Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Cardiovascular, Chronic Pain, Coping with Stress, Diagnosed, Eat Healthy, Energy, exercise, Factor V Leiden, Food Is Thy Medicine, Heart Disease, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Positivity, SONK, StopTheClot, Thoughts, Uncategorized, Vision, Weather, WegoHealth, Winter, Women

1 year ago I decided to take my health back

Happy Anniversary To My Health….

I was always pretty healthy ….until I wasn’t.

I gained weight , injured my knee gained more weight was diagnosed with one thing after another and it was really exhausting.

First osteoarthritis and hypothyroidism at age 45

They torn meniscus age 51

Then thanks to the meniscus tear Osteonecrosis set in my knee….

Then she 53 diagnosed officially with spondylolisthesis and a bilateral pars fracture

I had the spondylolisthesis before but my former PCP never told me I had it. But I seen it on an old Mri.

The pain every where was exhausting and some days it still is.

But I decided the heck with all these doctors and I decided to eat mostly plant based but I do still eat chicken fish or turkey now and then and rarely beef.

I ride my recumbent bike 2x a day and I walk when I can. And some days even when I should rest I go walk anyway.

Today’s pictures and videos are from my morning walk : and it’s also one year ago I quit smoking……so it’s a great day !

Pain or no pain I’m not going to just sit around.

Sitting is death

Moving is life

And ya know after I’m done I feel so much better.

1 year since I’ve quit smoking after being a smoker for 40 years. My lungs are feel better my walking speed has improved my distance has improved

1 year since I started eating a healthy mostly plant based but I’m not a vegan and it’s good clean healthy real colorful food . I am using food as medicine in a way to fight pain and inflammation . Now sure I eat a cookie or 2 now and then just not every day. And all my other choices are good so I don’t deprive myself of a treat now and then.

And for having Osteonecrosis,Osteoarthritis, Spondylolisthesis with a bilateral pats fracture in my L5 S1 I feel pretty darn good today even in this cold weather.

Just need to drop some weight one step and one day at a time.

I have taken my life back and no one is going to stop me !

Tomorrow I may be in pain and that’s ok. I can accept that but as long as I know I am doing all I can to combat my pain and keep my body moving and providing it with the best nutrients possible(most of the time)

It’s a win win for me ,one day at a time !

Keep your meds , keep your cigarettes keep your junk fast food.

Body Heal Thy Self

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Food, Happiness, History, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Osteoporosis, Pain, SONK, SPONK, Stem Cell, StopTheClot, Uncategorized, WegoHealth

Bone & Joint Action Week October 12-20

Bone and Joint Action Week is held annually October 12-20 with activities focused on disorders including arthritis, back pain, Osteonecrosis,Osteoarthritis trauma, pediatric conditions, and osteoporosis. The themes and their related activities are designed to raise awareness worldwide about prevention, disease management and treatment.

Statistics on Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Frequency depends on the site involved. The most common site is the hip; other locations include the carpals, talus, and humerus. In most countries, exact figures on incidence and prevalence are unknown.

One Japanese survey estimated that 2500-3300 cases of AVN of the hip occur each year; of which, 34.7% were a result of corticosteroid abuse, 21.8% to alcohol abuse, and 37.1% to idiopathic mechanisms. A French study reported AVN in 4.3% of allogenic bone marrow transplant recipients.

Race: No racial predilection exists except for AVN associated with sickle cell disease and hemoglobin S and SC disease, which predominantly are diagnosed in people of African and Mediteranean descent.

Sex: The male-to-female ratio depends on the underlying cause, although primary AVN is more prevalent in men. The overall male-to-female ratio is 8:1.

Age: Age at onset depends on the underlying cause. Primary AVN most often occurs during the fourth or fifth decade and is bilateral in 40-80% of cases. On average, women present almost 10 years later than men.

Risk Factors for Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Avascular necrosis has several causes. Loss of blood supply to the bone can be caused by an injury (trauma-related avascular necrosis or joint dislocation) or by certain risk factors (nontraumatic avascular necrosis), such as some medications (usually steroid basesd), steroid abuse in general, blood coagulation disorders like sickle cell, Factor V, FactorViii, MTHFR, eNOS and more, chemo and radiation infections in the Bone vascular issues such as vascularitis or alcohol abuse. Increased pressure within the bone also is associated with avascular necrosis. The pressure within the bone causes the blood vessels to narrow, making it hard for the vessels to deliver enough blood to the bone cells.Many deep sea divers get Avascular Necrosis from a condition known as the bends. Gaucher disease.

Progression of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Hip Stages of avn-on

1-4

The natural history of osteonecrosis is directly linked to the size and level of the necrosis. Very small lesions (involvement of less than 15% of the femoral head) may resolve without any further treatment. Conversly, lesions involving greater than 50% of the femoral head progress to collapse, and ultimately require in total hip arthroplasty.

Symptoms of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

In the early stages of avascular necrosis, patients may be asymptomatic. However, as the disease progresses most patients will begin to experience joint pain; at first, only when putting weight on the affected joint, and eventually even when resting. Pain usually develops gradually and may be mild or severe.

If the level of necrosis progresses further and the bone and surrounding joint surface collapse, pain may develop or dramatically increase.

The pain may be severe enough to limit the patient’s range of motion in the affected joint.

In some cases, particularly those involving the hip, disabling osteoarthritis may develop.

The period of time between the first symptoms and loss of joint function is different for each patient, ranging from several months to more than a year.

How is Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis) Diagnosed?

In the earliest stages of Avascular necrosis plain x-rays are often normal. A magnetic resonance image (MRI) is the key that allows us to detect AVN at its earliest stage.

Osteonecrosis develops when the blood supply to a segment of bone is disrupted. Without adequate nourishment, the affected portion of bone dies and gradually collapses. As a result, the articular cartilage covering the bone also collapses, leading to disabling arthritis.

Osteonecrosis of the knee can affect anyone, but is more common in people over the age of 60. Woman are three times more likely than men to develop the condition.

Risk Factors

It is not always known what causes the lack of blood supply, but doctors have identified a number of risk factors that make someone more likely to develop osteonecrosis.

Injury. A knee injury—such as a stress fracture or dislocation, meniscus tear, bruised patella or combined with some type of trauma to the knee, can damage blood vessels and reduce blood flow to the affected bone.

Oral corticosteroid medications.

Many diseases, such as asthma and rheumatoid arthritis, are treated with oral steroid medications.

Although it is not known exactly why these medications can lead to osteonecrosis, research shows that there is a connection between the disease and long-term steroid use. Steroid-induced osteonecrosis frequently affects multiple joints in the body.

Medical conditions.

Osteonecrosis of the knee is associated with medical conditions, such as obesity, sickle cell anemia, and lupus.

Transplants. Organ transplantation, especially kidney transplant, is associated with osteonecrosis.

Excessive alcohol use.

Overconsumption of alcohol over time can cause fatty deposits to form in the blood vessels as well as elevated cortisone levels, resulting in a decreased blood supply to the bone.

Chemo therapy and radiation Non-traumatic osteonecrosis of bone is recognized as a potential complication in solid-tumour cancer patients receiving treatment with cytotoxic chemotherapy.

Regardless of the cause, if osteonecrosis is not identified and treated early, it can develop into severe osteoarthritis. And for some with osteoarthritis before avn the disease is even more painful.

Knee stages of avn-on

1-4

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Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Endocrinologist, Factor V Leiden, Inflammation, OA, Osteonecrosis, Stem Cell Injections, Thyroid, Uncategorized, Vision

People With Chronic Pain Are Suffering While Addicts & Junkies Are Being Coddled.

What does it say when heroin and opioid addicts are given better treatment than a person living with chronic pain?!

Now please don’t go thinking I lack compassion and am being cruel honestly it’s not my intention.

But I am sick of hearing about the opioid crisis every day, especially when

they throw chronic pain sufferers in the same category as a junkie!

News Flash ……….Were Not

Or a person that is suffering with cancer. I just don’t understand it.

Yes I understand that their is a problem in this country with some abusing drugs whether prescribed or illegal.

But not everyone falls into that category.

Why are so many Doctors,Pharmacies, Government Officials patient profiling?

We as a society look down on racial profiling, gender profiling but why is it ok to patient profile?!

Thank God I have an excellent family doctor.

Many people in government and now pharmacies don’t make their job any easier.

In fact they make it hard for decent doctors who don’t over prescribe and patients who don’t abuse drugs or who don’t doctor shop.

All the red tape they have.

Now we have government and pharmacies in our doctor patient relationship.

Telling the public that they will now be limited and controlled on how much medication they receive and that their legitimate diagnosed ongoing pain doesn’t matter.

But we care more about addicts & junkies who choose to shoot heroin over and over again. They choose that life !! Chronic pain suffering is not a choice it’s many individuals reality.

Many people myself included suffer from several painful chronic conditions.

NSAIDS don’t do crap for the pain I feel most days . I have tried many of them. And sometimes the pain medication takes the edge off so I can get things done. No one wants to be in pain. My body has less pain so I can then function more.

But I find that taking CuraMed Curcumin helps me more than a rx for an NSAID.

So I limit my own use of rx pain meds.

And most people I know don’t want to have to take a pills to have pain relief.

But we will,when we need to.

NSAIDs will for some It really depends on your pain and your condition or disease.

Some of the conditions I have Osteonecrosis for one is rare. And has been said it’s second in pain to bone cancer.

More on Osteonecrosis below.

I bilateral pars fracture in L5S1

Lumbar spondylolysis this is a condition in the lower back where there is a defect or fracture in the part of the vertebra known as the pars interarticularis. The pars interarticularis, also known as the isthmus, is a segment of bone that connects the facet joints at the back of the spine. It is a small, thin part of the vertebra that has a poor blood supply, which makes it susceptible to stress fractures. No NSAID can help this. A pain pill barely helps but at least it helps somewhat.

Fractures of the pars interarticularis, known as spondylolysis, usually occur at the L5-S1 level,and rarely at L4-L5 or higher. They can occur on one side of the vertebra or on both. Lucky me mine is in both sides L5S1

SPONDYLOLYSIS

A pars fracture is also known as a stress fracture, or as spondylolysis. Spondylolisthesis is often the result of spondylolysis. In non-medical terms, this means a stress fracture causes the forward slippage of a vertebral body. The stress fracture occurs through a fragile part of the vertebral bone called the “pars” and is often broken on both sides. The fracture may be the result of a direct trauma, by a focused strain usually from athletic activity, or from a genetic weakness in this area of the bone. This is a thin bone that can break with repeated use; imagine a paperclip that has been bent over and over and finally breaks. 

Spondylolysis sometimes causes spondylolisthesis, which it did in my case.

This is when one vertebra slips forward on the vertebra below it.

Symptoms include a deep painful constant ache in the lower back, pain that is worse with movement, and tightness in the hamstrings. If the vertebral slippage is severe, nerve roots can be compressed.

The pars functions as a bony hook and when fractured the posterior support for the vertebrae is broken. It can cause a forward slippage with time. Which mine has about 22 -25 percent.

I also have Spontaneous Osteonecrosis of the Knee, also known as Ahlback’s disease is the result of vascular arterial insufficiency to the medial femoral condyle of the knee resulting in necrosis and destruction of bone. It is often unilateral and can be associated with a meniscal tear.

Osteo means Bone Necrosis means

💀

No orthopedic wants to fix it, trust me I have been to more than 5 but less than 10 for their professional opinions

The stem cell procedure is 8 to 10kusd insurance doesn’t cover any part of stem cell injections that can actually help save the bone.

All the orthopedic doctors I seen said to wait until my knee bone crumbles and collapses and then they will saw out the old bone and give me an artificial knee.

I don’t know about you but to that is totally unacceptable!

A TKR Total Knee Replacement and PKR Partial Knee Replacement-cost 30-40,000usd some places more.

Your basically sawing off the patients bone and replacing it with fake parts

Vs using the patients own stem cells to help heal their own body.

For much less money.

It’s a no brainer

And I also have Osteoarthritis NSAIDs will help this but so does my CuraMed Curcumin so I take that instead.

Sometimes called degenerative joint disease or degenerative arthritis, osteoarthritis (OA) is the most common chronic condition of the joints, affecting approximately 27 million Americans. OA can affect any joint, but it occurs most often in knees, hips, lower back and neck, small joints of the fingers and the bases of the thumb and big toe.

Who’s Affected?

Although OA occurs in people of all ages, osteoarthritis is most common in people older than 65. Common risk factors include increasing age, obesity, previous joint injury, overuse of the joint, weak thigh muscles, and genes.

One in two adults will develop symptoms of knee OA during their lives.

One in four adults will development symptoms of hip OA by age 85.

One in 12 people 60 years or older have hand OA.

So if you add all these together my bones are jacked.

And yet the government wants me to suffer?

Now I will say

I don’t like pain pills I do need them occasionally it’s nice to know that if I need one or for pain I won’t have to jump through fire to get them.

What pisses me off is that junkies od get free narcan over and over often it takes 2-3 doses to revive them. And yet even faced with death they still don’t learn.

And go right back to it knowing it will either kill them now or later. More free narcan and hey we’ll pay for you to go to rehab as well.

And I can’t get insurance to even pay anything towards stem cell injections, that could possibly get me off disability and back to a career in eye care that I loved.

People in chronic pain want their lives back. We would gladly give up all medication to live and function pain free or even with less pain.

We become so used to our pain being a 5 that in days it’s a 3 we feel fabulous, where you may be on the sofa in pain at a level 3 we’re rejoicing. But pain level 7-8 and beyond are sometimes there also and we are down.

I wish the insurance companies would get on board with stem cell injections and Prp injections it can help so many.

So we can’t get the treatment we want because it’s so expensive and not everyone can afford the injections.

Because there is no payment plan.

For pain I take CuraMed Curcumin 1x a day.

5000 iu vitamin

1000 mg krill oil

300mg Coq10

Now and then I will take a pain pill.

It’s a blessing when my knee and back don’t hurt. But usually the back always hurts somedays a lot more than others.

I just think it’s a disservice for people with pain , constant legitimate pain to have to suffer.

I see junkies get free narcan,free rehab yet a girl in my bone disease support group who wants to live and us fighting every day to live has to pain for chemo.

It’s wrong.

https://www.google.com/amp/s/www.nbcnews.com/health/health-news/amp/cvs-limit-opioid-prescriptions-7-day-supply-n803486

https://www.google.com/amp/s/www.nbcnews.com/storyline/americas-heroin-epidemic/amp/ohio-limits-opioid-prescriptions-just-seven-days-n740531

Posted in Avascular Necrosis, Factor V Leiden, Osteonecrosis, Uncategorized

Blood Disorders When you have Avascular Necrosis/Osteonecrosis 

 

I was Diagnosed with Factor V Leiden heterogeneous about a year after I was diagnosed with Avascular Necrosis/Osteonecrosis  – to check for any possible underlying clot issues, and sure enough I can add yet another health concern to the suck column.  Because many have a disorder and don’t really know it , I am a big believer in getting shit  checked out.                               

I will post some info on various blood disorders associated with AVN. It still boggles my mind how there isn’t better treatment options for AVN (Avascular Necrosis/Osteonecrosis).  I mean there are so many ways to get it from blood disorders to steroids Corticosteroids, Glucocorticoid, Anabolic, Cortisone Shots, to  Alcohol abuse, To divers who get the bends to trauma to bone or joint to autoimmune disease and more….Today I will focus on Blood Disorders 

 

Homocysteine Levels

Homocysteine is an amino acid produced by the body.

Elevated homocysteine levels are linked to high concentrations of endothelial asymmetric dimethylarginine (ADMA); a chemical found in blood plasma.  ADMA interferes with the synthesization of Nitric Oxide from L-Arginine. Nitric Oxide is important in our bodies because it increases blood flow.

It is important for Osteonecrosis (Avascular Necrosis) sufferers to have their homocysteine levels checked because high homocysteine levels cause narrowing of the arteries and can lead to excessive blood clotting.

Vitamins B6, B12 and Folic acid are commonly taken to lower homocysteine

 

Factor V Leiden

BASIC FACTS
Factor V Leiden is an inherited blood clotting disorder. It is a specific gene mutation that can result in thrombophilia (an abnormality of blood coagulation that increases the risks of blood clots forming in blood vessels).

People who are heterozygous (carry one gene mutation) or homozygous (carry two gene mutations) are at higher risk of developing a DVT (deep vein thrombosis).

Factor V Leiden is the most common clotting disorder. 3-8% of Caucasians in North America carry the gene mutation.

Factor V Leiden can cause miscarriages. Pregnant women with Factor V are considered high risk and need to be on a course of low molecular heparin or it’s derivative, Enoxaparin Sodium (generic name is Lovenox), during pregnancy.

WHAT ISN’T WIDELY DISCUSSED/KNOWN


Factor V Leiden along with other blood clotting disorders has been DIRECTLY linked to Osteonecrosis/Avascular Necrosis. There are several clinical papers I will post here on this blog concerning this fact.

If you have Factor V you should NEVER take steroids. Even a 20 day use of high dose Prednisone can cause ON/AVN.

If you have Factor V NEVER take drugs with estrogen, ie, the Pill.

If you have Factor V NEVER eat products that advertise themselves as containing phytoestrogen.

Note: The above are recommendations given to me during a conversation with Dr. Charles Glueck and are supported by his research. This is not medical advice for you this is based on the diagnosis of my Factor V Leiden.


 

eNOS

What is the eNOS (Endothelial Nitric Oxide Synthase) gene T786C mutation
When someone has a mutation in their eNOS gene it means that their body doesn’t produce an amino acid called L-Arginine (also refered to as Arginaid). Arginine is important because it leads to the formation of Nitric Oxide in the body.
Nitric Oxide widens blood vessels and increases blood flow within the body.
If you have the eNOS mutation your body doesn’t manufacture enough Arginine, therefore, it doesn’t produce Nitric Oxide which leads to vascular problems, i.e. clotting.
Considering that Osteonecrosis (Avascular Necrosis) is caused by a lack of blood supply to the bone, it is imperative that ON (AVN) sufferers be tested for the eNOS T786C gene mutation.
Most people with the T786C mutation are instructed to take Arginine, in powder form, under the guidance of a medical professional.
More in-depth explanation of the eNOS mutation
Nitric Oxide is a free radical gas made in the endothelial cells from the amino acid, L-Arginine, by Nitric Oxide Synthase (eNOS). Nitric Oxide Synthases are a family of enzymes; biological molecules that make chemical reactions happen.
Nitric Oxide plays a major role in vasodilatation. Nitric Oxide widens the blood vessels, and maintains vascular tone in the body.
If there is the presence of the T786C mutation in the eNOS gene there is decreased synthesization of Nitric Oxide. This decreased synthesization leads to vascular problems including: coronary spasm and thrombophilia.
The human body usually manufactures Arginine, in the case of people with the eNOS mutation their bodies do not sufficiently produce enough Arginine, therefore, their bodies cannot support Nitric Oxide Synthesization.

 

 

MTHFR                                                                   ( no im not swearing and yes MTHFR really is a thing )

What is MTHFR?                                      Contrary to how it looks, “MTHFR” is not an abbreviation for a curse word, but a shortened form of methylenetetrahydrofolate reductase… Aren’t you glad it is abbreviated?

MTHFR is an enzyme that adds a methyl group to folic acid to make it usable by the body. The MTHFR gene produces this enzyme that is necessary for properly using vitamin B9. This enzyme is also important for converting homocysteine into methionine, which the body needs for proper metabolism and muscle growth and which is needed for glutathione creation . The process of methylation also involves the enzyme from the MTHFR gene, so those with a mutation may have trouble effectively eliminating toxins from the body.

 

 

Sickle cell anemia (SCD) facts

Sickle cell anemia (SCD) is an inherited disorder of the hemoglobin in blood.
Sickle cell anemia requires the inheritance of two sickle cell genes.

Sickle cell trait, which is the inheritance of one sickle gene, almost never causes problems.

Virtually all of the major symptoms of sickle cell anemia are the direct result of the abnormally shaped sickle red blood cells blocking the flow of blood.

The current treatment of sickle cell anemia is directed primarily toward managing the individual features of the illness as they occur.

 

Plasminogen activator inhibitor-1 (PAI-1) deficiency is a rare inherited autosomal recessive bleeding disorder characterized by excessive clot lysis leading to a moderate lifelong bleeding diathesis. PAI-1 is an essential protein critical in down-regulation of the fibrinolytic pathway.

 

Get Checked out talk to your PCP you never know if you have an underlying clot issue

Links

Homocysteine https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2311469/

Factor V Leiden http://local.cincinnati.com/share/story/226682

eNOS https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2739499/

Sickle Cell.  http://www.nejm.org/doi/full/10.1056/NEJM199111213252104

MTHFR http://m4.wyanokecdn.com/3244bb012ce7de2408721ef487d83395.pdf

Folic Acid and MTHFR – Could You Have a Genetic Mutation?

PA1-1 http://www.rarecoagulationdisorders.org/diseases/plasminogen-activator-inhibitor-type-1-deficiency/disease-overview-2

Remember this is not medical advice just information NEVER do anything without consulting your primary care doctor!!

 

#Osteonecrosis 

#AvascularNecrosis 

#BloodDisorders

#Wegohealth