Rare Conditions Stink: But Being A Patient Leader & Advocate Is An Honor

Here’s what really stinks about having something that is called a rare disease/disorder First you probably won’t find it in any regular medical textbook or learn about it in detail in any medical school. Really ? Trust me I have looked I stumble on a paragraph here and there, but even it stinks as it... Continue Reading →

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Could use your assistance

I need you to help me get to my goal Link For Petition2Congress To Make October Osteonecrosis Awareness Month I have started a petition to get the rare disease Osteonecrosis recognized by asking for an awareness month week or day. If they won't allow a month. I could use as many supporters as possible to... Continue Reading →

Osteonecrosis of the Knee

Osteonecrosis of the Knee I have Avascular Necrosis “AVN” or Osteonecrosis “ON” are the terms used to describe parts of your bones that die. Most commonly this occurs in the knee shoulder and hip, but also can occur in the ankle and other bones and joints including the jaw. I was diagnosed with Osteonecrosis in... Continue Reading →

Joint Pain

 Congratulations !  If you’re like me you are one of the 30 million adults in the United States who suffer with joint pain, you know the pain often is debilitating. It can keep you from staying active and limits your mobility and it even makes daily chores seem impossible. What you might not know is... Continue Reading →

Steinberg Stages

Many who suffer with Avascular Necrosis-Osteonecrosis are unaware of the many stages the disease progresses to This will be helpful so the patient and doctor can have a better idea if what form of treatment or surgical procedure would be best for the patient. As a patient myself with Osteonecrosis in my knee I make... Continue Reading →

WEGOHealth Awards and How to Nominate Others

I'm honored to say I've been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more - nominate today. Here's how you can also nominate others who educate, advocate and make a difference! Click link below WEGOHealth Awards and Nomination Info WEGOHealth Awards Link... Continue Reading →

The Cost Of Knee Replacements

If you’re having trouble with your knees, you’re not alone. I also have knee issues. I have Osteonecrosis and osteoarthritis and a torn meniscus all in the same knee. And doctors are basically waiting for my knee to collapse to replace it. Me I’m looking to avoid a collapse but at the 10k out of... Continue Reading →

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