Posted in awards,patient leader, Awareness

WEGOHealth Awards2019©

Wow I am beyond honored I’ve now also been

Nominated for Patient Leader Hero- Healthcare Collaborator – Rookie of The Year and Best In Show Blog

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Endorsements Now Open If You Would Like to Vote (link below)

I have been nominated for the past few years in various categories

Thank You for considering Endorsing my nominations

It’s deeply appreciated

My Profile and Info WEGOHealth Link

Avascular Necrosis-Osteonecrosis Education

FlexitarianForLife

My Links

https://avascularnecrosiseducation.com/

www.ChronicallyGratefulDebla.com

https://www.facebook.com/AvascularNecrosisEducation/

https://flexitarianforlife.wordpress.com/

 

https://twitter.com/debbiea001

https://twitter.com/OsteonecrosisMe

https://www.instagram.com/chronicallygratefulme/?hl=en

https://www.instagram.com/deborah_andio/

https://www.facebook.com/ChronicallyGratefulDebla/

 

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Posted in Awareness

Every 9 Seconds

Every 9 seconds, a woman in the U.S. is beaten or assaulted by a current or ex-significant other.

There are 86,400 seconds in a 24 hour period. That means every day approximately 9,600 women are beaten or assaulted .3,504,000 a year.

Here’s another shocking statistic: the number of U.S. troops killed in Afghanistan and Iraq between 2001 and 2012 is 6,488.

The number of women that were murdered by current or ex-male partners during that same time frame is 11,766, according to the Huffington Post. That’s almost double the number of people that were killed fighting in war.

Every 98 seconds, another American is sexually assaulted.

People who are in an abusive relationship will stay with their partner for a number of reasons:

-Their self-esteem is totally destroyed, and they are made to feel they will never be able to find another person to be with.

-The cycle of abuse, meaning the ‘honeymoon phase’ that follows physical and mental abuse, makes them believe their partner really is sorry, and does love them. But their partner will do it again.

-It’s dangerous to leave. Women are 70 times more likely to be killed in the weeks after leaving their abusive partner than at any other time in the relationship, according to the Domestic Violence Intervention program.

-They feel personally responsible for their partner, or their own behavior. They are made to feel like everything that goes wrong is their fault.

–They share a life. Marriages, children, homes, pets, and finances are a big reason victims of abuse feel they can’t leave.

Domestic Violence Awareness Month evolved from the “Day of Unity” held in October 1981 and conceived by the National Coalition Against Domestic Violence. The “Day of Unity” soon evolved into a week, and in October of 1987, the first National Domestic Violence Awareness Month was observed.

HOW TO OBSERVE

Use #DomesticViolenceAwareness to post on social media. Sometimes, people don’t know if they are really in an abusive relationship because they’re used to their partner calling them crazy or making them feel like all the problems are their own fault. Here are a few ways to know if you’re in an abusive relationship that you need to get out of.

1. Your partner has hit you, beat you, or strangled you in the past.

2. Your partner is possessive. They check up on you constantly wondering where you are; they get mad at you for hanging out with certain people if you don’t do what they say.

3. Your partner is jealous. (A small amount of jealousy is normal and healthy) however, if they accuse you of being unfaithful or isolate you from family or friends, that means the jealousy has gone too far.

4. Your partner puts you down. They attack your intelligence, looks, mental health, or capabilities. They blame you for all of their violent outbursts and tell you nobody else will want you if you leave.

5. Your partner threatens you or your family.

6. Your partner physically and sexually abuses you. If they EVER push, shove, or hit you, or make you have sex with them when you don’t want to, they are abusing you (even if it doesn’t happen all the time.)

HISTORY

Domestic Violence Awareness Month evolved from the “Day of Unity” held in October 1981 and conceived by the National Coalition Against Domestic Violence. The “Day of Unity” soon evolved into a week, and in October of 1987, the first National Domestic Violence Awareness Month was observed. In 1989 Congress passed Public Law 101-112, officially designating October of that year as National Domestic Violence Awareness Month. Such legislation has been passed each year since.

If you are experiencing domestic abuse, please seek , talk to friend or family member a counselor, a teacher.

Fact in Ohio – a portion of all money for marriage license fees goes to a domestic violence shelter in that county in Ohio.

3113.34 Additional fee for marriage license used for financial assistance to shelters for victims of domestic violence.

In addition to any fee established under section 2101.16 of the Revised Code for the issuance of a marriage license, the probate court shall collect and deposit in the county treasury a fee of seventeen dollars for each marriage license issued. This fee, plus the thirty-two-dollar fee collected under division (D) of section2303.201 of the Revised Code as additional costs in each new action or proceeding for annulment, divorce, or dissolution of marriage, shall be retained in a special fund and shall be expended only to provide financial assistance to shelters for victims of domestic violence and only as provided in sections3113.35 to 3113.39 of the Revised Code.

Effective Date: 12-09-1994

If you are in danger, call 911.

Please remember to give and donate to your local domestic violence shelter all year long but especially at Christmas as many often leave with just the clothes on their backs.

Important Links and Apps

Links- National DV Hotline DV Hotline

National Rape and Sexual Assault Hotline

App Aspire News When Georgia Smiles

Posted in Ahlbacks Disease, Ancestry, Arthritis, Awareness, Blessed, Bone Health, Chronic Pain, Coping with Stress, Diagnosed, God, Life, Mindfulness, Opinions, Positivity, Thoughts, Uncategorized, Vision

Walking With God

Make sure you are doing what is important to God—not just what is important to everyone else you know.

We gave a tendency to worry more about what other people think vs what God thinks

From an early age we work to get the approval from others,whether it was proving to our parents that we could ride a bike without training wheels, or struggling to get that C to an A.

Through the years it can become a problem for us as it can cripple us emotionally and spiritually.

We need to get to the point where we don’t care what the media says, how colleagues feel about us, or live in state of constant fear or agony of what others think.

The other person is not going to worry about it, or stay awake at night upset that you’re offended. You can’t be responsible for other people’s words, actions, or decisions as hurtful as they can be.

We all want to be congratulated for a job well-done from even acquaintances, but what happens when they don’t, or you are not acknowledged in some way.

Some think it’s painful not to always be told great job ….. for me personally I learned a long time ago you can’t please everyone and more often it’s our family and friends that seem to be the most critical.

They always feel the need to judge you in some way.

But learn to regroup, refocus, and rise above petty people, sin, and caring what others think of you.

They don’t really know your story, but Christ does.

So, where do we begin and do we need to take ownership?

Look if you are working hard doing or trying to do the right thing , being a good citizen, being kind, respectful to all people. And taking good care of yourself . Be proud of yourself and always strive to do better. But realize you will never please everyone.

Maybe just don’t worry so much about those critical people in your life and certainly lose those who are bad for you. You know those few co workers or friends that egg you on to do shit that you know is wrong or unproductive or unprofessional.

It’s really better to mind your own business and focus on work or school verses having to be someone your not.

In Philippians 4:6-7, we are told to relax, and go to God for relief and strength. “Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.”

Our minds can dictate our feelings and vice-versa, so every time we are worried about what others think switch to a scripture, prayer or praise.

You can say “I trust the God not my feelings.”

Add your name to a scripture. It can really personalize it and help you grow closer to the Lord.

1 Peter 5:7: “Cast all your [insert your name] anxieties on Him, because He cares for you [insert your name].”

Worrying about what others think is human, but when it’s to a point where our joy is being choked, then we need to become proactive, not reactive.

Take people out of your courtroom of justice, and offer them to God, and also humble yourself.  It’s simply not worth it for your health, or hindering your walk

Posted in Awareness, Blessed, Faith, Herbal, Life, Meditation, Mindfulness

Holiday Stress Relief

The holidays are a time to enjoy family and gatherings, delicious meals, and decorating the tree & the house.

There never seems to be enough time to accommodate all the traditions and activities while still maintaining your normal life buying gifts or preparing your home for company also adds up rather quickly.

Family situations are another factor that add to increased stress levels during this time of year. Getting the right gift. Or worried you cannot afford gifts because your company laid off.

Whether it’s dealing with family members who are ill, or kids acting up or just deciding where to celebrate the holidays or who to invite can be a struggle in itself.

Worried that your Uncle drinks to much and falls into the Christmas tree. Or cousin sue is off so busy using drugs and doesn’t even bother to show up at all.

Or if you live hundreds of miles away facing they holiday alone can be stressful and also bring about sadness and anxiety.

When your living with a chronic condition we are often hard on ourselves because we can’t always do the things we used to do.

Let’s face it Holidays are Stressful!

And even though we can’t wave a magic wand and make it all disappear there are a few ways to help ease our stress and anxiety.

Because stress can lead to many things that can effect our health and mental wellness including, but not limited to:

Elevated blood pressure

Exhaustion

Headaches

Moodiness

Trouble sleeping

Anxiety

Depression

More pain if you suffer from a chronic condition

While holiday stress may seem quite inevitable, don’t worry, there are many ways to naturally cope with holiday stress!

Methods such as acupuncture, massage therapy, hydrotherapy aromatherapy, yoga, meditation, and exercise can help bust up the stress.

Acupressure

isan effective form of stimulation used to help relax the muscles. If done regularly, this method of self-massage can sustain improvement and minimize recurrence of symptoms. Be patient and consistent when practicing acupressure on them. A simple way to stimulate these points is to press firmly with a finger in a rotary movement or an up-and-down movement for several minutes at a time. It is recommended that you use this information under the guidance of your physician.

Massage therapy appears to have few risks when performed by a trained practitioner. However, massage therapists should take some precautions in people with certain health conditions.Make sure they are licensed. Examples

In Swedish massage, the therapist uses long strokes, kneading, deep circular movements, vibration, and tapping. Sports massage is similar to Swedish massage, adapted specifically to the needs of athletes. Among the many other examples are deep tissue massage and trigger point massage, which focuses on myofascial trigger points muscle “knots” that are painful when pressed and can cause symptoms elsewhere in the body.

Hydrotherapy

Water in all of its forms, such as liquid, steam or ice, continues to be a therapeutic method of helping people feel better during stressful times in life. Hydrotherapy is a popular and effective way to help people ease life’s stressors. Research has shown a link between starting hydrotherapy and seeing a decrease in a person’s depression or anxiety levels.

The idea of hydrotherapy originated in the 19th century with Sebastian Kneipp’s water therapy practices designed to rid the body of toxins. Now, hydrotherapy is a widely used method to treat many different medical ailments or chronic issues, such as stress and chronic pain.

Aromatherapy Essential Oils for Stress Relief and Sleep. Scents are powerful a simple smell can immediately trigger a powerful memory, place, or person.

Essential oils like lavender have even been shown to react the same way biochemically that anti-anxiety medications do with certain neuroreceptors.

LavenderLavender essential oil is the most used essential oil in the world today. Today, lavender oil benefits for your body include the following:

lowers anxiety and emotional stress,Improve brain function Improve sleep. It’s relaxing to Spray some on your pillows.

Vetiver oil

Vetiver is known as a sacred herb valued because of its uplifting, soothing, healing and protective properties. It’s a natural body cooler making it extremely popular in tropical countries. In fact, in India and Sri Lanka it’s known as the “oil of tranquility.”

Ylang Ylang

This popular essential oil can treat anxiety and depression due to its calming and uplifting effects. Ylang ylang helps with cheerfulness, courage, optimism and soothes fearfulness. It may calm heart agitation and nervous palpitations and is a moderately strong sedative, which can help with insomnia.

Bergamot is commonly found in Earl Grey tea and has a distinctive floral taste and aroma. Bergamot oil is calming and often used to treat depression by providing energy; however, it can also help with insomnia induce relaxation and reduce agitation.

Chamomile

A peaceful, calming scent, chamomile benefits inner harmony and decreases irritability, overthinking, anxiety and worry. An explorative study conducted at the University of Pennsylvania School of Medicine on the antidepressant activity in chamomile found that this essential oil “may provide clinically meaningful antidepressant activity that occurs in addition to its previously observed anxiolytic activity.”

Yoga

Practicing yoga is proven to calm you It can lower your blood pressure, provide relief for chronic back pain and even relieve symptoms of anxiety and depression.

Check with your doctor if you have muscle skeleton issues before starting

Meditation

Anaturally hypervigilant brain is not well-suited to modern life and can easily turn into an anxious mind. If you want to overcome anxiety without medication, mindfulness meditation is a proven way to reduce anxiety and stress and improve your overall well-being. It does more than temporarily help you relax.

How to meditate: Simple meditation for beginners

1. Sit or lie comfortably. You may even want to invest in a meditation chair or cushion.

2. Close your eyes.

3. Make no effort to control the breath; simply breathe naturally.

4. Focus your attention on the breath and on how the body moves with each inhalation and exhalation.

5. Start with 5 minutes a day twice a day then build up to 15 minutes

Exercise

Stress is an inevitable part of life. Seven out of ten adults in the United States say they experience stress or anxiety daily, and most say it interferes at least moderately with their lives. Exercising Body and Mind

The physical benefits of exercise-improving physical condition and fighting disease—have long been established, and physicians always encourage staying physically active. Exercise is also considered vital for maintaining mental fitness, and it can reduce stress. Studies show that it is very effective at reducing fatigue, improving alertness and concentration, and at enhancing overall cognitive function. This can be especially helpful when stress has depleted your energy or ability to concentrate.

When stress affects the brain, with its many nerve connections, the rest of the body feels the impact as well. So it stands to reason that if your body feels better, so does your mind. Exercise and other physical activity produce endorphins—chemicals in the brain that act as natural painkillers—and also improve the ability to sleep, which in turn reduces stress. Meditation, acupuncture, massage therapy, even breathing deeply can cause your body to produce endorphins. And conventional wisdom holds that a workout of low to moderate intensity makes you feel energized and healthy.

Scientists have found that regular participation in aerobic exercise has been shown to decrease overall levels of tension, elevate and stabilize mood, improve sleep, and improve self-esteem. Even five minutes of aerobic exercise can stimulate anti-anxiety effects.

Prayer

When stress & anxiety’s got you in its grip, it’s hard to avoid worrying. But there’s a technique that can help. I call it “breathing prayer

Try this: Close your eyes and inhale slowly, imagining pulling the Spirit in so fully that it fills every pore of your body. Make sure your stomach expands; you want to be pregnant with peace. Exhale slowly through your nose.

You can pray while you do this (though if you’re anxious when you start, you probably won’t think of it until after a few breaths, when your head starts to clear). Simple prayers work best:

While inhaling

While exhaling

Come Holy Spirit…

fill my heart

Lord Jesus…

grant me your peace

Lord Jesus…

I love you

If you practice when you’re not in the throes of wild anxiety, it will be easier to pray this way when you are. But “breathing prayer” is a good addition to any regular prayer time. Anything that clears the head and calms the body frees us up to hear God better. And that’s what prayer is all about.

Always Check with your doctor if you have muscle skeleton issues before starting any yoga or exercise program.

Posted in Awareness, Coping with Stress, Drugs and Alcohol Abuse, Life, Energy, Faith, Life, Meditation, Mindfulness, Opinions, Pain, Positivity, Support Group, Hope, Uncategorized

Excuse Me Are You Drunk or High…

It saddens me to see men and women young and old become addicted to drugs and alcohol

I have lost so many friends because of both.

They went from smart individuals with great paying jobs to being homeless , liars and thieves and how terrible it usually ends in jail or worse death .

With all the information online and the news about drug addiction, overdoses, people having damage to their hearts brains memories because of drugs not just heroin but crack, coke, crystal meth, speed, downers pain pills, valuim, xanax, and yes I am including alcohol and weed.

How can smart people choose to go down such a dark black path that leads to destruction of their lives? And the lives of their family’s?

Do they not understand or care that it rips families apart.

I’m sorry I’ve had my share of pain both physical and emotional and heartache as well as loss , loss of both parents, loss of friends due to death due to disease or overdose or suicide, and I’m here to tell you you need to learn how to cope with life or your going to end up dead.

I’m lucky I guess I always knew how to cope sure not always productive but never destructive.

I see old friends who last year were making 80-100,000 a year now homeless and ruined by cocaine , alcohol and heroin.

Their families destroyed, all because they couldn’t cope with something or someone and started to use drugs or alcohol to bury their feelings and pain……

I’ve attended funerals of friends who died from eating to many somas or xanax that they went to sleep and never woke up.

Or an old classmate overdosed on heroin

Or was killed in a car accident because they were drunk.

Or ended up in jail because they couldn’t hold a damn job any longer and resorted to theft and some prostitution.

Or they are on disability because they fucked up their heart because of cocaine and or crack.

I’ve had friends die from suicide because they were so fucked up they had no idea that the problems they had were just temporary and chose to kill them self.

GET A GRIP PEOPLE!!

I mean we preach to our kids not to do this and yet adults feel they are above this. Wake up call…. YOUR NOT

And kids well kids and young adults have that not me and no fear attitude until the shit hits the fan… and it will sooner or later it will ….

And what about kids today. How can they even start on this shit? They hang out with losers ruining their lives before they even have a chance to live it.

Why do people feel the need to “party and or get high”?

Can’t you have fun with out it?

From what I see you still look fucking miserable and lost. And you sure look like hell so where’s the fun?

Grow up and wake the fuck up people

Drugs and Alcohol KILLS if you don’t think it will You your living a lie.

As holidays are here seems like everyone feels the need to celebrate something and that’s ok if you are a responsible. You don’t drink and drive. You. Know when to stop but some will overindulge with alcohol drugs or both and wind up with DUIs , Go to court and lose your drivers license, pay court costs, insurance rates skyrocket,attorneys fees possible jail time and let’s not forget possible death to you or someone else.

Plus you can and eventually will be come addicted either physically or mentally or both.

So be smart don’t drink and do drugs and for god sake don’t drive under the influence!!

Globally, alcohol misuse was the fifth leading risk factor for premature death and disability in 2010. Among people between the ages of 15 and 49, it is the first. .

In the age group 20–39 years, approximately 25 percent of the total deaths are alcohol attributable

So imagine if your in a room with 100 people 25% is 25 people that could die from alcohol.

Alarming!!

And stats are just as bad across the board when people use drugs!

And who the hell wants to willingly take Molly? Are people that stupid it’s called the date rape drug for a reason!

People will slip you this in your drink or lie and tell you it’s something else…

I’m just shocked at how dumb people are…..

if you think it can’t happen to you…it probably will …

Do why chance becoming and alcoholic or addicted to drugs?

Or killing you or done innocent person in a crash because you want to get high and try to escape reality….hopefully you know that drinking and drugs don’t make your problems go away….if anything they will make them worse…..

So all you adults and kids

Grow the fuck up get a grip! And get some help. Before you end up in jail or dead!!!

Detoxing from what I have seen others go through is a version of hell….

If your reading this and in recovery please share your words of wisdom in comments please. We need to save some lives!!

I see what it’s doing to your wife, or your husband or your parents or your old friends who are truly worried about you!!

Stories

For grown individuals

https://www.bible-knowledge.com/testimony-drugs-and-demons/

If your a teen or young adult your I don’t give a fuck attitude will get you killed or a life of pain and addiction which will lead to death.

http://www.couragetospeak.org/aboutus/couragetospeakstories.aspx

Maybe I just had more experience dealing with heartache and pain early in life and learned to cope better.

Just to name a few tragedies in my life

I remember watching my dad so many times as a young child age 8 having heart attacks open heart surgery nearing death. Fighting to live he didn’t drink he didn’t use drugs but his drug was cigarettes I remember being scared that my dad was going to die.

I saw him try so many times to get back to work but his heart wouldn’t allow it

He had his his 1st heart attack at age 39 and he didn’t use drugs he just had a bum ticker he sadly died at age 56 I was 25.

I watched my mother die at age 65

I had no brothers and sisters so I basically was now an orphan….

I was physically attacked in hs Thank God a friend saw it and saved me or I would have been raped.

I had an abusive first marriage I suffered joblessness homelessness and I never reached for drugs or alcohol to cope.

I smoked weed in hs for a brief moment I dreamt when I was older but I never abused it.

I stopped before I got in to deep.

I remember being in pain from a car accident in 2000 and all the doctors wanted to do was medicate me. At first I did what they said but I saw what it was doing to me… I was becoming depressed so I said screw them fired them .

I’m not against people in pain getting help I am against drug and alcohol abuse of any kind ……

Are we that lost and weak or ungrounded that we have to use substances just to cope?

Or is that your excuse!!!

I will pray for you to wise up !

Please call and talk to someone get help before it’s to late!!

How would you feel if you watched your friends head down the wrong path …would you watch them die? Or try to help them get help !!!

Posted in Arthritis, Avascular Necrosis, Bone Health, Cancer, Cardiovascular, Chronic Pain, Factor V Leiden, Great American SmokeOut, Heart Disease, Uncategorized

Great American SmokeOut

Every year, on the third Thursday of November, smokers across the nation take part in the American Cancer Society Great American Smokeout event. Encourage someone you know to use the date to make a plan to quit, or plan in advance and then quit smoking that day. By quitting – even for 1 day – smokers will be taking an important step toward a healthier life and reducing their cancer risk.

The American Cancer Society’s Great American Smokeout is an annual event that encourages smokers to make a plan to quit smoking .

The 42nd annual Great American Smokeout will be held today November 16, 2017.

About 36.5 million Americans still smoke cigarettes, and tobacco use remains the single largest preventable cause of disease and premature death in the world. While cigarette smoking rates have dropped (from 42% in 1965 to 15.1% in 2015), cigar, pipe, and hookah – other dangerous and addictive ways to smoke tobacco – are very much on the rise. Smoking kills people – there’s no “safe” way to smoke tobacco.

Quitting smoking has immediate and long-term benefits at any age. Quitting is hard, but you can increase your chances of success with help. Getting help through counseling or medications can double or triple the chances of quitting successfully.

Benefits of Quitting Smoking Over Time

It’s never too late to quit using tobacco. The sooner you quit, the more you can reduce your chances of getting cancer and other diseases.

Within minutes of smoking your last cigarette, your body begins to recover:

20 minutes after quitting

Your heart rate and blood pressure drop.

(Mahmud A, Feely J. Effect of smoking on arterial stiffness and pulse pressure amplification. Hypertension. 2003;41(1):183-187.)

12 hours after quitting

The carbon monoxide level in your blood drops to normal.

(US Surgeon General’s Report, 1988, p. 202)

2 weeks to 3 months after quitting

Your circulation improves and your lung function increases.

(US Surgeon General’s Report, 1990, pp. 193, 194, 196, 285, 323)

1 to 9 months after quitting

Coughing and shortness of breath decrease. Tiny hair-like structures that move mucus out of the lungs (called cilia) start to regain normal function in your lungs, increasing their ability to handle mucus, clean the lungs, and reduce the risk of infection.

(US Surgeon General’s Report, 1990, pp. 285-287, 304)

1 year after quitting

The excess risk of coronary heart disease is half that of someone who still smokes. Your heart attack risk drops dramatically.

(US Surgeon General’s Report, 2010, p. 359)

5 years after quitting

Your risk of cancers of the mouth, throat, esophagus, and bladder is cut in half. Cervical cancer risk falls to that of a non-smoker. Your stroke risk can fall to that of a non-smoker after 2 to 5 years.

(US Surgeon General’s Report, 2010 and World Health Organization. Tobacco Control: Reversal of Risk After Quitting Smoking. IARC Handbooks of Cancer Prevention, Vol. 11. 2007, p. 341.)

10 years after quitting

Your risk of dying from lung cancer is about half that of a person who is still smoking. Your risk of cancer of the larynx (voice box) and pancreas decreases.

(US Surgeon General’s Report, 2010 and US Surgeon General’s Report, 1990, pp. vi, 155, 165)

15 years after quitting

Your risk of coronary heart disease is that of a non-smoker’s.

(World Health Organization. Tobacco Control: Reversal of Risk After Quitting Smoking. IARC Handbooks of Cancer Prevention, Vol. 11. 2007, p. 11.)

These are just a few of the benefits of quitting smoking for good. Quitting smoking lowers your risk of diabetes, lets blood vessels work better, and helps your heart and lungs.

Life expectancy for smokers is at least 10 years shorter than that of non-smokers. Quitting smoking before the age of 40 reduces the risk of dying from smoking-related disease by about 90%.

Quitting while you’re younger will reduce your health risks more, but quitting at any age can give back years of life that would be lost by continuing to smoke.

Are there benefits of quitting that I’ll notice right away?

Kicking the tobacco habit offers some rewards that you’ll notice right away and some that will show up over time.

Right away you’ll save the money you spent on tobacco! And here are just a few other benefits you may notice:

Food tastes better.

Your sense of smell returns to normal.

Your breath, hair, and clothes smell better.

Your teeth and fingernails stop yellowing.

Ordinary activities leave you less out of breath (for example, climbing stairs or light housework).

You can be in smoke-free buildings without having to go outside to smoke.

Quitting also helps stop the damaging effects of tobacco on how you look, including premature wrinkling of your skin, gum disease, and tooth loss.

I quit 10 months ago after a family member had a heart attack and I had a stress test running in a treadmill that I passed but barely.

You owe it to yourself and to your family to live your best life.

I am so glad I quit. I breathe better , and although my bones still ache I don’t have the consent debilitating pain I had a year or two ago and I know that because I stopped smoking is a Factor.

Our home doesn’t stink of cigarette smell, our clothes our hair.

I actually hate the smell of cigarettes now and can’t believe I used to smell like that.

Give it a try…..

And here’s a note for all you weed smokers out there….

One of the few things scientists know for sure about marijuana and cardiovascular health is that people with established heart disease who are under stress develop chest pain more quickly if they have been smoking marijuana than they would have otherwise. This is because of complex effects cannabinoids have on the cardiovascular system, including raising resting heart rate, dilating blood vessels, and making the heart pump harder. Research suggests that the risk of heart attack is several times higher in the hour after smoking marijuana than it would be normally.

Thinking of chilling out kicking back and lighting up a joint?

Think again.

A new study from Boston’s Beth Israel Deaconess Medical Center and Harvard Medical School says marijuana increases the risk of having a heart attack within the first hour of smoking to five times that of non-smokers.

Posted in Ahlbacks Disease, Ancestry, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Eat Healthy, Factor V Leiden, Inflammation, Osteonecrosis, The Mighty

My Story From The Mighty

I have a rare, degenerative bone disease called osteonecrosis, or avascular necrosis (AVN). It is a painful, debilitating disease without a cure. Many doctors don’t know how to treat it. AVN essentially cuts off the blood supply to the affected bone and the bone begins to die, becoming necrotic.

“Osteo” means bone and “necrosis” means death. It is most often found in the hips, knees, shoulders, and ankles and sometimes spine. You may have osteonecrosis in one or more bones. It can strike at any age, any gender. In people with healthy bones, new bone is always replacing old bone. This process keeps bones strong and also happens when children grow or if a bone is injured. In osteonecrosis, bone breaks down faster than the body’s ability to make strong, new bone. If you do not get treatment, the disease worsens and the bones in the joints break down. You may not be able to bend or move the affected joint very well, and you may have intense pain in the joint.

For the newly diagnosed, here is some information I hope you will find helpful. First of all, you are not alone. We know what it’s like to first hear you have osteonecrosis. I recall I was in shock the day I was told, as I never heard of the disease. I was told it was “bone death” and it seemed like I was frozen in time and disbelief when I heard these words. So what the heck does all that mean? Am I dying?

The answer is no, but one or more of the bones are.

At the time, my orthopedist had told me nothing more and sent me on my merry way. Gee, thanks. I do wish there was more research on this disease, and maybe someday there will be. It’s sad when many doctors get frustrated because they don’t know all that much about the disease either. We definitely need more studies. To try and find answers, I rushed home and sought out my old friend “doctor” Google. I cried, got pissed off and wondered “why me?” Why was this happening to me? I was only 51 at the time, (I’m now 53), so I asked the doctor about the plan of action, in order to try and get on with my job and my life. I was told at 51 I was “too young” for knee replacement, so let’s wait until knee collapses,as they only last 10-15 years, so for now I would have to deal with it. I still haven’t had any surgery. I did have steroid injections, which later I was told can make it worse. Then I read steroids are a cause for Osteonecrosis!😳

strong>The doctors predicted the osteonecrosis came from trauma to my knee when I tore my meniscus exercising. (I always knew exercise was hazardous to your health!) It took me several weeks, if not months to really get over the shock of it all. I have learned now to accept it and just make the best out of it.< strong>I do plan on getting PRP injections as my AVN has changed very little in two years, although pain is greater. The MRI and X-rays show a slight change, which is a good thing, but the pain is really exhausting.< strong>Sometimes I see my pain as a sign of weakness or a personal defect I should be able to overcome, but deep down I know I have to be strong, as I deal with this pain every single day. Oftentimes, I try to ignore it and go about my day, but it’s not that easy. Even when I try to push it to the back of my head to focus on cleaning, cooking or work, the pain starts to scream again leaving me frustrated and at times defeated. This is when the issue of self-esteem can come into play, as I just don’t feel like the same kind, loving hard working person I know I am. It’s difficult with osteonecrosis to do what you want with your time, even when you try. Either one knee doesn’t bend, or your hip, so you become frustrated, as simple things like cleaning the bathtub are now challenging.< strong>AVN pain isn’t just constant pain, though that would be more than enough for anyone to handle. The truth is the pain can bring about other health issues, or is caused by an underlying health issue. When you are in pain it can be very hard to think beyond the pain and see the big picture. You may not realize it could be making you tired, sleepless, cranky, and ruining your concentration and self-esteem. Sometimes all of this can cause you to isolate yourself. If you love someone who is struggling with this rare disease, learn about the disease so you can recognize the symptoms easier. Try to show a little extra compassion, as you now know why they are feeling that way. After all, it could happen to you.< strong>Although I hate this being in limbo feeling, I am carrying on as best as I can and you can as well. My advice is to seek out doctors knowledgeable about AVN, check for underlying causes and eat a good, clean diet. Try to find ways to help ease your pain. Don’t stop living, but be more cautious and try not to over do it. You will have great days and days that may suck. You have to be able to forgive yourself on those days you aren’t able to do anything. Never allow your condition to get you so “down in the dumps,” you have a hard time crawling out.< strong>And lastly, it’s great to have a support group. It’s crucial. I have been fortunate to have family, friends and a whole community of others in similar circumstances. I started a support group and people from several countries with this disease have joined. While people in your family and friends might not be able to fully understand the disease, we do. We have it and you are never alone.< strong>To stay strong, something I always reference back to is this saying:< strong>Fate whispers to the warrior, “you cannot withstand the storm.”And the warrior whispers back,< strong>“I am the storm.”< strong> < strong>Update — it’s been 3 years since my diagnosis and 1 year+ since I wrote that article —I did have a Prp injection and it has helped. Diet and eating real food no processed has helped most of all. < strong>More info coming soon < strong>https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/?utm_source=search&utm_medium=site&utm_term=Osteonecrosis%2520< a href=”https://themighty.com/author/deborah-andio/”>Deborah Andio< strong>

< strong>I’m finding the new me. < strong>Stay tuned more to come …..

Posted in Ahlbacks Disease, Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Baking, Blessed, Bone Health, Breakthrough Crew, BreakThroughCrew, Candy, Cardiovascular, Chronic Pain, Clinical Trials, Croatian Family, Delicious, Desserts, Diagnosed, Disclaimer, Eat Healthy, Endocrinologist, Factor V Leiden, Family Tradition, Opinions, Thoughts, Uncategorized

Blogs

I think I will be starting a new blog just for recipes

Opinions? I really want your opinions

Since I am a health leader and advocate who lives with several chronic conditions

Should I focus on just that or have a mix

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Posted in Awareness, BreakThroughCrew, Clinical Trials, Diagnosed, Positivity, Uncategorized

Join The Breakthrough Crew

Become A member!

Who can participate?

Anyone and everyone! Patients, caregivers, healthcare professionals, and individuals who believe in the power of research to transform lives.

What does participation entail?

As an official Breakthrough Crew Ambassador, your role is to help achieve the above three core goals through the following (please note that completing each of the following is not a requirement; think of these as a list of friendly suggestions!):

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Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, exercise, Factor V Leiden, Food, Hacks, Happiness, Herbal, Inflammation, Life, Meditation, Mindfulness, Music, OA, Osteonecrosis, Positivity, Uncategorized, Vision

Various Relaxation Techniques

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The information provided on this website is for educational purposes only. By using the website you are participating at your own risk.

With so much stress that comes with having a chronic condition and the world we live in is full of several fast paced situations , hurry here, hurry there , doctor appointments, tests,people with little to no patience and they want us to move a bit faster!
Excuse You! But I have a bone disease and I am going as fast as I can.
People judging us
It can be overwhelming
It's no wonder at the end of a day we can't sleep.

I think personally everyone needs to learn how to just open our mind relax and chill a little.

Relaxation Techniques
Using the Relaxation Response to Relieve Stress

For many of us, relaxation means zoning out in front of the TV at the end of a stressful day.

But this does little to reduce the damaging effects of stress.

To effectively combat stress, we need to activate the body's natural relaxation response.
You can do this by practicing relaxation techniques such as deep breathing, meditation, rhythmic exercise, and yoga or chair yoga if you are challenged with Bone and joint issues.

Fitting these activities into your life can help reduce everyday stress, boost your energy and mood, and improve your mental and physical health..

What is the relaxation response? Well based on what I have read …
When stress overwhelms your nervous system, your body is flooded with chemicals that prepare you for "fight or flight."
This stress response can be lifesaving in emergency situations where you need to act quickly.
But when it’s constantly activated by the stresses of everyday life, it can wear your body down and take a toll on your emotional health.

No one can avoid all stress, but you can counteract its detrimental effects by learning how to produce the relaxation response, a state of deep rest that is the polar opposite of the stress response. The relaxation response puts the brakes on stress and brings your body and mind back into a state of equilibrium.
When the relaxation response is activated, your:
heart rate slows down
breathing becomes slower and deeper
blood pressure drops or stabilizes
muscles relax
blood flow to the brain increases

In addition to its calming physical effects, the relaxation response also increases energy and focus, combats illness, relieves aches and pains, heightens problem-solving abilities, and boosts motivation and productivity. Best of all, anyone can reap these benefits with regular practice.
How to produce the relaxation response
Simply laying on the couch, reading, or watching TV while sometimes relaxing isn’t going to produce the physical and psychological benefits of the relaxation response. For that, you’ll need to actively practice a relaxation technique.
Finding the relaxation technique that’s best for you may be interesting because there is no single relaxation technique that is best for everyone.
So I am going to touch base on a few and post their YouTube links below.

The right relaxation technique is the one that resonates with you, fits your lifestyle, and is able to focus your mind and interrupt your everyday thoughts to elicit the relaxation response. You may even find that alternating or combining different techniques provide the best results.

How you react to stress may also influence the relaxation technique that works best for you:

The “fight” response. If you tend to become angry, agitated, or keyed up under stress, you will respond best to stress relief activities that quiet you down, such as meditation, progressive muscle relaxation, deep breathing, or guided imagery.
The “flight” response. If you tend to become depressed, withdrawn, or spaced out under stress, you will respond best to stress relief activities that are stimulating and energize your nervous system, such as rhythmic exercise, massage, mindfulness, or power yoga.

The immobilization response. If you’ve experienced some type of trauma and tend to “freeze” or become “stuck” under stress, your challenge is to first rouse your nervous system to a fight or flight response (above) so you can employ the applicable stress relief techniques.
To do this, choose physical activity that engages both your arms and legs, such as running, dancing, or tai chi, and perform it mindfully, focusing on the sensations in your limbs as you move.

Deep breathing
With its focus on full, cleansing breaths, deep breathing is a simple yet powerful relaxation technique. It’s easy to learn, can be practiced almost anywhere, and provides a quick way to get your stress levels in check. Deep breathing is the cornerstone of many other relaxation practices, too, and can be combined with other relaxing elements such as aromatherapy and music. All you really need is a few minutes and a place to stretch out.
How to practice deep breathing
The key to deep breathing is to breathe deeply from the abdomen, getting as much fresh air as possible in your lungs. When you take deep breaths from the abdomen, rather than shallow breaths from your upper chest, you inhale more oxygen. The more oxygen you get, the less tense, short of breath, and anxious you feel.
Sit comfortably with your back straight. Put one hand on your chest and the other on your stomach.
Breathe in through your nose. The hand on your stomach should rise. The hand on your chest should move very little.
Exhale through your mouth, pushing out as much air as you can while contracting your abdominal muscles. The hand on your stomach should move in as you exhale, but your other hand should move very little.
Continue to breathe in through your nose and out through your mouth. Try to inhale enough so that your lower abdomen rises and falls. Count slowly as you exhale.

If you find it difficult breathing from your abdomen while sitting up, try lying down. Put a small book on your stomach, and breathe so that the book rises as you inhale and falls as you exhale.

Progressive muscle relaxation
Progressive muscle relaxation is a two-step process in which you systematically tense and relax different muscle groups in the body. With regular practice, it gives you an intimate familiarity with what tension as well as complete relaxation feels like in different parts of the body. This can help you to you react to the first signs of the muscular tension that accompanies stress. And as your body relaxes, so will your mind.

Progressive muscle relaxation can be combined with deep breathing for additional stress relief.
Practicing progressive muscle relaxation
Consult with your doctor first if you have a history of muscle spasms, back problems, or other serious injuries that may be aggravated by tensing muscles.
Start at your feet and work your way up to your face, trying to only tense those muscles intended.
1. Loosen clothing, take off your shoes, and get comfortable.
2. Take a few minutes to breathe in and out in slow, deep breaths.
3. When you’re ready, shift your attention to your right foot. Take a moment to focus on the way it feels.
4. Slowly tense the muscles in your right foot, squeezing as tightly as you can. Hold for a count of 10.
5. Relax your foot. Focus on the tension flowing away and how your foot feels as it becomes limp and loose.
6. Stay in this relaxed state for a moment, breathing deeply and slowly.
7. Shift your attention to your left foot. Follow the same sequence of muscle tension and release.
8. Move slowly up through your body, contracting and relaxing the different muscle groups.
9. It may take some practice at first, but try not to tense muscles other than those intended.

Mindfulness meditation
Rather than worrying about the future or dwelling on the past, mindfulness meditation switches the focus to what’s happening right now, enabling you to be fully engaged in the present moment.

Meditations that cultivate mindfulness have long been used to reduce stress, anxiety, depression, and other negative emotions. Some of these meditations bring you into the present by focusing your attention on a single repetitive action, such as your breathing, a few repeated words, or the flickering light of a candle. Other forms of mindfulness meditation encourage you to follow and then release internal thoughts or sensations. Mindfulness can also be applied to activities such as walking, exercising, or eating.
A basic mindfulness exercise:
1. Sit on a straight-backed chair or cross-legged on the floor.
2. Focus on an aspect of your breathing, such as the sensation of air flowing into your nostrils and out of your mouth, or your belly rising and falling.
3. Once you've narrowed your concentration in this way, begin to widen your focus. Become aware of sounds, sensations, and thoughts.
4. Embrace and consider each thought or sensation without judging it good or bad. If your mind starts to race, return your focus to your breathing. Then expand your awareness again.

Body scan meditation
This is a type of meditation that that focuses your attention on various parts of your body. Like progressive muscle relaxation, you start with your feet and work your way up. But instead of tensing and relaxing muscles, you simply focus on the way each part of your body feels, without labeling the sensations as either “good” or “bad”.
Practicing body scan meditation
Lie on your back, legs uncrossed, arms relaxed at your sides, eyes open or closed. Focus on your breathing for about two minutes until you start to feel relaxed.
Turn your focus to the toes of your right foot. Notice any sensations you feel while continuing to also focus on your breathing. Imagine each deep breath flowing to your toes. Remain focused on this area for one to two minutes.
Move your focus to the sole of your right foot. Tune in to any sensations you feel in that part of your body and imagine each breath flowing from the sole of your foot. After one or two minutes, move your focus to your right ankle and repeat. Move to your calf, knee, thigh, hip, and then repeat the sequence for your left leg. From there, move up the torso, through the lower back and abdomen, the upper back and chest, and the shoulders. Pay close attention to any area of the body that causes you pain or discomfort.
After completing the body scan, relax for a while in silence and stillness, noting how your body feels. Then slowly open your eyes and stretch, if necessary.
Rhythmic movement and mindful exercise
The idea of exercising may not sound particularly soothing, but rhythmic exercise that gets you into a flow of repetitive movement can be very relaxing. Examples include:
Running
Walking
Swimming
Dancing
Rowing
Climbing
For maximum stress relief, add mindfulness to your workout
While simply engaging in rhythmic exercise will help you relieve stress, if you add a mindfulness component on top, you’ll get even more benefit.
As with meditation, mindful exercise requires being fully engaged in the present moment—paying attention to how your body feels right now, rather than your daily worries or concerns. In order to “turn off” your thoughts, focus on the sensations in your limbs and how your breathing complements your movement.
If you’re walking or running, for example, focus on the sensation of your feet touching the ground, the rhythm of your breath, and the feeling of the wind against your face. If your mind wanders to other thoughts, gently return to focusing on your breathing and movement.
Visualization
Visualization, or guided imagery, is a variation on traditional meditation that involves imagining a scene in which you feel at peace, free to let go of all tension and anxiety. Choose whatever setting is most calming to you, whether it’s a tropical beach, a favorite childhood spot, or a quiet wooded glen.
You can practice visualization on your own or with a therapist (or an audio recording of a therapist) guiding you through the imagery. You can also choose to do your visualization in silence or use listening aids, such as soothing music or a sound machine or recording that matches your chosen setting—the sound of ocean waves if you’ve chosen a beach, for example.
Practicing visualization
Close your eyes and imagine your restful place. Picture it as vividly as you can—everything you can see, hear, smell, taste, and feel. Just “looking” at it like you would a photograph is not enough. Visualization works best if you incorporate as many sensory details as possible.
For example, if you are thinking about a dock on a quiet lake:
See the sun setting over the water
Hear the birds singing
Smell the pine trees
Feel the cool water on your bare feet
Taste the fresh, clean air
Enjoy the feeling of your worries drifting away as you slowly explore your restful place. When you are ready, gently open your eyes and come back to the present.
Don't worry if you sometimes zone out or lose track of where you are during a visualization session. This is normal. You may also experience feelings of heaviness in your limbs, muscle twitches, or yawning. Again, these are normal responses.
Yoga and tai chi
Yoga involves a series of both moving and stationary poses, combined with deep breathing. As well as reducing anxiety and stress, yoga can also improve flexibility, strength, balance, and stamina. Since injuries can happen when yoga is practiced incorrectly, it’s best to learn by attending group classes, hiring a private teacher, or at least following video instructions. Once you’ve learned the basics, you can practice alone or with others, tailoring your practice as you see fit.

If you’re unsure whether a specific yoga class is appropriate for stress relief, call the studio or ask the teacher.
Tai chi
If you’ve seen a group of people in the park slowly moving in synch, you’ve probably witnessed tai chi. Tai chi is a self-paced, non-competitive series of slow, flowing body movements. By focusing your mind on the movements and your breathing, you keep your attention on the present, which clears the mind and leads to a relaxed state.
Tai chi is a safe, low-impact option for people of all ages and fitness levels, including older adults and those recovering from injuries. As with yoga, it's best learned in a class or from a private instructor. Once you’ve learned the basics, you can practice alone or with others.
Self-massage
You’re probably already aware how much a professional massage at a spa or health club can help reduce stress, relieve pain, and ease muscle tension. What you may not be aware of is that you can experience many of the same benefits at home or work by practicing self-massage—or trading massages with a loved one.
Try taking a few minutes to massage yourself at your desk between tasks, on the couch at the end of a hectic day, or in bed to help you unwind before sleep. To enhance relaxation, you can use aromatic oil, scented lotion, or combine self-message with mindfulness or deep breathing techniques.

Starting a regular relaxation practice
Learning the basics of these relaxation techniques isn’t difficult, but it takes regular practice to truly harness their stress-relieving power. Most stress experts recommend setting aside at least 10 to 20 minutes a day for your relaxation practice. If you’d like to maximize the benefits, aim for 30 minutes to an hour.
Tips for making relaxation techniques part of your life
Set aside time in your daily schedule. If possible, schedule a set time once or twice a day for your practice. If your schedule is already packed, remember that many relaxation techniques can be practiced while you’re doing other things. Try meditating while commuting on the bus or train, taking a yoga or tai chi break at lunchtime, or practicing mindful walking while exercising your dog.
Don't practice when you're sleepy. These techniques are so relaxing that they can make you very sleepy. However, you will get the most benefit if you practice when you’re fully alert. Avoid practicing close to bedtime or after a heavy meal or alcohol.
Expect ups and downs. Don’t be discouraged if you skip a few days or even a few weeks. Just get started again and slowly build up to your old momentum.
If you exercise, improve the relaxation benefits by adopting mindfulness. Instead of zoning out or staring at a TV as you exercise, try focusing your attention on your body. If you’re resistance training, for example, focus on coordinating your breathing with your movements and pay attention to how your body feels as you raise and lower weights.

Here is a few links I use to
relax
reduce pain
help me sleep better

These are my favorites and I listen to it daily and a few I listen to now and then

Daily
Mindfulness
https://youtu.be/-2zdUXve6fQ

Stress Relief and Confidence
https://youtu.be/-KMngzCWgTw

Morning Meditation for Healing
https://youtu.be/q9ZR_CJhuLc

Reiki for pain relief
https://youtu.be/3nJtajgAb34

Relax Video Male Voice
https://youtu.be/_jD3VxSGM-k

https://youtu.be/oA_rY4N8XJA

Sounds for Anxiety depression
https://youtu.be/AmqDOA-JALg

Meditation Sounds for pain relief
https://youtu.be/XiNne25uMK8

To help you sleep
https://youtu.be/xQ6xgDI7Whc

Disclaimer
Usage Policy

The information provided on this website is for educational purposes only. By using the website you are participating at your own risk.
• Make sure you practise with enough free space around you. Wear comfortable clothing so you can move freely.
• Please take responsibility for your own body and include extra warm up and cool down stretches where appropriate.
• You should avoid alcohol and drugs before yoga and meditation. Also no heavy meals for two hours before practice. Keep yourself hydrated before and after your yoga practice.
• If you feel dizzy, light-headed, faint, or if you experience any other discomfort, stop exercising immediately and consult a medical doctor. You are responsible for your condition during your practice. Exercise within your limits. Never force or strain. Seek attention and advice as appropriate.
• We offer no medical advice. You should consult a medical practitioner before starting any new exercise regime. This is particularly important if you are overweight, pregnant, nursing, regularly taking medications, or have any existing medical conditions. This website may not be tailored to your current physical and mental health. We accept no liability whatsoever for any damages arising from the use of this website.
• We do not recommend that you attempt any of this or yoga exercises for the first time without suitable experience or supervision.
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Posted in Avascular Necrosis, Awareness, Chronic Pain, Inflammation, Life, Osteonecrosis, Support Group, Hope, Uncategorized

The Importance Of A Support Group


Living with chronic illness is incredibly challenging at times (understatement of the year!) You wake up with no pain then sudden pain,or you wake up in pain deal with all day pain. You can’t do this , you can’t do that. Because your body just won’t allow it. You have to be strong even when you don’t want to be. 
Then there are days you just want to say “I give up” and lay in bed because it’s the only place your bones and joints don’t hurt as much. That’s a slippery slope, that’s when depression wants to creep in and destroy you even further instead of physically now it’s effecting you mentally.

The answer is Support! You need to get in a good support group.

 Even if your immobile there are many groups on Facebook all you have to do search it. 


If you have Avascular Necrosis/Osteonecrosis your welcome to join us. 

https://m.facebook.com/groups/DeadBoneDiseaseAVN/

But having a good group of people in our lives on whom we can lean on, share with, commiserate with,can greatly decrease that challenge of depression setting in. 

So that’s why today over on my blog

http://www.ChronicallyGratefulDebla.com&nbsp;

 I’m writing about the importance of a good support system.

We really need them when it seems like the world is crashing down. But we also need them in the days we’re doing ok. 
Have you ever experienced the pain of rejection or just felt less of a person from the people you thought were there for you? 

Friends & Family either refuse to understand or just don’t want to be bothered by learning about the disease \ disorder.

Or your own brain starts thinking I’m useless, I can’t do anything like I used to. You need a support system! 

Many people who don’t have a chronic life, struggle to understand life with a chronic condition. I wish they did but honestly the only people that understand are those that also have chronic condition.

Some people including people you know, at some point may say really hurtful things out of pure ignorance like gee you don’t look sick, or wow your house is a bit messy today ,or what did you do today , or geez I wish I didn’t have to go to work anymore.
Or they blame you for your illness/ condition.
Well if ate better,exercised more maybe you wouldn’t be in this spot , or smoked less etc….

Just ignore them. Badgering you isn’t going to change your illness. You even wonder why did I tell them about your illness.
Yes, unfortunately some people should not be trusted with your feelings or the the truth about your pain.

 They just won’t understand. And it’s not up to you to keep explaining yourself.

But there are good listeners that offer you a good and safe support system,you just need to know how to identify them!

I really want you to get in a good support system , make it a priority, even if things aren’t too bad right now or you just been diagnosed and have no one to ask questions to. 
Get in a support group. 

You will be so glad you did. We can help you with any questions you may have , we’re here to listen, offer life experience, suggestions. We don’t offer medical advice as that’s between you and your doctor.

You can’t just expect everyone to be there for you in your struggle with illness. Let’s face it not everyone can handle it, and quite frankly not everyone will want to . And not everyone is worthy. 

How Will A Safe Person Make You Feel?

Do they make you feel comfortable being yourself? 
You should feel comfortable with who you are, flaws and all. No one should make you feel judged or less of the amazing person you are. If they do move on….

Do they make you feel energized? Ready to fight a good fight? Supportive people should nit suck the life out of you, leaving you feeling worn out.

They should make you feel more energized by the time they leave or hang up the phone. If you find a person exhausting, they should not be in your support system. 

You should find support from a variety of relationships. No one person can give us everything we need not even your spouse!.

Your Spouse

If you aren’t married or in a serious relationship, this obviously doesn’t apply. But if you are, your spouse can be the most immediate source of support in your life. 

Most of us live with spouses that don’t have an illnesses themselves, so they have a lot of learning to do in order to understand us. 

Your responsibility is to explain your condition and your struggles and what you would like from your spouse. Spell it out! 

They are not mind readers so don’t expect them to simply know or understand.However, don’t assume your spouse is able or willing to support you in this way. Unfortunately, some are not, but luckily there are other relationships that can be supportive.

Your Family

If you have people in your family, whether it’s a spouse, parents or cousins, they should be a part of your support system. Just be sure your relationships are healthy and helpful. 

Again, communication is key when it comes to family because they’ve known you so long. They may be relating to you based on assumptions, so be clear about your needs.

Your Friends

Ahh yes friends can be some of the best relationships to be part of your support system. You get to choose these people, and choose when to see them, when to talk to them. 
Just realize not all your friends will be a support for you, but one or two that will is great. 

Friends should be encouraging and understanding, and this should be mutual. 

Your Support Groups

The best people to understand what you’re going through are those who have experienced it themselves. 
That’s why support groups can be so helpful. Whether it’s through Facebook or a community center, others who are struggling as you do can help you through what they have already experienced 
They listen well, empathise, and offer advice when you want it. 

Chronic illness can often be very isolating, but support groups provide a like minded community. One word of caution for any online groups: when people aren’t interacting face-to-face they feel more comfortable saying whatever they want.

Just because people are in the group because of their experience with illness doesn’t mean they will be safe people. 
Always exercise caution when sharing in online forums. Make sure you’re aware of the risk of receiving unkind words and unwarranted advice.Some individuals can be just rude. 
I don’t tolerate mean people and people who bully others are just inconsiderate these people will be removed. 
I also have seen other groups where the leaders were the bullies. Get out if you join a group where the leaders are bossy,mean and or downgrading. No one needs that. We have enough to deal with. 

Your Pets

Who doesn’t love a dog or cat, bird, lizard whatever …that snuggles, they can be life savers dogs they get you out of the house for walks, and even help you meet people in your neighborhood. Time at home is much less lonely than it would have been before a pet enter your life. 
Pets can be the best part of a support system. For some therapy pets can be a crucial part of the ability to function. For others it can be therapeutic to have something to nurture. And they love us no matter how we look or feel. 
I personally don’t have a pet as they are not allowed in my building, but when I visit my family their 2 dogs are so lovable you can’t get bored when they are around. 
If you don’t have a pet and are considering one make sure you are prepared in how to care for it. Be sure you are physically able to do so. Also, I hope you consider rescuing one. 
I hope you find a good support system. If you have Avascular Necrosis/Osteonecrosis your welcome to join my fb group. 
https://m.facebook.com/groups/DeadBoneDiseaseAVN/

Have a great day. 

Posted in Avascular Necrosis, Eat Healthy, Osteonecrosis, RareDisease, Uncategorized

Osteonecrosis – The Pain and Learning What It Is

Welcome to ChronicallyGratefulDebla

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Hi and Thank you for dropping by :  I am Deborah L. Andio and I am new at this blogging thing so bear with me. I am starting this blog because I want to raise awareness  and share my experience since being diagnosed with several conditions

Osteoarthritis

Osteonecrosis in Knee from Trauma

Hashimoto Thyroiditis Hypothyroidism

Factor V Leiden

Spondylolethesis L 5 S 1
Im focusing today on Osteonecrosis

My Diagnosis

I  was diagnosed in 2014 after my was injured from exercising and I felt like I was stuck in the knee by lightening.

It dropped me almost to the floor so of course I called my doctor went in and he thought i may have torn my meniscus.  I tried pt for a few weeks and a couple cortisone injections over 3 months but it kept getting worse. The pain was nothing else I had ever imagined or experienced.

I insisted he stop giving me injections as its not helping  and I suggested he look to see whats going on in knee as its worse after several weeks .

He said we would get X-ray well that just shown up that my Osteoarthritis  hasn’t progressed thankfully. OK so that’s not worse yet my pain is so intense I can hardly concentrate  at times. It has me not able to work , at first I went  down to Part Time but now I can barely walk  feet with out feeling like a knife is being jammed in my knee….

I am now scared and go back to doctor and I am pissed off, I have to stick to my guns here and not allow him to dismiss me or my pain.

I broke down and asked him for something for pain and he looked at me as if I was some junky. I told him look I have been your patient for over  years I wouldn’t ask if I was not hurting a lot. I also told him if you would get off his ass and try to help me figure out why I’m still hurting maybe we can treat this correctly.

He apologized and said we need an MRI and he gave me a script for  pain pills.

A week later I get MRI and a few days later I go back to dr’s to hear results and he said I think we need to get you in to a orthopedic asap.

Ok well then lets go…

So days later was the soonest i can see this ortho

He immediately said I review you MRI and your knee looks like butter. Butter I ask thinking wtf is that mean….

He then told me I had osteonecrosis in my rt knee and eventually I will need a knee replacement, he also confirmed the medial meniscus tear of the femoral condyle.

I asked can we fix the meniscus he said no it would cause more problems. So I asked whats the plan of action he said when your knee collapses we will replace it until then lets give you a kenalog …..it will help pain . So I agreed.

So i got the shot and asked him so what is osteonecrosis he said it when the bone dies.

All I heard was death…..I got very scared I asked what was in that shot as my knee is on fire he said cortisone…….

I’m like no way those make my pain worse

He then suggest i return in a few weeks and shifted my ass out the door.

No personality no explanation of what was happening or what i could do to my knee nothing………another dismissive docttor..

I  get in my car and i just cried , what is happening to me. Will this pain ever go away ?  Why have i neverheard of this osteonecrosis before.

And that’s where I chose to become a leader and pioneer for this cause…

Its a rare condition but you can get it many ways  yet it falls under rare disease

For the next few months day in and day out I read, spoke to many doctors some knowledgeable and some I wouldn’t want fixing a stuffed animal let alone my knee.

I found ut that more doctors know very little about this than are knowledgeable…

Thats how my awareness and advocacy started for Osteonecrosis aka Avascular Necrosis.

My plans were to gather all my info start a support group not a gossip page but an actual page where you can learn, I wanted to list good qualified doctors and eventually write a booklet and book and I am proud to say I have done all but the book  but I am working on that.

I am proud of my booklet that/s finished i mail it free to members of my group to help them see they are not alone and they can share it with family friends and doctors and they also can gain real understanding of what we go through. Because unless you have , you have no idea how painful it is.

Song Of The Day   Rob Thomas Published on Oct 1, 2009 The official video of “Her Diamonds” from my album ‘cradlesong’.

 

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So help me raise awareness if you like my post come back often, subscribe and have others subscribe as well.

I will discuss many issues and health education on various subjects

Like Eating to fight pain

Treatments

Recipes

Diets

General stuff

I so appreciate you taking the time from your day to read this and hopefully join me regularly …

Butterfly Ribbon (3)_resized

Now if you dont know what osteonecrosis is

Read here  I wrote this awareness Booklet  this is what I share and I want you to learn about it also

AVN Awareness Booklet

Osteo meaning bone and necrosis means death .
Most commonly this occurs in the knee, hip, shoulder, ankle, elbow,hand ,wrist but also can occur really anywhere else in your body that you have a bone   or joint . Including the jaw and spin

I started a fb support group because I know so many are suffering worse than I am and I am determined to make a difference.
If you have Osteonecrosis aka Avascular Necrosis or know someone please share the link to the support group and this blog
The AVN /ON Facebook group above is a private group, which I administrate and I also have some fabulous women helping me run it as well.
 This is a wonderful forum to ask questions, give our experiences and ideas but not medical advice  and help connect with others from all over the world.
The formal name of my f b support group is
We like to talk and educate share stories and jokes funny pictures and experiences we are not a gossip group and we have rules.
We also require anyone wanting to join to answer  three questions if they fail to answer them they are denied.
My other links
Thank You and God Bless you and I hope you have a pain-free day
Much Love

Debbie

 

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Song In Blog –  You’re Gonna Be Ok (Lyric Video) – Brian & Jenn Johnson | After All These Years. I own no rights or the song I just find it supportive and Inspirational