Posted in Adrenals, Ahlbacks Disease, Apple, Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Hashimoto, osteoarthritis, Osteonecrosis

Body Confidence

Can you be body confident when suffering from chronic pain? Do these two things even mix? Can I live in harmony again in a body that seems to work against me? I’ve been living with chronic pain for 4 years now. Some days I am in more pain than others .

I had to retire for now from my optometric tech -optician duties because of all the pain I have had and the limited mobility drives me crazy because I don’t like to be limited.  I mean my knee just wont move the way it should. My goal is to get back to work someday.

Overall I am  happy with myself, I am pretty, I am smart, I am good hearted , kind, compassionate giving person. I’m happy with my life, in spite of the challenges I deal with daily but I feel as if I’m struggling to be happy with my actual body. I mean I have a few things that are keeping me from dropping some weight which in turn will help my bones.

Dealing with adrenal fatigue and hashimoto’s on top of hypothyroidism , osteonecrosis , osteoarthritis and spondylolethesis just some days is well challenging.

My body is changing constantly, with new aches and pains.. It hurts a persons confidence sometimes. Don’t get me wrong, I am, confident  but I’m not 100%. like I used to be.

How can I be? My body stops me from being able to do things,like hiking which I miss and love, I cant roller skate anymore , I cant work like I used to . I also can’t  wear things because of the pain like my spike heels.

My fashion choices have changed as I have gained weight and when my pain gets worse,

If you were looking to me for some magical answers with this post, I don’t really  have any.

I’m exploring it all myself.

Yes I try many things some help a little , some help a lot but all seem to be temporary.

I do things like take curcumin for my pain, I make sure I eat healthy.

I am a Flexitarian who eats mostly plant based. I take my vitamins, I do exercise as best as I can.

Chronic pain affects people in different ways, but I really don’t think people understand how it can effect our body confidence.

I just cannot sit for 1-2 hours everyday to curl my hair & put on makeup, nor do I really want to.  I am now a eyeliner – lipstick kinda woman now and of course I still curl my hair just not with all the products in my hair

Can I wear a bra around the house? Mmmm I could but why LOL.

I try to ride my recumbent bike a few miles daily

Some days I walk some but its really a pain because depending on where I walk my knee will either love it or hate it.

My new thing is using dumbell’s every other day they are 8 lbs each ,

I have to keep the muscles somehow. And I am hoping I can build more muscle lose more fat.

I only use them for a few moves because I cant squat due to the knee problem and if I tried my knee pain would have me on the floor.

I don’t care if i lose 50 lbs but a good 25 would be nice. I dont even mind being a plus size curvy girl, I just know for my height and health of my bones dropping 25-30 lbs would be a real plus .I know I would feel so much better if I could drop some of this weight, I love me ,I love my body, I just want to love it more again.

Now Some Facts :

Here’s a look at what fat does to arthritis, as well as some tips to put you on the road to losing weight.

Fat and Osteoarthritis

Osteoarthritis, OA, is the most common type of arthritis, affecting approximately 27 million Americans. It is characterized by the breakdown of cartilage – the flexible but tough connective tissue that covers the ends of bones at joints. Age, injury, heredity and lifestyle factors all affect the risk of OA.

Why Obesity Matters

OA has a logical link to obesity: The more weight that’s on a joint, the more stressed the joint becomes, and the more likely it will wear down and be damaged.

“Weight plays an important role in joint stress, so when people are very overweight, it puts stress on their joints, especially their weight-bearing joints, like the knees and the hips,” says Eric Matteson, MD, chair of the rheumatology division at the Mayo Clinic in Rochester, Minn.

Every pound of excess weight exerts about 4 pounds of extra pressure on the knees. So a person who is 10 pounds overweight has 40 pounds of extra pressure on his knees; if a person is 50 pounds overweight, that is 200 pounds of extra pressure on his knees. “So if you think about all the steps you take in a day, you can see why it would lead to premature damage in weight-bearing joints,” says Dr. Matteson.

That’s why people who are overweight are at greater risk of developing arthritis in the first place. And once a person has arthritis, “the additional weight causes even more problems on already damaged joints,” says Dr. Matteson.

But it’s not just the extra weight on joints that’s causing damage. The fat itself is active tissue that creates and releases chemicals, many of which promote inflammation.

“These chemicals can influence the development of OA,” explains Jeffrey N. Katz, MD, a professor of medicine and orthopaedic surgery at Harvard Medical School and Brigham and Women’s Hospital in Boston.

This effect can be seen in the numerous studies that have linked extra weight to hand OA. “Obviously, you don’t walk on your hands, so there may be something that is produced by fat cells in the body that causes the joint to break down more rapidly than it might otherwise,” says David Felson, MD, a professor of medicine and epidemiology at Boston University School of Medicine.

For both reasons – excess joint stress and inflammatory chemicals – fat should be kept in check among all people, especially those who already have OA.

For more info on how Excess fat can Affect The Bones with various conditions click >>>  How Fat Affects Bones

Curves

Posted in Adrenals, Ahlbacks Disease, Arthritis, Awareness, Bone Health, Cardiovascular, Chronic Pain, Coping with Stress, Delicious, Diagnosed, Eat Healthy, Hashimoto, Hypothyroidism, Inflammation, osteoarthritis, Osteonecrosis, SONK, SPONK, Uncategorized, Vegetables, WegoHealth, wellness

Healthy Eating

Developing healthy eating habits isn’t as confusing or as restrictive as many people imagine. The essential steps are to eat mostly foods derived from plants—vegetables, fruits, whole grains and legumes (beans, peas, lentils)—and limit highly processed foods.

 

For most of my life, I ate the standard American diet and meals that were heavy in meat and processed foods. I went to a vegetarian lifestyle in high school for a couple years then back to the old way.

When i was diagnosed with Osteonecrosis, Osteoarthritis HBP etc and especially when my husband had a heart attack in 2016 I thought enough was enough.

I got rid of a lot of processed foods, potato chips, convenience meals, and loved Oreo’s and Nutter Butter cookies. There was a lot of sugar, oil, and junk in my diet.

We quit smoking 2 years ago almost. and we as a team decided to go part time but mostly vegan .

Me having a few issues from Osteonecrosis, Osteoarthritis, Hashimot’s and Hypothyroidism and Adrenal Fatigue left me in pain and always exhausted.

I had been dealing with pain in my knee and back for a few years. My mind wants to go go go like it did 25 years ago, my knees say oh hell no slow down woman. And this extra weight is just hard on the bones. But when your limited by many bone issues its really hard to just walk 3-4 miles a day. I bike 3-4 miles a day but its not the same as a good hike in the woods. I do go now and then walking in the woods but hiking I’m afraid for now all that has been on hold.

Going to mostly plant based has helped my pain. And my energy.

So its working and I am feeling better slowly …..

Its a process…

Don’t just go all I went to 65 percent of eating all veggies daily  then added more from there. Some days i eat no meat or fish and some days i will. I Slowly cut out animal products, starting with the easiest and leaving barrier foods to the end. Slowly lessened  my consumption of animal products while simultaneously increasing the number of plant-based foods in our diet.

I spoke to my doctors and I will post tomorrow just how i got started

 

 

plantsz

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Eat Healthy, Food Is Thy Medicine, OA, osteoarthritis, Osteonecrosis, Pain, Thoughts, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards

The Food Your Eating Could Be Making Your Pain Worse.

Before you take one more bite or swing into that fast food place stop and consider how it affects your health. I have osteoarthritis (OA) and Osteonecrosis and what I eat definitely effects my levels of pain and inflammation.

So I started to help myself by eating mostly plant based but I am a flexitarian.

Did you know research shows that diets high in saturated fat – found in red meat, butter, cheese, lard and processed foods – can weaken knee cartilage, making it more prone to damage.

In a 2017 study published in Arthritis Care & Research, researchers followed more than 2,000 patients with OA for up to four years, checking disease progression  and diet at yearly intervals.

Participants who ate the most fat, especially the saturated kind, showed increasing joint damage, whereas those who ate healthy fats like olive oil and avocados had little disease progression.

Another recent animal study showed that it even may harm the underlying bone, according to Yin Xiao, PhD, a professor at Queensland University of Technology in Australia and lead author of a 2017 study that looked at the effect of diet on OA.

For me I went to a mostly plant based lifestyle to help ease my pain from Osteonecrosis and Osteoarthritis in late 2016. And I know that I have less pain.

I’m not cured and there are still days when I feel like crap. But it’s not everyday all day like it was before.

We have to fight back

The solution is to change the way we eat. Switching to an anti-inflammatory or Mediterranean-style diet can help you significantly improve your joint pain , and help your heart and  brain health and the food tastes great.

An anti-inflammatory diet is heavy on fruits and vegetables, whole grains, fish and healthy fats like olive oil, avocados and nuts.

Poultry’s and fish are allowed  now and then and you can have one glass of red wine or beer a day. Off the menu, as you might expect, are sugar, red meat, and processed foods.

For me it’s also gluten because I have a sensitivity to it.

It takes a little work in meal planning but the benefits are worth it.

Stay tuned an example of what to eat will be in my next post.

Remember

The food you eat can be either the powerful and healing or a form of poison.

You are what you eat.

Have a fantastic day

Deb Andio

xoxo

References

https://www.sciencedaily.com/releases/2017/05/170523190029.htm

https://www.health.harvard.edu/nutrition/can-diet-improve-arthritis-symptoms

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Coping with Stress, Eat Healthy, Energy, Hashimoto, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Plant, RareDisease, SONK, spondylolisthesis, SPONK, Thoughts, Thyroid, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards, wellness

The Path To Wellness Isn’t Easy

How many tines do you feel like for all your good intentions and healthy changes to behavior , you’d like to feel a bit more happy or healthy or have more well in your #Wellness goal?

Well, you’re not alone.

Why is it that despite all the meditation , eating healthy, exercising as best as you can especially if your suffering from chronic pain or a chronic condition , eating kale making smoothies and protein shakes, you seem to spend most days feeling run-down and uncomfortable?

For me that’s Hashimoto thyroiditis.

Plus my adrenals are fatigued making my already slow thyroid work even harder. It just gets so tiring.

I miss that none stop energy I had. I was able to work 8-10 hr days come home get dinner , clean our pool with my husband, have a small patio garden, clean the house , shop etc…..

Now I am exhausted after I do some errands and ride my recumbent bike for 15-20 min.

Again I’m told it’s the Hashimoto

I get sick of mixed messages one Dr. says one thing and the other says another.

I have been told I don’t eat enough. I have been told I eat to much

Drink more water – yes this one is true and I’m working on it.

Eat this

Don’t eat this

High carb

Low carb

Eat your greens , don’t eat your greens

I just get so sick of it .

I know how to eat healthy, I never really ate horrible. I gained weight first after my mom died. Because food soothed me at the time. I was grieving. I knew I wasn’t eating how I should back then.

After working through that and trying to exercise nothing.

Still tired , still carrying a few extra pounds

I tried Atkins and it was just for me more meat than I cared to eat.

I tried a few other things and same ok same ol.

A few year ago I bought some dvds and worked hard and I mean hard.

So hard I tore my meniscus leading to osteonecrosis in the knee that already was a pain in the ass by having osteoarthritis.

And I won’t mention how bad spondylolisthesis pain is.

I have always been a veggie lover. And I prefer veggies.

You’d think switching to plant based would have blasted any fat off me sine it’s been a year plus.

Nope I lose 5 here 10 there then gain 2 back. Over and over.

Again I’m told it’s my Hashimoto

I’ve had hypothyroidism for 20 years and the levothyroxine always made me feel like crap.

No one ever listened when I told them this. I remember telling my Dr. I feel like my body is fighting against me. Most of just looked at me.

Here I was right my body was attacking me.

That’s Hashimoto – I found this out maybe a month ago.

Finally I feel vindicated !!

Even before I went to plant based I didn’t eat horrible.

Sure 1 night or 2 was fast food but not the golden arch kind. Fast food to me meant I was not cooking. I would buy baked fish or on occasion a good spaghetti dinner.

It was going to decent restaurants ordering dinner.

Yes I know they have a shit load of salt in them. But that can’t be the only thing keeping this damn weight on.

Maybe someday these restaurants will get with it and cut their salt by at least half.

And then there’s adrenal fatigue

So what is Adrenal fatigue?

Adrenal fatigue is a potential result of not eating enough and or not eating enough of the “right” foods and the hormone imbalances that creates. While many people don’t fully understand it, the theory is simple it will make you feel tired.

I learned all this from my Naturopath and the Registered Dietician I see.

‘Adrenal fatigue is also a big topic  which comes from calorie restriction for too long throughout the year.

‘Calorie restriction is fine for short periods of time but unfortunately people are looking for body fat loss 12 months a year and the body hates that. Your body is smart and will adapt, so goals become very hard to reach in that state.’

Now What is Hashimoto?

Hashimoto is a condition that arises when the immune system attacks – and damages – the thyroid gland.

Over time, the thyroid gland, which straddles your windpipe at the front your neck, becomes unable to produce enough thyroid hormone so it becomes under-active.

As one of the primary functions of thyroid hormone is to keep your cells – and you – active, if you have insufficient amounts of the stuff, your body will slow down.

Say hello to tiredness and tighter fitting clothing.

“Hypothyroidism is a slow burner and it very easily can go undetected, and often misdiagnosed as depression.

Hashimoto cannot be cured but, symptoms can be managed with medications, designed to rebalance the levels of thyroid hormone in the body.

Did you know 75% of people with Hashimoto are lactose intolerant? some people also find that avoiding gluten can help.

Well I meditate to help manage stress , I cut out daily and I am working on the gluten free area. Some days are harder than others.

A few ways I’m learning to alleviate Hashimoto symptoms through diet.

1. Support the thyroid -This means stripping your diet back to basics – Reduce your consumption of caffeine, sugar, alcohol and refined carbohydrates, which are common triggers for thyroid problems.

2. Avoid Soy

Steer clear of soy products such as soy sauce, tamari and miso,” even the fermented, organic and non-GMO types. “They can impact your cell receptors and disrupt feedback through your hormone system.

3. Eat greens in moderation

It might sound counter-intuitive but, when it comes to thyroid problems, these act as goitrogens this means they interfere with the uptake of iodine by the thyroid gland and, therefore, the production of thyroid hormones.

“I’m a big fan of green veggies so don’t feel like I can never have them,

I enjoy vegetables in the brassica family (broccoli, cauliflower, some kale and Brussels sprouts) cooked well rather than raw, as heat inactivates the goitrogenic compounds.

Other foods to watch out for? Soybeans, millet, strawberries, peanuts, turnips and watercress.Everything I love.

4.Time to love my Adrenals

High cortisol (which is pumped from the adrenals) is directly linked to lower thyroid function so managing stress levels is essential.

5. I take a probiotic every day.

6. I am a flexitarian so I will eat meat or fish 1x a week.

So I have learned meditation, qigong, I love walks in nature and time switched off from social media. People actually get pissed off at me when I don’t respond right away!! I mean really ?! I also practice deep-belly breathing every day.

I am still tired just not totally exhausted.

I just want to feel better get this weight off because that will help my bone conditions also.

I hate feeling like this. I’m sick of feeling so tired.

I’m a happy person who likes to stay busy.

I shouldn’t feel so tired by 3pm

I get frustrated because I am sick of carrying this extra weight around.

My Naturopath feels I’m biking to hard. And suggested I slow the pace down and go longer.

So I bike longer slower , I like it better. I’m not as tired afterwards.

So tweaking more things.

I hope someday I find that sweet spot that revs up my thyroid helps the adrenals and I can feel great and get this fat off my ass once and for all.

I will continue to eat mostly plant based. The other benefit it has is it’s helped my bone pain . I still get it just not 24/7

I do love to meditate and I also enjoy qigong.

One day at a time is all we can do.

Well here’s to wellness!!

Have a great day.

Deb Andio

Posted in Avascular Necrosis, Awareness, Bone Health, Mindfulness, MRI, OA, osteoarthritis, Osteonecrosis, Pain

Mri’s Are So Loud

I am an advocate and a patient.

I believe that the body always knows what to do to heal itself. The challenge is listening and doing what your body needs.

I deal with several medical issues

Osteonecrosis Osteoarthritis

Spondylolisthesis Factor V

Hypothyroidism Hashimoto

I like to educate and raise awareness

Well it was time for me to get a new mri on rt knee with osteonecrosis in it to see where I stand . Has it remained the same , did it progress to a worse stage after all its been 4 years now.  I’m praying its the same or better.

So a few days ago I had to go to my ortho and get new X-rays and an Updated MRI so I can see if more PRP is an option for my knee.

I woke up at 5:30am, showered, got dressed and downed a cup of coffee after my 10 oz water. I drive to my appointment.

The young lady calls my name we walk back to the mri room explains to me that it will take 20-25 minutes. It was pretty noisy already and i wasn’t even in the mri  tube yet.

So I lock up my things and head back to the mri room. I get on the table , I’m handed the ball in case i need to reach her. I figure this noisy ass contraption is going to be a test for me. I am going to close my eyes ear plugs in and meditate, I feel myself wheeled in.  My eyes are still closed. The knocks  drumbeats begin. Bang, bang, ting, knock knock its so loud even ear plugs don’t help.  The endless tapping noise is  so frustrating, its like your heart beat goes with that knocking rhythm .   That noise, that noise is becoming unbearable. Bang bang Chirp Ting. I go back to focusing on my breath. Soon I am getting pulled out and the test is over.

Thank You Jesus!

I hate to wait. I just wish they could post it in the portal or a simple call vs making an appointment and waiting to go to that appointment etc…

But my appointment is in about a week …..so now I wait.

I am pretty proud of myself that I was able to meditate my way through that, usually I have so much anxiety and stress afterward it almost can ruin a day well not that day thanks to prayers and meditation

Here is a great link to what they sound like MRI Sounds   The first 5 minutes is what basically it

mri.png

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Eat Healthy, exercise, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Positivity, spondylolisthesis, Uncategorized, Weather

Bones

It still looks like winter out in NE Ohio today even though it’s

07 April 2018.

This is what I woke up to . But I also woke up to pain as well. I mean every bone in my body hurts today.

It’s weird hearing the birds of spring singing away while there is a fresh 3 inches of snow on the ground.

Still be chilled to the bone during winter and now spring is bad for the bones , very little sun, less exercise outdoors, and the drastic swings in the temperature are also painful. One day it’s rainy and 50 today it’s snowy and 30.

I try to stay moving in spite of the weather by riding my recumbent bike.

But I would really like to get outside and breath some fresh air.

On average Ohio has 60 sunny days a year and about 90 partly sunny days a year ( I think that’s a bit high as well)

And Orlando Florida has 233 sunny days a year. That’s a big difference.

No wonder why we have to take vitamin D supplements here.

I’d still prefer to get my vitamin D the natural way.

Less sun means that your body is making less Vitamin D. Vitamin D is produced when sunlight hits the skin and triggers a series of chemical reactions to produce Vitamin D.

People like me in northern latitudes with less year round sun exposure have to be very mindful of the fact that our bodies do not produce this essential vitamin in large enough quantities. In order to counteract the lack of sunlight, more Vitamin D supplements should be consumed during the winter months in order to keep the bones healthy and strong.

A healthy balanced diet will help you build strong bones from an early age and maintain them throughout your life.

We need sufficient calcium to strengthen our bones and vitamin D to help your body absorb calcium.

Poor bone health can cause conditions such as rickets and osteoporosis and increase the risk of breaking a bone from a fall later in life.

You should be able to get all the nutrients you need for healthy bones by eating healthy.

A good diet is only one of the building blocks for healthy bones, we need physical activity and a little bit of weight lifting.

Food for Strong Bones

A healthy balanced diet will help you build strong bones from an early age and maintain them throughout your life.

You need sufficient calcium to strengthen your bones and vitamin D to help your body absorb calcium.

Poor bone health can cause conditions such as rickets and osteoporosis and increase the risk of breaking a bone from a fall.

Requirements

Adults need 700mg of calcium a day. You should be able to get all the calcium you need by eating a varied and balanced diet.

Good sources of calcium include:

• milk, cheese,yogurt eggs and other dairy foods

• green leafy vegetables, such as broccoli, cabbage and okra, collards,asparagus, artichokes , peas.

• soybeans

• tofu

• nuts

• fish like tuna and salmon and also fish where you eat the bones, such as sardines and pilchards

Although spinach might appear to contain a lot of calcium, it also contains oxalic acid, which reduces calcium absorption, and it is therefore not a good source of calcium.

It is difficult to get all the vitamin D we need from our diet and we get most of our vitamin D from the action of the sun on our skin.

Winter and early springs temperatures can bring on a gloomy mood, sending your body into chronic stress and that triggers the production of cortisol . Cortisol destroyer of bone

Clouds the mood buster.

So yes I can’t wait for sun and warmer temperatures

Warm weather improves more than just your mood.

It turns out that warm, sunny weather actually boosts brain function in multiple ways. The study found that the more time people spent outdoors in the spring, the better their memory, cognitive function, and mood.

So I am anxiously awaiting spring to finally arrive. My bones will be so glad when the weather gets warmer.

At least the Sun is out today.

Just remember if you have bone problems take care of yourself and eat healthy.

I will probably have a heating pad on my knee later but for now I am just going to try and keep busy.

And enjoying the beautiful winter/spring day hopefully for the day until next winter.

#Osteonecrosis

#Osteoarthritis

#Spondylolisthesis

#BoneHealth

Posted in Bone Health, Mindfulness, Osteonecrosis, Privacy, spondylolisthesis, SPONK, Uncategorized

Privacy and Facebook To Delete or Not Delete

 Facebook and Social Media

 No one is thrilled with  Mark Zuckerberg  and  Facebook’s epic fail to protect our privacy and our data, to me his apology was just a script. And enough isn’t being done to protect it. I think there should be an easy way to delete your  posts , like a delete all post button. Same with pages we like, instead of having to go to each  one , have that list pop up and just place a check mark then a delete. The set up they have now just doesn’t work well.

For so many  they like a page , take a quiz on who you were in the year 1500 or play a game and never think twice that their privacy is now being invaded.

Some place ads on facebook and they trust all their information is safe.

Being a patient leader and running several information pages is an honor and big responsibility, running a private support   group, where many share things that only others with the same condition would understand  , is an even bigger responsibility, and this recent breech  left me frustrated  by this mishap  as I take such great pride in protecting the members privacy , their feeling and thoughts etc… And here the founder dropped the ball on every member of facebook.

Learn to be on social media responsibly

Whenever you open any app on Facebook, you should know it will ask you for your  permission , Allie or not Allie notifications etc. Even the games on fb have started doing this as well, and in a much more discreet way.  So If you click play or agree to the terms without reading over the terms, it is likely that app has already taken your data.

Most  games  on Facebook will have a statement like your friends will be able to see that you play etc..

Check and adjust your privacy settings and account settings often change your password regularly.

While in the settings, go to the App category  there is a list of the apps you may have logged into using Facebook. Click each one and it will reveal how much info you shared. You will be surprised.

Some of these apps or websites have the right to take your friends list, timeline posts, photos, email address and more.  Any information that is made public on your profile can be taken without  your consent. The worst part is, if you want to get back the data the company has already taken, you’ll have to contact them directly. Facebook plays no part. Now that is some crazy stuff there.

So as  long as you have a Facebook account active, there will always be a chance your data could be taken. Analytics companies may already have your information, but for anything new in the future that you want to keep private, the only 100% effective solution is the delete button.

Go to your profile page and click the  dots next to View Activity Log. You will be given the option to click view as  it automatically shows how public your profile is. Anything you see on there is available to everyone on the Internet. Friends ,  pictures, city ,school , relationships if it appears on the View As public  that mean everyone can see it . So be careful use caution.

 

Am I ready or going to delete my FB accounts?

Nope , it is a very useful tool especially if raising awareness. And let’s face it many companies and media sites spy on us. Based on likes what we buy it’s the price of being online

It’s important what I do for the support group I have and pages I run.

Many depend on my group for support and friendship.

An unbreakable bond between others who have the same disorder or disease as you.

My fb pages provide great current information. We uplift people, we provide hope when some feel as if there isn’t any.

I would be doing more of a dis-service by deleting those pages and groups.

And I as well as my administrators and moderators have worked very to hard to get the platform on Avascular Necrosis-Osteonecrosis-Osteoarthritis-Hypothyroidism- out there especially Avascular Necrosis/ Osteonecrosis.

Where very little information or support is available.

I seen on Facebook in the Help Center that this was addressed and I think they will do better.  See Below here is what was and is written in fb help center.

We’re investigating all apps on our platform and conducting a full audit of any apps with suspicious activity. If we find developers that misused personally identifiable information, we’ll ban them from Facebook. You can also edit the privacy and settings for your apps and games.

Protecting your privacy is at the heart of everything we do at Facebook. We need to do more to safeguard your privacy, so we’re taking action on potential past abuse and putting stronger protections in place to prevent future abuse of our platform.

Notifying you if an app misused your data. Moving forward, if we remove an app for misusing data, we’ll tell everyone who used that app. We’re also building a way for you to see if your data might have been accessed through “thisisyourdigitallife,” the app that sent data to Cambridge Analytica and violated our platform policies.

Making it easier to manage the apps you use. We already show you what apps your account is connected to and what data you’ve permitted those apps to use. Going forward, we’re making these choices easier to find and manage by showing you a tool at the top of your News Feed.

Turning off access for unused apps. If you haven’t used an app within the last 3 months, we’ll remove the app’s access to your information.

Restricting Facebook Login data. We’re changing the way login works to reduce the data that an app can request without app review. Apps can only request name, profile photo and email address. Requesting any other data will require our approval. As we focus on implementing these changes, we’re pausing app approvals. We have a responsibility to protect your data and are committed to protecting your information and making our platform safer

You can see it for yourself  in the help center.

I am hoping  facebook ,  will come up with new ideas to make life on it easier and less time consuming when you want to delete things or unlike pages.

And as with anything else clear your history, cache daily. Keep your browsers updated.

You can also search and log in in what is called incognito.

And I am just grateful that they at least are doing something.

privacy

.

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Factor V Leiden, Inflammation, Osteonecrosis, Pain, Rare Disease Day, RareDisease, SONK, SPONK, The Mighty, Uncategorized, WegoHealth

Rare Disease Day Is Today

Rare Disease Day 28 February 2018

#ShowYourRare

#AvascularNecrosis

#Osteonecrosis

#RareDiseaseDay

Debbie in TheMighty2016

https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/

http://www.ChronicallyGratefulDebla.com

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, osteoarthritis, Osteonecrosis, spondylolisthesis, Thyroid, Uncategorized, Weather, WegoHealth

Reasons Why The Cold Weather Can Affect Your Body

As we finally approach the end of winter the pain has probably began to increase in regards to spondylolisthesis, or any other bone or joint problem.

I have been blessed to have several bone issues.

Bone pain is always worse in winter and long rainy cool spells.

This may just be some odd coincidence, but I believe there are a few possible factors for this increase in the cold months.

Pay attention to the following reasons and see if you also have experienced any of them.

If you have or if you do feel an increase of pain with the cold weather, try to make a few adjustments to combat the following possibilites.

1. Cold weather leads to lazziness.

For me personally, when I sit around more often than not I get extremely tight in the hips and low back area.  I lose stability and strength in areas that are crucial for maintaining good health and providing relief for my low back.

I don’t always want to be active because besides having spondylolisthesis, which alone is so painful I have osteoarthritis and osteonecrosis.

I guess it’s the universes way of saying hey Deb your bones are jacked!

When the temperature drops, those outdoor activities disappear and unfortunately they are replaced by lots more sitting.  Sitting is not good. Our bodies were not meant to sit. Especially if it’s hours at a time.

Daily walks long or short are replaced by computer activities. 

Many other outdoor activities are replaced by sitting and watching them on TV. 

Solution:

I try to stay active as much as possible considering I have several bone issue challenges

Trips to indoor malls , the library, or bookstore , museum Instead of sitting is best.

I haven’t been able to do my favorite outdoor activity hiking since I was diagnosed with osteonecrosis in my knee 4 years ago and I miss it terribly. I hope someday I can get back to it. I have faith.

One of the main things I do is to stay disciplined with my daily workouts well I call them workouts.

I stay as conscientious as I can of how much I sit and try hard to not sit for long periods of time.

Yes there’s days I do but mostly I don’t.

When I work on the computer, I try to get up every 15 minutes or so even if it only involves a quick hip stretch or movement.

No matter how cold it gets outside, I try to stay as active as I can by replacing old outdoor activities with new indoor activities that involve movement.

This has really helped me to avoid cold weather setbacks with my back and often my knee. But don’t get me wrong I still will get some bad days it’s just not everyday or all day.

The worst is when we have long days of extreme cold or that dreaded all day rain that chills you, the back hurts the knee hurts and the entire body hurts .

Sometimes it’s exhausting.

But I try to keep somewhat busy.

Thank goodness for my recumbent bike.

Some days I just do a mile 1-2x a day and that’s ok. Other days I do 3 miles 1-2 x a day.

2. Cold weather can lead to poor eating habits.

Just like in the first example, when you sit around more and become lazy you usually begin to eat poorly. 

Often times shear boredom leads to bad eating habits. That bag of chips or chocolate cake that you usually would ignore in the summer begins to work its way back into your diet.

The cold weather months typically cause people to put on a few more pounds. 

I haven’t put on weight but I can never seem to lose it no matter what I do……thanks hypothyroidism

For many holidays do not help either.  Large amounts of sitting around and eating during Thanksgiving, Christmas and New Years are often to blame for excess pounds.

This leads to a snowball effect of being lazy.  You sit around more which creates the sense of boredom. 

Many people replace being bored with the feeling of hunger , I used to do that.

You then overeat causing the body to feel lethargic and lazy and the cycle continues.

Before you know it you plow through a box of cookies and a bowl of ice cream while you sit and watch six hours of re-runs of your favorite TV show.

Talk about creating a perfect storm!

The entire body then becomes inflamed at least for me it did.

So I changed

I stopped most not all of the processed snacks.

I started eating more plant based but I am not a vegan as I do have fish or chicken 1x a week and eggs a couple times a week.

My pain level dropped a lot but I feel healthier still waiting for the weight to fall off.

The sitting and excess weight reduces the ability to move properly which could create instability, weakness and eventually painful spondylolisthesis episodes.

These habits take the place of the activities you are used to in the warmer months wher you spend more time being active and not thinking about food.

Solution:

I tend to fight this cycle by paying close attention to what I eat and I’m learning to drink-extra water.  I find that providing my body with plenty of water helps to fight those boring food craves. 

This in combination with staying active helps to keep away the extra cold weather added pounds but more important the inflammation that throws pain scale off the chart.

3.Cold weather makes working out and exercising much harder.

I find that when the weather drops workouts tend to become much harder.

Those quick trips to the park or walk in the plaza get harder when you have to scrape ice off of your car for fifteen minutes. It’s a pain to put on 2 layers of clothing just to stay warm on your way to the store really sucks.

My daily workouts are crucial to staying pain free. Without them my body gets weak, tight and doesn’t move the way it should. IPain is quick to follow.

Mentally I do not let myself get down or lazy. If the temperature is freezing outside I stay in and ride the bike more do gentle stretches.

More often than not if I feel like skipping a workout and I just tell myself to replace the workout with a good warm-up and stretch, I get through the stretch and I am suddenly motivated to workout. That workout that I wanted to skip then turns into a great stretch and workout.

I just know when I have pain or have no pain I feel better when I am moving . I can’t do many things I used to but I can learn new ways.

I have noticed that when we stay mindful and not become stagnant in my life i feel better.

And for that

I am grateful

Here’s some stretches I do to help my spondylolisthesis

Spondylolisthesis Exercise

How I get the kinks out

Shoulders and Back

Hmmm love these guys.

Can meniscus tear heal

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Based on my own health issues.

It is not intended to be a substitute for professional medical advice, diagnosis or treatment.

Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Cardiovascular, Chronic Pain, Coping with Stress, Diagnosed, Eat Healthy, Energy, exercise, Factor V Leiden, Food Is Thy Medicine, Heart Disease, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Positivity, SONK, StopTheClot, Thoughts, Uncategorized, Vision, Weather, WegoHealth, Winter, Women

1 year ago I decided to take my health back

Happy Anniversary To My Health….

I was always pretty healthy ….until I wasn’t.

I gained weight , injured my knee gained more weight was diagnosed with one thing after another and it was really exhausting.

First osteoarthritis and hypothyroidism at age 45

They torn meniscus age 51

Then thanks to the meniscus tear Osteonecrosis set in my knee….

Then she 53 diagnosed officially with spondylolisthesis and a bilateral pars fracture

I had the spondylolisthesis before but my former PCP never told me I had it. But I seen it on an old Mri.

The pain every where was exhausting and some days it still is.

But I decided the heck with all these doctors and I decided to eat mostly plant based but I do still eat chicken fish or turkey now and then and rarely beef.

I ride my recumbent bike 2x a day and I walk when I can. And some days even when I should rest I go walk anyway.

Today’s pictures and videos are from my morning walk : and it’s also one year ago I quit smoking……so it’s a great day !

Pain or no pain I’m not going to just sit around.

Sitting is death

Moving is life

And ya know after I’m done I feel so much better.

1 year since I’ve quit smoking after being a smoker for 40 years. My lungs are feel better my walking speed has improved my distance has improved

1 year since I started eating a healthy mostly plant based but I’m not a vegan and it’s good clean healthy real colorful food . I am using food as medicine in a way to fight pain and inflammation . Now sure I eat a cookie or 2 now and then just not every day. And all my other choices are good so I don’t deprive myself of a treat now and then.

And for having Osteonecrosis,Osteoarthritis, Spondylolisthesis with a bilateral pats fracture in my L5 S1 I feel pretty darn good today even in this cold weather.

Just need to drop some weight one step and one day at a time.

I have taken my life back and no one is going to stop me !

Tomorrow I may be in pain and that’s ok. I can accept that but as long as I know I am doing all I can to combat my pain and keep my body moving and providing it with the best nutrients possible(most of the time)

It’s a win win for me ,one day at a time !

Keep your meds , keep your cigarettes keep your junk fast food.

Body Heal Thy Self

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Food, Food Is Thy Medicine, Foodie, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Pain, SPONK, StopTheClot, Thyroid

Pain Chronic Pain

Once we accept the reality of the current moment (no matter how unpleasant it may be) for what it is, and not what we wish it were, we can turn our attention to ways to improve it. This I find true in any situation.

Living with chronic pain can throw your life upside down.

It’s hard to believe that I can and have managed my rare disease Osteonecrosis (knee) pain. And my Osteoarthritis pain.

But the pain of spondylolisthesis somedays is truly unbearable. It can just take a fabulous day day and screw it all up.

Today is one of those days.

I try to stay busy , and positive when I really would like to go somewhere and just scream at the top of my lungs.

I don’t think my neighbors would appreciate it. So I bang away at the keyboard.

Since the weather in NE Ohio has changed I am having more and more days in pain.

And in the days when all the above hurt I’m down right miserable. Thank Hod that hasn’t happened yet , but then fall and winter have only begun….

I’m grateful today it’s just my back although it feels as if I have been kicked in my L5S1 several times.

Besides having spondylolisthesis I also for the past decade or longer been dealing with osteoarthritis and osteonecrosis since 2014.

If you don’t know what they are I will explain below.

Osteoarthritis

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

In normal joints, a firm, rubbery material called cartilage covers the end of each bone. Cartilage provides a smooth, gliding surface for joint motion and acts as a cushion between the bones. In OA, the cartilage breaks down, causing pain, swelling and problems moving the joint. As OA worsens over time, bones may break down and develop growths called spurs. Bits of bone or cartilage may chip off and float around in the joint. In the body, an inflammatory process occurs and cytokines (proteins) and enzymes develop that further damage the cartilage. In the final stages of OA, the cartilage wears away and bone rubs against bone leading to joint damage and more pain.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85. Lucky me I developed Osteoarthritis at age 45.

One in 12 people 60 years or older have hand OA.

Osteonecrosis What it is….

Osteonecrosis of the Knee. Osteonecrosis of the knee (also known as avascular necrosis) and if in the knee from a meniscus tear also called Ahlbacks Disease is a painful condition that occurs when the blood supply to a section of bone in the femur (thighbone) or tibia (shinbone) is disrupted.

I have Osteonecrosis of the medial femoral condyle due to a meniscus tear in 2014. Strange no one wanted to fix it or have any treatment plan.

This pain is like no other. Your area of Osteonecrosis is ice cold yet it often can feel like it was hit by a lightening bolt.

Weather plays a huge factor for me and my pain. I used to love winter now I can barely tolerate a cool fall day. I dread winter.

I get sick of being in pain. If it’s not the knees it’s back or hands it’s just enough to jack up my day or make things more difficult than they already are.

I have found that plant based lifestyle has helped my osteoarthritis and osteonecrosis a lot. I can’t understand why I haven’t lost a ton of weight though. I mean I don’t eat half the unhealthy calories I used to . But hey the doctors says it’s a slow thyroid.

I just wish these 40 lbs would come off it would also help my bones.

But maybe that will just take time.

If you haven’t tried a plant based lifestyle I would highly recommend it.

My cholesterol numbers are fantastic and all my doctors are impressed especially since I rarely need pain medication vs taking 2 a day like I did 3 years ago.

I truly believe that food can be your medicine or your poison.

The choice is yours.

I will be posting a lot of info and recipes

I don’t always eat perfect but life is about compromise and I follow a 90 / 10 rule.

It’s ok to have a cookie or small cupcake just make sure you eat as best as you can most of the time .

Living food is the way to go.

It may not take away all your pain but wouldn’t it be a benefit if it took away a lot of it ? And made it more managed?

Absolutely!!!

Posted in Bone Health, Chronic Pain, Delicious, Eat Healthy, Food, Foodie, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Recipes, Uncategorized, Vegetables

Vegetable Sushi

This recipe is very versatile as you can use any ingredients you like. Sushi is very good for you and is absolutely delicious as well as being easy and enjoyable to make!

Ingredients

For the rice: 

2 cups short-grain Japanese rice, rinsed

1/4 cup rice vinegar

1 tablespoons sugar

For the rolls:

10 nori sheets (dried seaweed), halved

Sesame seeds, for sprinkling

1 cucumber

1 avocado

1 plum tomato, seeded

1 small red onion

20 asparagus spears, trimmed and blanched

Wasabi paste, for spreading and serving

1 romaine lettuce heart

Pickled ginger, for serving

Directions

Make the rice. Combine the rice and 2 cups water in a rice cooker and cook according to the manufacturer’s instructions. A rice cooker is the best way to get perfect sticky-firm rice, but if you don’t have one, just use a saucepan.

Fold in the vinegar. Combine the vinegar, sugar and 1 teaspoon salt in a saucepan over medium heat, stirring to dissolve the sugar. Transfer the cooked rice to a large wooden bowl (traditionally, a wooden tub). Drizzle a quarter of the vinegar mixture over a wooden spoon or spatula onto the rice. Fold the rice gently with the spoon to cool it and break up any clumps; be careful not to smash the grains. Fold in the remaining vinegar mixture and let the rice sit 5 minutes. Spread the rice.

Cover a bamboo sushi mat with plastic wrap. Place a half nori sheet rough-side up on the mat. Moisten your hands and scoop a handful of rice, slightly larger than a lemon, onto the nori. Press the rice to spread it evenly up to the edges of the nori, moistening your fingers as you go. Sprinkle with sesame seeds.

Prepare the vegetables. Peel the cucumber and slice into matchsticks. (Morimoto cuts the entire cucumber into a paper-thin sheet, then quickly slices it into strips-but he’s had some practice.) Thinly slice the avocado, tomato and red onion; peel the tough ends of the asparagus. Add the filling. Carefully flip over the nori so it’s rice-side down on the mat with the short end facing you. Spread a bit of wasabi paste in a line about one-third of the way up the nori-it’s spicy, so use it sparingly.

Arrange a few pieces each of lettuce, cucumber, avocado, tomato and onion in a tight pile in the lower third of the sheet. It’s OK if the vegetables hang over the edges of the nori. Roll the sushi. Roll the sushi away from you with your hands, tucking in the vegetables as you go. Remove the mat from under the roll and place it on top.

Press the roll into a compact rectangular log, using the mat to help you. Slice the roll. Cut the sushi roll into 4 to 6 pieces. Repeat with the remaining nori, rice and vegetables. Serve with pickled ginger and more wasabi.

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Eat Healthy, Factor V Leiden, Inflammation, Osteonecrosis, The Mighty

My Story From The Mighty

I have a rare, degenerative bone disease called osteonecrosis, or avascular necrosis (AVN). It is a painful, debilitating disease without a cure. Many doctors don’t know how to treat it. AVN essentially cuts off the blood supply to the affected bone and the bone begins to die, becoming necrotic.

“Osteo” means bone and “necrosis” means death. It is most often found in the hips, knees, shoulders, and ankles and sometimes spine. You may have osteonecrosis in one or more bones. It can strike at any age, any gender. In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured. In osteonecrosis, bone breaks down faster than the body’s ability to make strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down. You may not be able to bend or move the affected joint very well, and you may have intense pain in the joint.

For the newly diagnosed, here is some information I hope you will find helpful. First of all, you are not alone. We know what it’s like to first hear you have osteonecrosis. I recall I was in shock the day I was told, as I never heard of the disease. I was told it was “bone death” and it seemed like I was frozen in time and disbelief when I heard these words. So what the heck does all that mean? Am I dying?

The answer is no, but one or more of the bones are.

At the time, my orthopedist had told me nothing more and sent me on my merry way. Gee, thanks. I do wish there was more research on this disease, and maybe someday there will be. It’s sad when many doctors get frustrated because they don’t know all that much about the disease either. We definitely need more studies. To try and find answers, I rushed home and sought out my old friend “doctor” Google. I cried, got pissed off and wondered “why me?” Why was this happening to me? I was only 51 at the time, (I’m now 53), so I asked the doctor about the plan of action, in order to try and get on with my job and my life. I was told at 51 I was “too young” for knee replacement, so let’s wait until knee collapses,as they only last 10-15 years, so for now I would have to deal with it. I still haven’t had any surgery. I did have steroid injections, which later I was told can make it worse. Then I read steroids are a cause for Osteonecrosis!😳

strong>The doctors predicted the osteonecrosis came from trauma to my knee when I tore my meniscus exercising. (I always knew exercise was hazardous to your health!) It took me several weeks, if not months to really get over the shock of it all. I have learned now to accept it and just make the best out of it.< strong>I do plan on getting PRP injections as my AVN has changed very little in two years, although pain is greater. The MRI and X-rays show a slight change, which is a good thing, but the pain is really exhausting.< strong>Sometimes I see my pain as a sign of weakness or a personal defect I should be able to overcome, but deep down I know I have to be strong, as I deal with this pain every single day. Oftentimes, I try to ignore it and go about my day, but it’s not that easy. Even when I try to push it to the back of my head to focus on cleaning, cooking or work, the pain starts to scream again leaving me frustrated and at times defeated. This is when the issue of self-esteem can come into play, as I just don’t feel like the same kind, loving hard working person I know I am. It’s difficult with osteonecrosis to do what you want with your time, even when you try. Either one knee doesn’t bend, or your hip, so you become frustrated, as simple things like cleaning the bathtub are now challenging.< strong>AVN pain isn’t just constant pain, though that would be more than enough for anyone to handle. The truth is the pain can bring about other health issues, or is caused by an underlying health issue. When you are in pain it can be very hard to think beyond the pain and see the big picture. You may not realize it could be making you tired, sleepless, cranky, and ruining your concentration and self-esteem. Sometimes all of this can cause you to isolate yourself. If you love someone who is struggling with this rare disease, learn about the disease so you can recognize the symptoms easier. Try to show a little extra compassion, as you now know why they are feeling that way. After all, it could happen to you.< strong>Although I hate this being in limbo feeling, I am carrying on as best as I can and you can as well. My advice is to seek out doctors knowledgeable about AVN, check for underlying causes and eat a good, clean diet. Try to find ways to help ease your pain. Don’t stop living, but be more cautious and try not to over do it. You will have great days and days that may suck. You have to be able to forgive yourself on those days you aren’t able to do anything. Never allow your condition to get you so “down in the dumps,” you have a hard time crawling out.< strong>And lastly, it’s great to have a support group. It’s crucial. I have been fortunate to have family, friends and a whole community of others in similar circumstances. I started a support group and people from several countries with this disease have joined. While people in your family and friends might not be able to fully understand the disease, we do. We have it and you are never alone.< strong>To stay strong, something I always reference back to is this saying:< strong>Fate whispers to the warrior, “you cannot withstand the storm.”And the warrior whispers back,< strong>“I am the storm.”< strong> < strong>Update — it’s been 3 years since my diagnosis and 1 year+ since I wrote that article —I did have a Prp injection and it has helped. Diet and eating real food no processed has helped most of all. < strong>More info coming soon < strong>https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/?utm_source=search&utm_medium=site&utm_term=Osteonecrosis%2520< a href=”https://themighty.com/author/deborah-andio/”>Deborah Andio< strong>

< strong>I’m finding the new me. < strong>Stay tuned more to come …..

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Food, Happiness, History, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Osteoporosis, Pain, SONK, SPONK, Stem Cell, StopTheClot, Uncategorized, WegoHealth

Bone & Joint Action Week October 12-20

Bone and Joint Action Week is held annually October 12-20 with activities focused on disorders including arthritis, back pain, Osteonecrosis,Osteoarthritis trauma, pediatric conditions, and osteoporosis. The themes and their related activities are designed to raise awareness worldwide about prevention, disease management and treatment.

Statistics on Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Frequency depends on the site involved. The most common site is the hip; other locations include the carpals, talus, and humerus. In most countries, exact figures on incidence and prevalence are unknown.

One Japanese survey estimated that 2500-3300 cases of AVN of the hip occur each year; of which, 34.7% were a result of corticosteroid abuse, 21.8% to alcohol abuse, and 37.1% to idiopathic mechanisms. A French study reported AVN in 4.3% of allogenic bone marrow transplant recipients.

Race: No racial predilection exists except for AVN associated with sickle cell disease and hemoglobin S and SC disease, which predominantly are diagnosed in people of African and Mediteranean descent.

Sex: The male-to-female ratio depends on the underlying cause, although primary AVN is more prevalent in men. The overall male-to-female ratio is 8:1.

Age: Age at onset depends on the underlying cause. Primary AVN most often occurs during the fourth or fifth decade and is bilateral in 40-80% of cases. On average, women present almost 10 years later than men.

Risk Factors for Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Avascular necrosis has several causes. Loss of blood supply to the bone can be caused by an injury (trauma-related avascular necrosis or joint dislocation) or by certain risk factors (nontraumatic avascular necrosis), such as some medications (usually steroid basesd), steroid abuse in general, blood coagulation disorders like sickle cell, Factor V, FactorViii, MTHFR, eNOS and more, chemo and radiation infections in the Bone vascular issues such as vascularitis or alcohol abuse. Increased pressure within the bone also is associated with avascular necrosis. The pressure within the bone causes the blood vessels to narrow, making it hard for the vessels to deliver enough blood to the bone cells.Many deep sea divers get Avascular Necrosis from a condition known as the bends. Gaucher disease.

Progression of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Hip Stages of avn-on

1-4

The natural history of osteonecrosis is directly linked to the size and level of the necrosis. Very small lesions (involvement of less than 15% of the femoral head) may resolve without any further treatment. Conversly, lesions involving greater than 50% of the femoral head progress to collapse, and ultimately require in total hip arthroplasty.

Symptoms of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

In the early stages of avascular necrosis, patients may be asymptomatic. However, as the disease progresses most patients will begin to experience joint pain; at first, only when putting weight on the affected joint, and eventually even when resting. Pain usually develops gradually and may be mild or severe.

If the level of necrosis progresses further and the bone and surrounding joint surface collapse, pain may develop or dramatically increase.

The pain may be severe enough to limit the patient’s range of motion in the affected joint.

In some cases, particularly those involving the hip, disabling osteoarthritis may develop.

The period of time between the first symptoms and loss of joint function is different for each patient, ranging from several months to more than a year.

How is Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis) Diagnosed?

In the earliest stages of Avascular necrosis plain x-rays are often normal. A magnetic resonance image (MRI) is the key that allows us to detect AVN at its earliest stage.

Osteonecrosis develops when the blood supply to a segment of bone is disrupted. Without adequate nourishment, the affected portion of bone dies and gradually collapses. As a result, the articular cartilage covering the bone also collapses, leading to disabling arthritis.

Osteonecrosis of the knee can affect anyone, but is more common in people over the age of 60. Woman are three times more likely than men to develop the condition.

Risk Factors

It is not always known what causes the lack of blood supply, but doctors have identified a number of risk factors that make someone more likely to develop osteonecrosis.

Injury. A knee injury—such as a stress fracture or dislocation, meniscus tear, bruised patella or combined with some type of trauma to the knee, can damage blood vessels and reduce blood flow to the affected bone.

Oral corticosteroid medications.

Many diseases, such as asthma and rheumatoid arthritis, are treated with oral steroid medications.

Although it is not known exactly why these medications can lead to osteonecrosis, research shows that there is a connection between the disease and long-term steroid use. Steroid-induced osteonecrosis frequently affects multiple joints in the body.

Medical conditions.

Osteonecrosis of the knee is associated with medical conditions, such as obesity, sickle cell anemia, and lupus.

Transplants. Organ transplantation, especially kidney transplant, is associated with osteonecrosis.

Excessive alcohol use.

Overconsumption of alcohol over time can cause fatty deposits to form in the blood vessels as well as elevated cortisone levels, resulting in a decreased blood supply to the bone.

Chemo therapy and radiation Non-traumatic osteonecrosis of bone is recognized as a potential complication in solid-tumour cancer patients receiving treatment with cytotoxic chemotherapy.

Regardless of the cause, if osteonecrosis is not identified and treated early, it can develop into severe osteoarthritis. And for some with osteoarthritis before avn the disease is even more painful.

Knee stages of avn-on

1-4

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