Posted in Bone Health, Government, Immigrants

Separation At The Boarder

I understand we need border protection and laws need to be enforced,but have we lost our sense of  decency , humanity and love and compassion for human beings in general?

The traumatic effects of this separation on these young children, which could be devastating and long-lasting.

Our government has the discretion in our laws to ensure that young children are not separated from their parents and exposed to irreparable harm and trauma.

Family is the foundational element of our society and they must be able to stay together. While protecting our borders is important, we can and must do better as a government,  a society, we need to find other ways to ensure they are safe  Separating babies , toddlers and or children from their mothers and fathers is not the answer and is immoral.Its also very cruel as you have many that may not even understand what your saying they are coming here for a better life, or escaping cruelty in their own home land ,they come here for many reasons yes illegally but instead of detaining them , separating them, lets  feed them and send them home. They don’t need prosecuted unless the are true criminals.

Teach them how to come here the correct way.

I also wish parents would also understand that attempting to gain access to the USA illegally raises the risk that you will lose your children , and that they will also put their kids first and either leave them behind with other family or don’t attempt to come here illegally.

I also feel that if the children are separated from their parents they should be able to know the child’s whereabouts at all times and the same goes for the parents.And the government knows at all times where both are.

It’s a form of emotional abuse of children , and can result in serious emotional and behavioral problems, including depression, lack of attachment or emotional bond to a parent or guardian, low cognitive ability, and educational achievement, and poor social skills.

 

There are ways to come to this country legally

 

For starters, you must meet certain qualifying requirements in order to apply for legal residency. You can’t just “want” to and follow through. USCIS provides a variety of categories that qualify people. The categories are VERY narrowly defined and exclude MOST people.

1.) If you qualify for an IMMEDIATE immigrant visa number.

2.) If your spouse or child is in the US.

3.) You are the fiancee of a US citizen.

4.) You have asylum in the US.

5.) You are a refugee.

You can also be sponsored by an employer if he/she can prove that your job can not be done by an American.

Please note that these categories have MANY exceptions. Thus, simply having a child in the US generally has a LOT of restrictions – which is often overlooked when arguing about anchor children. You can’t just have a kid here and become an immigrant. Instead, you’ll have to wait about 18 years before you can apply (or, more precisely, before your child can file a petition on your behalf).

You can’t also just come here and apply once you are in the country (there are some exceptions to this) because doing so is generally seen as immigration fraud because you entered as a tourist but had the intent to immigrate.

 

https://www.usa.gov/enter-us

 

Far too often the trend in our society is for people to be separated from each other, to be cut off from the great mass of humanity, and in doing so to be dehumanized a little bit more with each step.

Glued to our cell phones when in a room full of people , and not “people ” I’m talking family, friends etc…Cars have taken us off the streets, where we used to greet each other and stop to chat.  We are becoming so detached that we are losing our sense of common decency for all people.

 

“If you want others to be happy, practice compassion. If you want to be happy, practice compassion.” – Dalai Lama

 

human

 

 

 

 

Posted in Bone Health, Dad, family, Fathers Day

Father’s Day With Out My Father

This Sunday will be the 29th Father’s Day without my dad. He passed away in August 1988.

It seems like yesterday he was here , yet it also seems like an eternity.

Thus begging the tricky question of what to do on Father’s Day when you no longer have a father.

For some, I imagine that Father’s Day without a father is a reminder of the giant gaping hole in your life.

The display of Hallmark cards, the loads of emails of spam sales ads “Give Dad What He Really Wants!” and the heartrending TV ads of dads as our first loves and our heroes all feel like salt on wounds that have not healed, but have just been bandaged over.

My father might not be here physically, but that doesn’t mean I can’t celebrate the things that made him an amazing father; an amazing man. A great man.

When I was little, he told me I could be anything I wanted to be. And he meant it. When I was a teenager, he said you can be mouthy but I trust you Deb , you have a good head in your shoulders.

And he really meant it.

When I was struggling or lost, going through hell in my first marriage,he told me I already had all the answers, and to always pray about any major decisions . And he meant it.

I WILL CELEBRATE THE FATHER HE WAS, TO ME AND TO THE COUNTLESS OTHERS HE MENTORED AND GUIDED, BY LISTENING, BY LAUGHING, BY HUGGING, BY SAYING I LOVE YOU A HUNDRED TIMES A DAY. BY BEING PRESENT IN OUR LIFE.

He worked a ton of hours and wasn’t always there  because he worked 2 jobs.  But he was always present when I had a play, dinner, and us time, or he took me and my friends all over town skating, football games, baseball ,basketball no matter how tired he was. My mom didn’t drive.

We’d have father daughter day or night. We’d go to a YSU basketball game and he was happy spending time with his family.

Even after one of many open heart surgeries he still was a good , kind happy man.

He was a dad you could count on. My friends counted on him as well. Because some had drunken fathers, fathers to busy to be dad, or no father at all..

He was a giving man, he would help the poor, the sick, help anyone in family or a total stranger and I am proud I am like him in many ways.

He was a great grandfather to my daughter as well.  I mean Words just cant say how wonderful he was. She was the apple of his eye. His only grandchild.

He wasn’t rich , but I never wanted for anything. He made sure I had material things and most of all ,his love.

When he was going for cancer surgery on August 4 1988 the night before he wrote my mother a letter , and me a letter and my daughter a letter.  He always wanted us to know how much he loved us and how proud he was of us.

I was truly blessed to have such a great father.

I love him and I miss him everyday.

Happy Fathers Day in Heaven DAD

Give Mom A Kiss For Me

I Love You

Your picture’s are fading but I see you in my mind every day as clear as if you were were right here beside me.

I know your always with me.

And tomorrow I will visit your grave and give thanks that I was blessed with you as my father.

I wish everyone had a father as good as you were. The world would be a better place.

mydad

Daddy

Posted in Bone Health, Mother's Day

Mothers Day Without My Mom

Mothers Day…

That great happy amazing day to get to celebrate the life and love between you and the greatest person in your life you’re mom.

Your mom if she was anything like mine was  given up everything for you. She’s made countless sacrifices and loved you unconditionally no matter what. Of course there should be a day to celebrate her.

Well unfortunately for those of us who have lost a mother, this day still exists, and is no longer a day to be happy, excited and celebrate. This is actually one of the most dreaded days of the year for us. I know for me it is.

(con’t)

HMD

Mother’s Day comes around and it’s just so awkward figuring out how to spend the day. Just because my mom isn’t here .

My daughter and granddaughter live states away.

So I now just spend it reading. Maybe a walk in the park.  I’ll have lunch at the cemetery.  Just another day.

It’s okay to need to be alone

This day never seems to get easier

I am going on my 18th Mother’s Day without my mom and it is still the most dreaded day of the year for me.

When my mom died, so many people told me that ‘the holidays are the hardest,’ but because I interacted with my mom on a daily basis, multiple phone calls a day she lived close to me and  I saw her daily , it was the every days that were the hardest for me !

I try to find little ways to honor her every day but for Mother’s Day, I will take a flower to her grave or just go and sit and have lunch near her. I may buy someone behind me a coffee etc…

Its still to cold to plant flowers at the cemetery and the cemetery frowns on artificial this time of year.

Not having my own mother on Mother’s Day  is painful the same with father’s day because my father has been gone almost 30 years  just makes me aware of how short and precious time is.

I hope everyone that has a mom living has a great day tomorrow and if you’re dealing with mother’s day without your mom I understand.

If you do have a mom that’s living I hope you enjoy her because there will be that day when you would give anything to talk to her one more time

Posted in Ancestry, family, Family Tree, Geneology

Wheel of Fortune Puzzle was my home town

My ancestors founded Youngstown Ohio and it was cool to learn that it was last nights final puzzle.

What Happened to Youngstown Township?

The Mahoning Valley is part of a tract of land that once belonged to the state of Connecticut. Connecticut’s Western Reserve was bordered north and south by Lake Erie and the forty-first parallel, and extended 120 miles westward from Pennsylvania. In 1795, Connecticut sold a portion of the Reserve to a group of speculators known as the Connecticut Land Company.

The company surveyed the land, marking several townships of twenty-five square miles to sell to individuals who would in turn subdivide the townships into smaller parcels for sale.

In 1796, John Young of Whitestown, New York, set out to view the land for himself before making a purchase. In February of 1797, Young visited Connecticut and purchased from the Connecticut Land Company Township Two in the Second Range of the Western Reserve. The sale was finalized on April 9, 1800.The first Court of Common Pleas and General Quarter Sessions was held at Warren on August 25, 1800. During that session, the Court divided Trumbull County into civil townships. The governmental township of Youngstown (not the same as the 5 miles squared township) comprised most of what is now Mahoning County and included the townships of Poland, Coitsville, Hubbard, Liberty, Youngstown, Boardman, Canfield, Austintown, Jackson and Ellsworth.

Youngstown Township ceased to exist on November 17, 1913 when its remaining area was annexed by the City of Youngstown. Parts of Boardman, Liberty and Coitsville Townships were also affected in 1929-1930 when the City of Youngstown added to its incorporated area through additional annexations.

John Young Memorial, Mahoning Commons, Youngstown, Ohio — “Dedicated to the Memory of John Young”

John Young Bicentennial Memorial

 

Dedicated: June 23, 1999

Artist: Csaba A. Kur

Medium: Bronze

Cast: 1996

 

John Young (March 8, 1764 – 1825) was an American surveyor and pioneer. He is best known as the founder of Youngstown, Ohio, a village that eventually became one of the nation’s largest steel producers

 

Starting near the west end of the Spring Common (Peanut) Bridge near the B&O Railroad Station just west of downtown Youngstown and extending all the way to Fellows Riverside Gardens is the small, artsy, Youngstown neighborhood known as the Mahoning Commons.

 

Youngstown, not surprisingly, was named for New York native John Young, who surveyed the area in 1796. On February 9, 1797. Young purchased the township of 15,560 acres (6,300 ha) from the Western Reserve Land Company for $16,085. It was near this spot that in 1796, John Young founded Young’s Town.

 

By 1798, Youngstown was the home of several families who were concentrated near the point where Mill Creek meets the Mahoning River now known as the Mahoning Commons. The 1797 establishment of Youngstown was officially recorded on August 19, 1802. Although he never settled here permanently, two men in his party, James Hillman and Daniel Shehy did and have south side streets named after them.

 

The Mahoning Commons neighborhood grew up on the narrow flood plain on the south side of the Mahoning River. This neighborhood historically was a transportation and small industrial area with residential scattered throughout. It is the home of the City’s original water works, the historic B&O railroad station and the Western Reserve Transit Authority, located on the site of its predecessor, the Youngstown Transit Company.

 

Mahoning Commons was the site of Youngstown’s major flour processing entity, Baldwin’s Mill. Some of the mills foundation works and the waterfall that provided power to the mill still exist. There are several small industries and supply companies in the Commons as well as the old Isaly’s Dairy Company processing plant, now a U-Haul rental and storage facility,and the Ward Baking Company building, now home to small businesses and artist lofts.

 

Map: bit.ly/1bgsGd6

Reference ‘Youngstown’: bit.ly/1639xKY

Reference ‘John Young’: bit.ly/18zbugs

Posted in Ahlbacks Disease, Arthritis, Blessed, Bone Health, Cardiovascular, Delicious, Eat Healthy, Family Tradition, Food, Food Is Thy Medicine, Foodie, Inflammation, Lemon, Life, Parsley, Pasta, Recipes, Uncategorized, Vegetables

Pasta and Chimichurri Sauce

I love to cook. But sometimes when your not feeling up to par I like something healthy and fast without ordering take out.

This dish is on the table in no time.

Enjoy

Pasta and Chimichurri

16oz angel hair pasta

Sauce

1 1/2 cup parsley

2 fresh basil leaves

4 cloves garlic

Juice of half a lemon (1-2 tbsp)

1 cup olive oil

2 tsp crushed red pepper flakes

½ tsp ground black pepper

Salt to taste

Parmesan for topping (optional)

INSTRUCTIONS

1. In a large pot of salted water, cook pasta 1 minute less than package instructions

2. Drain pasta

3. In a food processor, combine parsley, basil,, garlic, lemon juice, red pepper flakes and olive oil until a pesto-like sauce forms.

4. Put pasta back in (slightly cooled) pot and pour 1/4 cup sauce over the pasta. Toss with tongs until evenly coated.Add more if required.

5. Add salt and pepper to taste and toss.

6. Top with parmesan, if desired.

Store any unused sauce in frig in airtight mason jar. Store up to 2 weeks

Sauce can also be used on chicken, turkey ,beef,fish or shrimp as a marinade.

I also make my sauce the day before so flavors get in the oil.

Tip when I would use on steak or chicken with a twist I also would add 1 roasted jalapeño and also add 1 handful of cilantro to above mixture.

Posted in Blessed, Delicious, Eat Healthy, Food, Foodie, Recipes, Uncategorized, Vegetables

Vegetable Lasagna

I love cooking. The house smells amazing.

Reminds me when I was a kid and your mom and grandmother cooked sauce all day.

This doesn’t take all day but looks and smells the entire house like it did.

Ingredients

20 lasagna noodles

3 tablespoons olive oil 

2 shallots, roughly chopped 

3 cloves garlic, roughly chopped 

2 medium zucchini, halved lengthwise and chopped 

8 cups packed fresh spinach

3 cups fresh ricotta cheese 

2 cups finely grated Parmesan

1 1/2 teaspoons kosher salt

1/4 teaspoon ground black pepper 

1 egg 

6 cups shredded mozzarella

3 1/2 cups Chunky Marinara Sauce, recipe follows

Chunky Marinara Sauce:

1/4 cup olive oil

2 medium carrots, cut to 1/2-inch dice

1 stalk celery, cut to 1/2-inch dice

1 large yellow onion, cut to 1/2-inch dice

3 cloves garlic, smashed and chopped 

1 tablespoon chopped fresh oregano 

Pinch chile flakes, optional

One 28-ounce can tomato sauce puree 

One 28-ounce can whole peeled tomatoes, hand crushed or coarsely chopped, juice reserved 

8 to 10 fresh basil leaves 

Kosher salt and freshly ground black pepper

Directions

Preheat the oven to 375 degrees F.

Bring a large pot of lightly salted water to a boil and cook the lasagna noodles for 10 to 12 minutes. Drain the noodles and drizzle them with 1 tablespoon of the olive oil, and then set the noodles aside for later use. (If you are using no-boil noodles, skip this step.)

Heat the remaining 2 tablespoons olive oil in a large skillet set over medium heat and cook the shallots until softened and translucent, 4 to 5 minutes. Add in the garlic and zucchini, and cook for 1 minute. Stir in the spinach and cook until wilted, 2 to 4 minutes.

In a large bowl, stir to combine the ricotta, Parmesan, salt, pepper and egg, and set aside for a later use.

To assemble the lasagna, spoon 1/2 cup of the Chunky Marinara Sauce into the bottom of a 9-by-13-inch baking dish. Top with 3 noodles, slightly overlapping. Spread one-third of the ricotta mixture over the noodles, then add one-third of the cooked zucchini and spinach, evenly distributing over the ricotta. Top with 2 cups of the mozzarella, then top with 1 cup of the sauce. Repeat the layering two more times, ending with a layer of noodles and a sprinkle of mozzarella.

Cover with foil and bake for 40 minutes.

Remove the foil and continue to bake until bubbling and cooked through, 10 to 20 minutes more. Cool for 10 to 15 minutes before serving.

Chunky Marinara Sauce:

Heat the olive oil in a large saucepan set over medium heat and add the carrots, celery and onions, and cook until soft and translucent, stirring occasionally, 8 to 10 minutes.

Stir in the garlic and cook for 1 minute, then stir in the oregano, chile flakes, tomato puree, chopped tomatoes, basil leaves and some salt and pepper. Bring to a simmer and cook for about 30 minutes.

Posted in Bone Health, Delicious, Eat Healthy, Family Tradition, Food, Foodie, Uncategorized, Vegetables

Beans and Greens

White Beans and Escarole with Fresh Herbs and Lemon

Ingredients:

• 1 medium onion, finely diced

• 3 large cloves garlic, minced

• 15-ounce can white beans, rinsed and drained

• 2 cups (or so) of escarole, roughly chopped

• 1 cup chicken broth

• 1/4cup (or so) mixed herbs (I used flat leaf parsley, sage, and rosemary), chopped

• 1/2 tomato, finely diced

• juice of half a lemon

• sea salt and freshly ground pepper to taste

• pecorino romano for sprinkling

Saute onion and garlic in olive oil until tender. Add the escarole and wilt. Add the white beans and white wine and simmer for about five minutes. Remove from heat and stir in the herbs, tomato and lemon juice. Season. Sprinkle with pecorino romano or parmesan cheese just before serving.

Posted in Baking, Bone Health, Delicious, Desserts, Family Tradition, Food, Foodie, Lemon, Life, Recipes, Uncategorized

Lemon Desserts

Lemon-lovers rejoice!

This limoncello cake offers a decadent flavor and texture that’s hard to beat.

Incorporate lemon and limoncello liquor into the cake batter, and then indulge in the mascarpone cheese icing that blends lemon curd and mascarpone cheese with whipped cream.

The lady fingers are soaked in lemon syrup spiked with Limoncello and there’s a layer of strawberries and cream in the middle.

Ingredients

For the Lemon Syrup

1 1/2 cup (120ml) water

1 1/2 cup (300g) sugar

2 large lemons, peeled with a sharp vegetable peeler to avoid the white pith (about 10 strips)

3/4 cup (180ml) fresh lemon juice (juice of 2 large lemons)

2 tablespoons (30ml) Limoncello (optional)

For the Mascarpone Filling:

3 tablespoons (45ml) water

2 tablespoons (25g) sugar

4 large egg yolks

16 ounces (2 cups, 340g) mascarpone cheese, cold

3/4 cup (100g) confectioners’ sugar, sifted if lumpy

1 cup (250ml) heavy cream, cold

1 teaspoon vanilla extract

2 quarts (about 2.5 lbs) fresh strawberries, hulled and sliced (or other berry of your choice)

1 1/2 packages of ladyfingers (about 36 cookies)

Borage flowers or other edible flowers, optional as well.

Method

Make the lemon syrup: Add water, sugar and lemon peel to a medium saucepan and bring to a boil over medium heat. Simmer for 1 minute, or until the sugar dissolves.

Remove from the heat, stir in lemon juice and Limoncello, if using, and set aside. Allow to cool and remove peels.

Make the cream: Combine sugar and water in a small saucepan set over medium heat. Bring to a boil and simmer until sugar dissolves, 1 minute. Place egg yolks in the bowl of a stand mixer fitted with the whisk attachment, and whisk on medium-low.

With the mixer running, slowly and very carefully drizzle in the hot sugar syrup. Increase the mixer’s speed to medium-high and beat until the bowl is no longer hot to the touch and the mixture has tripled in size, about 5 minutes.

Turn mixer to medium speed and add mascarpone in a few large dollops, letting each incorporate before adding the next. Add confectioners sugar and beat until just combined and smooth.

In a separate clean and chilled bowl, beat cream and vanilla to stiff peaks. Using a spatula, gently fold whipped cream into the mascarpone mixture until fully incorporated. Set aside.

Pour lemon syrup into a shallow bowl and dip ladyfingers, turning once to coat for a few seconds, allowing them to absorb some of the syrup. Line the bottom of the 9×13 baking dish with a single layer of the ladyfingers.

If you have a lot more than half the syrup left, drizzle an extra two or three tablespoons syrup over the ladyfingers in the dish.

Top ladyfingers with half of the mascarpone mixture and smooth the surface with an offset spatula or butter knife. Place a layer of sliced strawberries all over the mascarpone mixture, reserving the remaining strawberries for the top.

Repeat with the second layer of dipped ladyfingers, and top with the remaining mascarpone mixture. Smooth the top.

Decorate the top with the remaining strawberries. For a flower pattern, work from the center-out and angle the strawberries slices, continuing around the dish until you have a flower-like pattern.

Refrigerate for 4 to 6 hours and up to 1 day.

Top with a sprinkle of edible flowers, if desired, then slice and serve.

You can also make this without the

The finished product looks like this , but also below it it’s shown without strawberries.

I love it both ways.

Here are 2 different recipes and a recipe for lemon cake.

I make these year round.

Recipe 2

Now a not so fancy or complicated but delicious lemon

Ingredients :

1/2 Cup Limoncello Liqueur

1 Cup Water

1/2 Cup Sugar

3/4 Cup Lemon Juice

40 Savoiardi or Lady Finger Cookies (2 Packages)

FOR THE MASCARPONE CREAM:

1 1/2 Cups Heavy Cream

1/2 Cup Powdered Sugar

16 Ounces Mascarpone Cream, Room Temperature

1 (10 Ounce) Jar Lemon Curd, divided

GARNISH:

Remaining Lemon Curd

Lightly Toasted Sliced Almonds

In a small pan, heat the limoncello, water, sugar and lemon juice to a boil over medium high heat, then reduce the heat to low and cook, stirring often, until the sugar has completely disolved.

Set the syrup aside to cool to room temperature.

In one bowl beat the cream with an electric mixer on high until soft peaks form.

Begin to add 1/2 cup of the sugar until blended.

In a separate bowl, beat the mascarpone with 3/4 of the jar of lemon curd until smooth, reserving the rest of the curd for the garnish.

Fold the cream mixture into the mascarpone mixture until blended.

Pour the syrup into a shallow bowl, and quickly dip each of the cookies into the mixture and lay them side by side in a 13 x 9 inch casserole dish.

If necessary, cut the cookies to fill in any spaces.

Once you have one layer of cookies completed, spoon over half the mascarpone mixture.

Make another layer of dipped savoiardi cookies on top of the mascarpone cream layer, then finish by topping this layer with the rest of the cream mixture.

Use a knife to smooth the top of the cream, and garnish with the toasted almonds.

Mix the remaining lemon curd with a spoon, then drizzle it across the top of the tiramisu.

Refrigerate for at least 6 hours, or overnight.

Recipe 3 Lemon Cake

Ingredients

CAKE:

2½ cups flour

1 teaspoon baking soda

½ teaspoon salt

½ cup butter, softened

1½ cups sugar

3 eggs

½ cup buttermilk

½ cup limoncello (lemon-flavored) liqueur

Zest and juice of one lemon

Optional: white chocolate shavings

FROSTING:

16 ounces mascarpone cheese

1¼ cups lemon curd

2 cups chilled whipping or heavy cream

⅔ cups powdered sugar

Ingredients

CAKE:

2½ cups flour

1 teaspoon baking soda

½ teaspoon salt

½ cup butter, softened

1½ cups sugar

3 eggs

½ cup buttermilk

½ cup limoncello (lemon-flavored) liqueur

Zest and juice of one lemon

Optional: white chocolate shavings

FROSTING:

16 ounces mascarpone cheese

1¼ cups lemon curd

2 cups chilled whipping or heavy cream

⅔ cups powdered sugar

Directions

CAKE:

Preheat oven to 350°F. Lightly grease 2 (9-inch) round cake pans and line with parchment paper. Grease and flour the parchment paper.

In a bowl, whisk flour, baking soda, and salt until well combined and set aside. Cream butter and sugar. Add eggs one at a time. Add flour alternately with buttermilk and limoncello mixed with lemon juice.

Bake cakes for 20 to 25 minutes. Cool completely in pans. Once cool, remove from pans.

Place 1st layer on serving plate. Frost top with 1/3 frosting. Place 2nd layer on top. Frost with half of frosting. Use remaining frosting to frost sides of cake and decorate top with optional white chocolate shavings.

FROSTING:

Cream together mascarpone cheese and lemon curd. Whip cream. Slowly adding powdered sugar until it’s all added. Fold cheese mixture into whipped cream and mix until completely combined.

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Food, Homemade Syrups,Tinctures,Rubs, Inflammation, Life, Meditation, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision, WegoHealth

I Am A Patient Leader to Help and Empower Others ~ WEGOHealth Awards 2017

 I would really appreciate your vote. Please read my story and why I became a patient leader and advocate. ThankYou.

I am so excited to announce that I have been nominated for several of the WEGO Health Awards in the

6th

Annual WEGO Health Awards.

WEGO Health is a mission driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.

Click link below to learn more about their

Patient Leader Network.

https://awards.wegohealth.com/nominees/12801

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice.

With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100,000 yep one hundred thousand inspiring Patient Leaders who raise awareness, share information, and support their communities but often without recognition.

I was diagnosed with osteonecrosis also known as avascular necrosis in late 2014. I was told it was due to the trauma I suffered to my knee(medial meniscus tear)

I remember how I felt, I remember how afraid I was and also a feeling of hopelessness.

If doctors couldn’t help or fix me or even try what was I to do.

I never want anyone to feel that way starving for answers to questions about a new diagnosis and no place to go and no one willing to take the time to explain your new diagnosis. I new others had to be feeling the same way as I was and what an awful feeling that was . Sure I have support from my family but they don’t really understand the pain no one can unless you have it.

So I started the support group Avascular Necrosis/Osteonecrosis Support Int’l to be a safe haven if you will, for anyone that suffers from the disease. On occasion we also allow a family member in the group if the member is comfortable with that so they can also see how this disease/disorder effects people, so they can learn from awareness and education, to have an idea just the type of pain their family member has.

The physical and psychological effects can be debilitating and isolating. Especially when you have what I refer to as a flare up of pain. You can’t plan to go to that wedding next month, you don’t know how you’ll feel in an hour.

The pain can be constant day and night pain or come at any time out of nowhere or in waves and they’re quite perturbing. It’s like a hot lightning bolt and a sledge hammer hitting you at the same time and it can be shocking to those around you,because you end up maybe screaming or yelling,sometimes swearing or just overall mood change because the pain is so intense words truly cannot describe. Some words are hot stabbing shooting debilitating and yet frozen , tourniquet like cutting off your blood supply cold pain that’s what we feel.

Its not just the pain that affects us , but also the sadness or depression that can often come with it. When we think about the future and pain gets in the way of all our plans expectations, it’s a bit shattering.

Everything seems to sort of fall apart and right now you can see only the broken image of the new you .

It’s like looking in a shattered mirror all these different fragments that no longer make you whole.

My life became very fragmented and it was a moment to moment thing because I didn’t know how I would make it through that particular day or make it through what’s going to happen tomorrow. When I was first diagnosed my mind was all over the place.

I’m not terminal but I felt like I was , because my life as I once knew it was done…over.

No doctor I saw had any plan of action to help me in fact I was told we will wait until the joint collapses then replace the knee . Talk about mind blowing!

Osteonecrosis took my career in optical which I loved. It took my hiking in the woods away which I enjoyed. It limits me which I hate. But it’s also given me a new purpose and that is spreading awareness, discussing new treatments, the chance to educate , and reaching out to others. I am a patient leader and activist. Making the invisible, visible

If you allow it, the pain and mental shit you go through when you live in pain and with a rare disorder to boot whether it’s constant or sporadic it can be toxic to the mind and soul sucking.

God forbid don’t ask for pain meds.

When I was first diagnosed my first Ortho said the pain will get intense as if it wasn’t already but I don’t give pain meds. I wondered how bad will it get? I’m already in such pain I can barely stand it. Thankfully my family doctor gave me some pain medicine.

It helped but I don’t want to take it. I’d much rather find out how to fix me.

I’m not some junkie looking for a fix, hell I don’t even want to be at a doctors office.

I would much rather be working or frankly doing anything but sitting in a doctors office.

There is so much stigma that goes along with having chronic pain .

The generalization that everyone is claiming they are in pain just to get drugs is unfair and incorrect, and I think we have to be very careful because pain for most of us is invisible,to others.

When we are out of balance mind ,body , and spirit it makes it so hard to focus.

It makes anything and everything worse.

So we have to change our mind set,respect and do what we can to help our body,and interact with others.

Usually I think people will find that in a support group even if they don’t talk they can listen to people who have the similar experiences, frustrations , challenges,pain, treatments or lack of treatment availability or just simple acknowledgement of I know what your going through, many days is a great help.

And it’s very hard to find that outside a support group.

I never insist a new member speak unless they want to. Some are just so devastated by the diagnosis that they have no words. When I see a new member especially a newly diagnosed one, my heart just knows how much fear they have and how afraid they are. I always let them know that can say anything here and it will remain here. But if they are not ready that’s fine to.

I also offer to send them a copy of a booklet I wrote about avn/on.

I know later their words will come. Right now they need to know they are not alone.

I also raise awareness by several

FB pages

Instagram

Twitter

Personal Blog on word press and blogger

Chronicallygratefuldebla.com

That’s why I am a patient leader and activist.

Here is the link to my WegoHealth profile.

I would appreciate your vote.

You can vote daily up until September 1, 2017.

Here is link

https://awards.wegohealth.com/nominees/12801

Thank you

Current Nominations in The 6th annual WEGO Health Awards

#WEGOHealthAwards

#PatientLeader

Please share this if you would be so kind.

Social Footprint

https://awards.wegohealth.com/nominees/12801

chronicallygratefuldebla.wordpress.com

facebook.com/debbie.briglovichandio

youtube.com/user/debbieandio

twitter.com/debbiea001

instagram.com/debbiea_1962

facebook.com/groups/deadbonediseaseavn

facebook.com/chronicallygrateful.me

facebook.com/avascularnecrosisrarediseasedayfeb29

facebook.com/osteonecrosis-avascular-necrosis-support-913679995417381

facebook.com/onavascular-necrosis-knowledge-752404224891578

facebook.com/yummygoodness

twitter.com/osteonecrosisme

facebook.com/chronicallygrateful.me

facebook.com/morningtalk.health

blogger.com/blogger.g?blogID=4338585393508080811

www.pinterest.com/amp/pin/487444359646285508/

What is osteonecrosis?  The term literally means bone death -osteo =bone necrosis=death.

Posted in Ancestry, Blessed, Croatian Family, family, Family Tradition, Family Tree, Geneology, History, Life, Music

I Love History and I Did Ancestry DNA

I love history and I have been researching both sides of my family tree. 
I found some interesting information from my fathers side. 

Some information I have found. And I cannot wait to see what else I uncover.

I may start a geneology blog so I can keep all that information in one area. 

Any tips from others would be greatly appreciated

Is it time that I put my family history research on a blog of its own? Maybe.  
I been doing research for months and in some areas years and I have a lot of wonderful information I’d like to share. 
And  a place to record my  research progress and keep better track of what I’m working on? So I will start a  new blog to get organized, share my  research with family, or bring it to fellow researchers across the world?

A story. We all have a story…..

Antun Mihanović (10 June 1796 – 14 November 1861) was a notable Croatian poet and lyricist, most famous for writing the national anthem of Croatia, which was put to music by Josif Runjanin and adopted in 1891. Klanjec, his birthplace, holds a monument to him and a gallery of his works.
Mihanović studied law and worked as a military judge. After engaging in diplomacy, he was the Austrian consul in Belgrade, Thessaloniki, Smyrna, Istanbul and Bucharest. He retired in 1858 as a minister counselor, and lived in Novi Dvori until his death.
The poem which would become the Croatian anthem was Horvatska domovina. It was first published in the cultural magazine Danica ilirska, No. 10, edited by Ljudevit Gaj, in 1835. The anthem itself would become known as Lijepa naša (Our Beautiful), since those are the first two words of the poem.

Mihanović also wrote a small but important book, Rěč domovini o hasnovitosti pisanja vu domorodnom jeziku (A Word to the Homeland about the Benefits from Writing in Mother Tongue), published in Vienna in 1815. The ideas in this book became one of the foundations of the Illyrian Movement.

His Sister  Marija Justina Veronika Mihanović married a great great great uncle of mine Josip Brigljevic . 

Maria Mihanovich was the youngest sister of Antun Mihanovich who wrote the lyrics for Croatian national anthem “Lijepa naša domovino”. No other siblings had survived other than two of them. She married a lawyer Joseph Brigljevich Kurilovečki (de Kurilovec). 

He was from a rich family of lawyers originating from Kurilovec-Velika Gorica area, but living in Zagreb. I was not able to find a specific connection to Brigleviches living in Velika Gorica. 

Joseph’s parents had three sons christened with name Joseph. The youngest one was christened in year 1810. I am assuming that the first two sons named Joseph did not survive, and that the third Joseph is the husband of Maria. It is interesting that the youngest Joseph was born after his father’s death and initially declared illegitimate. That decision was reversed. 

Joseph Brigljevich was a successful lawyer, until he ended up on the wrong side of the history. In 1848 there was a culmination of a conflict between between two Croatian parties, one supporting the union with Hungary and the other with Austria. He was supporting the loosing side (supporting the union with Hungarians), against the future ban of Croatia Josip Jelachich. 

Joseph Brigljevich tried to run, but was caught and put in prison, but eventually released folowing an intervention of his brother-in-law Antun Mihanovich, who was supporting the winning side. 

Antun Mihanovich has spent his last days living in the manor owned by Joseph (maybe as a pay off for saving his life). That manor is now called dvor Mihanović in honor of his most famous inhabitant.

Photo of Antun Mihanovic


Information also found in here 😀

Links
https://en.m.wikipedia.org/wiki/National_Anthem_of_the_Kingdom_of_Yugoslavia

https://en.m.wikipedia.org/wiki/Antun_Mihanovi%C4%87

http://ihjj.hr/iz-povijesti/antun-mihanovic-rec-domovini-od-hasnovitosti-pisanja-vu-domorodnom-jeziku/29/

https://narod.hr/kultura/10-lipnja-1796-roden-antun-mihanovic
Josip Brigljevic 

http://www.thebestincroatia.info/ideje/antun-mihanovic-1128.html

Posted in Dad, Family Tradition, Family Tree, Life, Uncategorized

Fathers Day Without Your Father. 

Being fatherless at any time can be tough. But it is interesting how a commercially driven calendar event can bring on feelings that can otherwise remain under the surface. 
This will be my 28th Father Less Fathers Day.  I was 25 when my dad died. 
Sadly I have a couple of friends who for them this will be the first since losing their own father. 
As with all aspects of grief everyone deals with things in their own way and at different times, but these calendar days are often impossible to get away from. 
After 28 years I still don’t find it easy hearing people tell me their Father’s Day plans to visit their dad or grandad. 
I always imagine everyone sitting round the family kitchen table sharing laughs,plans,stories. While I am like an adult Orphan since both my parents are gone. And I’m an only child. 

Lost Dad in 1988

Lost Mom in 2000
My orphaned self (yup, I said it) experiences of Father’s Less and Mother Less Holidays really suck.  
A few of them in particular stand out. 

I remember buying him a World’s Best Dad t-shirt .

World’s Best Dad certificate which we proudly framed and presented to him alongside a book of poems, stories and drawings I had created for him. Poems I wrote my self. 

Pass over the Pulitzer. LOL
As I got older I bought him a Christ Head Gokd necklchain which he loved
What I do remember is that every time I made these daft little gifts I really wanted to impress my dad. And he always raved about them. 
I was most certainly a daddy’s girl growing up. 
I was an only child so we did lots of things. I remembered dancing on his shoes, (I would stand upon his shoes) 

He loved sports and so did I so we’d go to basketball games baseball games. He’d haul my friends and I skating and pick us up. 

Sometimes I’d hate that as a kid.

Now I treasure those times. He fed people less fortunate and no I wasn’t allowed to sit home. 

I am glad he made me go. He and my mother taught me to be a kind giving person and to reach out to those in need. 

He also was a great example of what a good husband and father was. 

Thank you dad for that. 
Father’s Day can be a time to reflect on these memories.
If I let myself think about things for to long I feel guilty. I could have been a less mouthy teenager. More appreciative of the things my dad did. All the time. 
I hope he is celebrating Father’s Day with his father and grandfathers. 
This Father’s Day I plan to think about what I’d chat to my dad about if he was around. 

I still want to make him proud and I think that I have. 

But I can and will always remember giving him a hug as I left his hospital room when I saw him for the last time. My mother looked so sad,so scared she was loosing her best friend. 
He was getting ready for surgery.
Looking back I can tell that he knew that would be our last hug. He even wrote me a letter saying how proud he was of me, how much he loved me, and how he would always be with me. 
My dad was good and loving and kind and generous.

He loved his family and community. He was a past Grand Knight with Knights of Columbus 3930 

He fed the poor and homeless

The world was truly a better place with him in it. 
My hero my dad. 
Until we meet again. 
Song: Dance with my father by Celion Dion https://youtu.be/vqs7jvYkUR0

Posted in Ancestry, DNA, Family Tradition, Family Tree, Life, Uncategorized

Ancestry DNA

So because a have a couple of  mysteries in my family. And just the love of history I have , I  decided to do an Ancestry DNA 

I got the test in November 2016 and did nothing with it until February-March 2017

Well I finally took test and results are coming in.

Family Mysteries 

Who was my grandmothers birth parents

(She was adopted)

From what I was told 

The Cleveland Protestant Orphanage Asylum on St Clain Avenue in Cleveland Ohio between 

1901-1910

She was given an adopted name and a hint of her middle name. 

St Clair was a hint about the place she was adopted from. 

I also heard many years ago her name may have been Bessie.  (Unsure if true)

I was told she may have been from most likely German decent. (Also unsure)

She has always gone by the birthday of 

July 9 1902

I spoke to Orphanage in Cleveland which is now called BeechBrook and they can’t tell me anything unless I know her birth name
That really let the wind out of my sail because they have her info. 

So I have to find another way I guess. 

And I have a lot of info on her as I knew her. And I also have info 

Im related to the founders of Youngstown Ohio

Where I grew up. 

Mystery 

Next mystery is on my fathers side

His father was illegitimate 

So I have no idea who his father was

They were from the former Yugoslavia 

Now Croatia

Zagreb-Velika Gorica area

He has his mothers last name. But not his fathers. No mention of the fathers name at all. 

I also have a couple other wild things from my fathers side 

Mystery 

Some one a female burned at stake hundreds of years ago …. I wonder why..
So stay tuned.  

If your great at research and family history I would love tips

Stay tuned…..


Posted in Family Tradition, Food, Life, Recipes, Uncategorized

Ricotta & Pineapple Pie

Ricotta & Pineapple Pie

Ingredients

* 1 Tbsp Unsalted Butter (soft)

* 1/4 cup fine graham cracker crumbs

* 1/2 cup sugar

* 2 Tbsp cornstarch

* One 15oz container ricotta

* 2 large eggs

* 1/2 cup heavy cream

* 1 Tsp grated lemon zest

* 1 tsp vanilla extract

* TOPPING:

* One 20oz can crushed pineapple in syrup

* 1/4 cup sugar

* 1 Tbsp cornstarch

* 2 Tsp fresh lemon juice

Directions/Steps
1. Preheat the oven to 350F

2. Spread the butter over the bottom and sides of a 9 inch pie pan or spring form pan. Slightly more on the sides and less on the bottom.

3. Add the crumbs – turn the pan to coat the bottom and sides evenly.

4. In a large bowl stir together the cornstarch and sugar.

5. Add the ricotta, eggs, cream, lemon zest and vanilla.

6. Beat until smooth.

7. Pour into the graham cracker prepared pan.

8. Bake for 50 minutes or until the pie is set around the edges but the center is still slightly soft.

9. Cool to room temp on a wire rack.

10. TOPPING:

11. Drain the pineapple well and reserve 1/2 cup of the syrup.

12. In a medium saucepan stir together the sugar and cornstarch.

13. Stir in the 1/2 cup pineapple syrup and the lemon juice.

14. Cook stirring until thickened – about 1 minute.

15. Add the pineapple and stir in.

16. Remove from heat and allow to cool slightly

17. Spread the pineapple mixture on top of the pie.

18. Allow to chill in the fridge for at least one hour or more.

#EasterPie

#Easter

#Ricotta 

#Pie