’s not my intention.

But I am sick of hearing about the opioid crisis every day, especially when

they throw chronic pain sufferers in the same category as a junkie!

News Flash ……….Were Not

Or a person that is suffering with cancer. I just don’t understand it.

Yes I understand that their is a problem in this country with some abusing drugs whether prescribed or illegal.

But not everyone falls into that category.

Why are so many Doctors,Pharmacies, Government Officials patient profiling?

We as a society look down on racial profiling, gender profiling but why is it ok to patient profile?!

Thank God I have an excellent family doctor.

Many people in government and now pharmacies don’t make their job any easier.

In fact they make it hard for decent doctors who don’t over prescribe and patients who don’t abuse drugs or who don’t doctor shop.

All the red tape they have.

Now we have government and pharmacies in our doctor patient relationship.

Telling the public that they will now be limited and controlled on how much medication they receive and that their legitimate diagnosed ongoing pain doesn’t matter.

But we care more about addicts & junkies who choose to shoot heroin over and over again. They choose that life !! Chronic pain suffering is not a choice it’s many individuals reality.

Many people myself included suffer from several painful chronic conditions.

NSAIDS don’t do crap for the pain I feel most days . I have tried many of them. And sometimes the pain medication takes the edge off so I can get things done. No one wants to be in pain. My body has less pain so I can then function more.

But I find that taking CuraMed Curcumin helps me more than a rx for an NSAID.

So I limit my own use of rx pain meds.

And most people I know don’t want to have to take a pills to have pain relief.

But we will,when we need to.

NSAIDs will for some It really depends on your pain and your condition or disease.

Some of the conditions I have Osteonecrosis for one is rare. And has been said it’s second in pain to bone cancer.

More on Osteonecrosis below.

I bilateral pars fracture in L5S1

Lumbar spondylolysis this is a condition in the lower back where there is a defect or fracture in the part of the vertebra known as the pars interarticularis. The pars interarticularis, also known as the isthmus, is a segment of bone that connects the facet joints at the back of the spine. It is a small, thin part of the vertebra that has a poor blood supply, which makes it susceptible to stress fractures. No NSAID can help this. A pain pill barely helps but at least it helps somewhat.

Fractures of the pars interarticularis, known as spondylolysis, usually occur at the L5-S1 level,and rarely at L4-L5 or higher. They can occur on one side of the vertebra or on both. Lucky me mine is in both sides L5S1

SPONDYLOLYSIS

A pars fracture is also known as a stress fracture, or as spondylolysis. Spondylolisthesis is often the result of spondylolysis. In non-medical terms, this means a stress fracture causes the forward slippage of a vertebral body. The stress fracture occurs through a fragile part of the vertebral bone called the “pars” and is often broken on both sides. The fracture may be the result of a direct trauma, by a focused strain usually from athletic activity, or from a genetic weakness in this area of the bone. This is a thin bone that can break with repeated use; imagine a paperclip that has been bent over and over and finally breaks. 

Spondylolysis sometimes causes spondylolisthesis, which it did in my case.

This is when one vertebra slips forward on the vertebra below it.

Symptoms include a deep painful constant ache in the lower back, pain that is worse with movement, and tightness in the hamstrings. If the vertebral slippage is severe, nerve roots can be compressed.

The pars functions as a bony hook and when fractured the posterior support for the vertebrae is broken. It can cause a forward slippage with time. Which mine has about 22 -25 percent.

I also have Spontaneous Osteonecrosis of the Knee, also known as Ahlback’s disease is the result of vascular arterial insufficiency to the medial femoral condyle of the knee resulting in necrosis and destruction of bone. It is often unilateral and can be associated with a meniscal tear.

Osteo means Bone Necrosis means

💀

No orthopedic wants to fix it, trust me I have been to more than 5 but less than 10 for their professional opinions

The stem cell procedure is 8 to 10kusd insurance doesn’t cover any part of stem cell injections that can actually help save the bone.

All the orthopedic doctors I seen said to wait until my knee bone crumbles and collapses and then they will saw out the old bone and give me an artificial knee.

I don’t know about you but to that is totally unacceptable!

A TKR Total Knee Replacement and PKR Partial Knee Replacement-cost 30-40,000usd some places more.

Your basically sawing off the patients bone and replacing it with fake parts

Vs using the patients own stem cells to help heal their own body.

For much less money.

It’s a no brainer

And I also have Osteoarthritis NSAIDs will help this but so does my CuraMed Curcumin so I take that instead.

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85.

One in 12 people 60 years or older have hand OA.

So if you add all these together my bones are jacked.

And yet the government wants me to suffer?

Now I will say

I don’t like pain pills I do need them occasionally it’s nice to know that if I need one or for pain I won’t have to jump through fire to get them.

What pisses me off is that junkies od get free narcan over and over often it takes 2-3 doses to revive them. And yet even faced with death they still don’t learn.

And go right back to it knowing it will either kill them now or later. More free narcan and hey we’ll pay for you to go to rehab as well.

And I can’t get insurance to even pay anything towards stem cell injections, that could possibly get me off disability and back to a career in eye care that I loved.

People in chronic pain want their lives back. We would gladly give up all medication to live and function pain free or even with less pain.

We become so used to our pain being a 5 that in days it’s a 3 we feel fabulous, where you may be on the sofa in pain at a level 3 we’re rejoicing. But pain level 7-8 and beyond are sometimes there also and we are down.

I wish the insurance companies would get on board with stem cell injections and Prp injections it can help so many.

So we can’t get the treatment we want because it’s so expensive and not everyone can afford the injections.

Because there is no payment plan.

For pain I take CuraMed Curcumin 1x a day.

5000 iu vitamin

1000 mg krill oil

300mg Coq10

Now and then I will take a pain pill.

It’s a blessing when my knee and back don’t hurt. But usually the back always hurts somedays a lot more than others.

I just think it’s a disservice for people with pain , constant legitimate pain to have to suffer.

I see junkies get free narcan,free rehab yet a girl in my bone disease support group who wants to live and us fighting every day to live has to pain for chemo.

It’s wrong.

https://www.google.com/amp/s/www.nbcnews.com/health/health-news/amp/cvs-limit-opioid-prescriptions-7-day-supply-n803486

https://www.google.com/amp/s/www.nbcnews.com/storyline/americas-heroin-epidemic/amp/ohio-limits-opioid-prescriptions-just-seven-days-n740531

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Baking, Blessed, Bone Health, Breakthrough Crew, BreakThroughCrew, Candy, Cardiovascular, Chronic Pain, Clinical Trials, Croatian Family, Delicious, Desserts, Diagnosed, Disclaimer, Eat Healthy, Endocrinologist, Factor V Leiden, Family Tradition, Opinions, Thoughts, Uncategorized

Blogs

I think I will be starting a new blog just for recipes

Opinions? I really want your opinions

Since I am a health leader and advocate who lives with several chronic conditions

Should I focus on just that or have a mix

Posted in Avascular Necrosis, Awareness, Blessed, Bone Health, Eat Healthy, Eye Exam, Factor V Leiden, Faith, family, Family Tree, Geneology, God, Happiness, History, Inflammation, Life, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Positivity, Support Group, Hope, Uncategorized, Vision, WegoHealth

Life

Life doesn’t always introduce you to the people you want to meet.

Sometimes life puts you in touch with the people you need to meet ,to help you, to hurt you, to leave you, to love you, and to gradually strengthen you into the person you were meant to become.

Say to yourself, regardless of whatever it is that you are facing, I will be all right.

Create an atmosphere of good positive that is about peace, healing and hope around yourself.

Get rid of people who bring you down, want to see you fail, or make you question your beliefs.

Whatever it is you are facing unexpected challenges, health problems, loss of a loved one, anxiety and stress, say to yourself.

I am going to be ok. Calm your mind, speak to your body, rest your spirit and relax you mind.

God will not allow you to fail.