Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Hashimoto, Hypothyroidism, Life, osteoarthritis, Osteonecrosis, Pain, SPONK, Stem Cell, StopTheClot, Support Group, Hope, The Mighty, WegoHealth, WEGOHealthAwards, wellness

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today.

Here’s how you can also nominate others who educate, advocate and make a difference!

Click link below

WEGOHealth Awards and Nomination Info

WEGOHealth Awards Link To Information

Think about the advocates and influencers you see leading Facebook groups, blogging about their health journey, speaking up and giving insights to healthcare companies, presenting on national stages, and running Twitter chats.

Patient Leaders have started non-profits, published podcast episodes, and authored books – there is no shortage of Patient Leaders’ contributions to the world, so let’s recognize as many of them as we can for their talents, contributions, and commitment.

Feel free to add their names and web info also in my comment section! And they can get some recognition here to !

Have a Great Day Everyone

Posted in Awareness, Coping with Stress, Drugs and Alcohol Abuse, Life, Energy, Faith, Life, Meditation, Mindfulness, Opinions, Pain, Positivity, Support Group, Hope, Uncategorized

Excuse Me Are You Drunk or High…

It saddens me to see men and women young and old become addicted to drugs and alcohol

I have lost so many friends because of both.

They went from smart individuals with great paying jobs to being homeless , liars and thieves and how terrible it usually ends in jail or worse death .

With all the information online and the news about drug addiction, overdoses, people having damage to their hearts brains memories because of drugs not just heroin but crack, coke, crystal meth, speed, downers pain pills, valuim, xanax, and yes I am including alcohol and weed.

How can smart people choose to go down such a dark black path that leads to destruction of their lives? And the lives of their family’s?

Do they not understand or care that it rips families apart.

I’m sorry I’ve had my share of pain both physical and emotional and heartache as well as loss , loss of both parents, loss of friends due to death due to disease or overdose or suicide, and I’m here to tell you you need to learn how to cope with life or your going to end up dead.

I’m lucky I guess I always knew how to cope sure not always productive but never destructive.

I see old friends who last year were making 80-100,000 a year now homeless and ruined by cocaine , alcohol and heroin.

Their families destroyed, all because they couldn’t cope with something or someone and started to use drugs or alcohol to bury their feelings and pain……

I’ve attended funerals of friends who died from eating to many somas or xanax that they went to sleep and never woke up.

Or an old classmate overdosed on heroin

Or was killed in a car accident because they were drunk.

Or ended up in jail because they couldn’t hold a damn job any longer and resorted to theft and some prostitution.

Or they are on disability because they fucked up their heart because of cocaine and or crack.

I’ve had friends die from suicide because they were so fucked up they had no idea that the problems they had were just temporary and chose to kill them self.

GET A GRIP PEOPLE!!

I mean we preach to our kids not to do this and yet adults feel they are above this. Wake up call…. YOUR NOT

And kids well kids and young adults have that not me and no fear attitude until the shit hits the fan… and it will sooner or later it will ….

And what about kids today. How can they even start on this shit? They hang out with losers ruining their lives before they even have a chance to live it.

Why do people feel the need to “party and or get high”?

Can’t you have fun with out it?

From what I see you still look fucking miserable and lost. And you sure look like hell so where’s the fun?

Grow up and wake the fuck up people

Drugs and Alcohol KILLS if you don’t think it will You your living a lie.

As holidays are here seems like everyone feels the need to celebrate something and that’s ok if you are a responsible. You don’t drink and drive. You. Know when to stop but some will overindulge with alcohol drugs or both and wind up with DUIs , Go to court and lose your drivers license, pay court costs, insurance rates skyrocket,attorneys fees possible jail time and let’s not forget possible death to you or someone else.

Plus you can and eventually will be come addicted either physically or mentally or both.

So be smart don’t drink and do drugs and for god sake don’t drive under the influence!!

Globally, alcohol misuse was the fifth leading risk factor for premature death and disability in 2010. Among people between the ages of 15 and 49, it is the first. .

In the age group 20–39 years, approximately 25 percent of the total deaths are alcohol attributable

So imagine if your in a room with 100 people 25% is 25 people that could die from alcohol.

Alarming!!

And stats are just as bad across the board when people use drugs!

And who the hell wants to willingly take Molly? Are people that stupid it’s called the date rape drug for a reason!

People will slip you this in your drink or lie and tell you it’s something else…

I’m just shocked at how dumb people are…..

if you think it can’t happen to you…it probably will …

Do why chance becoming and alcoholic or addicted to drugs?

Or killing you or done innocent person in a crash because you want to get high and try to escape reality….hopefully you know that drinking and drugs don’t make your problems go away….if anything they will make them worse…..

So all you adults and kids

Grow the fuck up get a grip! And get some help. Before you end up in jail or dead!!!

Detoxing from what I have seen others go through is a version of hell….

If your reading this and in recovery please share your words of wisdom in comments please. We need to save some lives!!

I see what it’s doing to your wife, or your husband or your parents or your old friends who are truly worried about you!!

Stories

For grown individuals

https://www.bible-knowledge.com/testimony-drugs-and-demons/

If your a teen or young adult your I don’t give a fuck attitude will get you killed or a life of pain and addiction which will lead to death.

http://www.couragetospeak.org/aboutus/couragetospeakstories.aspx

Maybe I just had more experience dealing with heartache and pain early in life and learned to cope better.

Just to name a few tragedies in my life

I remember watching my dad so many times as a young child age 8 having heart attacks open heart surgery nearing death. Fighting to live he didn’t drink he didn’t use drugs but his drug was cigarettes I remember being scared that my dad was going to die.

I saw him try so many times to get back to work but his heart wouldn’t allow it

He had his his 1st heart attack at age 39 and he didn’t use drugs he just had a bum ticker he sadly died at age 56 I was 25.

I watched my mother die at age 65

I had no brothers and sisters so I basically was now an orphan….

I was physically attacked in hs Thank God a friend saw it and saved me or I would have been raped.

I had an abusive first marriage I suffered joblessness homelessness and I never reached for drugs or alcohol to cope.

I smoked weed in hs for a brief moment I dreamt when I was older but I never abused it.

I stopped before I got in to deep.

I remember being in pain from a car accident in 2000 and all the doctors wanted to do was medicate me. At first I did what they said but I saw what it was doing to me… I was becoming depressed so I said screw them fired them .

I’m not against people in pain getting help I am against drug and alcohol abuse of any kind ……

Are we that lost and weak or ungrounded that we have to use substances just to cope?

Or is that your excuse!!!

I will pray for you to wise up !

Please call and talk to someone get help before it’s to late!!

How would you feel if you watched your friends head down the wrong path …would you watch them die? Or try to help them get help !!!

Posted in Avascular Necrosis, Awareness, Blessed, Bone Health, Eat Healthy, Eye Exam, Factor V Leiden, Faith, family, Family Tree, Geneology, God, Happiness, History, Inflammation, Life, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Positivity, Support Group, Hope, Uncategorized, Vision, WegoHealth

Life

Life doesn’t always introduce you to the people you want to meet.

Sometimes life puts you in touch with the people you need to meet ,to help you, to hurt you, to leave you, to love you, and to gradually strengthen you into the person you were meant to become.

Say to yourself, regardless of whatever it is that you are facing, I will be all right.

Create an atmosphere of good positive that is about peace, healing and hope around yourself.

Get rid of people who bring you down, want to see you fail, or make you question your beliefs.

Whatever it is you are facing unexpected challenges, health problems, loss of a loved one, anxiety and stress, say to yourself.

I am going to be ok. Calm your mind, speak to your body, rest your spirit and relax you mind.

God will not allow you to fail.

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Food, Homemade Syrups,Tinctures,Rubs, Inflammation, Life, Meditation, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision, WegoHealth

I Am A Patient Leader to Help and Empower Others ~ WEGOHealth Awards 2017

 I would really appreciate your vote. Please read my story and why I became a patient leader and advocate. ThankYou.

I am so excited to announce that I have been nominated for several of the WEGO Health Awards in the

6th

Annual WEGO Health Awards.

WEGO Health is a mission driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.

Click link below to learn more about their

Patient Leader Network.

https://awards.wegohealth.com/nominees/12801

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice.

With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100,000 yep one hundred thousand inspiring Patient Leaders who raise awareness, share information, and support their communities but often without recognition.

I was diagnosed with osteonecrosis also known as avascular necrosis in late 2014. I was told it was due to the trauma I suffered to my knee(medial meniscus tear)

I remember how I felt, I remember how afraid I was and also a feeling of hopelessness.

If doctors couldn’t help or fix me or even try what was I to do.

I never want anyone to feel that way starving for answers to questions about a new diagnosis and no place to go and no one willing to take the time to explain your new diagnosis. I new others had to be feeling the same way as I was and what an awful feeling that was . Sure I have support from my family but they don’t really understand the pain no one can unless you have it.

So I started the support group Avascular Necrosis/Osteonecrosis Support Int’l to be a safe haven if you will, for anyone that suffers from the disease. On occasion we also allow a family member in the group if the member is comfortable with that so they can also see how this disease/disorder effects people, so they can learn from awareness and education, to have an idea just the type of pain their family member has.

The physical and psychological effects can be debilitating and isolating. Especially when you have what I refer to as a flare up of pain. You can’t plan to go to that wedding next month, you don’t know how you’ll feel in an hour.

The pain can be constant day and night pain or come at any time out of nowhere or in waves and they’re quite perturbing. It’s like a hot lightning bolt and a sledge hammer hitting you at the same time and it can be shocking to those around you,because you end up maybe screaming or yelling,sometimes swearing or just overall mood change because the pain is so intense words truly cannot describe. Some words are hot stabbing shooting debilitating and yet frozen , tourniquet like cutting off your blood supply cold pain that’s what we feel.

Its not just the pain that affects us , but also the sadness or depression that can often come with it. When we think about the future and pain gets in the way of all our plans expectations, it’s a bit shattering.

Everything seems to sort of fall apart and right now you can see only the broken image of the new you .

It’s like looking in a shattered mirror all these different fragments that no longer make you whole.

My life became very fragmented and it was a moment to moment thing because I didn’t know how I would make it through that particular day or make it through what’s going to happen tomorrow. When I was first diagnosed my mind was all over the place.

I’m not terminal but I felt like I was , because my life as I once knew it was done…over.

No doctor I saw had any plan of action to help me in fact I was told we will wait until the joint collapses then replace the knee . Talk about mind blowing!

Osteonecrosis took my career in optical which I loved. It took my hiking in the woods away which I enjoyed. It limits me which I hate. But it’s also given me a new purpose and that is spreading awareness, discussing new treatments, the chance to educate , and reaching out to others. I am a patient leader and activist. Making the invisible, visible

If you allow it, the pain and mental shit you go through when you live in pain and with a rare disorder to boot whether it’s constant or sporadic it can be toxic to the mind and soul sucking.

God forbid don’t ask for pain meds.

When I was first diagnosed my first Ortho said the pain will get intense as if it wasn’t already but I don’t give pain meds. I wondered how bad will it get? I’m already in such pain I can barely stand it. Thankfully my family doctor gave me some pain medicine.

It helped but I don’t want to take it. I’d much rather find out how to fix me.

I’m not some junkie looking for a fix, hell I don’t even want to be at a doctors office.

I would much rather be working or frankly doing anything but sitting in a doctors office.

There is so much stigma that goes along with having chronic pain .

The generalization that everyone is claiming they are in pain just to get drugs is unfair and incorrect, and I think we have to be very careful because pain for most of us is invisible,to others.

When we are out of balance mind ,body , and spirit it makes it so hard to focus.

It makes anything and everything worse.

So we have to change our mind set,respect and do what we can to help our body,and interact with others.

Usually I think people will find that in a support group even if they don’t talk they can listen to people who have the similar experiences, frustrations , challenges,pain, treatments or lack of treatment availability or just simple acknowledgement of I know what your going through, many days is a great help.

And it’s very hard to find that outside a support group.

I never insist a new member speak unless they want to. Some are just so devastated by the diagnosis that they have no words. When I see a new member especially a newly diagnosed one, my heart just knows how much fear they have and how afraid they are. I always let them know that can say anything here and it will remain here. But if they are not ready that’s fine to.

I also offer to send them a copy of a booklet I wrote about avn/on.

I know later their words will come. Right now they need to know they are not alone.

I also raise awareness by several

FB pages

Instagram

Twitter

Personal Blog on word press and blogger

Chronicallygratefuldebla.com

That’s why I am a patient leader and activist.

Here is the link to my WegoHealth profile.

I would appreciate your vote.

You can vote daily up until September 1, 2017.

Here is link

https://awards.wegohealth.com/nominees/12801

Thank you

Current Nominations in The 6th annual WEGO Health Awards

#WEGOHealthAwards

#PatientLeader

Please share this if you would be so kind.

Social Footprint

https://awards.wegohealth.com/nominees/12801

chronicallygratefuldebla.wordpress.com

facebook.com/debbie.briglovichandio

youtube.com/user/debbieandio

twitter.com/debbiea001

instagram.com/debbiea_1962

facebook.com/groups/deadbonediseaseavn

facebook.com/chronicallygrateful.me

facebook.com/avascularnecrosisrarediseasedayfeb29

facebook.com/osteonecrosis-avascular-necrosis-support-913679995417381

facebook.com/onavascular-necrosis-knowledge-752404224891578

facebook.com/yummygoodness

twitter.com/osteonecrosisme

facebook.com/chronicallygrateful.me

facebook.com/morningtalk.health

blogger.com/blogger.g?blogID=4338585393508080811

www.pinterest.com/amp/pin/487444359646285508/

What is osteonecrosis?  The term literally means bone death -osteo =bone necrosis=death.

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Factor V Leiden, Flush not Blush, Happiness, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, Support Group, Hope, Uncategorized, WegoHealth

From Optometric Tech /Optician To Professional Patient & Patient Leader

If you have a chronic condition or illness you may already know and understand what it feels like to be a professional patient.

Between the physical pain and symptoms and emotional symptoms, the constant doctor appointments in search of that one person knowledgeable enough to help vs refer you to yet someone else and the numerous tests and procedures (not to mention having to keeping track of all of it & all the bills that go with it ) having a chronic condition can become a full-time job and to be honest it’s more exhausting than a good day’s work.

Speaking of work.
You may find yourself needing to cut back on hours at work , go to part time or stop working altogether.

Although this may be a necessity for you and your health, other people don’t always understand why you’re not working.
They may have these crazy misconceptions that you’re now somehow slower , lazy on vacation or lucky not to have to go to work .

Those of us with chronic conditions know, this is so wrong .
And we need to say this for those who don’t understand what we feel or go through. Maybe then people will be less judgmental.

So here is what most people don’t know or understand about not working due to chronic condition or illness.

I personally would much rather be at work.
People look so surprised when I tell them that, some act as if I’m off on some luxurious vacation.
They have no idea that I’m probably home.

So yes, I’d rather be at work because being at work means I’m healthy again.

Logically I know that one good day doesn’t mean I have to ability to hold my full time job again , but its nice to hope I will be back to work someday.

I wish people knew how much I miss my job. I stayed far longer than I should have and probably did more damage to my knee than I needed to, because it was such an important part of my life.

I lost 90 percent of my social life when I left my career and now being at home mostly all day every day is incredibly isolating, not to mention how guilty you feel not doing your part. Every day I hope that I’ll be able to work again someday soon , there are only so many episodes of a tv show a person can watch , I am writing a book and I do take classes.

Being on disability and trying to get the best treatment is a full-time job.
I fill out paperwork constantly new doctors , more questions than answers.

Researching new treatments and the cost only to find great new Like about stem cell injections helping my Osteonecrosis but then being let down seeing that it’s 5-10k and never covered by insurance.

Then the frustration and sadness sets in because I live in America and I paid into Medicare and my share of taxes. And yet the government continues to hold up proven treatment that could help tens of thousands and yet some countries allow the cost of stem cells for their patients.

I also think many people see me and because I wear a little makeup and curl my hair, I think she doesn’t look disabled or ill. They don’t see me on the days I can barely move .
The days I need help going to the store because it gets so cold in the winter here in Ohio I am literally like concrete and in a great deal of pain.
Thank God Giant Eagle grocery store has a new shop for you curbside express.
You will be utilizing it this winter.

I try to be positive even when I’m in pain. I have a disease that is called Osteonecrosis due to trauma to the bone which has left me with a lack of blood supply to the knee.If you don’t have AVN/ON you won’t ever understand my pain.
I also have Spondylolisthesis L5S1 spine issues.
And Osteoarthritis another painful bone condition then add Spondylolisthesis,Hypothyroidism and Rosacea to the mix

Even though I get disability I do feel guilt now and then. I feel like I’m not contributing financially to my marriage and to be honest I miss working and making my own money.

My husband reminds me that he loves me and I would be doing the same for him if it were reversed and he’s right.

Being home all the time can be really lonely. If I had the energy and the physical stamina to be out and work, everyday life would be more fun again.

The isolation from limited human interaction is challenging so I started to take a few classes here or there, attend a seminar for this or that and meet new people. I’m going to be a health coach.

I find things to keep me and my mind busy.
I have a support group for Osteonecrosis.

I find that the spondylolisthesis is the more st painful of the few conditions I have, and the pain from Osteonecrosis is being managed mostly but it has its flares.

Osteoarthritis the stiffness is really indescribable.

But I make my own pain rubs and herbal remedies you can find many in this blog. But more will be in my book.

I became a patient leader and advocate.
I wrote a booklet about the Avascular Necrosis/Osteonecrosis
And I blog and I’m writing a regular ebook and it should be completed by the end of the year.
link to blog ChronicallyGratefulDebla.com

I would love to find a decent work from home job.

Trust me, I would love to hold down a regular job in the optical field again.

No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem.

People always want you to be there for them, but are they ever there for you? Most of the time no.

I’m bored out of my absolute mind. I loved working and until my pain got bad, my job actually took my mind off it for the most part.

So next time you see your friend or family member that’s on disability don’t envy them.

Maybe remember to call them a little more often.

And let’s hope someday the government will help people get their life back by adding stem cell injections to all forums of insurance.

Posted in Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Inflammation, Osteonecrosis, Support Group, Hope, Uncategorized, WegoHealth

Avascular Necrosis/Osteonecrosis

Avascular necrosis (AVN), or more correctly “osteonecrosis”, is a generic term referring to an ischaemic death of the constituents of bone.

AVN has a wide variety of causes and can affect nearly any bone in the body. Most sites of involvement have an eponym associated with avascular necrosis of that area, and these sites are discussed individually as each site has unique clinical, etiologic and prognostic features.

The terms ischaemic and avascular necrosis are typically reserved for subchondral osteonecrosis, whereas bone infarct refers to medullary osteonecrosis.

Epidemiology

There is no single affected demographic as the underlying predisposing factors are varied.

Pathology

Infarction begins when the blood supply to a section of bone is interrupted. Once an infarct has become established, just as in other tissues, there is a central necrotic core, surrounded by an ischaemic zone, the inner portion being ‘almost dead’ and the outer portion being hyperaemic. Beyond this is normal viable marrow. Between the normal and the ischaemic zone that demarcation occurs with the development of viable granulation separating dead tissue. This leads to the double line sign on MRI.

When the infarct is subchondral, a wedge of tissue is typically affected, the apex of which points towards the centre of the bone.

Aetiology
•trauma (fracture or dislocation)
•Increased pressure inside the bone
• HIV
• Lupus
•Cancer
•Caissons disease
• Blood Clot disorders,haemoglobinopathies, e.g. sickle cell disease
•pregnancy-related AVN
•radiotherapy,chemo
•connective tissue disorders and vascular issues
•renal transplantation
•corticosteroid excess (both endogenous and exogenous)
•pancreatitis
•gout
•Gaucher disease
•alcohol and smoking

Mnemonics: STARS, PLASTIC RAGS

Eponymous names for specific sites of avascular necrosis
• Ahlback disease: medial femoral condyle, i.e. SONK
• Brailsford disease: head of radius
• Buchman disease: iliac crest
• Burns disease: distal ulna
• Caffey disease: entire carpus or intercondylar spines of tibia
• Dias disease: trochlea of the talus
• Dietrich disease: head of metacarpals
• Freiberg infraction: head of the second metatarsal
• Friedrich disease: medial clavicle
• Hass disease: humeral head
• Iselin disease: base of 5th metatarsal
• Kienbock disease: lunate
• Kohler disease: patella or navicular (children)
• Kummel disease: vertebral body
• Legg-Calvé-Perthes disease: femoral head
• Liffert-Arkin disease: distal tibia
• Mandl disease: greater trochanter
• Mauclaire disease: metacarpal heads
• Milch disease: ischial apophysis
• Mueller-Weiss disease: navicular (adult)
• Panner disease: capitellum of humerus
• Pierson disease: symphysis pubis
• Preiser disease: scaphoid
• Sever disease: calcaneal epiphysis
• Thiemann disease: base of phalanges
• Van Neck-Odelberg disease: ischiopubic synchondrosis

Location specific sub-articles for avascular necrosis:
•hip avascular necrosis
•scaphoid avascular necrosis

Radiographic features

Radiographic changes alter with the stage of AVN – see Ficat staging, Steinberg classification.

Radiograph

In general, there is initial minor osteopenia, followed by variable density. Gradually microfractures of the subchondral bone accumulate in the dead bone, which is unable to repair leading to the collapse of the articular surface and the crescent sign of AVN. Eventually the cortex collapses and fragments, with superimposed secondary degenerative change.

MRI

MRI is the most sensitive (~95%) modality and demonstrates changes well before plain films changes are visible.
•diffuse oedema: oedema is not an early sign; instead, studies showed that oedema occurs in advanced stages and is directly correlated with pain
• reactive interface line is a focal serpentine low signal line with fatty centre (most common appearance and first sign on MRI)
• double line sign: serpiginous peripheral/outer dark (sclerosis) and inner bright (granulation tissue) on T2WI is diagnostic
• rim sign: osteochondral fragmentation:
•secondary degenerative change

Nuclear medicine

Bone scintigraphy is also quite sensitive (~85%) and is the second option after MRI. It is a choice when multiple sites of involvement must be assessed in patients with risk factors, such as sickle cell disease. The findings are different accordingly to the time of the scan:
• early disease: often represented by a cold area likely representing the vascular interruption
• late disease: may show a “doughnut sign”: a cold spot with surrounding high uptake ring (surrounding hyperaemia and adjacent synovitis)

Treatment and prognosis

The goal of treatment is to reduce the load on the affected part and to promote revascularisation. Treatment varies with location and includes:
•conservative: anti-inflammatory, analgesia, and reduced/non-weight bearing
•core decompression
•joint replacement for end-stage disease

Practical points
• MRI and bone scintigraphy have high sensitivity, with MRI studies being the first line for AVN assessment

See also
•differential diagnosis of erosive arthritis
•monoarticular arthropathy

Monoarticular arthropathy can result from a number of causes:
•infectious arthritis
•gout
• HADD (hydroxyapatite deposition disease)
•traumatic arthritis
•secondary osteoarthritis
•avascular necrosis
•PVNS
•synovial osteochondromatosis
•osteochondritis dissecans

What Research Is Being Done to Help People With Osteonecrosis?Some goals of research are to learn more about:How many people have osteonecrosis

Risk factors for osteonecrosisWhy steroids cause osteonecrosisThe role of genesHow to diagnose the disease earlyBetter treatments for osteonecrosisWays to improve hip replacementHow mechanical factors such as the alignment of hips, knees, and ankles affect treatment success.For More Information About Osteonecrosis and Other Related Conditions:
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information ClearinghouseNational Institutes of Health1 AMS CircleBethesda, MD 20892–3675Phone: 301–495–4484Toll free: 877–22–NIAMS (226–4267) TTY: 301–565–2966Fax: 301–718–6366Email: NIAMSinfo@mail.nih.gov Website: http://www.niams.nih.gov

Links can be found below and at
http://www..ChronicallyGratefulDebla.com

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Made and copyright Debla2016

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Chronic Pain, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Flush not Blush, Food, Gluten Free, Happiness, Herbal, Homemade Syrups,Tinctures,Rubs, Inflammation, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision

Get To Know Me

Hi, I'm Debbie and I have Avascular Necrosis/Osteonecrosis, It's a rare disease/disorder where you have a temporary or permanent loss of blood supply to the bone.
I developed my avascular necrosis/osteonecrosis after I suffered a meniscal tear. I'm lucky and very grateful because the doctors don't feel it will go to any other joints . Others including small children are not so fortunate.

We need more research on so many levels and trials.

I love to learn.
I love to educate
I love to help people realize their is always hope.
I have started to go to a more plant-based diet to help the pain caused by inflammation.

However I still will eat meat once a week no more than 2x a week.

I also personally take supplements all ok'd by my PCP

Vitamin D varies from 2000 to 5000 iu a day based on lab results

CoQ10 400mg a day

CuraMed Curcumin 375mg my
Ortho had me start with 1 in a.m and 1 in p.m for the first week, then take 1 a day.

Krill Oil – Not Fish oil
I buy Antarctic Krill Oil Platinum by 1MD because it's top quality.

Krill and fish oil similarly contain EPA and DHA, but they differ in the way that the omegas are bonded. The omegas in krill oil are mostly bonded to phospholipids while in fish oil they are bonded to triglycerides. The fat cells in humans are also in phospholipid form. A study done on the metabolic effects of krill oil concluded that the omega-3s from krill oil may be more readily and effectively absorbed after ingestion and distribution into the bloodstream.

I have gone from eating food that really wasn't that healthy to eating mostly plants real food. To help my body by giving it the best nutrients possible.
I have to say my pain has decreased.
I will have a cheat day now and then.
But when you get used to eating good healthy food anything other than that just doesn't taste as good.

So I will be posting various recipes on my main blog and sometimes here as well , ones that I tried and loved as well as some information about myself and about Osteonecrosis aka Avascular Necrosis and a few other things

I Research a lot of things
Osteoarthritis
Osteonecrosis
Spondylolisthesis
Factor V Leiden Heterogeneous
Hypothyroidism
Rosecea
Clinical Trials
Stem Cell and Prolotherapy

I love history and being outdoors

One thing I know I will do again someday is hike . Since diagnosed with Avn I haven't lived or hiked as much as I used to do to limitations because of bone problems.

I love learning and applying new things into my own life.

I truly believe we can help our pain and diminish symptoms and heal our own body most of the time if not all the time.

We just need the right tools and the know how.

My Links

Facebook Main Profile https://m.facebook.com/public/Deborah-Andio

Main Blog ChronicallyGratefulDebla.com

YouTube Awareness Videos https://m.youtube.com/user/debbieandio

New Blog on Google 3/8/2017 http://chronicallygratefuldebla.blogspot.com/2017/03/hello-i-am-debbie-andio-i-am-blogger.html

Link to Mini Fact Videos http://cortanavideo.trade/user/UC1RtmEwtWKC8w9EgE2IwOFg

Twitter https://mobile.twitter.com/debbiea001

Instagram https://www.instagram.com/debbiea_1962

FB Information and Awareness Pages Bone info and Joint of the Day https://m.facebook.com/AvascularNecrosisRareDiseaseDayFeb29/

ON/AVN https://m.facebook.com/Osteonecrosis-Avascular-Necrosis-Support-913679995417381/

ON/AVN https://m.facebook.com/ONAvascular-Necrosis-Knowledge-752404224891578/

Recipes https://m.facebook.com/YummyGoodness/

Facebook Link https://m.facebook.com/ChronicallyGrateful.Me/

NewMorning Talk Anyone who wants to do a f b live via a guest message me. Various topics health, pain, food https://m.facebook.com/MorningTalk.Healh/

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Gluten Free, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Rosacea, StopTheClot, Support Group, Hope, Uncategorized

My Sleeping Giant Called Chronic Pain.

Not everyone knows what it is like to suddenly one day be told by a doctor you will have chronic pain for probably the rest if your life.
I've been blessed with a few painful diagnosis, I say blessed because I know I will help others because of my diagnosis.

Osteoarthritis 2010
Osteonecrosis 2014
Spondylolisthesis 2016
Hypothyroidism 2002
Rosecea 2017

Shock is one of the best words I can use to describe how I felt when that happened to me.

Today I discuss Osteonecrosis

When I began facing the symptoms of Osteonecrosis aka Avascular Necrosis , I was in shock the day I was diagnosed.
I just couldn't believe that a torn meniscus could lead me down this path.

One day I was fine and then the next day, I was in my bed due to intense debilitating pain.
I had a job as an optometric tech/optician that I loved.
I just never knew I would encounter something so life changing all because of a torn meniscus that ended up with me having AVN/ON.

I pictured myself being at my job for a long time, I want to retire at 59 not 51 and certainly not because I had to.

I felt as if this rare disease/disorder called Osteonecrosis had drastically altered my vision and goals and my future career.
I began to feel uncertain about my life and the plans I was making for it. My anxiety seemed to be off the chart.

When someone tells you that Osteonecrosis is bone death all you seem to hear , at least in my case is death.
My heart raced, thoughts of being in a wheelchair flashed in my mind.
This went on for a few weeks to maybe a few months.
I had to get a grip and come to terms with this. Even though my family and friends were supportive I felt terribly alone.

No one really knew how I felt and words couldn't describe that constant pain I was in.
I often refer to it as being hit by a hot lightening bolt over and over.

I woke up one day after my torn meniscus ended up with me developing Osteonecrosis and could barely walk and I could not focus when people were talking to me because my mind kept jumping around trying to figure out what I could do to help myself. How can I get some of my life back, how to get this pain to ease or just go away.
I want to get back to things I love like work, walking and hiking, living.

Through trial and error I learned what to do and what not to do for the most part. But I still get days even weeks where the pain returns to let me know it's still there, lurking like a stalker in the background.

My AVN/ON is better some days than others. The first 2 years honestly was constant pain 24/7 it was so bad I couldn't work anymore. I could not go up steps period. I could barely function.
I wasn't one to take pain pills all the time, even though I had them.
I asked my ortho for alternative ideas
He suggested CuraMed.

I started to take Terry's Naturally CuraMed 375 mg a day x 2 a day for the first week , then once a day since.

As well as Vitamin D because I was severely deficient,and a few other medications that was prescribed by my doctors.

I was taking all the other supplements before the CuraMed and honestly with in 2 weeks my pain eased up enough to notice. It was still there but not as severe.

I also read about raw and plant based food to help the pain. Amazing..

Then after about a month there were days I had very little pain ,pain still present like a dull ache and I was so thrilled to be able to at least go to the grocery store and come home and not cry or feel defeated.

I had to have a umbilical Hernia repaired and was told stop all Supplements!
I wasn't thrilled about this but understand why.

With in 3 days of not taking my supplements my pain comes back with vengeance .
Are you kidding me?!

I hate that I am unable to predict it. After a 3 years of enduring this pain off and on I am still amazed at how rapidly my condition can change.

I take my supplements everyday but sometimes the pain does put me in check. It yells HEY LADY…..
I'm still here.

Yesterday I had a flare up the pain was overwhelming so frustrating.
I'm still in pain today just not as bad as yesterday.
When I limp it throws off everything and then the Spondylolisthesis in my L5 starts acting up. I get numb when I sit. So some kind of nerve issues happening.But ya know I don't even worry about that right now.

The pain is like a sleeping giant. You never know when the beast will awaken. But look the frick out when it does.

Besides physical pain also can come body image issues, due to limited mobility and possible weight gain or loss with a chronic condition.

Limited mobility and those who have to take medications just to be able to survive takes a toll on your weight. Be it steroids which is horrible for people with AVN in fact it's been known to cause AVN . I am grateful that my avn/on was due to trauma.

I gained weight because I'm not anywhere near as active as I was yes I changed my diet but still the body has to move, and in my opinion prolonged use of any rx or supplements can have a big effect on a persons weight. Plus I have Hypothyroidism which has its own set of issues.

But because of AVN/ON , exercise may be limited or barely exist, because sometimes just getting out of bed in the morning feels like you just climbed for days in the Appalachian mountains. I have learned that no matter how much pain I'm in , I have to move some or I will feel worse.

Unfortunately mood swings can happen especially if pain is severe and often debilitating. It really sucks.

You can feel it like a light switch inside you clicks.
But 10 min later if pain is gone or subsided you can be relaxed and happy.

I really hate pain. And I hate feeling moody I like to be happy.

I started keeping a combination food/pain diary.

My food/pain diary is used to monitor levels of pain over a an extended period of time to see if I had possible triggers for my pain.

I know it might sound very weird and kind of scientific, but just think about it,say last week you had intense pain and then it was gone and say you ate a different food maybe there's a correlation between the two.

If you have a condition where you experience pain off and on for weeks or months,years you will remember that pain on January 1 or July 28th.

So if you keep a food/ pain log maybe the pain is brought on by an allergic reaction to something in a particular food.

Then you know to stay away from it.

I'm not saying it's 100 percent accurate but for me it's helped tremendously.
However somedays my body just has pain especially winter months. I used to love winter now I dread it.

Speaking of cold,I also have this freezing cold feeling in the knee that has the Osteonecrosis in it.

It feels like it's always cold , but when it really hurts it feels like it's been outside on a cold Ohio day for about 3 hours in 10 degree weather.
And the only relief I get is propping it up and applying a ThermaCare heat wrap.

That's why I track my pain , food, weather. I look for triggers.

I will post my pain tracker sheet tomorrow.

What is Avascular Necrosis/Osteonecrosis?

Osteonecrosis is a disease caused by reduced blood flow to bones in the joints. With too little blood, the bone starts to die and may break down.
Osteonecrosis is also known as:
• Avascular necrosis
• Aseptic necrosis
• Ischemic necrosis.
Osteonecrosis is most often found in the hips, knees, shoulders, and ankles. You may have osteonecrosis in one or more bones.

In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured.

In osteonecrosis, bone breaks down faster than the body can make enough strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down.

You may not be able to bend or move the affected joint very well, and you may have pain in the joint.

Who Gets Osteonecrosis?
Osteonecrosis can occur in people of any age, but it is most common in people in their thirties, forties, and fifties.
What Causes Osteonecrosis?
Osteonecrosis is caused when the blood flow to the bone decreases, but why this happens is not always clear. Some known causes of osteonecrosis are:
• Steroid medications
• Alcohol use
• Injury
• Increased pressure inside the bone.
Risk factors for osteonecrosis are:
• Radiation treatment
• Chemotherapy
•. Smoking
• Kidney and other organ transplants.
Osteonecrosis is more common in people with illnesses such as:
• Cancer
• Lupus
• HIV
• Gaucher’s disease
• Caisson disease
• Gout
• Vasculitis
• Osteoarthritis
• Osteoporosis
•. Pregnancy
•. Blood disorders Like Factor V Leiden, Factor Viii, and Sickle Cell disease.

Osteonecrosis can also affect people for no known reason, even if they have no other health problems.
What Are the Symptoms of Osteonecrosis?
When osteonecrosis first begins, you may not have any symptoms. You may start to feel pain when you put weight on a joint with osteonecrosis. As the disease gets worse, you may have more pain and the joint may hurt even when you rest. Pain may be mild or severe.
If the bone and joint start to break down, you may have severe pain and not be able to use the joint. For instance, if you have osteonecrosis in the hip, you may not be able to walk. The time from the start of symptoms to losing use of the joint can range from months to more than a year.
How Is Osteonecrosis Diagnosed?
To diagnose osteonecrosis, your doctor will take your medical history and do a physical exam. Your doctor may then order one or more tests to see which bones are affected:
• X ray
• Magnetic resonance imaging (MRI)
• Computed tomography (CT) scan
• Bone scan
• Bone biopsy
• Measure of the pressure inside the bone.
Treatment helps more if the disease is diagnosed early.
How is Osteonecrosis Treated?
Treatment helps to keep bone in joints from breaking down. Without treatment, most people with the disease will have severe pain and limited movement within 2 years. To decide on the best treatment, your doctor will find out:
• Your age
• The stage of the disease
• Where and how much bone has osteonecrosis
• The cause, if known. If the cause is steroid or alcohol use, treatment may not work unless you stop using those substances.
The goals in treating osteonecrosis are:
• To improve use of the joint
• To stop further damage
• To protect bones and joints.
For early stage disease, doctors may first order nonsurgical treatments. If they do not help, surgery may be needed.
Nonsurgical treatments
Nonsurgical treatments may relieve pain in the short term, but they do not cure the disease. One or more of these treatments may be used at the same time.
• Medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) are used to reduce pain and swelling. For people with blood clotting problems, blood thinners may be used to prevent clots that block the blood supply to the bone. If you take steroid medications, cholesterol-lowering drugs may be used to reduce fat in the blood.
• Taking weight off the joint. Your doctor may suggest that you limit your activity or use crutches to take weight off the affected joint. This may slow bone damage and allow some healing. If combined with NSAIDs, it may help you avoid or delay surgery.
• Range-of-motion exercises. Exercise of the joints with osteonecrosis may help increase their range of motion.
• Electrical stimulation. Research has shown that this can prompt bone growth.
•Prp injections and or stem cell injections A2M or prolotherapy in early stages 1 -2.
StemCell Stage 3 as long as bone has not collapsed
Surgery
In time, most people with osteonecrosis need surgery. There are four main types of surgery used for osteonecrosis. Your doctor will decide if you need surgery and what type is best for you.
• Core decompression surgery. Lowers pressure inside the bone to increase blood flow to the bone.
• Osteotomy. Reshapes the bone to reduce stress on the damaged joint.
• Bone graft. Takes healthy bone from one part of the body and uses it to replace diseased bone.
• Total joint replacement. Replaces the joint with a manmade one.

ChronicallyGratefulDebla.com

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, DNA, Eat Healthy, Factor V Leiden, Happiness, Homemade Syrups,Tinctures,Rubs, Inflammation, Mindfulness, OA, Osteonecrosis, Positivity, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, WegoHealth

~Health  Awards ~ Advocate Nominee 

I was notified about a month ago I was nominated for a few awards in a few categories for awareness I vowed when diagnosed with avn /on I would never want anyone to feel as alone and scared as I did in 2014. 

https://awards.wegohealth.com/nominees/12801

My Ortho who diagnosed me really never took the time to even explain to me what I had, or come up with any positive plan of action. He did say when I asked when the plan was …..we will wait until your knee collapses and the replace it !!

Are you frickin kidding me!! That was his plan of action.

Well thank god my knee still is hanging in there and no sign of collapse and when it does happen if that happens he won't be doing surgery.

After the initial shock and grief I went through for what my life was and what may now be I vowed to be a world changer The Ortho also failed to tell me how rare this is and when I did my own research and found out how rare it was rare, it  left me feeling even more alone.

Sure my husband was and family were supportive but they had no clue what I had 

I also have a few other medical issues 

Osteoarthritis Spondylolisthesis Hypothyroidism , Factor V, Rbbb.

And I advocate for all and then some. 
I don't want anyone who was diagnosed with anything to ever feel alone. 

But when you have an orphan disease it just makes it harder some days to deal with. 

It's not like heart disease or cancer where there is constant education, awareness and research being done. 

I hope to change that. Osteonecrosis aka Avascular Necrosis had no cause ribbon so I made them, designed them. Now we have one

There was little information I changed that, I wrote a booklet for patients who have or are just diagnosed with Avascular Necrosis/Osteonecrosis 

I stay up to date on new treatments, trials

I also compiled an ongoing list of doctors not just locally but world wide who are knowledgeable in Avascular Necrosis/Osteonecrosis.

I am so honored to have been nominated 

I was nominated for 8 or 9 different categories and I am asking for your support(vote).

I would greatly appreciate it. 

Also there are so many other wonderful nominees maybe you could also give them a vote as well
Here is how it works 

Click below link

You will come to my wegohealth leader profile 

When you click endorse you will have the option to share it you don't have to but thanks if you do. 

It will then take you back to endorse screen so you can vote for the next award I am nominated for. 
As an advocate for Osteonecrosis and a few others things, like Osteoarthritis,Spondylolisthesis,Hypothyroidism, Heart Disease I take pride in all the research I do to raise awareness. 


I am a voice and resource in a rare community for those of us who are suffering with Avascular Necrosis/Osteonecrosis the orphan disease most people have never heard of unless your diagnosed.
I have the honor this year again of being nominated for many of the categories 16 health awards this year as a member of wegohealth.

Thank You In Advance. 

https://awards.wegohealth.com/nominees/12801

Posted in Avascular Necrosis, Awareness, Chronic Pain, Inflammation, Life, Osteonecrosis, Support Group, Hope, Uncategorized

The Importance Of A Support Group


Living with chronic illness is incredibly challenging at times (understatement of the year!) You wake up with no pain then sudden pain,or you wake up in pain deal with all day pain. You can’t do this , you can’t do that. Because your body just won’t allow it. You have to be strong even when you don’t want to be. 
Then there are days you just want to say “I give up” and lay in bed because it’s the only place your bones and joints don’t hurt as much. That’s a slippery slope, that’s when depression wants to creep in and destroy you even further instead of physically now it’s effecting you mentally.

The answer is Support! You need to get in a good support group.

 Even if your immobile there are many groups on Facebook all you have to do search it. 


If you have Avascular Necrosis/Osteonecrosis your welcome to join us. 

https://m.facebook.com/groups/DeadBoneDiseaseAVN/

But having a good group of people in our lives on whom we can lean on, share with, commiserate with,can greatly decrease that challenge of depression setting in. 

So that’s why today over on my blog

http://www.ChronicallyGratefulDebla.com 

 I’m writing about the importance of a good support system.

We really need them when it seems like the world is crashing down. But we also need them in the days we’re doing ok. 
Have you ever experienced the pain of rejection or just felt less of a person from the people you thought were there for you? 

Friends & Family either refuse to understand or just don’t want to be bothered by learning about the disease \ disorder.

Or your own brain starts thinking I’m useless, I can’t do anything like I used to. You need a support system! 

Many people who don’t have a chronic life, struggle to understand life with a chronic condition. I wish they did but honestly the only people that understand are those that also have chronic condition.

Some people including people you know, at some point may say really hurtful things out of pure ignorance like gee you don’t look sick, or wow your house is a bit messy today ,or what did you do today , or geez I wish I didn’t have to go to work anymore.
Or they blame you for your illness/ condition.
Well if ate better,exercised more maybe you wouldn’t be in this spot , or smoked less etc….

Just ignore them. Badgering you isn’t going to change your illness. You even wonder why did I tell them about your illness.
Yes, unfortunately some people should not be trusted with your feelings or the the truth about your pain.

 They just won’t understand. And it’s not up to you to keep explaining yourself.

But there are good listeners that offer you a good and safe support system,you just need to know how to identify them!

I really want you to get in a good support system , make it a priority, even if things aren’t too bad right now or you just been diagnosed and have no one to ask questions to. 
Get in a support group. 

You will be so glad you did. We can help you with any questions you may have , we’re here to listen, offer life experience, suggestions. We don’t offer medical advice as that’s between you and your doctor.

You can’t just expect everyone to be there for you in your struggle with illness. Let’s face it not everyone can handle it, and quite frankly not everyone will want to . And not everyone is worthy. 

How Will A Safe Person Make You Feel?

Do they make you feel comfortable being yourself? 
You should feel comfortable with who you are, flaws and all. No one should make you feel judged or less of the amazing person you are. If they do move on….

Do they make you feel energized? Ready to fight a good fight? Supportive people should nit suck the life out of you, leaving you feeling worn out.

They should make you feel more energized by the time they leave or hang up the phone. If you find a person exhausting, they should not be in your support system. 

You should find support from a variety of relationships. No one person can give us everything we need not even your spouse!.

Your Spouse

If you aren’t married or in a serious relationship, this obviously doesn’t apply. But if you are, your spouse can be the most immediate source of support in your life. 

Most of us live with spouses that don’t have an illnesses themselves, so they have a lot of learning to do in order to understand us. 

Your responsibility is to explain your condition and your struggles and what you would like from your spouse. Spell it out! 

They are not mind readers so don’t expect them to simply know or understand.However, don’t assume your spouse is able or willing to support you in this way. Unfortunately, some are not, but luckily there are other relationships that can be supportive.

Your Family

If you have people in your family, whether it’s a spouse, parents or cousins, they should be a part of your support system. Just be sure your relationships are healthy and helpful. 

Again, communication is key when it comes to family because they’ve known you so long. They may be relating to you based on assumptions, so be clear about your needs.

Your Friends

Ahh yes friends can be some of the best relationships to be part of your support system. You get to choose these people, and choose when to see them, when to talk to them. 
Just realize not all your friends will be a support for you, but one or two that will is great. 

Friends should be encouraging and understanding, and this should be mutual. 

Your Support Groups

The best people to understand what you’re going through are those who have experienced it themselves. 
That’s why support groups can be so helpful. Whether it’s through Facebook or a community center, others who are struggling as you do can help you through what they have already experienced 
They listen well, empathise, and offer advice when you want it. 

Chronic illness can often be very isolating, but support groups provide a like minded community. One word of caution for any online groups: when people aren’t interacting face-to-face they feel more comfortable saying whatever they want.

Just because people are in the group because of their experience with illness doesn’t mean they will be safe people. 
Always exercise caution when sharing in online forums. Make sure you’re aware of the risk of receiving unkind words and unwarranted advice.Some individuals can be just rude. 
I don’t tolerate mean people and people who bully others are just inconsiderate these people will be removed. 
I also have seen other groups where the leaders were the bullies. Get out if you join a group where the leaders are bossy,mean and or downgrading. No one needs that. We have enough to deal with. 

Your Pets

Who doesn’t love a dog or cat, bird, lizard whatever …that snuggles, they can be life savers dogs they get you out of the house for walks, and even help you meet people in your neighborhood. Time at home is much less lonely than it would have been before a pet enter your life. 
Pets can be the best part of a support system. For some therapy pets can be a crucial part of the ability to function. For others it can be therapeutic to have something to nurture. And they love us no matter how we look or feel. 
I personally don’t have a pet as they are not allowed in my building, but when I visit my family their 2 dogs are so lovable you can’t get bored when they are around. 
If you don’t have a pet and are considering one make sure you are prepared in how to care for it. Be sure you are physically able to do so. Also, I hope you consider rescuing one. 
I hope you find a good support system. If you have Avascular Necrosis/Osteonecrosis your welcome to join my fb group. 
https://m.facebook.com/groups/DeadBoneDiseaseAVN/

Have a great day.