Posted in Arthritis, Awareness, Bone Health, Chronic Pain, Eat Healthy, exercise, Family Tradition, Fireworks, Food, History, Jamberry Nails, Life, Mindfulness, Music, OA, Osteonecrosis, Recipes, Uncategorized, Vegetables

Happy Fourth Of July

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Factor V Leiden, Herbal, Inflammation, Meditation, Mindfulness, Osteonecrosis, Uncategorized

Learning To Live Mindfully When You Have A Chronic Condition 

Mindfulness is an incomparable tool to get past the mental struggles caused by pain and reduced mobility.Employing “mindfulness” also known as “restful alertness” can be described as being present in the moment. Training your mind to stay in the moment and not wander to anxiety and fear-driven thoughts will keep anxiety and stress at bay.

In 2015 there was a clinical trial study done Mindfulness meditation was been shown in clinical trial studies to reduce chronic pain by up to 57 percent.  

57 percent is a great number. Just think if you had 25 percent less pain, or 50 percent.

Just think what  that would do for so many and their overall happiness , quality of life. 
Living with chronic pain and illness can be intolerable. Even  for some after taking the maximum dose of painkillers, the aching soon returns with a vengeance. You want to do something, anything, to stop the pain, but whatever you try seems to fail. Moving hurts. Doing nothing hurts. Ignoring it hurts.

But it’s not just the pain that hurts; your mind can start to suffer as you desperately try to find a way of escaping. Pointed and bitter questions can begin nagging at your soul: What will happen if I don’t recover? What if it gets worse? I can’t cope with this . ~ Please, I just want it to stop~
It’s only natural to want to fight back against pain and illness in times such as these, but what if this struggle actually made your suffering worse?
 What if it was more effective to explore the sensations of pain and illness as they rose and fell in your body? 
This may seem like the worst thing imaginable, but the latest medical advances show that it can be more powerful than the most commonly prescribed painkillers.
I know when I was first diagnosed with Avascular Necrosis \Osteonecrosis my pain was so intense so mind bending at times I could not even think clearly.
I hate pills all pills and I didn’t want to take them but at first I did but I noticed it just eased the pain the pain never actually went away. 

Then in my searches for a good honest qualified orthopedic doctor who would help me by trying new things vs always wanting to inject me with steroids or hand me an rx for them with the phrase “Well Deb we just have to wait until the knee collapses and then we can replace it”

SAY WHAT !!

I would leave their offices frustrated and furious. Vowing to find my own relief, treatment etc

I was scared to death about what was going to happen to my mobility, my job why wasn’t any ortho interested in actually helping me vs waiting for my knee to collapse and then replace it?
I read book after book 

Seeking out my own remedy 

I Spoke to (paying copays and X-rays and Mri’s & blood test along the way) 

Orthopedics 

Physical Therapists

Osteopath’s

Rheumatologist’s

Endocrinologist’s

Vascular Specialists 

Hematologist’s

The best they came up with we will wait until your knee joint collapses and replace it. 

So many areas of physicians: osteopathic and allopathic and naturopathic 
Let’s learn the difference 

I mean I felt cheated-  My family doctor at that time was a DO –

Doctor of Osteopath Doctors of Osteopathic Medicine, or DOs, are fully licensed physicians who practice in all areas of medicine. Emphasizing a whole-person approach to treatment and care, DOs are trained to listen and partner with their patients to help them get healthy and stay well. DOs receive special training in the musculoskeletal system, your body’s interconnected system of nerves, muscles and bones. By combining this knowledge with the latest advances in medical technology, they offer patients the most comprehensive care available in medicine today. Osteopathic physicians focus on prevention, tuning into how a patient’s lifestyle and environment can impact their wellbeing. DOs strive to help you be truly healthy in mind, body and spirit — not just free of symptoms.
I think mine was either absent that day or became so busy seeing patients he forgot what his title really meant.  I got none of the treatment or knowledge of the above definition. 

Naturopathic physicians combine the wisdom of nature with the rigors of modern science. Steeped in traditional healing methods, principles and practices, naturopathic medicine focuses on holistic, proactive prevention and comprehensive diagnosis and treatment. By using protocols that minimize the risk of harm, naturopathic physicians help facilitate the body’s inherent ability to restore and maintain optimal health. It is the naturopathic physician’s role to identify and remove barriers to good health by helping to create a healing internal and external environment. NDs treat all medical conditions and can provide both individual and family health care. Among the most common ailments they treat are allergies, chronic pain, digestive issues, hormonal imbalances, obesity, respiratory conditions, heart disease, fertility problems, menopause, adrenal fatigue, cancer, fibromyalgia and chronic fatigue syndrome. NDs can perform minor surgeries, such as removing cysts or stitching up superficial wounds. However, they do not practice major surgery. NDs are trained to utilize prescription drugs, although the emphasis of naturopathic medicine is the use of natural healing agents.

Allopathic Physician MD Nurses and physicians are on the front line of medicine. As practitioners, they work in solo or group practices examining patients and obtaining medical histories; ordering, performing and interpreting diagnostic tests; and prescribing and administering treatment for patients suffering from injury or disease. They also counsel patients about illness, injuries, health conditions and preventive healthcare (diet/fitness, smoking cessation, etc.).

In hospitals, they provide emergency care, perform surgery and care for patients with injuries or life-threatening illnesses like cancer or serious conditions like asthma. In laboratories across the country, physician researchers look for the cause of illnesses and for new and better ways to treat all kinds of diseases and injuries. They run medical centers and teach future generations of physicians and other health care practitioners.
They all sound great right? So what happens to many doctors when they come across a patient who’s medical is difficult,challenging. Sometimes it seems they don’t have time or want to make time because either they are to busy or they aren’t very knowledgeable in that area of  condition disease or illness. So they seem fudge through it. 

Many never think outside the box. 

If this happens move on. Find a new Dr. 
I Spoke to herbalists and a  naturopath  or two , one  I really wish was covered by insurance. The other was just interested in $.
But the one that I would love to see if I could afford her was so knowledgeable in the brief time I met her and sat down for about an hour and just spoke to her she gave me general suggestions that honestly have helped me more than others I paid to see regularly.

I learned to be more mindful 

I learned to do basic meditation 

I changed the way I was thinking 

I began to exercise again this time I had a plan. 

I started a journal and a food log which I could see if what I was eating contributed to my pain. And my feeling when I ate. I will get into that tomorrow.
 I exercised whether in pain or no pain. I started out with 5 minutes 3-4x a day on a recumbent bike to see how my joints felt. 
Then went to 7 minutes, then 10 then 15

I did my research on supplements 

I started to take herbology classes 

I was living in the moment and being mindful about everything.

I began transforming my pain into a glorious and grateful  appreciation  for which is right in front of me.  

Eating Healthy and taking my supplements and Exercising a new mindful way and added meditation was working. ,

It wasn’t over night but in a couple weeks I noticed I felt happier, not as still all the time, and pain was not as intense as usual.

Over time I noticed more improvements.

I then quit smoking after 40 years 

I can tell you meditation and diet and any exercise helps .

Try it 

Talk to your doctor and what do you have to lose. 

To be continued tomorrow….

Check out these  cute videos and learn about meditation and mindfulness 
Meditation Info https://youtu.be/rqoxYKtEWEc
Beginners Guide to Meditation https://youtu.be/w6T02g5hnT4
How being Mindful Empowers Us https://youtu.be/vzKryaN44ss
MeditationVideo          https://youtu.be/YeeDo-c3lDI

Posted in Arthritis, Avascular Necrosis, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Factor V Leiden, Inflammation, Life, OA, Osteonecrosis, Uncategorized

Avascular Necrosis Known By So Many Names, Connected to So Many Disorders

Avascular necrosis (AVN), or more correctly “osteonecrosis”, is a generic term referring to an ischaemic death of the constituents of bone. AVN has a wide variety of causes and can affect nearly any bone in the body. Most sites of involvement have an eponym associated with avascular necrosis of that area, and these sites are discussed individually as each site has unique clinical, etiologic and prognostic features.
The terms ischaemic and avascular necrosis are typically reserved for subchondral osteonecrosis, whereas bone infarct refers to medullary osteonecrosis.
 
Epidemiology
There is no single affected demographic as the underlying predisposing factors are varied.
Pathology
Infarction begins when the blood supply to a section of bone is interrupted. Once an infarct has become established, just as in other tissues, there is a central necrotic core, surrounded by an ischaemic zone, the inner portion being ‘almost dead’ and the outer portion being hyperaemic. Beyond this is normal viable marrow. Between the normal and the ischaemic zone that demarcation occurs with the development of viable granulation separating dead tissue. This leads to the double line sign on MRI.
When the infarct is subchondral, a wedge of tissue is typically affected, the apex of which points towards the centre of the bone.
Aetiology

•trauma (fracture or dislocation)

•Increased pressure inside the bone

• HIV

• Lupus

•Cancer

•Caissons disease

• Blood Clot disorders,haemoglobinopathies, e.g. sickle cell disease

•pregnancy-related AVN

•radiotherapy,chemo

•connective tissue disorders and vascular issues

•renal transplantation

•corticosteroid excess (both endogenous and exogenous)

•pancreatitis

•gout

•Gaucher disease

•alcohol and smoking 
Mnemonics: STARS, PLASTIC RAGS
Eponymous names for specific sites of avascular necrosis

• Ahlback disease: medial femoral condyle, i.e. SONK

• Brailsford disease: head of radius

• Buchman disease: iliac crest

• Burns disease: distal ulna

• Caffey disease: entire carpus or intercondylar spines of tibia

• Dias disease: trochlea of the talus

• Dietrich disease: head of metacarpals

• Freiberg infraction: head of the second metatarsal

• Friedrich disease: medial clavicle

• Hass disease: humeral head

• Iselin disease: base of 5th metatarsal

• Kienbock disease: lunate

• Kohler disease: patella or navicular (children)

• Kummel disease: vertebral body

• Legg-Calvé-Perthes disease: femoral head

• Liffert-Arkin disease: distal tibia

• Mandl disease: greater trochanter

• Mauclaire disease: metacarpal heads

• Milch disease: ischial apophysis

• Mueller-Weiss disease: navicular (adult)

• Panner disease: capitellum of humerus

• Pierson disease: symphysis pubis

• Preiser disease: scaphoid

• Sever disease: calcaneal epiphysis

• Thiemann disease: base of phalanges

• Van Neck-Odelberg disease: ischiopubic synchondrosis
Location specific sub-articles for avascular necrosis:

•hip avascular necrosis

•scaphoid avascular necrosis
Radiographic features
Radiographic changes alter with the stage of AVN – see Ficat staging, Steinberg classification.
Radiograph
In general, there is initial minor osteopenia, followed by variable density. Gradually microfractures of the subchondral bone accumulate in the dead bone, which is unable to repair leading to the collapse of the articular surface and the crescent sign of AVN. Eventually the cortex collapses and fragments, with superimposed secondary degenerative change.
MRI
MRI is the most sensitive (~95%) modality and demonstrates changes well before plain films changes are visible.

•diffuse oedema: oedema is not an early sign; instead, studies showed that oedema occurs in advanced stages and is directly correlated with pain

• reactive interface line is a focal serpentine low signal line with fatty centre (most common appearance and first sign on MRI)

• double line sign: serpiginous peripheral/outer dark (sclerosis) and inner bright (granulation tissue) on T2WI is diagnostic

• rim sign: osteochondral fragmentation:

•secondary degenerative change
Nuclear medicine
Bone scintigraphy is also quite sensitive (~85%) and is the second option after MRI. It is a choice when multiple sites of involvement must be assessed in patients with risk factors, such as sickle cell disease. The findings are different accordingly to the time of the scan:

• early disease: often represented by a cold area likely representing the vascular interruption

• late disease: may show a “doughnut sign”: a cold spot with surrounding high uptake ring (surrounding hyperaemia and adjacent synovitis)
Treatment and prognosis
The goal of treatment is to reduce the load on the affected part and to promote revascularisation. Treatment varies with location and includes:

•conservative: anti-inflammatory, analgesia, and reduced/non-weight bearing

•core decompression

•joint replacement for end-stage disease
Practical points

• MRI and bone scintigraphy have high sensitivity, with MRI studies being the first line for AVN assessment
See also

•differential diagnosis of erosive arthritis

•monoarticular arthropathy
 
Monoarticular arthropathy can result from a number of causes:

•infectious arthritis

•gout

• HADD (hydroxyapatite deposition disease)

•traumatic arthritis

•secondary osteoarthritis

•avascular necrosis

•PVNS

•synovial osteochondromatosis

•osteochondritis dissecans

What Research Is Being Done to Help People With Osteonecrosis?

Some goals of research are to learn more about:How many people have osteonecrosis
Risk factors for osteonecrosis

Why  steroids cause osteonecrosisThe role of genes

How to diagnose the disease early

Better treatments for osteonecrosisWays to improve hip replacement

How  mechanical factors such as the alignment of hips, knees, and ankles affect treatment success.

For More Information About Osteonecrosis and Other Related Conditions:

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information ClearinghouseNational Institutes of Health1 AMS CircleBethesda, MD 20892–3675Phone: 301–495–4484Toll free: 877–22–NIAMS (226–4267) TTY: 301–565–2966Fax: 301–718–6366Email: NIAMSinfo@mail.nih.gov 

Website: http://www.niams.nih.gov

Also check out nonf.org

 Links can be found below and at 

https://radiopaedia.org/articles/avascular-necrosis
http://www..ChronicallyGratefulDebla.com

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Eat Healthy, Factor V Leiden, Inflammation, Life, OA, Osteonecrosis, Recipes, Uncategorized, Vegetables

Taco Bowl 

When you have pain and inflammation like I do you learn what to eat and what to stay away from. I have learned to manage my pain by eating healthy .

With Bone problems I have tried many things but this way of eating is great 

It’s easy to eat healthy and use lots of spices to help that inflammation.

Listed below is a quick easy Taco Bowl
INGREDIENTS

Grilled Veggies

* ⅔ cup zucchini, halved and sliced

* ⅔ cup sliced bell peppers (red, green and yellow)

* ¼ red onion, thin sliced

* ⅔ cup sliced mushrooms

* 1 handful baby spinach, roughly chopped

* ¼ tsp salt

1 cup Morning star protein crumbles

Taco Rice & Beans

* 1⅓ cups cooked white or brown rice

* 1 can black beans or pinto beans rinsed and drained

* 3 tbsp taco sauce and what I do is take 

* 1 Tablespoon curcumin and 

* 1teaspoon garlic 

* 1 Tablespoon chili powder mix together and cook crumbles and beans in it

Toppings

* 1 vine-ripened tomato, chopped

* 1 handful baby spinach, roughly chopped

* 2-4 tbsp guacamole

* 2-4 tbsp salsa

* 2+ handfuls of tortilla chips

More Optional Toppings

* ¼ cup Daiya Mozzarella, Cheddar, or Pepperjack style shreds

* fresh lime juice or wedges

* extra taco sauce for drizzling

* jalapeño, thin sliced

* cilantro, chopped

* salsa baked tofu


INSTRUCTIONS

1. Combine cooked rice, rinsed black beans, and taco sauce and crumbles heat on top of stove on medium for 5 to 6 minutes 

2. Preheat grill or skillet (high heat). Spray with non-stick cooking spray or brush with vegetable oil (about 2-3 tsp.)

3. Cook bell pepper, red onion, and zucchini for about 4 min. 

4. Add mushrooms, sprinkle with salt and cook for another 5-6 minutes or until veggies are tender. Add spinach and cook until just wilted.

5. To serve: Scoop ¾ cup of rice and bean mixture into a bowl and add ½ of the grilled veggies. 

6. Top with a handful of fresh greens (iceberg lettuce or spinach), fresh chopped tomato, 2 handfuls of crushed tortilla chips, 1-2 tbsp of guacamole, and 1-2 tbsp of salsa. 

7. Add any optional topping you desire (fresh cilantro, Daiya cheese, fresh lime juice, salsa baked tofu, extra taco sauce, etc….

Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Bone Health, Chronic Pain, Diagnosed, Eat Healthy, Faith, Inflammation, Osteonecrosis, Pain, Uncategorized

I Am Your Voice ~ AVN-ON-OA

I am the voice of the newly diagnosed and all Avascular Necrosis/Osteonecrosis and Osteoarthritis patients.

There is a struggle that newly diagnosed patients know all too well.

The anger, the pain and the fear of the unknown can have our heads spinning in all different directions day in and day out as the body deteriorates while the brain wanders through all of the possibilities.

Maybe they are wrong , maybe I was misdiagnosed.

I cant possibly have a rare disease/condition. And osteoarthritis both! I already gave spondylolisthesis how much pain can a body endure.

What will I do ?

I have no information

And no place to find support.

Look no further

I’m just like you
I have Osteonecrosis and Osteoarthritis Spondylolisthesis,Factor V, Hypothyroidism and I’m sick of these diagnoses every year it’s something new.

I am a voice in the community of those of us who are suffering with Avascular Necrosis/Osteonecrosis , and many other conditions.

We are the enduring, we are strong, we are afraid, we will make it.

#Osteonecrosis

#Osteoarthritis

#AvascularNecrosis

How you can become an advocate.

First- Advocate for yourself and be an example. Try to take good care of yourself.

You won’t be able to advocate and educate others until you know how to advocate and take care of yourself. Don’t spread yourself to thin. Learn to say no and please learn to listen to your body and rest when it needs rest.

Try to work with your doctors to build a relationship with them and all your health care providers

Understand your rights as a patient. 

See Link: https://www.hhs.gov/answers/health-care/what-are-my-health-care-rights/index.html

Patient Rights

Don’t be afraid to fire your doctor if needed be.

Research Research and Research….

Learn all you can about your disease, including who can get it, how and why many people seem to have it, stages of the disease if any,how it is diagnosed, what treatments are offered or suggested, and if they don’t offer or suggest anything new or cutting edge ask…..what current research and or studies say.

You need to become the expert and stay up to date, because new data is always being published.

Education

Commit to making sure you are a credible source of information by fact-checking multiple sources before you share news or articles.

Be an educator not a divider.

Turn your interests into ways that you can link to educate on your disease or disorder.

Example: I love cooking ,herbology , photography and writing soooo I have a blog that educates and also discusses the importance of good clean food ,giving your body the best nutrition possible to help combat inflammation,pain etc

Posted in Arthritis, Chronic Pain, Inflammation, OA, Uncategorized

Osteoarthritis Study

OsteoarthritisACTIVE

DESCRIPTION

You may know the feeling of aches and pains in your knees, stiffness in your hips, or joint pain in both. If you’re feeling this pain, you most likely have Arthritis (also called Osteoarthritis). Better treatment options are needed for people who suffer with knee or hip joint pain. Right now, doctors are looking for people like you to take part in local Arthritis research studies. See if you qualify today – space is limited.
Be sure to include your unique link each time you share so that we can track your progress and reward you for your efforts.

http://curec.lk/2nYcZWJ
#Osteoarthritis 

#Arthritis 

#Arthritis365

Posted in Avascular Necrosis, Chronic Pain, Inflammation, OA, Osteonecrosis, Uncategorized, WegoHealth

A2M Injections For OA And Other Bone & Joint Conditions 

I love learning about new technology and break throughs that help people with chronic bone pain from OA and AVN 

Especially when I have bone OA in a few places and I also developed AVN in knee due to trauma from medial meniscus tear 

This new A2M  could help so many conditions or disease of bone. 
New Injections A2M to help elevate pain for up to 1 year. 

Could be the nearing end of steroid injections 
I am waiting for a call back to actually speak  to a Doctor about this new procedure 

And see if it could potentially help patients with  Avascular Necrosis/Osteonecrosis also. 

I will post more as soon as I find out the details , cost , if insurance is covered etc…


I read it works wonders on OA which I also have. It’s based on OA.

(osteoarthritis)
Here’s some info. 
Alpha-2-macroglobulin (A2M) is a powerful inhibitor of cartilage catabolic factors and stops the progression of Osteoarthritis (OA) by preventing cartilage breakdown and preventing cartilage loss.
Cytonics has developed a breakthrough molecular technology that concentrates the alpha-2-macroglobulin (A2M) in your blood to deliver high concentrations in your joint space, protecting your joint space from the destructive proteins that cause Osteoarthritis (OA).
Recent studies have shown that intra articular A2M supplementation inhibits the progression of OA by protecting the cartilage from catabolic and inflammatory factors. A2M therapy exemplifies natural healing backed by proven science that protects your joints from OA, prevents cartilage breakdown, promotes tissue growth, and supports restoration of your affected joint.
Osteoarthritis & A2M Therapy
Osteoarthritis (OA) is one of the most common health problems we face today. With nearly 30 Million Americans suffering from OA, the US Medical Expenses exceed $185.5 Billion dollars spent annually on treating conditions associated with Osteoarthritis, including knee pain, back pain, Post Traumatic OA, and many other joint conditions. Though current non-surgical Osteoarthritis (OA) treatment options show potential to offer temporary symptomatic relief, they have side effects and are ineffective at treating the root cause of OA.
Arthritic joints make several chemicals that destroy the cartilage, which is the essence of osteoarthritis. These chemicals, called catabolic proteases, work by degrading cartilage and damaging your joint by breaking down the cells.
Alpha-2-macroglobulin (A2M), found naturally in the blood, binds (captures) these “bad” chemicals produced in the knee and neutralizes their degenerative effect.
Injections of concentrated A2M is expected to be the first treatment for OA that can inhibit all causes of cartilage breakdown and thereby prevent cartilage loss, reduce pain, and stop the progression of OA.

Osteonecrosis 

#AvascularNecrosis 

#Osteoarthritis 

#ChronicPain

#BonePain

#Inflammation 

#WegoHealth