Posted in awards,patient leader, Awareness

WEGOHealth Awards2019©

Wow I am beyond honored I’ve now also been

Nominated for Patient Leader Hero- Healthcare Collaborator – Rookie of The Year and Best In Show Blog

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Endorsements Now Open If You Would Like to Vote (link below)

I have been nominated for the past few years in various categories

Thank You for considering Endorsing my nominations

It’s deeply appreciated

My Profile and Info WEGOHealth Link

Avascular Necrosis-Osteonecrosis Education

FlexitarianForLife

My Links

https://avascularnecrosiseducation.com/

www.ChronicallyGratefulDebla.com

https://www.facebook.com/AvascularNecrosisEducation/

https://flexitarianforlife.wordpress.com/

 

https://twitter.com/debbiea001

https://twitter.com/OsteonecrosisMe

https://www.instagram.com/chronicallygratefulme/?hl=en

https://www.instagram.com/deborah_andio/

https://www.facebook.com/ChronicallyGratefulDebla/

 

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Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Food, Happiness, History, Inflammation, Life, Mindfulness, OA, osteoarthritis, Osteonecrosis, Osteoporosis, Pain, SONK, SPONK, Stem Cell, StopTheClot, Uncategorized, WegoHealth

Bone & Joint Action Week October 12-20

Bone and Joint Action Week is held annually October 12-20 with activities focused on disorders including arthritis, back pain, Osteonecrosis,Osteoarthritis trauma, pediatric conditions, and osteoporosis. The themes and their related activities are designed to raise awareness worldwide about prevention, disease management and treatment.

Statistics on Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Frequency depends on the site involved. The most common site is the hip; other locations include the carpals, talus, and humerus. In most countries, exact figures on incidence and prevalence are unknown.

One Japanese survey estimated that 2500-3300 cases of AVN of the hip occur each year; of which, 34.7% were a result of corticosteroid abuse, 21.8% to alcohol abuse, and 37.1% to idiopathic mechanisms. A French study reported AVN in 4.3% of allogenic bone marrow transplant recipients.

Race: No racial predilection exists except for AVN associated with sickle cell disease and hemoglobin S and SC disease, which predominantly are diagnosed in people of African and Mediteranean descent.

Sex: The male-to-female ratio depends on the underlying cause, although primary AVN is more prevalent in men. The overall male-to-female ratio is 8:1.

Age: Age at onset depends on the underlying cause. Primary AVN most often occurs during the fourth or fifth decade and is bilateral in 40-80% of cases. On average, women present almost 10 years later than men.

Risk Factors for Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Avascular necrosis has several causes. Loss of blood supply to the bone can be caused by an injury (trauma-related avascular necrosis or joint dislocation) or by certain risk factors (nontraumatic avascular necrosis), such as some medications (usually steroid basesd), steroid abuse in general, blood coagulation disorders like sickle cell, Factor V, FactorViii, MTHFR, eNOS and more, chemo and radiation infections in the Bone vascular issues such as vascularitis or alcohol abuse. Increased pressure within the bone also is associated with avascular necrosis. The pressure within the bone causes the blood vessels to narrow, making it hard for the vessels to deliver enough blood to the bone cells.Many deep sea divers get Avascular Necrosis from a condition known as the bends. Gaucher disease.

Progression of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

Hip Stages of avn-on

1-4

The natural history of osteonecrosis is directly linked to the size and level of the necrosis. Very small lesions (involvement of less than 15% of the femoral head) may resolve without any further treatment. Conversly, lesions involving greater than 50% of the femoral head progress to collapse, and ultimately require in total hip arthroplasty.

Symptoms of Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis)

In the early stages of avascular necrosis, patients may be asymptomatic. However, as the disease progresses most patients will begin to experience joint pain; at first, only when putting weight on the affected joint, and eventually even when resting. Pain usually develops gradually and may be mild or severe.

If the level of necrosis progresses further and the bone and surrounding joint surface collapse, pain may develop or dramatically increase.

The pain may be severe enough to limit the patient’s range of motion in the affected joint.

In some cases, particularly those involving the hip, disabling osteoarthritis may develop.

The period of time between the first symptoms and loss of joint function is different for each patient, ranging from several months to more than a year.

How is Avascular Necrosis (AVN, Osteonecrosis, Aseptic Necrosis, Ischaemic Necrosis, Femoral Head Necrosis) Diagnosed?

In the earliest stages of Avascular necrosis plain x-rays are often normal. A magnetic resonance image (MRI) is the key that allows us to detect AVN at its earliest stage.

Osteonecrosis develops when the blood supply to a segment of bone is disrupted. Without adequate nourishment, the affected portion of bone dies and gradually collapses. As a result, the articular cartilage covering the bone also collapses, leading to disabling arthritis.

Osteonecrosis of the knee can affect anyone, but is more common in people over the age of 60. Woman are three times more likely than men to develop the condition.

Risk Factors

It is not always known what causes the lack of blood supply, but doctors have identified a number of risk factors that make someone more likely to develop osteonecrosis.

Injury. A knee injury—such as a stress fracture or dislocation, meniscus tear, bruised patella or combined with some type of trauma to the knee, can damage blood vessels and reduce blood flow to the affected bone.

Oral corticosteroid medications.

Many diseases, such as asthma and rheumatoid arthritis, are treated with oral steroid medications.

Although it is not known exactly why these medications can lead to osteonecrosis, research shows that there is a connection between the disease and long-term steroid use. Steroid-induced osteonecrosis frequently affects multiple joints in the body.

Medical conditions.

Osteonecrosis of the knee is associated with medical conditions, such as obesity, sickle cell anemia, and lupus.

Transplants. Organ transplantation, especially kidney transplant, is associated with osteonecrosis.

Excessive alcohol use.

Overconsumption of alcohol over time can cause fatty deposits to form in the blood vessels as well as elevated cortisone levels, resulting in a decreased blood supply to the bone.

Chemo therapy and radiation Non-traumatic osteonecrosis of bone is recognized as a potential complication in solid-tumour cancer patients receiving treatment with cytotoxic chemotherapy.

Regardless of the cause, if osteonecrosis is not identified and treated early, it can develop into severe osteoarthritis. And for some with osteoarthritis before avn the disease is even more painful.

Knee stages of avn-on

1-4

Checkout ChronicallyGratefulDebla.com

#AvascularNecrosis

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#Arthritis

#BoneAndJointHealth

#BonePain

#Awareness

#Spondylolisthesis

#Spondy

#ChronicPain

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#Spoonie

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If you found this information helpful please subscribe, like and share anything you see in here.

Together we can make a difference and help so many Men ,Women and Children.

Have a blessed and Pain-free Day.

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Baking, Blessed, Bone Health, Breakthrough Crew, BreakThroughCrew, Candy, Cardiovascular, Chronic Pain, Clinical Trials, Croatian Family, Delicious, Desserts, Diagnosed, Disclaimer, Eat Healthy, Endocrinologist, Factor V Leiden, Family Tradition, Opinions, Thoughts, Uncategorized

Blogs

I think I will be starting a new blog just for recipes

Opinions? I really want your opinions

Since I am a health leader and advocate who lives with several chronic conditions

Should I focus on just that or have a mix

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Clinical Trials, Diagnosed, Eat Healthy, Eye Exam, Factor V Leiden, Flush not Blush, Inflammation, Life, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Recipes, Stem Cell, StopTheClot, Uncategorized, Vision, WegoHealth, WEGOHealthAwards

Would appreciate your vote.

Just 2 days left to cast your vote , you can vote for each category I was nominated for. I would appreciate it very much.

Please take a moment to vote for me.

Link to vote.

WEGOHealthAwards

Blog

https://chronicallygratefuldebla.com/2017/08/20/2002/

Posted in Awareness, BreakThroughCrew, Clinical Trials, Diagnosed, Positivity, Uncategorized

Join The Breakthrough Crew

Become A member!

Who can participate?

Anyone and everyone! Patients, caregivers, healthcare professionals, and individuals who believe in the power of research to transform lives.

What does participation entail?

As an official Breakthrough Crew Ambassador, your role is to help achieve the above three core goals through the following (please note that completing each of the following is not a requirement; think of these as a list of friendly suggestions!):

Raising awareness via social media

Sharing your story via a blog, video, pictures, art, performance, etc.

Representing the Breakthrough Crew at local healthcare events

Proudly wearing your #BreakthroughCrew swag

Participating in #BreakthroughCrew Twitter chats

For more information

Breakthrough Crew

Posted in Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Uncategorized

Clinical Trials Help & Save Lives

Clinical trials are an important step in discovering new treatments for so many diseases as well as new ways to detect, diagnose , and reduce the risk of getting a disease.

Clinical trials show researchers what helps and doesn’t help in people.

Clinical trials also help researchers and doctors decide if the side effects of a new treatment are acceptable when weighed against the benefits offered by a new form of treatment.

Researchers don't know what the results of clinical trials will be. (If they did, they wouldn't have to do the trials.)

The uncertainty can make it hard to decide if you want to participate in clinical trial.

In rare cases, clinical trial volunteers have been hurt by the treatment or procedure being tested. At the same time, hundreds of thousands of people have been helped and are alive because other people chose to participate in a trial that resulted in a new, more effective treatment.

While clinical trials are important, the choice to participate in one is very personal and depends on your unique situation.

As with any disease before getting treatment, you and your doctor need to weigh the benefits against the risks and decide what's best for you.

Clinical trials are just one of the many types of research that's done before a new treatment or drug becomes available to everyone .

New medicines must first be discovered, purified, and tested in preclinical trials before researchers even think about clinical trials.

On average, a new medicine to treat disease has been studied for at least 4 to 5 years (and sometimes many more) before a clinical trial on it is started.

Would you participate in a clinical trial?

I think I would.

#ClinicalTrials
#BreakThroughCrew
#Advocate
#PatientLeader
#WegoHealth

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, DNA, Eat Healthy, Factor V Leiden, Happiness, Homemade Syrups,Tinctures,Rubs, Inflammation, Mindfulness, OA, Osteonecrosis, Positivity, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, WegoHealth

~Health  Awards ~ Advocate Nominee 

I was notified about a month ago I was nominated for a few awards in a few categories for awareness I vowed when diagnosed with avn /on I would never want anyone to feel as alone and scared as I did in 2014. 

https://awards.wegohealth.com/nominees/12801

My Ortho who diagnosed me really never took the time to even explain to me what I had, or come up with any positive plan of action. He did say when I asked when the plan was …..we will wait until your knee collapses and the replace it !!

Are you frickin kidding me!! That was his plan of action.

Well thank god my knee still is hanging in there and no sign of collapse and when it does happen if that happens he won't be doing surgery.

After the initial shock and grief I went through for what my life was and what may now be I vowed to be a world changer The Ortho also failed to tell me how rare this is and when I did my own research and found out how rare it was rare, it  left me feeling even more alone.

Sure my husband was and family were supportive but they had no clue what I had 

I also have a few other medical issues 

Osteoarthritis Spondylolisthesis Hypothyroidism , Factor V, Rbbb.

And I advocate for all and then some. 
I don't want anyone who was diagnosed with anything to ever feel alone. 

But when you have an orphan disease it just makes it harder some days to deal with. 

It's not like heart disease or cancer where there is constant education, awareness and research being done. 

I hope to change that. Osteonecrosis aka Avascular Necrosis had no cause ribbon so I made them, designed them. Now we have one

There was little information I changed that, I wrote a booklet for patients who have or are just diagnosed with Avascular Necrosis/Osteonecrosis 

I stay up to date on new treatments, trials

I also compiled an ongoing list of doctors not just locally but world wide who are knowledgeable in Avascular Necrosis/Osteonecrosis.

I am so honored to have been nominated 

I was nominated for 8 or 9 different categories and I am asking for your support(vote).

I would greatly appreciate it. 

Also there are so many other wonderful nominees maybe you could also give them a vote as well
Here is how it works 

Click below link

You will come to my wegohealth leader profile 

When you click endorse you will have the option to share it you don't have to but thanks if you do. 

It will then take you back to endorse screen so you can vote for the next award I am nominated for. 
As an advocate for Osteonecrosis and a few others things, like Osteoarthritis,Spondylolisthesis,Hypothyroidism, Heart Disease I take pride in all the research I do to raise awareness. 


I am a voice and resource in a rare community for those of us who are suffering with Avascular Necrosis/Osteonecrosis the orphan disease most people have never heard of unless your diagnosed.
I have the honor this year again of being nominated for many of the categories 16 health awards this year as a member of wegohealth.

Thank You In Advance. 

https://awards.wegohealth.com/nominees/12801