Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Hashimoto, Hypothyroidism, Life, osteoarthritis, Osteonecrosis, Pain, SPONK, Stem Cell, StopTheClot, Support Group, Hope, The Mighty, WegoHealth, WEGOHealthAwards, wellness

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today.

Here’s how you can also nominate others who educate, advocate and make a difference!

Click link below

WEGOHealth Awards and Nomination Info

WEGOHealth Awards Link To Information

Think about the advocates and influencers you see leading Facebook groups, blogging about their health journey, speaking up and giving insights to healthcare companies, presenting on national stages, and running Twitter chats.

Patient Leaders have started non-profits, published podcast episodes, and authored books – there is no shortage of Patient Leaders’ contributions to the world, so let’s recognize as many of them as we can for their talents, contributions, and commitment.

Feel free to add their names and web info also in my comment section! And they can get some recognition here to !

Have a Great Day Everyone

Posted in Ahlbacks Disease, Awareness, Bone Health, Chronic Pain, osteoarthritis, Osteonecrosis, Pain, SONK, SPONK, Stem Cell, Stem Cell Injections, Thoughts, WegoHealth, wellness

The Cost Of Knee Replacements

If you’re having trouble with your knees, you’re not alone.

I also have knee issues. I have Osteonecrosis and osteoarthritis and a torn meniscus all in the same knee.

And doctors are basically waiting for my knee to collapse to replace it.

Me I’m looking to avoid a collapse but at the 10k out of pocket cost it’s almost impossible. I’m talking stem cell injection.

Many people young and old alike are having many problems with their knees and ready to stop the pain.

Can you believe knee replacements have doubled in the United States from 2004 to 2014!

People want to have relief from their knee pain. The shouldn’t have to pas on a treatment that will work becz it’s not covered, or be stuck to live in pain until the knee collapses, then be forced to pay for a replacement.

One option that often comes up is knee replacement surgery.

However, it’s a very expensive surgery that includes a lot of pain and extensive physical therapy. And come on now let’s not forget they remove the end of the knee and replace it with artificial parts.

So let’s walk you through the true cost of knee replacement surgery so you have an idea of what to expect.

Pre-Surgical Consultation Fees

Individuals having knee replacement surgery can expect to incur costs long before actually being admitted to the hospital.

A pre-surgical evaluation or consultation must be completed by your orthopedic surgeon in order to see if an individual can even have the surgery. I think they do this for every surgery to make sure we are strong enough to handle the surgery and not die in the table.

I had umbilical hernia surgery in 2017 and had a cut scan , then a stress test, blood work. All for a 40 minute hernia repair.

Anyway………

This consultation will involve imaging X-rays and MRI’s ,then there is blood work, cultures, and panels.

Patients can expect their providers to also do the following:

Determine bone mineral density

Issue a liver function test

Do an EKG or EC

Possibly a stress test

Conduct a urine test

The consult determines what type of knee replacement surgery will be required PKR or TKR partial or total knee replacement.

Then the cost of the hospital stay and surgery costs.

Those who gave a knee replacement should expect to be in the hospital for at least 2-6 days.

During this time, the patient will require the help of many healthcare professionals.

The cost of the inpatient stay will largely be dependent upon the following:

Length of time in the operating room

Any preexisting conditions that require extra care

Type of implant

Surgical approach

Complications

Number of days in the hospital

Be prepared while in the hospital you will be paying for everything, every pill, glass of water, meals, physical therapy, nurses all of it

Many knee surgery candidates elect to have surgery overseas due to the large difference in cost. In some countries, knee replacement surgery is 50 to 80 percent cheaper than they are in the United States. But no always covered by insurance and it can be risky.

So say you have an 80/20 plan and your knee replacement is 45,000.00 your 20 percent is 9000.00

Now a stem cell injection is 8-10,000usd. Would it not be more cost effective and save the patient pain , and the actual loss of their own joint to just even cover a stem cell injection if the patient meets the criteria?

Even 60/40 would be a plus.

We have get insurance companies, medicare and Medicare to come into the real world. We have great medical technology it’s time the average person has access to it.

Living a life waiting for your knee to collapse is no fun, it’s poor quality and when there are alternative options that could help if you qualify why are we forced to suffer.!!

Posted in Adrenals, Ahlbacks Disease, Arthritis, Awareness, Bone Health, Cardiovascular, Chronic Pain, Coping with Stress, Delicious, Diagnosed, Eat Healthy, Hashimoto, Hypothyroidism, Inflammation, osteoarthritis, Osteonecrosis, SONK, SPONK, Uncategorized, Vegetables, WegoHealth, wellness

Healthy Eating

Developing healthy eating habits isn’t as confusing or as restrictive as many people imagine. The essential steps are to eat mostly foods derived from plants—vegetables, fruits, whole grains and legumes (beans, peas, lentils)—and limit highly processed foods.

 

For most of my life, I ate the standard American diet and meals that were heavy in meat and processed foods. I went to a vegetarian lifestyle in high school for a couple years then back to the old way.

When i was diagnosed with Osteonecrosis, Osteoarthritis HBP etc and especially when my husband had a heart attack in 2016 I thought enough was enough.

I got rid of a lot of processed foods, potato chips, convenience meals, and loved Oreo’s and Nutter Butter cookies. There was a lot of sugar, oil, and junk in my diet.

We quit smoking 2 years ago almost. and we as a team decided to go part time but mostly vegan .

Me having a few issues from Osteonecrosis, Osteoarthritis, Hashimot’s and Hypothyroidism and Adrenal Fatigue left me in pain and always exhausted.

I had been dealing with pain in my knee and back for a few years. My mind wants to go go go like it did 25 years ago, my knees say oh hell no slow down woman. And this extra weight is just hard on the bones. But when your limited by many bone issues its really hard to just walk 3-4 miles a day. I bike 3-4 miles a day but its not the same as a good hike in the woods. I do go now and then walking in the woods but hiking I’m afraid for now all that has been on hold.

Going to mostly plant based has helped my pain. And my energy.

So its working and I am feeling better slowly …..

Its a process…

Don’t just go all I went to 65 percent of eating all veggies daily  then added more from there. Some days i eat no meat or fish and some days i will. I Slowly cut out animal products, starting with the easiest and leaving barrier foods to the end. Slowly lessened  my consumption of animal products while simultaneously increasing the number of plant-based foods in our diet.

I spoke to my doctors and I will post tomorrow just how i got started

 

 

plantsz

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Coping with Stress, Eat Healthy, Energy, Hashimoto, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Plant, RareDisease, SONK, spondylolisthesis, SPONK, Thoughts, Thyroid, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards, wellness

The Path To Wellness Isn’t Easy

How many tines do you feel like for all your good intentions and healthy changes to behavior , you’d like to feel a bit more happy or healthy or have more well in your #Wellness goal?

Well, you’re not alone.

Why is it that despite all the meditation , eating healthy, exercising as best as you can especially if your suffering from chronic pain or a chronic condition , eating kale making smoothies and protein shakes, you seem to spend most days feeling run-down and uncomfortable?

For me that’s Hashimoto thyroiditis.

Plus my adrenals are fatigued making my already slow thyroid work even harder. It just gets so tiring.

I miss that none stop energy I had. I was able to work 8-10 hr days come home get dinner , clean our pool with my husband, have a small patio garden, clean the house , shop etc…..

Now I am exhausted after I do some errands and ride my recumbent bike for 15-20 min.

Again I’m told it’s the Hashimoto

I get sick of mixed messages one Dr. says one thing and the other says another.

I have been told I don’t eat enough. I have been told I eat to much

Drink more water – yes this one is true and I’m working on it.

Eat this

Don’t eat this

High carb

Low carb

Eat your greens , don’t eat your greens

I just get so sick of it .

I know how to eat healthy, I never really ate horrible. I gained weight first after my mom died. Because food soothed me at the time. I was grieving. I knew I wasn’t eating how I should back then.

After working through that and trying to exercise nothing.

Still tired , still carrying a few extra pounds

I tried Atkins and it was just for me more meat than I cared to eat.

I tried a few other things and same ok same ol.

A few year ago I bought some dvds and worked hard and I mean hard.

So hard I tore my meniscus leading to osteonecrosis in the knee that already was a pain in the ass by having osteoarthritis.

And I won’t mention how bad spondylolisthesis pain is.

I have always been a veggie lover. And I prefer veggies.

You’d think switching to plant based would have blasted any fat off me sine it’s been a year plus.

Nope I lose 5 here 10 there then gain 2 back. Over and over.

Again I’m told it’s my Hashimoto

I’ve had hypothyroidism for 20 years and the levothyroxine always made me feel like crap.

No one ever listened when I told them this. I remember telling my Dr. I feel like my body is fighting against me. Most of just looked at me.

Here I was right my body was attacking me.

That’s Hashimoto – I found this out maybe a month ago.

Finally I feel vindicated !!

Even before I went to plant based I didn’t eat horrible.

Sure 1 night or 2 was fast food but not the golden arch kind. Fast food to me meant I was not cooking. I would buy baked fish or on occasion a good spaghetti dinner.

It was going to decent restaurants ordering dinner.

Yes I know they have a shit load of salt in them. But that can’t be the only thing keeping this damn weight on.

Maybe someday these restaurants will get with it and cut their salt by at least half.

And then there’s adrenal fatigue

So what is Adrenal fatigue?

Adrenal fatigue is a potential result of not eating enough and or not eating enough of the “right” foods and the hormone imbalances that creates. While many people don’t fully understand it, the theory is simple it will make you feel tired.

I learned all this from my Naturopath and the Registered Dietician I see.

‘Adrenal fatigue is also a big topic  which comes from calorie restriction for too long throughout the year.

‘Calorie restriction is fine for short periods of time but unfortunately people are looking for body fat loss 12 months a year and the body hates that. Your body is smart and will adapt, so goals become very hard to reach in that state.’

Now What is Hashimoto?

Hashimoto is a condition that arises when the immune system attacks – and damages – the thyroid gland.

Over time, the thyroid gland, which straddles your windpipe at the front your neck, becomes unable to produce enough thyroid hormone so it becomes under-active.

As one of the primary functions of thyroid hormone is to keep your cells – and you – active, if you have insufficient amounts of the stuff, your body will slow down.

Say hello to tiredness and tighter fitting clothing.

“Hypothyroidism is a slow burner and it very easily can go undetected, and often misdiagnosed as depression.

Hashimoto cannot be cured but, symptoms can be managed with medications, designed to rebalance the levels of thyroid hormone in the body.

Did you know 75% of people with Hashimoto are lactose intolerant? some people also find that avoiding gluten can help.

Well I meditate to help manage stress , I cut out daily and I am working on the gluten free area. Some days are harder than others.

A few ways I’m learning to alleviate Hashimoto symptoms through diet.

1. Support the thyroid -This means stripping your diet back to basics – Reduce your consumption of caffeine, sugar, alcohol and refined carbohydrates, which are common triggers for thyroid problems.

2. Avoid Soy

Steer clear of soy products such as soy sauce, tamari and miso,” even the fermented, organic and non-GMO types. “They can impact your cell receptors and disrupt feedback through your hormone system.

3. Eat greens in moderation

It might sound counter-intuitive but, when it comes to thyroid problems, these act as goitrogens this means they interfere with the uptake of iodine by the thyroid gland and, therefore, the production of thyroid hormones.

“I’m a big fan of green veggies so don’t feel like I can never have them,

I enjoy vegetables in the brassica family (broccoli, cauliflower, some kale and Brussels sprouts) cooked well rather than raw, as heat inactivates the goitrogenic compounds.

Other foods to watch out for? Soybeans, millet, strawberries, peanuts, turnips and watercress.Everything I love.

4.Time to love my Adrenals

High cortisol (which is pumped from the adrenals) is directly linked to lower thyroid function so managing stress levels is essential.

5. I take a probiotic every day.

6. I am a flexitarian so I will eat meat or fish 1x a week.

So I have learned meditation, qigong, I love walks in nature and time switched off from social media. People actually get pissed off at me when I don’t respond right away!! I mean really ?! I also practice deep-belly breathing every day.

I am still tired just not totally exhausted.

I just want to feel better get this weight off because that will help my bone conditions also.

I hate feeling like this. I’m sick of feeling so tired.

I’m a happy person who likes to stay busy.

I shouldn’t feel so tired by 3pm

I get frustrated because I am sick of carrying this extra weight around.

My Naturopath feels I’m biking to hard. And suggested I slow the pace down and go longer.

So I bike longer slower , I like it better. I’m not as tired afterwards.

So tweaking more things.

I hope someday I find that sweet spot that revs up my thyroid helps the adrenals and I can feel great and get this fat off my ass once and for all.

I will continue to eat mostly plant based. The other benefit it has is it’s helped my bone pain . I still get it just not 24/7

I do love to meditate and I also enjoy qigong.

One day at a time is all we can do.

Well here’s to wellness!!

Have a great day.

Deb Andio

Posted in Bone Health, Mindfulness, Osteonecrosis, Privacy, spondylolisthesis, SPONK, Uncategorized

Privacy and Facebook To Delete or Not Delete

 Facebook and Social Media

 No one is thrilled with  Mark Zuckerberg  and  Facebook’s epic fail to protect our privacy and our data, to me his apology was just a script. And enough isn’t being done to protect it. I think there should be an easy way to delete your  posts , like a delete all post button. Same with pages we like, instead of having to go to each  one , have that list pop up and just place a check mark then a delete. The set up they have now just doesn’t work well.

For so many  they like a page , take a quiz on who you were in the year 1500 or play a game and never think twice that their privacy is now being invaded.

Some place ads on facebook and they trust all their information is safe.

Being a patient leader and running several information pages is an honor and big responsibility, running a private support   group, where many share things that only others with the same condition would understand  , is an even bigger responsibility, and this recent breech  left me frustrated  by this mishap  as I take such great pride in protecting the members privacy , their feeling and thoughts etc… And here the founder dropped the ball on every member of facebook.

Learn to be on social media responsibly

Whenever you open any app on Facebook, you should know it will ask you for your  permission , Allie or not Allie notifications etc. Even the games on fb have started doing this as well, and in a much more discreet way.  So If you click play or agree to the terms without reading over the terms, it is likely that app has already taken your data.

Most  games  on Facebook will have a statement like your friends will be able to see that you play etc..

Check and adjust your privacy settings and account settings often change your password regularly.

While in the settings, go to the App category  there is a list of the apps you may have logged into using Facebook. Click each one and it will reveal how much info you shared. You will be surprised.

Some of these apps or websites have the right to take your friends list, timeline posts, photos, email address and more.  Any information that is made public on your profile can be taken without  your consent. The worst part is, if you want to get back the data the company has already taken, you’ll have to contact them directly. Facebook plays no part. Now that is some crazy stuff there.

So as  long as you have a Facebook account active, there will always be a chance your data could be taken. Analytics companies may already have your information, but for anything new in the future that you want to keep private, the only 100% effective solution is the delete button.

Go to your profile page and click the  dots next to View Activity Log. You will be given the option to click view as  it automatically shows how public your profile is. Anything you see on there is available to everyone on the Internet. Friends ,  pictures, city ,school , relationships if it appears on the View As public  that mean everyone can see it . So be careful use caution.

 

Am I ready or going to delete my FB accounts?

Nope , it is a very useful tool especially if raising awareness. And let’s face it many companies and media sites spy on us. Based on likes what we buy it’s the price of being online

It’s important what I do for the support group I have and pages I run.

Many depend on my group for support and friendship.

An unbreakable bond between others who have the same disorder or disease as you.

My fb pages provide great current information. We uplift people, we provide hope when some feel as if there isn’t any.

I would be doing more of a dis-service by deleting those pages and groups.

And I as well as my administrators and moderators have worked very to hard to get the platform on Avascular Necrosis-Osteonecrosis-Osteoarthritis-Hypothyroidism- out there especially Avascular Necrosis/ Osteonecrosis.

Where very little information or support is available.

I seen on Facebook in the Help Center that this was addressed and I think they will do better.  See Below here is what was and is written in fb help center.

We’re investigating all apps on our platform and conducting a full audit of any apps with suspicious activity. If we find developers that misused personally identifiable information, we’ll ban them from Facebook. You can also edit the privacy and settings for your apps and games.

Protecting your privacy is at the heart of everything we do at Facebook. We need to do more to safeguard your privacy, so we’re taking action on potential past abuse and putting stronger protections in place to prevent future abuse of our platform.

Notifying you if an app misused your data. Moving forward, if we remove an app for misusing data, we’ll tell everyone who used that app. We’re also building a way for you to see if your data might have been accessed through “thisisyourdigitallife,” the app that sent data to Cambridge Analytica and violated our platform policies.

Making it easier to manage the apps you use. We already show you what apps your account is connected to and what data you’ve permitted those apps to use. Going forward, we’re making these choices easier to find and manage by showing you a tool at the top of your News Feed.

Turning off access for unused apps. If you haven’t used an app within the last 3 months, we’ll remove the app’s access to your information.

Restricting Facebook Login data. We’re changing the way login works to reduce the data that an app can request without app review. Apps can only request name, profile photo and email address. Requesting any other data will require our approval. As we focus on implementing these changes, we’re pausing app approvals. We have a responsibility to protect your data and are committed to protecting your information and making our platform safer

You can see it for yourself  in the help center.

I am hoping  facebook ,  will come up with new ideas to make life on it easier and less time consuming when you want to delete things or unlike pages.

And as with anything else clear your history, cache daily. Keep your browsers updated.

You can also search and log in in what is called incognito.

And I am just grateful that they at least are doing something.

privacy

.

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Factor V Leiden, Inflammation, Osteonecrosis, Pain, Rare Disease Day, RareDisease, SONK, SPONK, The Mighty, Uncategorized, WegoHealth

Rare Disease Day Is Today

Rare Disease Day 28 February 2018

#ShowYourRare

#AvascularNecrosis

#Osteonecrosis

#RareDiseaseDay

Debbie in TheMighty2016

https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/

http://www.ChronicallyGratefulDebla.com

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Food, Food Is Thy Medicine, Foodie, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Pain, SPONK, StopTheClot, Thyroid

Pain Chronic Pain

Once we accept the reality of the current moment (no matter how unpleasant it may be) for what it is, and not what we wish it were, we can turn our attention to ways to improve it. This I find true in any situation.

Living with chronic pain can throw your life upside down.

It’s hard to believe that I can and have managed my rare disease Osteonecrosis (knee) pain. And my Osteoarthritis pain.

But the pain of spondylolisthesis somedays is truly unbearable. It can just take a fabulous day day and screw it all up.

Today is one of those days.

I try to stay busy , and positive when I really would like to go somewhere and just scream at the top of my lungs.

I don’t think my neighbors would appreciate it. So I bang away at the keyboard.

Since the weather in NE Ohio has changed I am having more and more days in pain.

And in the days when all the above hurt I’m down right miserable. Thank Hod that hasn’t happened yet , but then fall and winter have only begun….

I’m grateful today it’s just my back although it feels as if I have been kicked in my L5S1 several times.

Besides having spondylolisthesis I also for the past decade or longer been dealing with osteoarthritis and osteonecrosis since 2014.

If you don’t know what they are I will explain below.

Osteoarthritis

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

In normal joints, a firm, rubbery material called cartilage covers the end of each bone. Cartilage provides a smooth, gliding surface for joint motion and acts as a cushion between the bones. In OA, the cartilage breaks down, causing pain, swelling and problems moving the joint. As OA worsens over time, bones may break down and develop growths called spurs. Bits of bone or cartilage may chip off and float around in the joint. In the body, an inflammatory process occurs and cytokines (proteins) and enzymes develop that further damage the cartilage. In the final stages of OA, the cartilage wears away and bone rubs against bone leading to joint damage and more pain.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85. Lucky me I developed Osteoarthritis at age 45.

One in 12 people 60 years or older have hand OA.

Osteonecrosis What it is….

Osteonecrosis of the Knee. Osteonecrosis of the knee (also known as avascular necrosis) and if in the knee from a meniscus tear also called Ahlbacks Disease is a painful condition that occurs when the blood supply to a section of bone in the femur (thighbone) or tibia (shinbone) is disrupted.

I have Osteonecrosis of the medial femoral condyle due to a meniscus tear in 2014. Strange no one wanted to fix it or have any treatment plan.

This pain is like no other. Your area of Osteonecrosis is ice cold yet it often can feel like it was hit by a lightening bolt.

Weather plays a huge factor for me and my pain. I used to love winter now I can barely tolerate a cool fall day. I dread winter.

I get sick of being in pain. If it’s not the knees it’s back or hands it’s just enough to jack up my day or make things more difficult than they already are.

I have found that plant based lifestyle has helped my osteoarthritis and osteonecrosis a lot. I can’t understand why I haven’t lost a ton of weight though. I mean I don’t eat half the unhealthy calories I used to . But hey the doctors says it’s a slow thyroid.

I just wish these 40 lbs would come off it would also help my bones.

But maybe that will just take time.

If you haven’t tried a plant based lifestyle I would highly recommend it.

My cholesterol numbers are fantastic and all my doctors are impressed especially since I rarely need pain medication vs taking 2 a day like I did 3 years ago.

I truly believe that food can be your medicine or your poison.

The choice is yours.

I will be posting a lot of info and recipes

I don’t always eat perfect but life is about compromise and I follow a 90 / 10 rule.

It’s ok to have a cookie or small cupcake just make sure you eat as best as you can most of the time .

Living food is the way to go.

It may not take away all your pain but wouldn’t it be a benefit if it took away a lot of it ? And made it more managed?

Absolutely!!!

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Food, Happiness, History, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Osteoporosis, Pain, SONK, SPONK, Stem Cell, StopTheClot, Uncategorized, WegoHealth

Bone & Joint Action Week October 12-20

Bone and Joint Action Week is held annually October 12-20 with activities focused on disorders including arthritis, back pain, Osteonecrosis,Osteoarthritis trauma, pediatric conditions, and osteoporosis. The themes and their related activities are designed to raise awareness worldwide about prevention, disease management and treatment.

Statistics on Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Frequency depends on the site involved. The most common site is the hip; other locations include the carpals, talus, and humerus. In most countries, exact figures on incidence and prevalence are unknown.

One Japanese survey estimated that 2500-3300 cases of AVN of the hip occur each year; of which, 34.7% were a result of corticosteroid abuse, 21.8% to alcohol abuse, and 37.1% to idiopathic mechanisms. A French study reported AVN in 4.3% of allogenic bone marrow transplant recipients.

Race: No racial predilection exists except for AVN associated with sickle cell disease and hemoglobin S and SC disease, which predominantly are diagnosed in people of African and Mediteranean descent.

Sex: The male-to-female ratio depends on the underlying cause, although primary AVN is more prevalent in men. The overall male-to-female ratio is 8:1.

Age: Age at onset depends on the underlying cause. Primary AVN most often occurs during the fourth or fifth decade and is bilateral in 40-80% of cases. On average, women present almost 10 years later than men.

Risk Factors for Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Avascular necrosis has several causes. Loss of blood supply to the bone can be caused by an injury (trauma-related avascular necrosis or joint dislocation) or by certain risk factors (nontraumatic avascular necrosis), such as some medications (usually steroid basesd), steroid abuse in general, blood coagulation disorders like sickle cell, Factor V, FactorViii, MTHFR, eNOS and more, chemo and radiation infections in the Bone vascular issues such as vascularitis or alcohol abuse. Increased pressure within the bone also is associated with avascular necrosis. The pressure within the bone causes the blood vessels to narrow, making it hard for the vessels to deliver enough blood to the bone cells.Many deep sea divers get Avascular Necrosis from a condition known as the bends. Gaucher disease.

Progression of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Hip Stages of avn-on

1-4

The natural history of osteonecrosis is directly linked to the size and level of the necrosis. Very small lesions (involvement of less than 15% of the femoral head) may resolve without any further treatment. Conversly, lesions involving greater than 50% of the femoral head progress to collapse, and ultimately require in total hip arthroplasty.

Symptoms of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

In the early stages of avascular necrosis, patients may be asymptomatic. However, as the disease progresses most patients will begin to experience joint pain; at first, only when putting weight on the affected joint, and eventually even when resting. Pain usually develops gradually and may be mild or severe.

If the level of necrosis progresses further and the bone and surrounding joint surface collapse, pain may develop or dramatically increase.

The pain may be severe enough to limit the patient’s range of motion in the affected joint.

In some cases, particularly those involving the hip, disabling osteoarthritis may develop.

The period of time between the first symptoms and loss of joint function is different for each patient, ranging from several months to more than a year.

How is Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis) Diagnosed?

In the earliest stages of Avascular necrosis plain x-rays are often normal. A magnetic resonance image (MRI) is the key that allows us to detect AVN at its earliest stage.

Osteonecrosis develops when the blood supply to a segment of bone is disrupted. Without adequate nourishment, the affected portion of bone dies and gradually collapses. As a result, the articular cartilage covering the bone also collapses, leading to disabling arthritis.

Osteonecrosis of the knee can affect anyone, but is more common in people over the age of 60. Woman are three times more likely than men to develop the condition.

Risk Factors

It is not always known what causes the lack of blood supply, but doctors have identified a number of risk factors that make someone more likely to develop osteonecrosis.

Injury. A knee injury—such as a stress fracture or dislocation, meniscus tear, bruised patella or combined with some type of trauma to the knee, can damage blood vessels and reduce blood flow to the affected bone.

Oral corticosteroid medications.

Many diseases, such as asthma and rheumatoid arthritis, are treated with oral steroid medications.

Although it is not known exactly why these medications can lead to osteonecrosis, research shows that there is a connection between the disease and long-term steroid use. Steroid-induced osteonecrosis frequently affects multiple joints in the body.

Medical conditions.

Osteonecrosis of the knee is associated with medical conditions, such as obesity, sickle cell anemia, and lupus.

Transplants. Organ transplantation, especially kidney transplant, is associated with osteonecrosis.

Excessive alcohol use.

Overconsumption of alcohol over time can cause fatty deposits to form in the blood vessels as well as elevated cortisone levels, resulting in a decreased blood supply to the bone.

Chemo therapy and radiation Non-traumatic osteonecrosis of bone is recognized as a potential complication in solid-tumour cancer patients receiving treatment with cytotoxic chemotherapy.

Regardless of the cause, if osteonecrosis is not identified and treated early, it can develop into severe osteoarthritis. And for some with osteoarthritis before avn the disease is even more painful.

Knee stages of avn-on

1-4

Checkout ChronicallyGratefulDebla.com

#AvascularNecrosis

#Osteonecrosis

#Osteoarthritis

#Arthritis

#BoneAndJointHealth

#BonePain

#Awareness

#Spondylolisthesis

#Spondy

#ChronicPain

#RheumatoidArthritis

#Spoonie

Checkout

ChronicallyGratefulDebla.com

Thank you for visiting

If you found this information helpful please subscribe, like and share anything you see in here.

Together we can make a difference and help so many Men ,Women and Children.

Have a blessed and Pain-free Day.

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Diagnosed, Pain, SONK, SPONK, Uncategorized, WegoHealth

SPONK-SONK

Spontaneous Osteonecrosis of the Knee, also known as Ahlback’s disease is the result of vascular arterial insufficiency to the medial femoral condyle of the knee resulting in necrosis and destruction of bone. It is often unilateral and can be associated with a meniscal tear.

I was diagnosed in 2014 after I suffered a medial meniscus tear and ended up with SPONK Spontaneous Osteonecrosis of the Knee, also known as Ahlback’s disease