Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Coping with Stress, Eat Healthy, Energy, Hashimoto, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Plant, RareDisease, SONK, spondylolisthesis, SPONK, Thoughts, Thyroid, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards, wellness

The Path To Wellness Isn’t Easy

How many tines do you feel like for all your good intentions and healthy changes to behavior , you’d like to feel a bit more happy or healthy or have more well in your #Wellness goal?

Well, you’re not alone.

Why is it that despite all the meditation , eating healthy, exercising as best as you can especially if your suffering from chronic pain or a chronic condition , eating kale making smoothies and protein shakes, you seem to spend most days feeling run-down and uncomfortable?

For me that’s Hashimoto thyroiditis.

Plus my adrenals are fatigued making my already slow thyroid work even harder. It just gets so tiring.

I miss that none stop energy I had. I was able to work 8-10 hr days come home get dinner , clean our pool with my husband, have a small patio garden, clean the house , shop etc…..

Now I am exhausted after I do some errands and ride my recumbent bike for 15-20 min.

Again I’m told it’s the Hashimoto

I get sick of mixed messages one Dr. says one thing and the other says another.

I have been told I don’t eat enough. I have been told I eat to much

Drink more water – yes this one is true and I’m working on it.

Eat this

Don’t eat this

High carb

Low carb

Eat your greens , don’t eat your greens

I just get so sick of it .

I know how to eat healthy, I never really ate horrible. I gained weight first after my mom died. Because food soothed me at the time. I was grieving. I knew I wasn’t eating how I should back then.

After working through that and trying to exercise nothing.

Still tired , still carrying a few extra pounds

I tried Atkins and it was just for me more meat than I cared to eat.

I tried a few other things and same ok same ol.

A few year ago I bought some dvds and worked hard and I mean hard.

So hard I tore my meniscus leading to osteonecrosis in the knee that already was a pain in the ass by having osteoarthritis.

And I won’t mention how bad spondylolisthesis pain is.

I have always been a veggie lover. And I prefer veggies.

You’d think switching to plant based would have blasted any fat off me sine it’s been a year plus.

Nope I lose 5 here 10 there then gain 2 back. Over and over.

Again I’m told it’s my Hashimoto

I’ve had hypothyroidism for 20 years and the levothyroxine always made me feel like crap.

No one ever listened when I told them this. I remember telling my Dr. I feel like my body is fighting against me. Most of just looked at me.

Here I was right my body was attacking me.

That’s Hashimoto – I found this out maybe a month ago.

Finally I feel vindicated !!

Even before I went to plant based I didn’t eat horrible.

Sure 1 night or 2 was fast food but not the golden arch kind. Fast food to me meant I was not cooking. I would buy baked fish or on occasion a good spaghetti dinner.

It was going to decent restaurants ordering dinner.

Yes I know they have a shit load of salt in them. But that can’t be the only thing keeping this damn weight on.

Maybe someday these restaurants will get with it and cut their salt by at least half.

And then there’s adrenal fatigue

So what is Adrenal fatigue?

Adrenal fatigue is a potential result of not eating enough and or not eating enough of the “right” foods and the hormone imbalances that creates. While many people don’t fully understand it, the theory is simple it will make you feel tired.

I learned all this from my Naturopath and the Registered Dietician I see.

‘Adrenal fatigue is also a big topic  which comes from calorie restriction for too long throughout the year.

‘Calorie restriction is fine for short periods of time but unfortunately people are looking for body fat loss 12 months a year and the body hates that. Your body is smart and will adapt, so goals become very hard to reach in that state.’

Now What is Hashimoto?

Hashimoto is a condition that arises when the immune system attacks – and damages – the thyroid gland.

Over time, the thyroid gland, which straddles your windpipe at the front your neck, becomes unable to produce enough thyroid hormone so it becomes under-active.

As one of the primary functions of thyroid hormone is to keep your cells – and you – active, if you have insufficient amounts of the stuff, your body will slow down.

Say hello to tiredness and tighter fitting clothing.

“Hypothyroidism is a slow burner and it very easily can go undetected, and often misdiagnosed as depression.

Hashimoto cannot be cured but, symptoms can be managed with medications, designed to rebalance the levels of thyroid hormone in the body.

Did you know 75% of people with Hashimoto are lactose intolerant? some people also find that avoiding gluten can help.

Well I meditate to help manage stress , I cut out daily and I am working on the gluten free area. Some days are harder than others.

A few ways I’m learning to alleviate Hashimoto symptoms through diet.

1. Support the thyroid -This means stripping your diet back to basics – Reduce your consumption of caffeine, sugar, alcohol and refined carbohydrates, which are common triggers for thyroid problems.

2. Avoid Soy

Steer clear of soy products such as soy sauce, tamari and miso,” even the fermented, organic and non-GMO types. “They can impact your cell receptors and disrupt feedback through your hormone system.

3. Eat greens in moderation

It might sound counter-intuitive but, when it comes to thyroid problems, these act as goitrogens this means they interfere with the uptake of iodine by the thyroid gland and, therefore, the production of thyroid hormones.

“I’m a big fan of green veggies so don’t feel like I can never have them,

I enjoy vegetables in the brassica family (broccoli, cauliflower, some kale and Brussels sprouts) cooked well rather than raw, as heat inactivates the goitrogenic compounds.

Other foods to watch out for? Soybeans, millet, strawberries, peanuts, turnips and watercress.Everything I love.

4.Time to love my Adrenals

High cortisol (which is pumped from the adrenals) is directly linked to lower thyroid function so managing stress levels is essential.

5. I take a probiotic every day.

6. I am a flexitarian so I will eat meat or fish 1x a week.

So I have learned meditation, qigong, I love walks in nature and time switched off from social media. People actually get pissed off at me when I don’t respond right away!! I mean really ?! I also practice deep-belly breathing every day.

I am still tired just not totally exhausted.

I just want to feel better get this weight off because that will help my bone conditions also.

I hate feeling like this. I’m sick of feeling so tired.

I’m a happy person who likes to stay busy.

I shouldn’t feel so tired by 3pm

I get frustrated because I am sick of carrying this extra weight around.

My Naturopath feels I’m biking to hard. And suggested I slow the pace down and go longer.

So I bike longer slower , I like it better. I’m not as tired afterwards.

So tweaking more things.

I hope someday I find that sweet spot that revs up my thyroid helps the adrenals and I can feel great and get this fat off my ass once and for all.

I will continue to eat mostly plant based. The other benefit it has is it’s helped my bone pain . I still get it just not 24/7

I do love to meditate and I also enjoy qigong.

One day at a time is all we can do.

Well here’s to wellness!!

Have a great day.

Deb Andio

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Factor V Leiden, Inflammation, Osteonecrosis, Pain, Rare Disease Day, RareDisease, SONK, SPONK, The Mighty, Uncategorized, WegoHealth

Rare Disease Day Is Today

Rare Disease Day 28 February 2018

#ShowYourRare

#AvascularNecrosis

#Osteonecrosis

#RareDiseaseDay

Debbie in TheMighty2016

https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/

http://www.ChronicallyGratefulDebla.com

Posted in Avascular Necrosis, Eat Healthy, Osteonecrosis, RareDisease, Uncategorized

Osteonecrosis – The Pain and Learning What It Is

Welcome to ChronicallyGratefulDebla

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Hi and Thank you for dropping by :  I am Deborah L. Andio and I am new at this blogging thing so bear with me. I am starting this blog because I want to raise awareness  and share my experience since being diagnosed with several conditions

Osteoarthritis

Osteonecrosis in Knee from Trauma

Hashimoto Thyroiditis Hypothyroidism

Factor V Leiden

Spondylolethesis L 5 S 1
Im focusing today on Osteonecrosis

My Diagnosis

I  was diagnosed in 2014 after my was injured from exercising and I felt like I was stuck in the knee by lightening.

It dropped me almost to the floor so of course I called my doctor went in and he thought i may have torn my meniscus.  I tried pt for a few weeks and a couple cortisone injections over 3 months but it kept getting worse. The pain was nothing else I had ever imagined or experienced.

I insisted he stop giving me injections as its not helping  and I suggested he look to see whats going on in knee as its worse after several weeks .

He said we would get X-ray well that just shown up that my Osteoarthritis  hasn’t progressed thankfully. OK so that’s not worse yet my pain is so intense I can hardly concentrate  at times. It has me not able to work , at first I went  down to Part Time but now I can barely walk  feet with out feeling like a knife is being jammed in my knee….

I am now scared and go back to doctor and I am pissed off, I have to stick to my guns here and not allow him to dismiss me or my pain.

I broke down and asked him for something for pain and he looked at me as if I was some junky. I told him look I have been your patient for over  years I wouldn’t ask if I was not hurting a lot. I also told him if you would get off his ass and try to help me figure out why I’m still hurting maybe we can treat this correctly.

He apologized and said we need an MRI and he gave me a script for  pain pills.

A week later I get MRI and a few days later I go back to dr’s to hear results and he said I think we need to get you in to a orthopedic asap.

Ok well then lets go…

So days later was the soonest i can see this ortho

He immediately said I review you MRI and your knee looks like butter. Butter I ask thinking wtf is that mean….

He then told me I had osteonecrosis in my rt knee and eventually I will need a knee replacement, he also confirmed the medial meniscus tear of the femoral condyle.

I asked can we fix the meniscus he said no it would cause more problems. So I asked whats the plan of action he said when your knee collapses we will replace it until then lets give you a kenalog …..it will help pain . So I agreed.

So i got the shot and asked him so what is osteonecrosis he said it when the bone dies.

All I heard was death…..I got very scared I asked what was in that shot as my knee is on fire he said cortisone…….

I’m like no way those make my pain worse

He then suggest i return in a few weeks and shifted my ass out the door.

No personality no explanation of what was happening or what i could do to my knee nothing………another dismissive docttor..

I  get in my car and i just cried , what is happening to me. Will this pain ever go away ?  Why have i neverheard of this osteonecrosis before.

And that’s where I chose to become a leader and pioneer for this cause…

Its a rare condition but you can get it many ways  yet it falls under rare disease

For the next few months day in and day out I read, spoke to many doctors some knowledgeable and some I wouldn’t want fixing a stuffed animal let alone my knee.

I found ut that more doctors know very little about this than are knowledgeable…

Thats how my awareness and advocacy started for Osteonecrosis aka Avascular Necrosis.

My plans were to gather all my info start a support group not a gossip page but an actual page where you can learn, I wanted to list good qualified doctors and eventually write a booklet and book and I am proud to say I have done all but the book  but I am working on that.

I am proud of my booklet that/s finished i mail it free to members of my group to help them see they are not alone and they can share it with family friends and doctors and they also can gain real understanding of what we go through. Because unless you have , you have no idea how painful it is.

Song Of The Day   Rob Thomas Published on Oct 1, 2009 The official video of “Her Diamonds” from my album ‘cradlesong’.

 

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So help me raise awareness if you like my post come back often, subscribe and have others subscribe as well.

I will discuss many issues and health education on various subjects

Like Eating to fight pain

Treatments

Recipes

Diets

General stuff

I so appreciate you taking the time from your day to read this and hopefully join me regularly …

Butterfly Ribbon (3)_resized

Now if you dont know what osteonecrosis is

Read here  I wrote this awareness Booklet  this is what I share and I want you to learn about it also

AVN Awareness Booklet

Osteo meaning bone and necrosis means death .
Most commonly this occurs in the knee, hip, shoulder, ankle, elbow,hand ,wrist but also can occur really anywhere else in your body that you have a bone   or joint . Including the jaw and spin

I started a fb support group because I know so many are suffering worse than I am and I am determined to make a difference.
If you have Osteonecrosis aka Avascular Necrosis or know someone please share the link to the support group and this blog
The AVN /ON Facebook group above is a private group, which I administrate and I also have some fabulous women helping me run it as well.
 This is a wonderful forum to ask questions, give our experiences and ideas but not medical advice  and help connect with others from all over the world.
The formal name of my f b support group is
We like to talk and educate share stories and jokes funny pictures and experiences we are not a gossip group and we have rules.
We also require anyone wanting to join to answer  three questions if they fail to answer them they are denied.
My other links
Thank You and God Bless you and I hope you have a pain-free day
Much Love

Debbie

 

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All files, art , logos and information contained in this Website or Blog are copyright by Deborah L Andio ©Debla2016 ,and may not be duplicated, copied, modified or adapted, in any way without my written permission.

Your use of my  Website, Blog or Booklet or Book does not constitute any right or license for you to use our service marks or trademarks, without the prior written permission.

Our Content, as found within our Website, Blog and Services, is protected under United States and foreign copyrights. The copying, redistribution, use or publication by you of any such Content, is strictly prohibited. Your use of our Website , Sharing of Blog, Logo’s Art Booklet or Book  does not grant you any ownership rights to my Content.

 

 

 

 

Song In Blog –  You’re Gonna Be Ok (Lyric Video) – Brian & Jenn Johnson | After All These Years. I own no rights or the song I just find it supportive and Inspirational