Posted in awards,patient leader, Awareness, WEGO Health

I have been nominated and need your help.

I have been nominated in the 10th annual WEGO Health Awards 2021 and would appreciate if you could take 1 minute of your time and endorse me.

I have been an advocate for over 30 years.

My journey began by advocating for survivors of Domestic Violence

I worked in a Battered Women’s Shelter and Rape Crisis Center for over a decade and went from monitoring the crisis line to becoming a DV shelter manager that ran a support group for women in and out of shelter. I spoke to women in correctional facilities, because often they have been abused at some point in their life.

I spoke to high schools so teenagers boys and girls would know the signs of being in a potentially abusive or controlling relationship.

I also explained date rape etc and how important it is to tell someone what happened and also tell them it was not their fault.

I also began advocating for bone and joint pain and joint health after I was diagnosed with osteoarthritis at age 35 and at age 51 after a meniscus injury landed me with yet another painful diagnosis; Osteonecrosis in my knee.

I am a fairly new facilitator for the Arthritis Foundation LiveYes Connect group in Boardman, Ohio , I also am a Arthritis Ambassador for the AF as of March 2021.

After my Osteonecrosis-aka Avascular Necrosis diagnosis I felt alone and afraid with yet another bone and joint condition was scary , I was told I had bone death. The Ortho told me there was nothing that can be done just live in pain until the knee collapses then he would replace it. I was definitely getting another opinion.

Whatt was even more scary was that many of the orthopedic doctors I saw rarely heard of it and never or rarely treated it. This left me even more concerned. You cannot have a good quality of life if you cannot find good medical care.

So I started my own support group which is worldwide and has over 1500 people in it from all over the world.

Each of those members is offered a free booklet that I wrote about Osteonecrosis so they and their family can understand that there is hope, there is treatment and unfortunately there often times is disability. But they need to know they not alone and their family can also educate themselves on the condition.

I joined WEGO Health about 7 years ago, because it was a great organization and it allowed me to advocate on a different platform. I also educated myself on other conditions and I have met some fantastic individuals, who work so hard in their advocacy.

The link below is so you can scroll and click endorse also there are several awareness links that I also have for you to view and feel free to follow me.

https://www.wegohealth.com/Chronicallygratefuldebla/awards

I appreciate your support

Thank you so very much.

Deb Andio

Posted in Awareness

So Sick of Pain

Back in August 2020 I was taken by ambulance to the ER m, because I had such a sudden, out of the blue pain in my back,side, and right chest area it caused me to start to hyperventilate and I was so afraid. How I I be sitting laughing at a movie and then bam riding in an ambulance

Thank God my husband was home as I could not even speak the pain was so incredibly intense. My husband got me a brown paper bag so I could try and focus on my breathing. The ambulance arrived and immediately got me on the gurney hooked up to heart monitor…..I was really afraid…was I having a heart attack?

When I got to the ER they got me hooked up on their heart monitors started to take blood every few hours, to check my enzymes to see if maybe I was having a heart attack, then they started doing every test they could to rule out heart attack, blood clots etc…. Was given medications like morphine and later dilaudid to help the crazy intense pain I had. The pain was not easing up.

They admitted me for 24 hrs for observation and came up with the diagnosis of panic attack. What did they do to help these panic attacks? Nothing.

This pain I didn’t think was associated with a panic attack, but what do I know.

They tested me for heart issues , deep vein thrombosis and a pulmonary embolism. It was very uncomfortable as my arms had to be over my head. As they went to inject the contract in the spec area of IV it comes out at a high rate of speed well as it came out, it broke the plastic piece and the contrast went in my hair on my gown so we had to do another.

I felt as if I kept passing out from the pain if that makes any sense. I find out that my heart and lungs were good thank God.

The next day they took me for a Stress Test with dye and echo and they asked if I wanted to try and walk jog or because I have joint issues did I want them to just medically speed my heart and I would lie flat. I chose to walk jog because I think feeling no control of my heart rate would freak me out a bit.

I went over 6 minutes and felt great! I impressed myself. In fact they also said I did very good. So again no heart issues.

They diagnosed me as having a panic attack. I was discharged and yet given nothing in case this happens Bahrain, which they were clear in telling me it’s very possible.

I noticed that over the next week I was a bit shorter of breath than normal: When my husband and I go walking I can tell and I feel more fatigued. Maybe I am worried it will happen again. So I have to find some other way to think besides worrying about something.

It’s interfering with my studying real estate. I cannot concentrate for more than 10-15 minutes at a time and I feel like I am all over the place. I just feel weird.

Fast forward 7 months later, feel great a bit anxious here and there but no more hospital trips…….until

01 March 2021 here we go again can’t breathe chest pain back pain side pain….I was just eating dinner and bam here we go again how can you just get a panic attack when laughing at dinner? This feels worse but different it’s stabbing sides back chest .

What is happening!!

2021 has been a physically painful year for me. I go from 2019 no pain and. most of 2020 my health being really good to 2021 being physically and mentally brutal…

This house doctor was an ass to me.!He thought I was a drug seeker and refused to prescribe Tylenol plain Tylenol no codeine just Tylenol. Then he called me fat and said my pain is skeletal and lose some weight.

I told him do NOT talk to me like that. Told him over 2 years I have lost 78-80 lbs and although I live with joint pain this is different. I asked him to check my gallbladder and he refused. He then discharged me and I called hospital administrator and disputed the discharge.

So the next day this doctor looked pissed that I was still there. Again I told him check my gallbladder. He finally did and sure enough I was right.

He never apologized to me and I did report him to the hospital administrator.

Well let’s see what happens next….

Posted in awards,patient leader, Awareness

WEGOHealth Awards2019©

Wow I am beyond honored I’ve now also been

Nominated for Patient Leader Hero- Healthcare Collaborator – Rookie of The Year and Best In Show Blog

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Endorsements Now Open If You Would Like to Vote (link below)

I have been nominated for the past few years in various categories

Thank You for considering Endorsing my nominations

It’s deeply appreciated

My Profile and Info WEGOHealth Link

Avascular Necrosis-Osteonecrosis Education

FlexitarianForLife

My Links

https://avascularnecrosiseducation.com/

www.ChronicallyGratefulDebla.com

https://www.facebook.com/AvascularNecrosisEducation/

https://flexitarianforlife.wordpress.com/

 

https://twitter.com/debbiea001

https://twitter.com/OsteonecrosisMe

https://www.instagram.com/chronicallygratefulme/?hl=en

https://www.instagram.com/deborah_andio/

https://www.facebook.com/ChronicallyGratefulDebla/

 

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