Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Food, Homemade Syrups,Tinctures,Rubs, Inflammation, Life, Meditation, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision, WegoHealth

I Am A Patient Leader to Help and Empower Others ~ WEGOHealth Awards 2017

 I would really appreciate your vote. Please read my story and why I became a patient leader and advocate. ThankYou.

I am so excited to announce that I have been nominated for several of the WEGO Health Awards in the

6th

Annual WEGO Health Awards.

WEGO Health is a mission driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.

Click link below to learn more about their

Patient Leader Network.

https://awards.wegohealth.com/nominees/12801

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice.

With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100,000 yep one hundred thousand inspiring Patient Leaders who raise awareness, share information, and support their communities but often without recognition.

I was diagnosed with osteonecrosis also known as avascular necrosis in late 2014. I was told it was due to the trauma I suffered to my knee(medial meniscus tear)

I remember how I felt, I remember how afraid I was and also a feeling of hopelessness.

If doctors couldn’t help or fix me or even try what was I to do.

I never want anyone to feel that way starving for answers to questions about a new diagnosis and no place to go and no one willing to take the time to explain your new diagnosis. I new others had to be feeling the same way as I was and what an awful feeling that was . Sure I have support from my family but they don’t really understand the pain no one can unless you have it.

So I started the support group Avascular Necrosis/Osteonecrosis Support Int’l to be a safe haven if you will, for anyone that suffers from the disease. On occasion we also allow a family member in the group if the member is comfortable with that so they can also see how this disease/disorder effects people, so they can learn from awareness and education, to have an idea just the type of pain their family member has.

The physical and psychological effects can be debilitating and isolating. Especially when you have what I refer to as a flare up of pain. You can’t plan to go to that wedding next month, you don’t know how you’ll feel in an hour.

The pain can be constant day and night pain or come at any time out of nowhere or in waves and they’re quite perturbing. It’s like a hot lightning bolt and a sledge hammer hitting you at the same time and it can be shocking to those around you,because you end up maybe screaming or yelling,sometimes swearing or just overall mood change because the pain is so intense words truly cannot describe. Some words are hot stabbing shooting debilitating and yet frozen , tourniquet like cutting off your blood supply cold pain that’s what we feel.

Its not just the pain that affects us , but also the sadness or depression that can often come with it. When we think about the future and pain gets in the way of all our plans expectations, it’s a bit shattering.

Everything seems to sort of fall apart and right now you can see only the broken image of the new you .

It’s like looking in a shattered mirror all these different fragments that no longer make you whole.

My life became very fragmented and it was a moment to moment thing because I didn’t know how I would make it through that particular day or make it through what’s going to happen tomorrow. When I was first diagnosed my mind was all over the place.

I’m not terminal but I felt like I was , because my life as I once knew it was done…over.

No doctor I saw had any plan of action to help me in fact I was told we will wait until the joint collapses then replace the knee . Talk about mind blowing!

Osteonecrosis took my career in optical which I loved. It took my hiking in the woods away which I enjoyed. It limits me which I hate. But it’s also given me a new purpose and that is spreading awareness, discussing new treatments, the chance to educate , and reaching out to others. I am a patient leader and activist. Making the invisible, visible

If you allow it, the pain and mental shit you go through when you live in pain and with a rare disorder to boot whether it’s constant or sporadic it can be toxic to the mind and soul sucking.

God forbid don’t ask for pain meds.

When I was first diagnosed my first Ortho said the pain will get intense as if it wasn’t already but I don’t give pain meds. I wondered how bad will it get? I’m already in such pain I can barely stand it. Thankfully my family doctor gave me some pain medicine.

It helped but I don’t want to take it. I’d much rather find out how to fix me.

I’m not some junkie looking for a fix, hell I don’t even want to be at a doctors office.

I would much rather be working or frankly doing anything but sitting in a doctors office.

There is so much stigma that goes along with having chronic pain .

The generalization that everyone is claiming they are in pain just to get drugs is unfair and incorrect, and I think we have to be very careful because pain for most of us is invisible,to others.

When we are out of balance mind ,body , and spirit it makes it so hard to focus.

It makes anything and everything worse.

So we have to change our mind set,respect and do what we can to help our body,and interact with others.

Usually I think people will find that in a support group even if they don’t talk they can listen to people who have the similar experiences, frustrations , challenges,pain, treatments or lack of treatment availability or just simple acknowledgement of I know what your going through, many days is a great help.

And it’s very hard to find that outside a support group.

I never insist a new member speak unless they want to. Some are just so devastated by the diagnosis that they have no words. When I see a new member especially a newly diagnosed one, my heart just knows how much fear they have and how afraid they are. I always let them know that can say anything here and it will remain here. But if they are not ready that’s fine to.

I also offer to send them a copy of a booklet I wrote about avn/on.

I know later their words will come. Right now they need to know they are not alone.

I also raise awareness by several

FB pages

Instagram

Twitter

Personal Blog on word press and blogger

Chronicallygratefuldebla.com

That’s why I am a patient leader and activist.

Here is the link to my WegoHealth profile.

I would appreciate your vote.

You can vote daily up until September 1, 2017.

Here is link

https://awards.wegohealth.com/nominees/12801

Thank you

Current Nominations in The 6th annual WEGO Health Awards

#WEGOHealthAwards

#PatientLeader

Please share this if you would be so kind.

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What is osteonecrosis?  The term literally means bone death -osteo =bone necrosis=death.

Posted in Bone Health

You Heard About It Here First: Science Breakthrough

Breakthrough device heals organs with a single touch

Device instantly delivers new DNA or RNA into living skin cells to change their function

Date:

August 7, 2017

Source:

Ohio State University Wexner Medical Center

Summary:

Researchers have developed a device that can switch cell function to rescue failing body functions with a single touch. The technology, known as Tissue Nanotransfection (TNT), injects genetic code into skin cells, turning those skin cells into other types of cells required for treating diseased conditions.

Researchers at The Ohio State University Wexner Medical Center and Ohio State’s College of Engineering have developed a new technology, Tissue Nanotransfection (TNT), that can generate any cell type of interest for treatment within the patient’s own body. This technology may be used to repair injured tissue or restore function of aging tissue, including organs, blood vessels and nerve cells.

Results of the regenerative medicine study published in the journal Nature Nanotechnology.

“By using our novel nanochip technology, injured or compromised organs can be replaced. We have shown that skin is a fertile land where we can grow the elements of any organ that is declining,” said Dr. Chandan Sen, director of Ohio State’s Center for Regenerative Medicine & Cell Based Therapies, who co-led the study with L. James Lee, professor of chemical and biomolecular engineering with Ohio State’s College of Engineering in collaboration with Ohio State’s Nanoscale Science and Engineering Center.

Researchers studied mice and pigs in these experiments. In the study, researchers were able to reprogram skin cells to become vascular cells in badly injured legs that lacked blood flow. Within one week, active blood vessels appeared in the injured leg, and by the second week, the leg was saved. In lab tests, this technology was also shown to reprogram skin cells in the live body into nerve cells that were injected into brain-injured mice to help them recover from stroke.

“This is difficult to imagine, but it is achievable, successfully working about 98 percent of the time. With this technology, we can convert skin cells into elements of any organ with just one touch. This process only takes less than a second and is non-invasive, and then you’re off. The chip does not stay with you, and the reprogramming of the cell starts. Our technology keeps the cells in the body under immune surveillance, so immune suppression is not necessary,” said Sen, who also is executive director of Ohio State’s Comprehensive Wound Center.

TNT technology has two major components: First is a nanotechnology-based chip designed to deliver cargo to adult cells in the live body. Second is the design of specific biological cargo for cell conversion. This cargo, when delivered using the chip, converts an adult cell from one type to another, said first author Daniel Gallego-Perez, an assistant professor of biomedical engineering and general surgery who also was a postdoctoral researcher in both Sen’s and Lee’s laboratories.

TNT doesn’t require any laboratory-based procedures and may be implemented at the point of care. The procedure is also non-invasive. The cargo is delivered by zapping the device with a small electrical charge that’s barely felt by the patient.

“The concept is very simple,” Lee said. “As a matter of fact, we were even surprised how it worked so well. In my lab, we have ongoing research trying to understand the mechanism and do even better. So, this is the beginning, more to come.”

Researchers plan to start clinical trials next year to test this technology in humans, Sen said.

Funding for this research was provided by Leslie and Abigail Wexner, Ohio State’s Center for Regenerative Medicine and Cell-Based Therapies and Ohio State’s Nanoscale Science and Engineering Center.

Video: https://www.youtube.com/watch?v=tMQ51Kj2tS0

Story Source:

Materials provided by Ohio State University Wexner Medical Center. Note: Content may be edited for style and length.

Journal Reference:

1 Daniel Gallego-Perez, Durba Pal, Subhadip Ghatak, Veysi Malkoc, Natalia Higuita-Castro, Surya Gnyawali, Lingqian Chang, Wei-Ching Liao, Junfeng Shi, Mithun Sinha, Kanhaiya Singh, Erin Steen, Alec Sunyecz, Richard Stewart, Jordan Moore, Thomas Ziebro, Robert G. Northcutt, Michael Homsy, Paul Bertani, Wu Lu, Sashwati Roy, Savita Khanna, Cameron Rink, Vishnu Baba Sundaresan, Jose J. Otero, L. James Lee, Chandan K. Sen. Topical tissue nano-transfection mediates non-viral stroma reprogramming and rescue. Nature Nanotechnology, 2017; DOI: 10.1038/nnano.2017.134

Cite This Page:

MLA

APA

Chicago

Ohio State University Wexner Medical Center. “Breakthrough device heals organs with a single touch: Device instantly delivers new DNA or RNA into living skin cells to change their function.” ScienceDaily. ScienceDaily, 7 August 2017. <www.sciencedaily.com/releases/2017/08/170807120530.htm>.

http://www.npr.org/sections/health-shots/2017/08/08/542057520/a-chip-that-reprograms-cells-helps-healing-at-least-in-mice

Posted in Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Inflammation, Osteonecrosis, Support Group, Hope, Uncategorized, WegoHealth

Avascular Necrosis/Osteonecrosis

Avascular necrosis (AVN), or more correctly “osteonecrosis”, is a generic term referring to an ischaemic death of the constituents of bone.

AVN has a wide variety of causes and can affect nearly any bone in the body. Most sites of involvement have an eponym associated with avascular necrosis of that area, and these sites are discussed individually as each site has unique clinical, etiologic and prognostic features.

The terms ischaemic and avascular necrosis are typically reserved for subchondral osteonecrosis, whereas bone infarct refers to medullary osteonecrosis.

Epidemiology

There is no single affected demographic as the underlying predisposing factors are varied.

Pathology

Infarction begins when the blood supply to a section of bone is interrupted. Once an infarct has become established, just as in other tissues, there is a central necrotic core, surrounded by an ischaemic zone, the inner portion being ‘almost dead’ and the outer portion being hyperaemic. Beyond this is normal viable marrow. Between the normal and the ischaemic zone that demarcation occurs with the development of viable granulation separating dead tissue. This leads to the double line sign on MRI.

When the infarct is subchondral, a wedge of tissue is typically affected, the apex of which points towards the centre of the bone.

Aetiology
•trauma (fracture or dislocation)
•Increased pressure inside the bone
• HIV
• Lupus
•Cancer
•Caissons disease
• Blood Clot disorders,haemoglobinopathies, e.g. sickle cell disease
•pregnancy-related AVN
•radiotherapy,chemo
•connective tissue disorders and vascular issues
•renal transplantation
•corticosteroid excess (both endogenous and exogenous)
•pancreatitis
•gout
•Gaucher disease
•alcohol and smoking

Mnemonics: STARS, PLASTIC RAGS

Eponymous names for specific sites of avascular necrosis
• Ahlback disease: medial femoral condyle, i.e. SONK
• Brailsford disease: head of radius
• Buchman disease: iliac crest
• Burns disease: distal ulna
• Caffey disease: entire carpus or intercondylar spines of tibia
• Dias disease: trochlea of the talus
• Dietrich disease: head of metacarpals
• Freiberg infraction: head of the second metatarsal
• Friedrich disease: medial clavicle
• Hass disease: humeral head
• Iselin disease: base of 5th metatarsal
• Kienbock disease: lunate
• Kohler disease: patella or navicular (children)
• Kummel disease: vertebral body
• Legg-Calvé-Perthes disease: femoral head
• Liffert-Arkin disease: distal tibia
• Mandl disease: greater trochanter
• Mauclaire disease: metacarpal heads
• Milch disease: ischial apophysis
• Mueller-Weiss disease: navicular (adult)
• Panner disease: capitellum of humerus
• Pierson disease: symphysis pubis
• Preiser disease: scaphoid
• Sever disease: calcaneal epiphysis
• Thiemann disease: base of phalanges
• Van Neck-Odelberg disease: ischiopubic synchondrosis

Location specific sub-articles for avascular necrosis:
•hip avascular necrosis
•scaphoid avascular necrosis

Radiographic features

Radiographic changes alter with the stage of AVN – see Ficat staging, Steinberg classification.

Radiograph

In general, there is initial minor osteopenia, followed by variable density. Gradually microfractures of the subchondral bone accumulate in the dead bone, which is unable to repair leading to the collapse of the articular surface and the crescent sign of AVN. Eventually the cortex collapses and fragments, with superimposed secondary degenerative change.

MRI

MRI is the most sensitive (~95%) modality and demonstrates changes well before plain films changes are visible.
•diffuse oedema: oedema is not an early sign; instead, studies showed that oedema occurs in advanced stages and is directly correlated with pain
• reactive interface line is a focal serpentine low signal line with fatty centre (most common appearance and first sign on MRI)
• double line sign: serpiginous peripheral/outer dark (sclerosis) and inner bright (granulation tissue) on T2WI is diagnostic
• rim sign: osteochondral fragmentation:
•secondary degenerative change

Nuclear medicine

Bone scintigraphy is also quite sensitive (~85%) and is the second option after MRI. It is a choice when multiple sites of involvement must be assessed in patients with risk factors, such as sickle cell disease. The findings are different accordingly to the time of the scan:
• early disease: often represented by a cold area likely representing the vascular interruption
• late disease: may show a “doughnut sign”: a cold spot with surrounding high uptake ring (surrounding hyperaemia and adjacent synovitis)

Treatment and prognosis

The goal of treatment is to reduce the load on the affected part and to promote revascularisation. Treatment varies with location and includes:
•conservative: anti-inflammatory, analgesia, and reduced/non-weight bearing
•core decompression
•joint replacement for end-stage disease

Practical points
• MRI and bone scintigraphy have high sensitivity, with MRI studies being the first line for AVN assessment

See also
•differential diagnosis of erosive arthritis
•monoarticular arthropathy

Monoarticular arthropathy can result from a number of causes:
•infectious arthritis
•gout
• HADD (hydroxyapatite deposition disease)
•traumatic arthritis
•secondary osteoarthritis
•avascular necrosis
•PVNS
•synovial osteochondromatosis
•osteochondritis dissecans

What Research Is Being Done to Help People With Osteonecrosis?Some goals of research are to learn more about:How many people have osteonecrosis

Risk factors for osteonecrosisWhy steroids cause osteonecrosisThe role of genesHow to diagnose the disease earlyBetter treatments for osteonecrosisWays to improve hip replacementHow mechanical factors such as the alignment of hips, knees, and ankles affect treatment success.For More Information About Osteonecrosis and Other Related Conditions:
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information ClearinghouseNational Institutes of Health1 AMS CircleBethesda, MD 20892–3675Phone: 301–495–4484Toll free: 877–22–NIAMS (226–4267) TTY: 301–565–2966Fax: 301–718–6366Email: NIAMSinfo@mail.nih.gov Website: http://www.niams.nih.gov

Links can be found below and at
http://www..ChronicallyGratefulDebla.com

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Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Chronic Pain, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Flush not Blush, Food, Gluten Free, Happiness, Herbal, Homemade Syrups,Tinctures,Rubs, Inflammation, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision

Get To Know Me

Hi, I'm Debbie and I have Avascular Necrosis/Osteonecrosis, It's a rare disease/disorder where you have a temporary or permanent loss of blood supply to the bone.
I developed my avascular necrosis/osteonecrosis after I suffered a meniscal tear. I'm lucky and very grateful because the doctors don't feel it will go to any other joints . Others including small children are not so fortunate.

We need more research on so many levels and trials.

I love to learn.
I love to educate
I love to help people realize their is always hope.
I have started to go to a more plant-based diet to help the pain caused by inflammation.

However I still will eat meat once a week no more than 2x a week.

I also personally take supplements all ok'd by my PCP

Vitamin D varies from 2000 to 5000 iu a day based on lab results

CoQ10 400mg a day

CuraMed Curcumin 375mg my
Ortho had me start with 1 in a.m and 1 in p.m for the first week, then take 1 a day.

Krill Oil – Not Fish oil
I buy Antarctic Krill Oil Platinum by 1MD because it's top quality.

Krill and fish oil similarly contain EPA and DHA, but they differ in the way that the omegas are bonded. The omegas in krill oil are mostly bonded to phospholipids while in fish oil they are bonded to triglycerides. The fat cells in humans are also in phospholipid form. A study done on the metabolic effects of krill oil concluded that the omega-3s from krill oil may be more readily and effectively absorbed after ingestion and distribution into the bloodstream.

I have gone from eating food that really wasn't that healthy to eating mostly plants real food. To help my body by giving it the best nutrients possible.
I have to say my pain has decreased.
I will have a cheat day now and then.
But when you get used to eating good healthy food anything other than that just doesn't taste as good.

So I will be posting various recipes on my main blog and sometimes here as well , ones that I tried and loved as well as some information about myself and about Osteonecrosis aka Avascular Necrosis and a few other things

I Research a lot of things
Osteoarthritis
Osteonecrosis
Spondylolisthesis
Factor V Leiden Heterogeneous
Hypothyroidism
Rosecea
Clinical Trials
Stem Cell and Prolotherapy

I love history and being outdoors

One thing I know I will do again someday is hike . Since diagnosed with Avn I haven't lived or hiked as much as I used to do to limitations because of bone problems.

I love learning and applying new things into my own life.

I truly believe we can help our pain and diminish symptoms and heal our own body most of the time if not all the time.

We just need the right tools and the know how.

My Links

Facebook Main Profile https://m.facebook.com/public/Deborah-Andio

Main Blog ChronicallyGratefulDebla.com

YouTube Awareness Videos https://m.youtube.com/user/debbieandio

New Blog on Google 3/8/2017 http://chronicallygratefuldebla.blogspot.com/2017/03/hello-i-am-debbie-andio-i-am-blogger.html

Link to Mini Fact Videos http://cortanavideo.trade/user/UC1RtmEwtWKC8w9EgE2IwOFg

Twitter https://mobile.twitter.com/debbiea001

Instagram https://www.instagram.com/debbiea_1962

FB Information and Awareness Pages Bone info and Joint of the Day https://m.facebook.com/AvascularNecrosisRareDiseaseDayFeb29/

ON/AVN https://m.facebook.com/Osteonecrosis-Avascular-Necrosis-Support-913679995417381/

ON/AVN https://m.facebook.com/ONAvascular-Necrosis-Knowledge-752404224891578/

Recipes https://m.facebook.com/YummyGoodness/

Facebook Link https://m.facebook.com/ChronicallyGrateful.Me/

NewMorning Talk Anyone who wants to do a f b live via a guest message me. Various topics health, pain, food https://m.facebook.com/MorningTalk.Healh/

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Gluten Free, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Rosacea, StopTheClot, Support Group, Hope, Uncategorized

My Sleeping Giant Called Chronic Pain.

Not everyone knows what it is like to suddenly one day be told by a doctor you will have chronic pain for probably the rest if your life.
I've been blessed with a few painful diagnosis, I say blessed because I know I will help others because of my diagnosis.

Osteoarthritis 2010
Osteonecrosis 2014
Spondylolisthesis 2016
Hypothyroidism 2002
Rosecea 2017

Shock is one of the best words I can use to describe how I felt when that happened to me.

Today I discuss Osteonecrosis

When I began facing the symptoms of Osteonecrosis aka Avascular Necrosis , I was in shock the day I was diagnosed.
I just couldn't believe that a torn meniscus could lead me down this path.

One day I was fine and then the next day, I was in my bed due to intense debilitating pain.
I had a job as an optometric tech/optician that I loved.
I just never knew I would encounter something so life changing all because of a torn meniscus that ended up with me having AVN/ON.

I pictured myself being at my job for a long time, I want to retire at 59 not 51 and certainly not because I had to.

I felt as if this rare disease/disorder called Osteonecrosis had drastically altered my vision and goals and my future career.
I began to feel uncertain about my life and the plans I was making for it. My anxiety seemed to be off the chart.

When someone tells you that Osteonecrosis is bone death all you seem to hear , at least in my case is death.
My heart raced, thoughts of being in a wheelchair flashed in my mind.
This went on for a few weeks to maybe a few months.
I had to get a grip and come to terms with this. Even though my family and friends were supportive I felt terribly alone.

No one really knew how I felt and words couldn't describe that constant pain I was in.
I often refer to it as being hit by a hot lightening bolt over and over.

I woke up one day after my torn meniscus ended up with me developing Osteonecrosis and could barely walk and I could not focus when people were talking to me because my mind kept jumping around trying to figure out what I could do to help myself. How can I get some of my life back, how to get this pain to ease or just go away.
I want to get back to things I love like work, walking and hiking, living.

Through trial and error I learned what to do and what not to do for the most part. But I still get days even weeks where the pain returns to let me know it's still there, lurking like a stalker in the background.

My AVN/ON is better some days than others. The first 2 years honestly was constant pain 24/7 it was so bad I couldn't work anymore. I could not go up steps period. I could barely function.
I wasn't one to take pain pills all the time, even though I had them.
I asked my ortho for alternative ideas
He suggested CuraMed.

I started to take Terry's Naturally CuraMed 375 mg a day x 2 a day for the first week , then once a day since.

As well as Vitamin D because I was severely deficient,and a few other medications that was prescribed by my doctors.

I was taking all the other supplements before the CuraMed and honestly with in 2 weeks my pain eased up enough to notice. It was still there but not as severe.

I also read about raw and plant based food to help the pain. Amazing..

Then after about a month there were days I had very little pain ,pain still present like a dull ache and I was so thrilled to be able to at least go to the grocery store and come home and not cry or feel defeated.

I had to have a umbilical Hernia repaired and was told stop all Supplements!
I wasn't thrilled about this but understand why.

With in 3 days of not taking my supplements my pain comes back with vengeance .
Are you kidding me?!

I hate that I am unable to predict it. After a 3 years of enduring this pain off and on I am still amazed at how rapidly my condition can change.

I take my supplements everyday but sometimes the pain does put me in check. It yells HEY LADY…..
I'm still here.

Yesterday I had a flare up the pain was overwhelming so frustrating.
I'm still in pain today just not as bad as yesterday.
When I limp it throws off everything and then the Spondylolisthesis in my L5 starts acting up. I get numb when I sit. So some kind of nerve issues happening.But ya know I don't even worry about that right now.

The pain is like a sleeping giant. You never know when the beast will awaken. But look the frick out when it does.

Besides physical pain also can come body image issues, due to limited mobility and possible weight gain or loss with a chronic condition.

Limited mobility and those who have to take medications just to be able to survive takes a toll on your weight. Be it steroids which is horrible for people with AVN in fact it's been known to cause AVN . I am grateful that my avn/on was due to trauma.

I gained weight because I'm not anywhere near as active as I was yes I changed my diet but still the body has to move, and in my opinion prolonged use of any rx or supplements can have a big effect on a persons weight. Plus I have Hypothyroidism which has its own set of issues.

But because of AVN/ON , exercise may be limited or barely exist, because sometimes just getting out of bed in the morning feels like you just climbed for days in the Appalachian mountains. I have learned that no matter how much pain I'm in , I have to move some or I will feel worse.

Unfortunately mood swings can happen especially if pain is severe and often debilitating. It really sucks.

You can feel it like a light switch inside you clicks.
But 10 min later if pain is gone or subsided you can be relaxed and happy.

I really hate pain. And I hate feeling moody I like to be happy.

I started keeping a combination food/pain diary.

My food/pain diary is used to monitor levels of pain over a an extended period of time to see if I had possible triggers for my pain.

I know it might sound very weird and kind of scientific, but just think about it,say last week you had intense pain and then it was gone and say you ate a different food maybe there's a correlation between the two.

If you have a condition where you experience pain off and on for weeks or months,years you will remember that pain on January 1 or July 28th.

So if you keep a food/ pain log maybe the pain is brought on by an allergic reaction to something in a particular food.

Then you know to stay away from it.

I'm not saying it's 100 percent accurate but for me it's helped tremendously.
However somedays my body just has pain especially winter months. I used to love winter now I dread it.

Speaking of cold,I also have this freezing cold feeling in the knee that has the Osteonecrosis in it.

It feels like it's always cold , but when it really hurts it feels like it's been outside on a cold Ohio day for about 3 hours in 10 degree weather.
And the only relief I get is propping it up and applying a ThermaCare heat wrap.

That's why I track my pain , food, weather. I look for triggers.

I will post my pain tracker sheet tomorrow.

What is Avascular Necrosis/Osteonecrosis?

Osteonecrosis is a disease caused by reduced blood flow to bones in the joints. With too little blood, the bone starts to die and may break down.
Osteonecrosis is also known as:
• Avascular necrosis
• Aseptic necrosis
• Ischemic necrosis.
Osteonecrosis is most often found in the hips, knees, shoulders, and ankles. You may have osteonecrosis in one or more bones.

In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured.

In osteonecrosis, bone breaks down faster than the body can make enough strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down.

You may not be able to bend or move the affected joint very well, and you may have pain in the joint.

Who Gets Osteonecrosis?
Osteonecrosis can occur in people of any age, but it is most common in people in their thirties, forties, and fifties.
What Causes Osteonecrosis?
Osteonecrosis is caused when the blood flow to the bone decreases, but why this happens is not always clear. Some known causes of osteonecrosis are:
• Steroid medications
• Alcohol use
• Injury
• Increased pressure inside the bone.
Risk factors for osteonecrosis are:
• Radiation treatment
• Chemotherapy
•. Smoking
• Kidney and other organ transplants.
Osteonecrosis is more common in people with illnesses such as:
• Cancer
• Lupus
• HIV
• Gaucher’s disease
• Caisson disease
• Gout
• Vasculitis
• Osteoarthritis
• Osteoporosis
•. Pregnancy
•. Blood disorders Like Factor V Leiden, Factor Viii, and Sickle Cell disease.

Osteonecrosis can also affect people for no known reason, even if they have no other health problems.
What Are the Symptoms of Osteonecrosis?
When osteonecrosis first begins, you may not have any symptoms. You may start to feel pain when you put weight on a joint with osteonecrosis. As the disease gets worse, you may have more pain and the joint may hurt even when you rest. Pain may be mild or severe.
If the bone and joint start to break down, you may have severe pain and not be able to use the joint. For instance, if you have osteonecrosis in the hip, you may not be able to walk. The time from the start of symptoms to losing use of the joint can range from months to more than a year.
How Is Osteonecrosis Diagnosed?
To diagnose osteonecrosis, your doctor will take your medical history and do a physical exam. Your doctor may then order one or more tests to see which bones are affected:
• X ray
• Magnetic resonance imaging (MRI)
• Computed tomography (CT) scan
• Bone scan
• Bone biopsy
• Measure of the pressure inside the bone.
Treatment helps more if the disease is diagnosed early.
How is Osteonecrosis Treated?
Treatment helps to keep bone in joints from breaking down. Without treatment, most people with the disease will have severe pain and limited movement within 2 years. To decide on the best treatment, your doctor will find out:
• Your age
• The stage of the disease
• Where and how much bone has osteonecrosis
• The cause, if known. If the cause is steroid or alcohol use, treatment may not work unless you stop using those substances.
The goals in treating osteonecrosis are:
• To improve use of the joint
• To stop further damage
• To protect bones and joints.
For early stage disease, doctors may first order nonsurgical treatments. If they do not help, surgery may be needed.
Nonsurgical treatments
Nonsurgical treatments may relieve pain in the short term, but they do not cure the disease. One or more of these treatments may be used at the same time.
• Medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) are used to reduce pain and swelling. For people with blood clotting problems, blood thinners may be used to prevent clots that block the blood supply to the bone. If you take steroid medications, cholesterol-lowering drugs may be used to reduce fat in the blood.
• Taking weight off the joint. Your doctor may suggest that you limit your activity or use crutches to take weight off the affected joint. This may slow bone damage and allow some healing. If combined with NSAIDs, it may help you avoid or delay surgery.
• Range-of-motion exercises. Exercise of the joints with osteonecrosis may help increase their range of motion.
• Electrical stimulation. Research has shown that this can prompt bone growth.
•Prp injections and or stem cell injections A2M or prolotherapy in early stages 1 -2.
StemCell Stage 3 as long as bone has not collapsed
Surgery
In time, most people with osteonecrosis need surgery. There are four main types of surgery used for osteonecrosis. Your doctor will decide if you need surgery and what type is best for you.
• Core decompression surgery. Lowers pressure inside the bone to increase blood flow to the bone.
• Osteotomy. Reshapes the bone to reduce stress on the damaged joint.
• Bone graft. Takes healthy bone from one part of the body and uses it to replace diseased bone.
• Total joint replacement. Replaces the joint with a manmade one.

ChronicallyGratefulDebla.com

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Food, Hacks, Happiness, Herbal, Inflammation, Life, Meditation, Mindfulness, Music, OA, Osteonecrosis, Positivity, Uncategorized, Vision

Various Relaxation Techniques

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With so much stress that comes with having a chronic condition and the world we live in is full of several fast paced situations , hurry here, hurry there , doctor appointments, tests,people with little to no patience and they want us to move a bit faster!
Excuse You! But I have a bone disease and I am going as fast as I can.
People judging us
It can be overwhelming
It's no wonder at the end of a day we can't sleep.

I think personally everyone needs to learn how to just open our mind relax and chill a little.

Relaxation Techniques
Using the Relaxation Response to Relieve Stress

For many of us, relaxation means zoning out in front of the TV at the end of a stressful day.

But this does little to reduce the damaging effects of stress.

To effectively combat stress, we need to activate the body's natural relaxation response.
You can do this by practicing relaxation techniques such as deep breathing, meditation, rhythmic exercise, and yoga or chair yoga if you are challenged with Bone and joint issues.

Fitting these activities into your life can help reduce everyday stress, boost your energy and mood, and improve your mental and physical health..

What is the relaxation response? Well based on what I have read …
When stress overwhelms your nervous system, your body is flooded with chemicals that prepare you for "fight or flight."
This stress response can be lifesaving in emergency situations where you need to act quickly.
But when it’s constantly activated by the stresses of everyday life, it can wear your body down and take a toll on your emotional health.

No one can avoid all stress, but you can counteract its detrimental effects by learning how to produce the relaxation response, a state of deep rest that is the polar opposite of the stress response. The relaxation response puts the brakes on stress and brings your body and mind back into a state of equilibrium.
When the relaxation response is activated, your:
heart rate slows down
breathing becomes slower and deeper
blood pressure drops or stabilizes
muscles relax
blood flow to the brain increases

In addition to its calming physical effects, the relaxation response also increases energy and focus, combats illness, relieves aches and pains, heightens problem-solving abilities, and boosts motivation and productivity. Best of all, anyone can reap these benefits with regular practice.
How to produce the relaxation response
Simply laying on the couch, reading, or watching TV while sometimes relaxing isn’t going to produce the physical and psychological benefits of the relaxation response. For that, you’ll need to actively practice a relaxation technique.
Finding the relaxation technique that’s best for you may be interesting because there is no single relaxation technique that is best for everyone.
So I am going to touch base on a few and post their YouTube links below.

The right relaxation technique is the one that resonates with you, fits your lifestyle, and is able to focus your mind and interrupt your everyday thoughts to elicit the relaxation response. You may even find that alternating or combining different techniques provide the best results.

How you react to stress may also influence the relaxation technique that works best for you:

The “fight” response. If you tend to become angry, agitated, or keyed up under stress, you will respond best to stress relief activities that quiet you down, such as meditation, progressive muscle relaxation, deep breathing, or guided imagery.
The “flight” response. If you tend to become depressed, withdrawn, or spaced out under stress, you will respond best to stress relief activities that are stimulating and energize your nervous system, such as rhythmic exercise, massage, mindfulness, or power yoga.

The immobilization response. If you’ve experienced some type of trauma and tend to “freeze” or become “stuck” under stress, your challenge is to first rouse your nervous system to a fight or flight response (above) so you can employ the applicable stress relief techniques.
To do this, choose physical activity that engages both your arms and legs, such as running, dancing, or tai chi, and perform it mindfully, focusing on the sensations in your limbs as you move.

Deep breathing
With its focus on full, cleansing breaths, deep breathing is a simple yet powerful relaxation technique. It’s easy to learn, can be practiced almost anywhere, and provides a quick way to get your stress levels in check. Deep breathing is the cornerstone of many other relaxation practices, too, and can be combined with other relaxing elements such as aromatherapy and music. All you really need is a few minutes and a place to stretch out.
How to practice deep breathing
The key to deep breathing is to breathe deeply from the abdomen, getting as much fresh air as possible in your lungs. When you take deep breaths from the abdomen, rather than shallow breaths from your upper chest, you inhale more oxygen. The more oxygen you get, the less tense, short of breath, and anxious you feel.
Sit comfortably with your back straight. Put one hand on your chest and the other on your stomach.
Breathe in through your nose. The hand on your stomach should rise. The hand on your chest should move very little.
Exhale through your mouth, pushing out as much air as you can while contracting your abdominal muscles. The hand on your stomach should move in as you exhale, but your other hand should move very little.
Continue to breathe in through your nose and out through your mouth. Try to inhale enough so that your lower abdomen rises and falls. Count slowly as you exhale.

If you find it difficult breathing from your abdomen while sitting up, try lying down. Put a small book on your stomach, and breathe so that the book rises as you inhale and falls as you exhale.

Progressive muscle relaxation
Progressive muscle relaxation is a two-step process in which you systematically tense and relax different muscle groups in the body. With regular practice, it gives you an intimate familiarity with what tension as well as complete relaxation feels like in different parts of the body. This can help you to you react to the first signs of the muscular tension that accompanies stress. And as your body relaxes, so will your mind.

Progressive muscle relaxation can be combined with deep breathing for additional stress relief.
Practicing progressive muscle relaxation
Consult with your doctor first if you have a history of muscle spasms, back problems, or other serious injuries that may be aggravated by tensing muscles.
Start at your feet and work your way up to your face, trying to only tense those muscles intended.
1. Loosen clothing, take off your shoes, and get comfortable.
2. Take a few minutes to breathe in and out in slow, deep breaths.
3. When you’re ready, shift your attention to your right foot. Take a moment to focus on the way it feels.
4. Slowly tense the muscles in your right foot, squeezing as tightly as you can. Hold for a count of 10.
5. Relax your foot. Focus on the tension flowing away and how your foot feels as it becomes limp and loose.
6. Stay in this relaxed state for a moment, breathing deeply and slowly.
7. Shift your attention to your left foot. Follow the same sequence of muscle tension and release.
8. Move slowly up through your body, contracting and relaxing the different muscle groups.
9. It may take some practice at first, but try not to tense muscles other than those intended.

Mindfulness meditation
Rather than worrying about the future or dwelling on the past, mindfulness meditation switches the focus to what’s happening right now, enabling you to be fully engaged in the present moment.

Meditations that cultivate mindfulness have long been used to reduce stress, anxiety, depression, and other negative emotions. Some of these meditations bring you into the present by focusing your attention on a single repetitive action, such as your breathing, a few repeated words, or the flickering light of a candle. Other forms of mindfulness meditation encourage you to follow and then release internal thoughts or sensations. Mindfulness can also be applied to activities such as walking, exercising, or eating.
A basic mindfulness exercise:
1. Sit on a straight-backed chair or cross-legged on the floor.
2. Focus on an aspect of your breathing, such as the sensation of air flowing into your nostrils and out of your mouth, or your belly rising and falling.
3. Once you've narrowed your concentration in this way, begin to widen your focus. Become aware of sounds, sensations, and thoughts.
4. Embrace and consider each thought or sensation without judging it good or bad. If your mind starts to race, return your focus to your breathing. Then expand your awareness again.

Body scan meditation
This is a type of meditation that that focuses your attention on various parts of your body. Like progressive muscle relaxation, you start with your feet and work your way up. But instead of tensing and relaxing muscles, you simply focus on the way each part of your body feels, without labeling the sensations as either “good” or “bad”.
Practicing body scan meditation
Lie on your back, legs uncrossed, arms relaxed at your sides, eyes open or closed. Focus on your breathing for about two minutes until you start to feel relaxed.
Turn your focus to the toes of your right foot. Notice any sensations you feel while continuing to also focus on your breathing. Imagine each deep breath flowing to your toes. Remain focused on this area for one to two minutes.
Move your focus to the sole of your right foot. Tune in to any sensations you feel in that part of your body and imagine each breath flowing from the sole of your foot. After one or two minutes, move your focus to your right ankle and repeat. Move to your calf, knee, thigh, hip, and then repeat the sequence for your left leg. From there, move up the torso, through the lower back and abdomen, the upper back and chest, and the shoulders. Pay close attention to any area of the body that causes you pain or discomfort.
After completing the body scan, relax for a while in silence and stillness, noting how your body feels. Then slowly open your eyes and stretch, if necessary.
Rhythmic movement and mindful exercise
The idea of exercising may not sound particularly soothing, but rhythmic exercise that gets you into a flow of repetitive movement can be very relaxing. Examples include:
Running
Walking
Swimming
Dancing
Rowing
Climbing
For maximum stress relief, add mindfulness to your workout
While simply engaging in rhythmic exercise will help you relieve stress, if you add a mindfulness component on top, you’ll get even more benefit.
As with meditation, mindful exercise requires being fully engaged in the present moment—paying attention to how your body feels right now, rather than your daily worries or concerns. In order to “turn off” your thoughts, focus on the sensations in your limbs and how your breathing complements your movement.
If you’re walking or running, for example, focus on the sensation of your feet touching the ground, the rhythm of your breath, and the feeling of the wind against your face. If your mind wanders to other thoughts, gently return to focusing on your breathing and movement.
Visualization
Visualization, or guided imagery, is a variation on traditional meditation that involves imagining a scene in which you feel at peace, free to let go of all tension and anxiety. Choose whatever setting is most calming to you, whether it’s a tropical beach, a favorite childhood spot, or a quiet wooded glen.
You can practice visualization on your own or with a therapist (or an audio recording of a therapist) guiding you through the imagery. You can also choose to do your visualization in silence or use listening aids, such as soothing music or a sound machine or recording that matches your chosen setting—the sound of ocean waves if you’ve chosen a beach, for example.
Practicing visualization
Close your eyes and imagine your restful place. Picture it as vividly as you can—everything you can see, hear, smell, taste, and feel. Just “looking” at it like you would a photograph is not enough. Visualization works best if you incorporate as many sensory details as possible.
For example, if you are thinking about a dock on a quiet lake:
See the sun setting over the water
Hear the birds singing
Smell the pine trees
Feel the cool water on your bare feet
Taste the fresh, clean air
Enjoy the feeling of your worries drifting away as you slowly explore your restful place. When you are ready, gently open your eyes and come back to the present.
Don't worry if you sometimes zone out or lose track of where you are during a visualization session. This is normal. You may also experience feelings of heaviness in your limbs, muscle twitches, or yawning. Again, these are normal responses.
Yoga and tai chi
Yoga involves a series of both moving and stationary poses, combined with deep breathing. As well as reducing anxiety and stress, yoga can also improve flexibility, strength, balance, and stamina. Since injuries can happen when yoga is practiced incorrectly, it’s best to learn by attending group classes, hiring a private teacher, or at least following video instructions. Once you’ve learned the basics, you can practice alone or with others, tailoring your practice as you see fit.

If you’re unsure whether a specific yoga class is appropriate for stress relief, call the studio or ask the teacher.
Tai chi
If you’ve seen a group of people in the park slowly moving in synch, you’ve probably witnessed tai chi. Tai chi is a self-paced, non-competitive series of slow, flowing body movements. By focusing your mind on the movements and your breathing, you keep your attention on the present, which clears the mind and leads to a relaxed state.
Tai chi is a safe, low-impact option for people of all ages and fitness levels, including older adults and those recovering from injuries. As with yoga, it's best learned in a class or from a private instructor. Once you’ve learned the basics, you can practice alone or with others.
Self-massage
You’re probably already aware how much a professional massage at a spa or health club can help reduce stress, relieve pain, and ease muscle tension. What you may not be aware of is that you can experience many of the same benefits at home or work by practicing self-massage—or trading massages with a loved one.
Try taking a few minutes to massage yourself at your desk between tasks, on the couch at the end of a hectic day, or in bed to help you unwind before sleep. To enhance relaxation, you can use aromatic oil, scented lotion, or combine self-message with mindfulness or deep breathing techniques.

Starting a regular relaxation practice
Learning the basics of these relaxation techniques isn’t difficult, but it takes regular practice to truly harness their stress-relieving power. Most stress experts recommend setting aside at least 10 to 20 minutes a day for your relaxation practice. If you’d like to maximize the benefits, aim for 30 minutes to an hour.
Tips for making relaxation techniques part of your life
Set aside time in your daily schedule. If possible, schedule a set time once or twice a day for your practice. If your schedule is already packed, remember that many relaxation techniques can be practiced while you’re doing other things. Try meditating while commuting on the bus or train, taking a yoga or tai chi break at lunchtime, or practicing mindful walking while exercising your dog.
Don't practice when you're sleepy. These techniques are so relaxing that they can make you very sleepy. However, you will get the most benefit if you practice when you’re fully alert. Avoid practicing close to bedtime or after a heavy meal or alcohol.
Expect ups and downs. Don’t be discouraged if you skip a few days or even a few weeks. Just get started again and slowly build up to your old momentum.
If you exercise, improve the relaxation benefits by adopting mindfulness. Instead of zoning out or staring at a TV as you exercise, try focusing your attention on your body. If you’re resistance training, for example, focus on coordinating your breathing with your movements and pay attention to how your body feels as you raise and lower weights.

Here is a few links I use to
relax
reduce pain
help me sleep better

These are my favorites and I listen to it daily and a few I listen to now and then

Daily
Mindfulness
https://youtu.be/-2zdUXve6fQ

Stress Relief and Confidence
https://youtu.be/-KMngzCWgTw

Morning Meditation for Healing
https://youtu.be/q9ZR_CJhuLc

Reiki for pain relief
https://youtu.be/3nJtajgAb34

Relax Video Male Voice
https://youtu.be/_jD3VxSGM-k

https://youtu.be/oA_rY4N8XJA

Sounds for Anxiety depression
https://youtu.be/AmqDOA-JALg

Meditation Sounds for pain relief
https://youtu.be/XiNne25uMK8

To help you sleep
https://youtu.be/xQ6xgDI7Whc

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The information provided on this website is for educational purposes only. By using the website you are participating at your own risk.
• Make sure you practise with enough free space around you. Wear comfortable clothing so you can move freely.
• Please take responsibility for your own body and include extra warm up and cool down stretches where appropriate.
• You should avoid alcohol and drugs before yoga and meditation. Also no heavy meals for two hours before practice. Keep yourself hydrated before and after your yoga practice.
• If you feel dizzy, light-headed, faint, or if you experience any other discomfort, stop exercising immediately and consult a medical doctor. You are responsible for your condition during your practice. Exercise within your limits. Never force or strain. Seek attention and advice as appropriate.
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Posted in #Blessed30Challenge, Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Factor V Leiden, Happiness, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Uncategorized, Vision

Body Betrayal: How to Find Gratitude and Happiness While Coping w/ Chronic Pain or Illness

This disease called Avascular Necrosis is a terrible one especially when your dealing with multifocal avn.

I am grateful to only have it in one joint

All chronic conditions that change our life and lifestyle suck and if we're not careful depression could easily take over and we lose sight of the beautiful spiritual being we are on this human journey called life.

I understand it can be depressing, being on a fixed income blows, I understand you may not be able to do the same things as before but your still the kind loving person you always were.

Don't let the pain consume your every thought.

Don't ever doubt that you have a purpose we all have a purpose in life and sometimes it will change somehow we are going through this for a reason. I'm not sure what that reason is but we were all put on this path for something.

Maybe we are going through this instead of dealing with something worse.

Do you like to write? draw? paint? poetry? craft?

I personally love photography

Are you able to still drive?

What is the one thing that could help make your life easier?

I always think of this quote when I am sad in pain and missing my old "normal " life.
Now I have a new normal

As long as you make an identity for yourself out of pain, you cannot be free of it.”
Eckhart Tolle

Up until the past year , I also often felt betrayed by my body. It was always breaking down, leaving me frustrated and pissed off.

No one else around me seemed to have as many problems.

Each moment we are in chronic pain or dealing with illness, we can choose our attitude toward it. I know pain is a bitch and it sucks and we can't do the things we used to. But maybe we have to focus on the things we can do and celebrate small victories vs beating ourselves up for things we are unable to do.

So I wanted to share a few small tips I’ve learned along the way

1. Do what you can.
Focusing on all the ways you are limited brings on a case of the “poor me’s” lickety split. “Poor-me-land” is the most unfun place ever so get outta there as quick as you can and hop on the gratitude train.
Seriously. Focusing on what you can do gives you more inner peace, keeps you grounded, and inspires you to take action.

2. Don’t do what you can’t.
Being a martyr and pushing yourself to try to appear less weak to yourself or others is a recipe for disaster. So don’t try to be a hero. If it hurts or it will hurt, and you hear yourself saying, “I should” or “Screw it, I’m doing it anyway” that means your inner critic has barged in and is running the show.
The best way I’ve learned to deal with mine is to banish to a sofa.
As weird as this may sound, it’s my way of calming down.
Then I have the grace to give myself a break.

3. Stop trying to heal.
I know it sounds weird, but hear me out. The idea of “healing” brings to my mind someone who is sick, broken, less than good enough.

What if instead of trying to heal yourself, ask yourself if you treat your body with absolute kindness?
What would that look like?
Of course you may still need to see health practitioners, but your intention shifts from getting someone to fix what is broken, to the ultimate in self-nurturing.

4. Meditate.
I don’t think there is a person alive who couldn’t benefit from meditation.This is really true for anyone experiencing chronic pain.
If you are unsure how message me.

5. Invest as much as you can in your health.
Eat as well as you can afford.
Get enough sleep
Rest when your body needs rest. You must laugh at least once a day. See your doctor and take your meds as directed.

6. Nourish yourself.
When I feel like crap or am in pain it’s so easy to eat sugary foods or chips to comfort myself and it's quick. Who wants to cook when your in pain

But it always backfires because I end up feeling empty and drained after the rushing sugar or carb high. When I choose food that I know my body will love me for, it helps me by putting more energy into healing itself. I feel more alive when I eat healthy.

7. Find pleasure.
Illness is a drag, no doubt about it. But humor and pleasure are incredibly healing. Surround yourself with as much pleasure as you can. It doesn’t have to be grandiose or expensive.
Simple pleasures every day can help alleviate suffering, whether it’s watching a comedy, crocheting, painting,using your favorite tea cup, being in nature, reading a good novel or listening to your favorite cd.

Whatever works for you.
Write a list of your favorite things, because sometimes we forget in the moment, and reminding ourselves of the fun stuff helps us do a 180 toward joy.

We have to every single day get up tell ourself how wonderful we are compliment your kids.
Celebrating the small things we can do will help us take our mind of what we can't do.

Your life style may have changed but your still a beautiful spiritual being on a human journey.
We cannot lose sight of how great we are pain or no pain.

Good Comedians to laugh at
Ralph May.
Katt Williams
Jay Larson
Ali Wong
Ellen De generous
Janeane Garofalo

Relaxation and meditation sounds
You
https://youtu.be/luRkeDCoxZ4

I may have days may pain takes over and my plans have to change.
But I am grateful for I was allowed another day to start again and appreciate my family and friends

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Mindfulness, OA, Osteonecrosis, Uncategorized

Atomic Blonde

Diary of The Atomic Blonde

Osteoarthritis and Osteonecrosis Flare

I’ve been managing my osteoarthritis symptoms well and managing the osteonecrosis pain and try doing all the right things to stay healthy, but one day I wake up and feel like it was all for nothing. My joints ache bad , the worst I  can remember in a long time. It could be an osteoarthritis  flare.
Is my osteoarthritis and osteonecrosis getting worse despite all  my efforts? Im I going to feel like this from now on?
Probably not. Although arthritis is a chronic disease, we can have acute episodes of pain and inflammation, known as flares. While painful and a big pain in the rear and very unpredictable, flares are temporary thank God. 
 They do not signal a failure in our efforts to control arthritis symptoms.

Flares may be seen after infections or after highly stressful situations. 
Often, however, it isn’t clear what triggers a flare. 
You may have long periods of time when your arthritis is quiet, or in a remission. Then, suddenly, the inflammation becomes more active and you have an arthritis flare.
Flares can be alarming, not only because of the pain, but because of their unpredictability. 
When this happens I feel discouraged & afraid of further damage to my joints. I sometimes wonder whether something I did may have caused the flare.

I gave to remember that flares do calm down.  I have to think about how to handle the  “bad days” and flares before i have them. 
The following is a list of some steps you might want to incorporate in your plan of action. Remember, some techniques work better for some people than for others. Try a few of these, and if they don’t work for you, discard them and try others.

Balance periods of activity with periods of rest. Although more rest can help during a flare, you probably don’t need to abandon your regular activities, work or exercise program. 
Spending long periods of time in bed is counterproductive; it usually will prolong your pain. Instead, try to intersperse periods of rest with some light activity.
Have a plan to deal with your obligations. Plan ahead so that you can still get things done. 
If your at work, try to arrange for coverage, work fewer hours per week, or bring work home. Discuss your plan with your supervisors and co-workers ahead of time and assure them of your commitment. At home plan to apportion a few extra jobs among family members, and make sure everyone knows what they are expected to do to keep things running smoothly.

Communicate with your family and friends. The time to let your family and friends know that you may need more help is when things are going well, not when the flare hits. They will understand better what is needed and how they can help when you call to say that you’re having a particularly bad day. If someone volunteers to help you through a flare, give them a specific job to do or else their assistance may go unused.

Apply a hot or cold pack to inflamed joints. I prefer hot Thermacare Heat wraps over cold. 

Different people prefer one or the other. Some people even prefer warm packs for certain joints and cold packs for other joints. You will learn your own preferences through trial and error.

Practice relaxation or mind-diversion techniques. These techniques work best when you practice them on a regular basis. 

Even though relaxation may not directly reduce your pain, it can minimize stress, which is a factor shown to amplify pain.
At the end of the day still take time to be grateful 

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, DNA, Eat Healthy, Factor V Leiden, Happiness, Homemade Syrups,Tinctures,Rubs, Inflammation, Mindfulness, OA, Osteonecrosis, Positivity, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, WegoHealth

~Health  Awards ~ Advocate Nominee 

I was notified about a month ago I was nominated for a few awards in a few categories for awareness I vowed when diagnosed with avn /on I would never want anyone to feel as alone and scared as I did in 2014. 

https://awards.wegohealth.com/nominees/12801

My Ortho who diagnosed me really never took the time to even explain to me what I had, or come up with any positive plan of action. He did say when I asked when the plan was …..we will wait until your knee collapses and the replace it !!

Are you frickin kidding me!! That was his plan of action.

Well thank god my knee still is hanging in there and no sign of collapse and when it does happen if that happens he won't be doing surgery.

After the initial shock and grief I went through for what my life was and what may now be I vowed to be a world changer The Ortho also failed to tell me how rare this is and when I did my own research and found out how rare it was rare, it  left me feeling even more alone.

Sure my husband was and family were supportive but they had no clue what I had 

I also have a few other medical issues 

Osteoarthritis Spondylolisthesis Hypothyroidism , Factor V, Rbbb.

And I advocate for all and then some. 
I don't want anyone who was diagnosed with anything to ever feel alone. 

But when you have an orphan disease it just makes it harder some days to deal with. 

It's not like heart disease or cancer where there is constant education, awareness and research being done. 

I hope to change that. Osteonecrosis aka Avascular Necrosis had no cause ribbon so I made them, designed them. Now we have one

There was little information I changed that, I wrote a booklet for patients who have or are just diagnosed with Avascular Necrosis/Osteonecrosis 

I stay up to date on new treatments, trials

I also compiled an ongoing list of doctors not just locally but world wide who are knowledgeable in Avascular Necrosis/Osteonecrosis.

I am so honored to have been nominated 

I was nominated for 8 or 9 different categories and I am asking for your support(vote).

I would greatly appreciate it. 

Also there are so many other wonderful nominees maybe you could also give them a vote as well
Here is how it works 

Click below link

You will come to my wegohealth leader profile 

When you click endorse you will have the option to share it you don't have to but thanks if you do. 

It will then take you back to endorse screen so you can vote for the next award I am nominated for. 
As an advocate for Osteonecrosis and a few others things, like Osteoarthritis,Spondylolisthesis,Hypothyroidism, Heart Disease I take pride in all the research I do to raise awareness. 


I am a voice and resource in a rare community for those of us who are suffering with Avascular Necrosis/Osteonecrosis the orphan disease most people have never heard of unless your diagnosed.
I have the honor this year again of being nominated for many of the categories 16 health awards this year as a member of wegohealth.

Thank You In Advance. 

https://awards.wegohealth.com/nominees/12801

Posted in Avascular Necrosis, Awareness, Chronic Pain, Inflammation, Life, Osteonecrosis, Support Group, Hope, Uncategorized

The Importance Of A Support Group


Living with chronic illness is incredibly challenging at times (understatement of the year!) You wake up with no pain then sudden pain,or you wake up in pain deal with all day pain. You can’t do this , you can’t do that. Because your body just won’t allow it. You have to be strong even when you don’t want to be. 
Then there are days you just want to say “I give up” and lay in bed because it’s the only place your bones and joints don’t hurt as much. That’s a slippery slope, that’s when depression wants to creep in and destroy you even further instead of physically now it’s effecting you mentally.

The answer is Support! You need to get in a good support group.

 Even if your immobile there are many groups on Facebook all you have to do search it. 


If you have Avascular Necrosis/Osteonecrosis your welcome to join us. 

https://m.facebook.com/groups/DeadBoneDiseaseAVN/

But having a good group of people in our lives on whom we can lean on, share with, commiserate with,can greatly decrease that challenge of depression setting in. 

So that’s why today over on my blog

http://www.ChronicallyGratefulDebla.com&nbsp;

 I’m writing about the importance of a good support system.

We really need them when it seems like the world is crashing down. But we also need them in the days we’re doing ok. 
Have you ever experienced the pain of rejection or just felt less of a person from the people you thought were there for you? 

Friends & Family either refuse to understand or just don’t want to be bothered by learning about the disease \ disorder.

Or your own brain starts thinking I’m useless, I can’t do anything like I used to. You need a support system! 

Many people who don’t have a chronic life, struggle to understand life with a chronic condition. I wish they did but honestly the only people that understand are those that also have chronic condition.

Some people including people you know, at some point may say really hurtful things out of pure ignorance like gee you don’t look sick, or wow your house is a bit messy today ,or what did you do today , or geez I wish I didn’t have to go to work anymore.
Or they blame you for your illness/ condition.
Well if ate better,exercised more maybe you wouldn’t be in this spot , or smoked less etc….

Just ignore them. Badgering you isn’t going to change your illness. You even wonder why did I tell them about your illness.
Yes, unfortunately some people should not be trusted with your feelings or the the truth about your pain.

 They just won’t understand. And it’s not up to you to keep explaining yourself.

But there are good listeners that offer you a good and safe support system,you just need to know how to identify them!

I really want you to get in a good support system , make it a priority, even if things aren’t too bad right now or you just been diagnosed and have no one to ask questions to. 
Get in a support group. 

You will be so glad you did. We can help you with any questions you may have , we’re here to listen, offer life experience, suggestions. We don’t offer medical advice as that’s between you and your doctor.

You can’t just expect everyone to be there for you in your struggle with illness. Let’s face it not everyone can handle it, and quite frankly not everyone will want to . And not everyone is worthy. 

How Will A Safe Person Make You Feel?

Do they make you feel comfortable being yourself? 
You should feel comfortable with who you are, flaws and all. No one should make you feel judged or less of the amazing person you are. If they do move on….

Do they make you feel energized? Ready to fight a good fight? Supportive people should nit suck the life out of you, leaving you feeling worn out.

They should make you feel more energized by the time they leave or hang up the phone. If you find a person exhausting, they should not be in your support system. 

You should find support from a variety of relationships. No one person can give us everything we need not even your spouse!.

Your Spouse

If you aren’t married or in a serious relationship, this obviously doesn’t apply. But if you are, your spouse can be the most immediate source of support in your life. 

Most of us live with spouses that don’t have an illnesses themselves, so they have a lot of learning to do in order to understand us. 

Your responsibility is to explain your condition and your struggles and what you would like from your spouse. Spell it out! 

They are not mind readers so don’t expect them to simply know or understand.However, don’t assume your spouse is able or willing to support you in this way. Unfortunately, some are not, but luckily there are other relationships that can be supportive.

Your Family

If you have people in your family, whether it’s a spouse, parents or cousins, they should be a part of your support system. Just be sure your relationships are healthy and helpful. 

Again, communication is key when it comes to family because they’ve known you so long. They may be relating to you based on assumptions, so be clear about your needs.

Your Friends

Ahh yes friends can be some of the best relationships to be part of your support system. You get to choose these people, and choose when to see them, when to talk to them. 
Just realize not all your friends will be a support for you, but one or two that will is great. 

Friends should be encouraging and understanding, and this should be mutual. 

Your Support Groups

The best people to understand what you’re going through are those who have experienced it themselves. 
That’s why support groups can be so helpful. Whether it’s through Facebook or a community center, others who are struggling as you do can help you through what they have already experienced 
They listen well, empathise, and offer advice when you want it. 

Chronic illness can often be very isolating, but support groups provide a like minded community. One word of caution for any online groups: when people aren’t interacting face-to-face they feel more comfortable saying whatever they want.

Just because people are in the group because of their experience with illness doesn’t mean they will be safe people. 
Always exercise caution when sharing in online forums. Make sure you’re aware of the risk of receiving unkind words and unwarranted advice.Some individuals can be just rude. 
I don’t tolerate mean people and people who bully others are just inconsiderate these people will be removed. 
I also have seen other groups where the leaders were the bullies. Get out if you join a group where the leaders are bossy,mean and or downgrading. No one needs that. We have enough to deal with. 

Your Pets

Who doesn’t love a dog or cat, bird, lizard whatever …that snuggles, they can be life savers dogs they get you out of the house for walks, and even help you meet people in your neighborhood. Time at home is much less lonely than it would have been before a pet enter your life. 
Pets can be the best part of a support system. For some therapy pets can be a crucial part of the ability to function. For others it can be therapeutic to have something to nurture. And they love us no matter how we look or feel. 
I personally don’t have a pet as they are not allowed in my building, but when I visit my family their 2 dogs are so lovable you can’t get bored when they are around. 
If you don’t have a pet and are considering one make sure you are prepared in how to care for it. Be sure you are physically able to do so. Also, I hope you consider rescuing one. 
I hope you find a good support system. If you have Avascular Necrosis/Osteonecrosis your welcome to join my fb group. 
https://m.facebook.com/groups/DeadBoneDiseaseAVN/

Have a great day. 

Posted in Arthritis, Avascular Necrosis, Blessed, Bone Health, Cardiovascular, family, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Osteoporosis, Rare Disease Day, Rheumatoid Arthritis, StopTheClot, Uncategorized

Nothing Is Useless

When the body is falling apart. And you feel like you have nothing of value to offer God or anyone else. 

Think again. 
Below is a post from Our Daily Bread
Nothing Is Useless June 12, 2017  

from Our Daily Bread
Read: 1 Corinthians 15:42–58 

“Nothing you do for the Lord is ever useless.” 

1 Corinthians 15:58 
‘Nothing Is Useless’

A Story of Hope and Encouragement 

In my third year battling discouragement and depression caused by limited mobility and chronic pain, I confided to a friend, “My body’s falling apart. I feel like I have nothing of value to offer God or anyone else.”
Her hand rested on mine. “Would you say it doesn’t make a difference when I greet you with a smile or listen to you? Would you tell me it’s worthless when I pray for you or offer a kind word?”
Do what you can with what you have and leave the results to God. I settled into my recliner. “Of course not.”
She frowned. “Then why are you telling yourself those lies? You do all those things for me and for others.”
I thanked God for reminding me that nothing we do for Him is useless.
In 1 Corinthians 15, Paul assures us that our bodies may be weak now but they will be “raised in power” (v. 43). Because God promises we’ll be resurrected through Christ, we can trust Him to use every offering, every small effort done for Him, to make a difference in His kingdom (v. 58).
Even when we’re physically limited, a smile, a word of encouragement, a prayer, or a display of faith during our trial can be used to minister to the diverse and interdependent body of Christ. When we serve the Lord, no job or act of love is too menial to matter.
Jesus, thank You for valuing us and using us to build up others.
Do what you can with what you have and leave the results to God.

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Bone Health, Chronic Pain, Diagnosed, Faith, Herbal, Inflammation, Uncategorized

My New Homemade Pain Rub. 

Real pure essential oils are not cheap. So don’t be fooled by cheap oils. You want them pure.
Essential oils have so many uses, including for serious health problems. This ointment uses the three powerful essentials oils, frankincense, ginger and myrrh, alongside the solid carrier oil, coconut oil.

It’s believed that frankincense oil transmits messages to the limbic system of the brain, which is known to influence the nervous system. It can help improve circulation and lower symptoms of joint pain or muscle pain related to conditions like arthritis, digestive disorders and even asthma.

Ginger essential oil is also made up of about 90 percent sesquiterpenes, which are defensive agents that have antibacterial and anti-inflammatory properties.

The bioactive ingredients in ginger essential oil, especially gingerol, have been thoroughly evaluated clinically, and the research suggests that ginger should be used on a regular basis.

A component of ginger essential oil, called Zingibain, is responsible for the oil’s anti-inflammatory properties. This important component provides pain relief and helps ease muscle aches, arthritis discomfort, migraines and also works as a headache remedy.

Lastly, myrrh essential oil also contains sesquiterpenes as well as another primary active compounds called terpenoids, both of which have anti-inflammatory and antioxidant effects.

Mix all four ingredients into a bowl until well blended. Place this DIY arthritis ointment into a glass jar with a lid for continued use.

Simply massage the ointment in the areas where you feel pain. I use twice daily.

You can also take it to your masseuse and ask him or her to use it while performing a mild massage.

Do not use on open cuts ,sores or stitches
These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease.

Pain Ointment with Frankincense, Ginger and Myrrh

Total Time: 5 minutes

20-25 uses from one recipe

INGREDIENTS:

* 30 drops pure frankincense essential oil

* 15 drops pure ginger essential oil

* 30 drops myrrh essential oil

* 5-6 ounces unrefined coconut oil.                  ( I use 6oz)

DIRECTIONS:

1. Mix all ingredients into a bowl until well blended.

2. Place into a small glass Mason jar with a lid for continued use.

3. Label what it is

4. List all ingredients and how many of each.

5. Store in a cool dark place.

6. Massage the ointment in the areas where you feel pain. I Use once twice daily.

7. Keep away from children and animals

8. Wash hands after use.

**I store mine in the refrigerator but I don’t have any small children in my home **
I also am an adult and have not ever used on a child for pain.

Thus is not medical advice just information on what has helped me.

Never use without your doctors consent

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Faith, Inflammation, Osteonecrosis, Pain, Uncategorized

I Am Your Voice ~ AVN-ON-OA

I am the voice of the newly diagnosed and all Avascular Necrosis/Osteonecrosis and Osteoarthritis patients.

There is a struggle that newly diagnosed patients know all too well.

The anger, the pain and the fear of the unknown can have our heads spinning in all different directions day in and day out as the body deteriorates while the brain wanders through all of the possibilities.

Maybe they are wrong , maybe I was misdiagnosed.

I cant possibly have a rare disease/condition. And osteoarthritis both! I already gave spondylolisthesis how much pain can a body endure.

What will I do ?

I have no information

And no place to find support.

Look no further

I’m just like you
I have Osteonecrosis and Osteoarthritis Spondylolisthesis,Factor V, Hypothyroidism and I’m sick of these diagnoses every year it’s something new.

I am a voice in the community of those of us who are suffering with Avascular Necrosis/Osteonecrosis , and many other conditions.

We are the enduring, we are strong, we are afraid, we will make it.

#Osteonecrosis

#Osteoarthritis

#AvascularNecrosis

How you can become an advocate.

First- Advocate for yourself and be an example. Try to take good care of yourself.

You won’t be able to advocate and educate others until you know how to advocate and take care of yourself. Don’t spread yourself to thin. Learn to say no and please learn to listen to your body and rest when it needs rest.

Try to work with your doctors to build a relationship with them and all your health care providers

Understand your rights as a patient. 

See Link: https://www.hhs.gov/answers/health-care/what-are-my-health-care-rights/index.html

Patient Rights

Don’t be afraid to fire your doctor if needed be.

Research Research and Research….

Learn all you can about your disease, including who can get it, how and why many people seem to have it, stages of the disease if any,how it is diagnosed, what treatments are offered or suggested, and if they don’t offer or suggest anything new or cutting edge ask…..what current research and or studies say.

You need to become the expert and stay up to date, because new data is always being published.

Education

Commit to making sure you are a credible source of information by fact-checking multiple sources before you share news or articles.

Be an educator not a divider.

Turn your interests into ways that you can link to educate on your disease or disorder.

Example: I love cooking ,herbology , photography and writing soooo I have a blog that educates and also discusses the importance of good clean food ,giving your body the best nutrition possible to help combat inflammation,pain etc

Posted in Avascular Necrosis, Eat Healthy, Factor V Leiden, Inflammation, Life, OA, Osteonecrosis, Uncategorized

#RareDiseaseAwareness

Avascular Necrosis/Osteonecrosis falls under rare disease

Ohio is having Rare Disease Awareness Week
Here is Information

Four Ways to Participate Remotely in Rare Disease Week on Capitol Hill

#AvascularNecrosis

#Osteonecrosis

#WegoHealth

#RareDiseaseAwareness
My Links

Debbie’s Links
https://www.facebook.com/debbie.briglovichandio

https://www.facebook.com/groups/DeadBoneDiseaseAVN/

https://m.facebook.com/ChronicallyGrateful.Me/

https://m.facebook.com/AvascularNecrosisRareDiseaseDayFeb29/

https://m.facebook.com/YummyGoodness/

https://m.facebook.com/ONAvascular-Necrosis-Knowledge-752404224891578/

https://m.facebook.com/Osteonecrosis-Avascular-Necrosis-Support-913679995417381/

Support Group For Avascular Necrosis/Osteonecrosis

https://www.facebook.com/groups/DeadBoneDiseaseAVN/

Twitter. debbiea001@twitter.com

Instagram. debbiea_1962@instamgram.com

YouTube. https://m.youtube.com/user/debbieandio