Updated 7/19/ 2021
Thank you for dropping by and taking time to read my blog.
I’m Debbie. Patient and patient leader, advocate, blogger, author, member of WEGO Health for over 5 years , I am the local Facilitator in my area for the Arthritis Foundation LIVE YES Connect Group and District 13 in Ohio Arthritis Ambassador and I am a world changer.
Clearly I am no stranger to pain. Just like you I live with some form of pain on a daily basis. It’s odd to say but I cant really remember what its like not to have pain. Tolerable days are celebrated and high pain scale days are days I dig deep stay strong push forward but I also have learned to take care of me and if my body needs a break I give it a break.
I semi-retired my superhero cape. Having so many bone and joint issues is both mentally and physically challenging and exhausting.
One of the hardest things I’ve ever been told is that I would be living with osteonecrosis pain the rest of my life That was a hard time in my life; processing my osteonecrosis diagnosis, the pain was and is the worst pain I had ever felt, and it was constant and nagging, some-days it felt like my leg was ice cold and the blood being cut off by a tourniquet other days it felt like I was stabbed with a hot poker.
After my osteonecrosis diagnosis in 2014, I went for a second opinion that led to a third, fourth etc…every orthopedic doctor I seen was just one disappointment after another, every one of them at first said something else, you have avn , no you don’t, yes you do, I’m not sure: I haven’t had any patients with avn…it was really tiring, and yet not one offered one idea or solution or anything….several did say they were not familiar with osteonecrosis so trying to get answers and treatment options was impossible. I was told by several orthopedic doctors to wait until my knee collapses to get a replacement and until then just live with the pain yet they also didn’t want to help me with pain meds. they also didn’t seem to interested in saving the joint.
For 3 months, I did what the doctor said. I did nothing, except go to work and come home I sat around, placed limits on what I could or could not do, I missed living, this was just existing. That was unacceptable, who wants to do nothing everyday. Working became so hard to work I had to medically retire and go on disability. Being on disability was really was a jolt to my confidence,and pride and I felt like I had nowhere to turn for real life information about dealing with AVN.
So, I researched as much as I could. I called specialists in the USA and Canada to gettheir prospective and if I was having this much confusion others must be also, so a couple months later, I started a support group and a blog. I started my own support group because if I felt this lost so did others being diagnosed with osteonecrosis. I also started a blog just to have something to do with my time and also because if I could help just one person feel less alone it was worth it. and later I wrote a booklet for those diagnosed with osteonecrosis aka Avascular Necrosis so they could have the information I did not.
I wanted to empower others. It is important to me to help others with Arthritis, Osteoarthritis, Osteonecrosis, Spondylolysis and Spondylolisthesis to make sure they are educated, inspired, encouraged, and empowered because there are always options and new treatments from what we eat to control pain to prp and stem cell injections.
No one should have to live in constant pain.
For me, a patient leader is ‘someone who is affected by life-changing injury or disability or illness one who influences to create change and teach empowerment.
Everywhere I look, power is neutralized and or buffered. We are patted on the head, told to be a good patient, and listen to the doctor. But when will the doctors stop and listen to us?
I have always been interested in empowering others and justice for others. This started when I went from being a Domestic Violence Survivor with my first marriage to becoming the Community Group Leader-Speaker who spoke to thousands of women about regaining their power, how to finally leave a violent situation, teaching teens to know the signs of what an abusive boyfriend looks like, rape crisis advocate. I also became a DV shelter manager for 10 plus years.
When I was diagnosed with a few conditions over the years I saw how dismissive patients are treated and rarely heard. If you spoke up, you were labeled difficult or non-compliant. The aim of empowering and educating others is to help them develop self-awareness, self-care and promote the understanding that patients can be equal partners in their healthcare decisions.So they know they do matter.
More About Me
The Chronically Grateful Debla blog – was born in a time when my physical pain and unanswered questions seemed to be at an all time high. This site started as an outlet for me during a time of chronic debilitating pain that stemmed from one diagnosis after another and quickly this blog became so much more.
I realized that my struggles, my story, my life with chronic pain could become more than just about me, but it also about helping others who are also living with chronic pain especially Osteoarthritis and Osteonecrosis pain.
I’ve allowed myself to be vulnerable and open in my personal posts, inspirational, and hopeful.
This blog has allowed me to reach others in a way I never had before, I did not realize how many people live in pain and have many of the same questions I had.
Each post I share not only helps me, but gives me the opportunity to help someone else.
ChronicallyGratefulDebla is my proof that our struggles and questions are real and no matter who you are,where you are from, it brings us together and we become more empowered.
I am proud to be a patient leader and advocate
I blog about many things From Health -Wellness -Coping with joint and bone pain -New Treatment options – Learning to eat healthier to control my pain, have less inflammation and a better quality of life.
Thank you so much for stopping by
Wishing you all a pain free day
My Links To Follow
Word press Main Blog ChronicallyGratefulDebla.com https://wordpress.com/view/chronicallygratefuldebla.com
Word press Avascular Necrosis Education Blog – https://avascularnecrosiseducation.wordpress.com
Support Group for Avascular Necrosis-Osteonecrosis https://www.facebook.com/groups/DeadBoneDiseaseAVN/
Info Page on Bone and Joints https://www.facebook.com/AvascularNecrosisAndBoneDiseaseAwareness/
Personal Twitter https://mobile.twitter.com/debbiea001
Personal Instagram Deborah Andio
Instagram Awareness Page ChronicallyGratefulMe