Posted in Arthritis, Awareness, osteoarthritis, Osteonecrosis, Patient Leader, WegoHealth, WEGOHealthAwards, WEGOHealthAwards2020

I Am A Nominee In The WEGOHealth Awards 2020

I am so honored to share that I am a nominee in the WEGOHealth Awards for Best In Show – Community and Patient Leader Hero

#WEGOHealthChat #WEGOHealthAwards #PatientLeader #Osteoarthritis #Osteonecrosis #Grateful www,ChronicallyGratefulDebla.com and  https://avascularnecrosiseducation.com

 

My WEGOHealth Profile Link    Deborah Andio WEGOHealth Profile Link

Voting will begin in July and link will be posted then to vote.

Until then if you wish to nominate me or read about WEGOHealth or take the time to nominate other amazing hardworking Advocates please go to link below

WEGOHealthAwards Vote – Review Nominees – How It Works -The Judges

 

My Nominations

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Posted in awards,patient leader, Awareness

WEGOHealth Awards2019©

Wow I am beyond honored I’ve now also been

Nominated for Patient Leader Hero- Healthcare Collaborator – Rookie of The Year and Best In Show Blog

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Endorsements Now Open If You Would Like to Vote (link below)

I have been nominated for the past few years in various categories

Thank You for considering Endorsing my nominations

It’s deeply appreciated

My Profile and Info WEGOHealth Link

Avascular Necrosis-Osteonecrosis Education

FlexitarianForLife

My Links

https://avascularnecrosiseducation.com/

www.ChronicallyGratefulDebla.com

https://www.facebook.com/AvascularNecrosisEducation/

https://flexitarianforlife.wordpress.com/

 

https://twitter.com/debbiea001

https://twitter.com/OsteonecrosisMe

https://www.instagram.com/chronicallygratefulme/?hl=en

https://www.instagram.com/deborah_andio/

https://www.facebook.com/ChronicallyGratefulDebla/

 

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Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Hashimoto, Hypothyroidism, Life, osteoarthritis, Osteonecrosis, Pain, SPONK, Stem Cell, StopTheClot, Support Group, Hope, The Mighty, WegoHealth, WEGOHealthAwards, wellness

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today.

Here’s how you can also nominate others who educate, advocate and make a difference!

Click link below

WEGOHealth Awards and Nomination Info

WEGOHealth Awards Link To Information

Think about the advocates and influencers you see leading Facebook groups, blogging about their health journey, speaking up and giving insights to healthcare companies, presenting on national stages, and running Twitter chats.

Patient Leaders have started non-profits, published podcast episodes, and authored books – there is no shortage of Patient Leaders’ contributions to the world, so let’s recognize as many of them as we can for their talents, contributions, and commitment.

Feel free to add their names and web info also in my comment section! And they can get some recognition here to !

Have a Great Day Everyone

Posted in Ahlbacks Disease, Awareness, Bone Health, Chronic Pain, osteoarthritis, Osteonecrosis, Pain, SONK, SPONK, Stem Cell, Stem Cell Injections, Thoughts, WegoHealth, wellness

The Cost Of Knee Replacements

If you’re having trouble with your knees, you’re not alone.

I also have knee issues. I have Osteonecrosis and osteoarthritis and a torn meniscus all in the same knee.

And doctors are basically waiting for my knee to collapse to replace it.

Me I’m looking to avoid a collapse but at the 10k out of pocket cost it’s almost impossible. I’m talking stem cell injection.

Many people young and old alike are having many problems with their knees and ready to stop the pain.

Can you believe knee replacements have doubled in the United States from 2004 to 2014!

People want to have relief from their knee pain. The shouldn’t have to pas on a treatment that will work becz it’s not covered, or be stuck to live in pain until the knee collapses, then be forced to pay for a replacement.

One option that often comes up is knee replacement surgery.

However, it’s a very expensive surgery that includes a lot of pain and extensive physical therapy. And come on now let’s not forget they remove the end of the knee and replace it with artificial parts.

So let’s walk you through the true cost of knee replacement surgery so you have an idea of what to expect.

Pre-Surgical Consultation Fees

Individuals having knee replacement surgery can expect to incur costs long before actually being admitted to the hospital.

A pre-surgical evaluation or consultation must be completed by your orthopedic surgeon in order to see if an individual can even have the surgery. I think they do this for every surgery to make sure we are strong enough to handle the surgery and not die in the table.

I had umbilical hernia surgery in 2017 and had a cut scan , then a stress test, blood work. All for a 40 minute hernia repair.

Anyway………

This consultation will involve imaging X-rays and MRI’s ,then there is blood work, cultures, and panels.

Patients can expect their providers to also do the following:

Determine bone mineral density

Issue a liver function test

Do an EKG or EC

Possibly a stress test

Conduct a urine test

The consult determines what type of knee replacement surgery will be required PKR or TKR partial or total knee replacement.

Then the cost of the hospital stay and surgery costs.

Those who gave a knee replacement should expect to be in the hospital for at least 2-6 days.

During this time, the patient will require the help of many healthcare professionals.

The cost of the inpatient stay will largely be dependent upon the following:

Length of time in the operating room

Any preexisting conditions that require extra care

Type of implant

Surgical approach

Complications

Number of days in the hospital

Be prepared while in the hospital you will be paying for everything, every pill, glass of water, meals, physical therapy, nurses all of it

Many knee surgery candidates elect to have surgery overseas due to the large difference in cost. In some countries, knee replacement surgery is 50 to 80 percent cheaper than they are in the United States. But no always covered by insurance and it can be risky.

So say you have an 80/20 plan and your knee replacement is 45,000.00 your 20 percent is 9000.00

Now a stem cell injection is 8-10,000usd. Would it not be more cost effective and save the patient pain , and the actual loss of their own joint to just even cover a stem cell injection if the patient meets the criteria?

Even 60/40 would be a plus.

We have get insurance companies, medicare and Medicare to come into the real world. We have great medical technology it’s time the average person has access to it.

Living a life waiting for your knee to collapse is no fun, it’s poor quality and when there are alternative options that could help if you qualify why are we forced to suffer.!!

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Eat Healthy, Food Is Thy Medicine, OA, osteoarthritis, Osteonecrosis, Pain, Thoughts, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards

The Food Your Eating Could Be Making Your Pain Worse.

Before you take one more bite or swing into that fast food place stop and consider how it affects your health. I have osteoarthritis (OA) and Osteonecrosis and what I eat definitely effects my levels of pain and inflammation.

So I started to help myself by eating mostly plant based but I am a flexitarian.

Did you know research shows that diets high in saturated fat – found in red meat, butter, cheese, lard and processed foods – can weaken knee cartilage, making it more prone to damage.

In a 2017 study published in Arthritis Care & Research, researchers followed more than 2,000 patients with OA for up to four years, checking disease progression  and diet at yearly intervals.

Participants who ate the most fat, especially the saturated kind, showed increasing joint damage, whereas those who ate healthy fats like olive oil and avocados had little disease progression.

Another recent animal study showed that it even may harm the underlying bone, according to Yin Xiao, PhD, a professor at Queensland University of Technology in Australia and lead author of a 2017 study that looked at the effect of diet on OA.

For me I went to a mostly plant based lifestyle to help ease my pain from Osteonecrosis and Osteoarthritis in late 2016. And I know that I have less pain.

I’m not cured and there are still days when I feel like crap. But it’s not everyday all day like it was before.

We have to fight back

The solution is to change the way we eat. Switching to an anti-inflammatory or Mediterranean-style diet can help you significantly improve your joint pain , and help your heart and  brain health and the food tastes great.

An anti-inflammatory diet is heavy on fruits and vegetables, whole grains, fish and healthy fats like olive oil, avocados and nuts.

Poultry’s and fish are allowed  now and then and you can have one glass of red wine or beer a day. Off the menu, as you might expect, are sugar, red meat, and processed foods.

For me it’s also gluten because I have a sensitivity to it.

It takes a little work in meal planning but the benefits are worth it.

Stay tuned an example of what to eat will be in my next post.

Remember

The food you eat can be either the powerful and healing or a form of poison.

You are what you eat.

Have a fantastic day

Deb Andio

xoxo

References

https://www.sciencedaily.com/releases/2017/05/170523190029.htm

https://www.health.harvard.edu/nutrition/can-diet-improve-arthritis-symptoms

Posted in Adrenals, Awareness, Chronic Pain, Coping with Stress, Diagnosed, Ease your Stress, Endocrinologist, Hashimoto, Meditation, Mindfulness, Naturopath, Thoughts, Uncategorized, WegoHealth, WEGOHealthAwards

Adrenal Fatigue

I find that more I learn about Naturopath’s the more I trust them. They explain things better, they take time to listen to you,they think outside the box.

My Naturopath Dr Danni is great she listens, actively listens when you talk to her.

My endocrinologist hears but doesn’t really listen. This happens often.

He finally listened to me when I asked for a Thyroid Antibody rest because I had a feeling for years I had Hashimoto and hypothyroidism. I mean you can’t feel this exhausted and foggy for no reason.

But many just snubbed me thinking they knew more than I did.

I was also told by many MDs adrenal fatigue doesn’t really exist……really?

So I did some checking…..

What Is It?

The term “adrenal fatigue” was coined in 1998 by James Wilson, PhD, a naturopath and expert in alternative medicine. He describes it as a “group of related signs and symptoms (a syndrome) that results when the adrenal glands function below the necessary level.” He says it’s usually associated with intense stress and often follows chronic infections like bronchitis, flu, or pneumonia.

Wilson says people with it may not have any physical signs of illness but still may feel tired, “gray,” and have fatigue that doesn’t get better with sleep. They also crave salty snacks.

The Theory Behind It

Your body’s immune system responds by slowing down when you’re under stress. Your adrenal glands, which are small organs above your kidneys, respond to stress by releasing hormones like cortisol. They regulate your blood pressure and how your heart works.

According to the theory, if you have long-term stress (like the death of a family member or a serious illness), your adrenal glands can’t continuously produce the extra cortisol you need to feel good. So adrenal fatigue sets in.

There’s no approved test for adrenal fatigue. Blood tests can’t detect a small drop in adrenal production.

The suggested treatments for healthy adrenal function are a diet low in sugar, caffeine, and junk food, and “targeted nutritional supplementation” that includes vitamins and minerals:

• Vitamins B5, B6, and B12

Vitamin C

Magnesium

Probiotics and a variety of herbal supplements are also recommended to help your body make more cortisol.

Is It a Myth?

There’s no science to back it up. The Endocrine Society, the world’s largest organization of endocrinologists (people who research and treat patients with diseases related to glands and hormones), flatly says that adrenal fatigue is not a real disease. And it says the symptoms of adrenal fatigue are so general, they can apply to many diseases or conditions (depression, sleep apnea, fibromyalgia) or stem from everyday life.

And the society says some of the treatments can be dangerous. Improving your diet will probably make you feel better, no matter what ailment you have, but taking supplements to help your body produce extra cortisol if you don’t need them may cause your adrenal glands to stop working, it warns

What Else Could It Be?

Symptoms such as being tired, lacking energy, and sleeping all day long could be signs of depression, sleep apnea, fibromyalgia, or a condition called adrenal insufficiency.

What Is Adrenal Insufficiency?

Unlike adrenal fatigue, this is a recognized disease that can be diagnosed. There are two forms of this condition, and both are caused by damage or problems with your adrenal glands that result in them not making enough of the hormone cortisol.

Symptoms of both forms include chronic fatigue, loss of appetite, muscle weakness, weight loss, and stomach pain. You might also have nausea, vomiting, low blood pressure, diarrhea, depression, or darkening of the skin.

Adrenal insufficiency is diagnosed with a blood test that checks to see if your cortisol levels are too low. If you have it, you’ll need to take a hormone replacement.

This taken from Web MD

Hmmmm so I personally don’t agree with all of that.

*Let’s read what a Naturopath says*

Adrenal Fatigue Explained

By Catherine Clinton, ND, Clinic of Natural Medicine

Questions about fatigue are some of the most common that naturopathic physicians hear from patients. We all become run-down now and then due to the stresses of everyday life and the demands of our busy schedules. Over extended periods this can overburden our bodies, creating a situation that’s not so easy to bounce back from. In particular the adrenal glands, being in charge of the release of various stress hormones, can become exhausted and unable to effectively do their job. This is referred to as “adrenal fatigue.” When this happens our fatigue can become chronic and be joined by other symptoms such as pain and inflammation.

The adrenal glands have many functions, including the secretion of cortisol and other hormones in response to stress. Stress can come from an emotional trigger like a fight with a loved one, trouble at work or a physical trigger like an injury or motor vehicle accident. When prompted by pain or inflammation cortisol is released from the adrenal glands into the blood. Cortisol modifies the inflammatory pathways resulting in a decrease in inflammation and pain. When a drop in blood sugar occurs cortisol is secreted to help balance the levels of sugar in the blood. Cortisol is also released from the adrenal glands in a 24 hour daily rhythm with a burst in the morning to help us awake and a decrease in the evening to help us sleep. When adrenal glands are required to secrete at high levels for extended periods of time due to prolonged stress, pain, or blood sugar imbalances, they can become fatigued or begin to secrete cortisol at lower levels. When this occurs it is common to see an increase in fatigue, pain and/or inflammation.

Naturopathic physicians usually test adrenal function with a salivary cortisol test. From this test naturopaths can effectively diagnose and treat adrenal issues. Some common treatments for the adrenal glands include:

• Rhodiola: This botanical has been extensively researched in Russia for its ability to increase physical stamina and increase the body’s resistance to stress. It is categorized as an adaptogen by Russian researchers due to its observed ability to increase resistance to a variety of chemical, biological, and physical stressors. Naturopathic doctors use it in adrenal fatigue treatments to combat stress and increase energy.

• Ginseng: The three ginsengs; Siberian, American and Asian, are all used to treat adrenal issues. Research shows that they increase energy, stamina, and reduce stress. A recent study in 2003 demonstrated how ginseng can effectively help to maintain healthy blood sugar levels as well.

• Stress management: With adrenal issues stress management is vital to any treatment. Proper sleep, stress reduction techniques such as deep breathing or meditation and exercise can all increase the body’s ability to handle stress.

• Nutrition/Blood sugar regulation: Eating a diet rich in fruits, vegetables, whole grains and legumes that provides antioxidants and nutrients is essential for adrenal health. The adrenal glands need a good diet rich in B vitamins, vitamin C, zinc and magnesium. Eating quality protein at each meal allows the body to maintain healthy levels of blood sugar without taxing the adrenals. Treating adrenal fatigue must address the diet and nutrition of the patient.

Addressing adrenal issues can have profound effects in patient’s lives. As with any medical treatment you should contact your local naturopathic physician to receive a treatment plan that fits your individual needs.

•Adrenal Fatigue

by Jennifer Abercrombie ND | Mar 11, 2013 | Articles By Our Doctors |

Do you feel exhausted in the morning or all day long, gain weight despite good diet and exercise habits, have difficulty sleeping, can’t get through the day without caffeine, have chronic gastrointestinal infections, retain excess water, have difficulty concentrating, suffer from multiple allergies, feel run down or worn out, have heart palpitations, or experience severe PMS? All of these can be caused by adrenal fatigue.

What are the adrenals?

You have probably heard about the adrenals as they are getting a lot of press lately, and for good reason. The adrenals are a big regulator in the body. They control stress and inflammation; they release hormones that control blood pressure (aldosterone), and DHEA and pregnenolone that convert to cortisol and sex hormones. Our bodies are designed as if we were still living in the era of cavemen. The stress response is designed to be a fight or flight response. Imagine you were just seen by a tiger in the wilderness, your adrenals release a relatively short burst of adrenaline that gives you heightened awareness and prepares your body to start springing if needed. But adrenaline is short lived in the blood so the adrenals then release cortisol to give you the capability to have a longer sustained muscle capacity and mental acuity to evade the tiger. Because the release of adrenaline and cortisol dramatically affect all systems in the body for the goal of saving your life from an acute threat, the body requires a period of rest and relaxation for the stress response to relax and for normal physiology to resume. This system isn’t created for the modern era where we have consistent stressors on a daily basis that do not allow the stress response to relax and recover.

What is “stress”?

Stress is more than just emotional and psychological. It can be physical such as inflammation, environmental toxins, and infections (viral or bacterial). Triggers for creating a stress response results from a poor diet that is high in simple carbohydrates and sugars, low or high blood sugar, lack of sleep, lack of exercise, menopause or andropause, environmental toxins, hormonal birth control, long term steroid use (they suppress the adrenals), street drugs, consistent stimulant use (coffee), hypothyroid state, and genetics. If your parents at conception had depleted adrenals and especially if your mother had adrenal dysfunction while she was carrying you in utero, you may be predisposed to having adrenal issues.

When stress becomes chronic

If any of the stressors become chronic and persist without giving the adrenals and the body a chance to recover, a sustained amount of cortisol is released. Too much cortisol suppresses the immune system. This is a natural defense as you don’t want to be exerting precious energy to fight off a viral infection while you are running away from the tiger.  The side effect is that you are left more susceptible to infection. When the stress stays for weeks to months, cortisol starts to get depleted as your adrenals burn through the nutrients that make cortisol. Too little cortisol from exhaustion, allows the immune system to run unchecked, resulting in increased inflammation. A heightened state of inflammation is implicated in advanced aging, hypertension, irritable bowel disease, high cholesterol, heart disease, depression, chronic disease, any autoimmune disease triggers, progressing cancers, and it creates a rocky transition into menopause.

Basic Treatments

Because everyone is an individual and the factors that create adrenal fatigue are a unique combination for each person, there is no one perfect treatment. Each person is going to require a different treatment plan. With that said, here are some basics:

• A modified GAPS/Paleo/Anti-Inflammatory diet that is specific to you

• Minimize simple carbohydrates, sugar, caffeine, and recreational drugs. Marijuana may relax you, but when used for stress management you don’t learn how to process stress properly and may become dependent on it and use it as a crutch.
• B Vitamins: whole grains, beans, peas, nuts, dark leafy greens
• Vitamin C: Fruits and veggies, especially papaya, cantaloupe, strawberries, bell peppers, broccoli, tomatoes, dark leafy greens
• Magnesium: Dark leafy greens, whole grains, nuts, seeds, legumes
• Zinc: Meats, seafood, poultry, pumpkin and sesame seeds, nuts, whole grains
• Fat: Good fat (including saturated fat) is needed to make cholesterol which makes DHEA, pregnenolone, and cortisol. Good sources are: organic meats, coconut oil, nuts, seeds, organic unsalted butter, avocado, and olive oil
• Water: Stay hydrated with clean, filtered water
• Sleep: A regular, consistent sleep pattern
• Light and exercise: Go outside, feel the sunshine, and to move the body
• Re-assess: Re-evaluate the stress in your life and any negative relationships. Find out how you can make changes to lower stress
• Connect with others: Foster and build strong, supportive relationships in your life
• Don’t over do it: Even when you are starting to feel strong, don’t burn yourself out with too many daily tasks, too much on the social calendar, or over-exercising
• Release: Find a way to release your stress. Examples include meditation, journaling, hiking, surfing, beach combing, walking barefoot in the sand, etc.

What bothers me the most is that MDs think that Naturopathic medicine is new , however most people don’t understand how long it’s been around.

I will write in this in the next few days.

Reference links

http://www.nawellness.com/adrenal-fatigue/

https://www.naturopathic.org/content.asp?contentid=314

https://www.webmd.com/a-to-z-guides/adrenal-fatigue-is-it-real

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Coping with Stress, Eat Healthy, Energy, Hashimoto, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Pain, Plant, RareDisease, SONK, spondylolisthesis, SPONK, Thoughts, Thyroid, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards, wellness

The Path To Wellness Isn’t Easy

How many tines do you feel like for all your good intentions and healthy changes to behavior , you’d like to feel a bit more happy or healthy or have more well in your #Wellness goal?

Well, you’re not alone.

Why is it that despite all the meditation , eating healthy, exercising as best as you can especially if your suffering from chronic pain or a chronic condition , eating kale making smoothies and protein shakes, you seem to spend most days feeling run-down and uncomfortable?

For me that’s Hashimoto thyroiditis.

Plus my adrenals are fatigued making my already slow thyroid work even harder. It just gets so tiring.

I miss that none stop energy I had. I was able to work 8-10 hr days come home get dinner , clean our pool with my husband, have a small patio garden, clean the house , shop etc…..

Now I am exhausted after I do some errands and ride my recumbent bike for 15-20 min.

Again I’m told it’s the Hashimoto

I get sick of mixed messages one Dr. says one thing and the other says another.

I have been told I don’t eat enough. I have been told I eat to much

Drink more water – yes this one is true and I’m working on it.

Eat this

Don’t eat this

High carb

Low carb

Eat your greens , don’t eat your greens

I just get so sick of it .

I know how to eat healthy, I never really ate horrible. I gained weight first after my mom died. Because food soothed me at the time. I was grieving. I knew I wasn’t eating how I should back then.

After working through that and trying to exercise nothing.

Still tired , still carrying a few extra pounds

I tried Atkins and it was just for me more meat than I cared to eat.

I tried a few other things and same ok same ol.

A few year ago I bought some dvds and worked hard and I mean hard.

So hard I tore my meniscus leading to osteonecrosis in the knee that already was a pain in the ass by having osteoarthritis.

And I won’t mention how bad spondylolisthesis pain is.

I have always been a veggie lover. And I prefer veggies.

You’d think switching to plant based would have blasted any fat off me sine it’s been a year plus.

Nope I lose 5 here 10 there then gain 2 back. Over and over.

Again I’m told it’s my Hashimoto

I’ve had hypothyroidism for 20 years and the levothyroxine always made me feel like crap.

No one ever listened when I told them this. I remember telling my Dr. I feel like my body is fighting against me. Most of just looked at me.

Here I was right my body was attacking me.

That’s Hashimoto – I found this out maybe a month ago.

Finally I feel vindicated !!

Even before I went to plant based I didn’t eat horrible.

Sure 1 night or 2 was fast food but not the golden arch kind. Fast food to me meant I was not cooking. I would buy baked fish or on occasion a good spaghetti dinner.

It was going to decent restaurants ordering dinner.

Yes I know they have a shit load of salt in them. But that can’t be the only thing keeping this damn weight on.

Maybe someday these restaurants will get with it and cut their salt by at least half.

And then there’s adrenal fatigue

So what is Adrenal fatigue?

Adrenal fatigue is a potential result of not eating enough and or not eating enough of the “right” foods and the hormone imbalances that creates. While many people don’t fully understand it, the theory is simple it will make you feel tired.

I learned all this from my Naturopath and the Registered Dietician I see.

‘Adrenal fatigue is also a big topic  which comes from calorie restriction for too long throughout the year.

‘Calorie restriction is fine for short periods of time but unfortunately people are looking for body fat loss 12 months a year and the body hates that. Your body is smart and will adapt, so goals become very hard to reach in that state.’

Now What is Hashimoto?

Hashimoto is a condition that arises when the immune system attacks – and damages – the thyroid gland.

Over time, the thyroid gland, which straddles your windpipe at the front your neck, becomes unable to produce enough thyroid hormone so it becomes under-active.

As one of the primary functions of thyroid hormone is to keep your cells – and you – active, if you have insufficient amounts of the stuff, your body will slow down.

Say hello to tiredness and tighter fitting clothing.

“Hypothyroidism is a slow burner and it very easily can go undetected, and often misdiagnosed as depression.

Hashimoto cannot be cured but, symptoms can be managed with medications, designed to rebalance the levels of thyroid hormone in the body.

Did you know 75% of people with Hashimoto are lactose intolerant? some people also find that avoiding gluten can help.

Well I meditate to help manage stress , I cut out daily and I am working on the gluten free area. Some days are harder than others.

A few ways I’m learning to alleviate Hashimoto symptoms through diet.

1. Support the thyroid -This means stripping your diet back to basics – Reduce your consumption of caffeine, sugar, alcohol and refined carbohydrates, which are common triggers for thyroid problems.

2. Avoid Soy

Steer clear of soy products such as soy sauce, tamari and miso,” even the fermented, organic and non-GMO types. “They can impact your cell receptors and disrupt feedback through your hormone system.

3. Eat greens in moderation

It might sound counter-intuitive but, when it comes to thyroid problems, these act as goitrogens this means they interfere with the uptake of iodine by the thyroid gland and, therefore, the production of thyroid hormones.

“I’m a big fan of green veggies so don’t feel like I can never have them,

I enjoy vegetables in the brassica family (broccoli, cauliflower, some kale and Brussels sprouts) cooked well rather than raw, as heat inactivates the goitrogenic compounds.

Other foods to watch out for? Soybeans, millet, strawberries, peanuts, turnips and watercress.Everything I love.

4.Time to love my Adrenals

High cortisol (which is pumped from the adrenals) is directly linked to lower thyroid function so managing stress levels is essential.

5. I take a probiotic every day.

6. I am a flexitarian so I will eat meat or fish 1x a week.

So I have learned meditation, qigong, I love walks in nature and time switched off from social media. People actually get pissed off at me when I don’t respond right away!! I mean really ?! I also practice deep-belly breathing every day.

I am still tired just not totally exhausted.

I just want to feel better get this weight off because that will help my bone conditions also.

I hate feeling like this. I’m sick of feeling so tired.

I’m a happy person who likes to stay busy.

I shouldn’t feel so tired by 3pm

I get frustrated because I am sick of carrying this extra weight around.

My Naturopath feels I’m biking to hard. And suggested I slow the pace down and go longer.

So I bike longer slower , I like it better. I’m not as tired afterwards.

So tweaking more things.

I hope someday I find that sweet spot that revs up my thyroid helps the adrenals and I can feel great and get this fat off my ass once and for all.

I will continue to eat mostly plant based. The other benefit it has is it’s helped my bone pain . I still get it just not 24/7

I do love to meditate and I also enjoy qigong.

One day at a time is all we can do.

Well here’s to wellness!!

Have a great day.

Deb Andio

Posted in Ahlbacks Disease, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Factor V Leiden, Inflammation, Osteonecrosis, Pain, Rare Disease Day, RareDisease, SONK, SPONK, The Mighty, Uncategorized, WegoHealth

Rare Disease Day Is Today

Rare Disease Day 28 February 2018

#ShowYourRare

#AvascularNecrosis

#Osteonecrosis

#RareDiseaseDay

Debbie in TheMighty2016

https://themighty.com/2016/07/receiving-an-osteonecrosis-diagnosis-what-to-know/

http://www.ChronicallyGratefulDebla.com

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Cardiovascular, Chronic Pain, Coping with Stress, Diagnosed, Eat Healthy, Energy, exercise, Factor V Leiden, Food Is Thy Medicine, Heart Disease, Hypothyroidism, Inflammation, Life, Mindfulness, osteoarthritis, Osteonecrosis, Positivity, SONK, StopTheClot, Thoughts, Uncategorized, Vision, Weather, WegoHealth, Winter, Women

1 year ago I decided to take my health back

Happy Anniversary To My Health….

I was always pretty healthy ….until I wasn’t.

I gained weight , injured my knee gained more weight was diagnosed with one thing after another and it was really exhausting.

First osteoarthritis and hypothyroidism at age 45

They torn meniscus age 51

Then thanks to the meniscus tear Osteonecrosis set in my knee….

Then she 53 diagnosed officially with spondylolisthesis and a bilateral pars fracture

I had the spondylolisthesis before but my former PCP never told me I had it. But I seen it on an old Mri.

The pain every where was exhausting and some days it still is.

But I decided the heck with all these doctors and I decided to eat mostly plant based but I do still eat chicken fish or turkey now and then and rarely beef.

I ride my recumbent bike 2x a day and I walk when I can. And some days even when I should rest I go walk anyway.

Today’s pictures and videos are from my morning walk : and it’s also one year ago I quit smoking……so it’s a great day !

Pain or no pain I’m not going to just sit around.

Sitting is death

Moving is life

And ya know after I’m done I feel so much better.

1 year since I’ve quit smoking after being a smoker for 40 years. My lungs are feel better my walking speed has improved my distance has improved

1 year since I started eating a healthy mostly plant based but I’m not a vegan and it’s good clean healthy real colorful food . I am using food as medicine in a way to fight pain and inflammation . Now sure I eat a cookie or 2 now and then just not every day. And all my other choices are good so I don’t deprive myself of a treat now and then.

And for having Osteonecrosis,Osteoarthritis, Spondylolisthesis with a bilateral pats fracture in my L5 S1 I feel pretty darn good today even in this cold weather.

Just need to drop some weight one step and one day at a time.

I have taken my life back and no one is going to stop me !

Tomorrow I may be in pain and that’s ok. I can accept that but as long as I know I am doing all I can to combat my pain and keep my body moving and providing it with the best nutrients possible(most of the time)

It’s a win win for me ,one day at a time !

Keep your meds , keep your cigarettes keep your junk fast food.

Body Heal Thy Self

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Clinical Trials, Diagnosed, Eat Healthy, Eye Exam, Factor V Leiden, Flush not Blush, Inflammation, Life, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Recipes, Stem Cell, StopTheClot, Uncategorized, Vision, WegoHealth, WEGOHealthAwards

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Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Happiness, Mindfulness, osteoarthritis, Osteonecrosis, StopTheClot, Uncategorized, WegoHealth

Walk To Be Spontaneously Happy

Walking is an ideal daily exercise for a wide variety of reasons – including its beneficial impact on body, mind and spirit!

Walking as a way to get daily exercise, it can help strengthen major organs in the body, promote bone density , boost the immune system, lead to a more positive outlook and more.

If your new to exercise always clear it with your doctor. Don’t over do it. Gradually build up to it.

I gave bone problems Osteonecrosis,Osteoarthritis and Spondylolisthesis. I was told to limit my weight bearing but just standing is weight bearing, and then one doctor told me exercise all I want it will help your knee collapse faster !! WTH needless to say he was fired.

But I do need to move.

I started out with 10 minutes after a couple weeks 15 minutes snd so on.

Some days I can walk 40 minutes other days 15 depends on pain level.

When I’m in a lot of pain which usually comes with winter and cold months.

I ride my recumbent bike at least 15-30 minutes a day.

But walking clears the head, gets us in touch with nature it gets me from a funk to happiness

Spontaneously Happy

I used to love winter now because of my bones I really dread it.

If you can’t walk , if in a wheelchair or scooter getting out in nature is still good for the soul.

Photos and Video I took in Millcreek Park in various locations of park .

I really miss hiking : but for now walking will do.

Posted in Arthritis, AtomicBlonde, Avascular Necrosis, Awareness, Bone Health, Chronic Pain, Diagnosed, Disclaimer, Factor V Leiden, Flush not Blush, Happiness, Inflammation, Life, Meditation, Mindfulness, OA, Osteonecrosis, Positivity, Rosacea, Stem Cell, Support Group, Hope, Uncategorized, WegoHealth

From Optometric Tech /Optician To Professional Patient & Patient Leader

If you have a chronic condition or illness you may already know and understand what it feels like to be a professional patient.

Between the physical pain and symptoms and emotional symptoms, the constant doctor appointments in search of that one person knowledgeable enough to help vs refer you to yet someone else and the numerous tests and procedures (not to mention having to keeping track of all of it & all the bills that go with it ) having a chronic condition can become a full-time job and to be honest it’s more exhausting than a good day’s work.

Speaking of work.
You may find yourself needing to cut back on hours at work , go to part time or stop working altogether.

Although this may be a necessity for you and your health, other people don’t always understand why you’re not working.
They may have these crazy misconceptions that you’re now somehow slower , lazy on vacation or lucky not to have to go to work .

Those of us with chronic conditions know, this is so wrong .
And we need to say this for those who don’t understand what we feel or go through. Maybe then people will be less judgmental.

So here is what most people don’t know or understand about not working due to chronic condition or illness.

I personally would much rather be at work.
People look so surprised when I tell them that, some act as if I’m off on some luxurious vacation.
They have no idea that I’m probably home.

So yes, I’d rather be at work because being at work means I’m healthy again.

Logically I know that one good day doesn’t mean I have to ability to hold my full time job again , but its nice to hope I will be back to work someday.

I wish people knew how much I miss my job. I stayed far longer than I should have and probably did more damage to my knee than I needed to, because it was such an important part of my life.

I lost 90 percent of my social life when I left my career and now being at home mostly all day every day is incredibly isolating, not to mention how guilty you feel not doing your part. Every day I hope that I’ll be able to work again someday soon , there are only so many episodes of a tv show a person can watch , I am writing a book and I do take classes.

Being on disability and trying to get the best treatment is a full-time job.
I fill out paperwork constantly new doctors , more questions than answers.

Researching new treatments and the cost only to find great new Like about stem cell injections helping my Osteonecrosis but then being let down seeing that it’s 5-10k and never covered by insurance.

Then the frustration and sadness sets in because I live in America and I paid into Medicare and my share of taxes. And yet the government continues to hold up proven treatment that could help tens of thousands and yet some countries allow the cost of stem cells for their patients.

I also think many people see me and because I wear a little makeup and curl my hair, I think she doesn’t look disabled or ill. They don’t see me on the days I can barely move .
The days I need help going to the store because it gets so cold in the winter here in Ohio I am literally like concrete and in a great deal of pain.
Thank God Giant Eagle grocery store has a new shop for you curbside express.
You will be utilizing it this winter.

I try to be positive even when I’m in pain. I have a disease that is called Osteonecrosis due to trauma to the bone which has left me with a lack of blood supply to the knee.If you don’t have AVN/ON you won’t ever understand my pain.
I also have Spondylolisthesis L5S1 spine issues.
And Osteoarthritis another painful bone condition then add Spondylolisthesis,Hypothyroidism and Rosacea to the mix

Even though I get disability I do feel guilt now and then. I feel like I’m not contributing financially to my marriage and to be honest I miss working and making my own money.

My husband reminds me that he loves me and I would be doing the same for him if it were reversed and he’s right.

Being home all the time can be really lonely. If I had the energy and the physical stamina to be out and work, everyday life would be more fun again.

The isolation from limited human interaction is challenging so I started to take a few classes here or there, attend a seminar for this or that and meet new people. I’m going to be a health coach.

I find things to keep me and my mind busy.
I have a support group for Osteonecrosis.

I find that the spondylolisthesis is the more st painful of the few conditions I have, and the pain from Osteonecrosis is being managed mostly but it has its flares.

Osteoarthritis the stiffness is really indescribable.

But I make my own pain rubs and herbal remedies you can find many in this blog. But more will be in my book.

I became a patient leader and advocate.
I wrote a booklet about the Avascular Necrosis/Osteonecrosis
And I blog and I’m writing a regular ebook and it should be completed by the end of the year.
link to blog ChronicallyGratefulDebla.com

I would love to find a decent work from home job.

Trust me, I would love to hold down a regular job in the optical field again.

No one realizes that a job does more for you than just pay your bills. It is part of what gives you self-esteem.

People always want you to be there for them, but are they ever there for you? Most of the time no.

I’m bored out of my absolute mind. I loved working and until my pain got bad, my job actually took my mind off it for the most part.

So next time you see your friend or family member that’s on disability don’t envy them.

Maybe remember to call them a little more often.

And let’s hope someday the government will help people get their life back by adding stem cell injections to all forums of insurance.

Posted in Avascular Necrosis, Eat Healthy, Osteonecrosis, RareDisease, Uncategorized

Osteonecrosis – The Pain and Learning What It Is

Welcome to ChronicallyGratefulDebla

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Hi and Thank you for dropping by :  I am Deborah L. Andio and I am new at this blogging thing so bear with me. I am starting this blog because I want to raise awareness  and share my experience since being diagnosed with several conditions

Osteoarthritis

Osteonecrosis in Knee from Trauma

Hashimoto Thyroiditis Hypothyroidism

Factor V Leiden

Spondylolethesis L 5 S 1
Im focusing today on Osteonecrosis

My Diagnosis

I  was diagnosed in 2014 after my was injured from exercising and I felt like I was stuck in the knee by lightening.

It dropped me almost to the floor so of course I called my doctor went in and he thought i may have torn my meniscus.  I tried pt for a few weeks and a couple cortisone injections over 3 months but it kept getting worse. The pain was nothing else I had ever imagined or experienced.

I insisted he stop giving me injections as its not helping  and I suggested he look to see whats going on in knee as its worse after several weeks .

He said we would get X-ray well that just shown up that my Osteoarthritis  hasn’t progressed thankfully. OK so that’s not worse yet my pain is so intense I can hardly concentrate  at times. It has me not able to work , at first I went  down to Part Time but now I can barely walk  feet with out feeling like a knife is being jammed in my knee….

I am now scared and go back to doctor and I am pissed off, I have to stick to my guns here and not allow him to dismiss me or my pain.

I broke down and asked him for something for pain and he looked at me as if I was some junky. I told him look I have been your patient for over  years I wouldn’t ask if I was not hurting a lot. I also told him if you would get off his ass and try to help me figure out why I’m still hurting maybe we can treat this correctly.

He apologized and said we need an MRI and he gave me a script for  pain pills.

A week later I get MRI and a few days later I go back to dr’s to hear results and he said I think we need to get you in to a orthopedic asap.

Ok well then lets go…

So days later was the soonest i can see this ortho

He immediately said I review you MRI and your knee looks like butter. Butter I ask thinking wtf is that mean….

He then told me I had osteonecrosis in my rt knee and eventually I will need a knee replacement, he also confirmed the medial meniscus tear of the femoral condyle.

I asked can we fix the meniscus he said no it would cause more problems. So I asked whats the plan of action he said when your knee collapses we will replace it until then lets give you a kenalog …..it will help pain . So I agreed.

So i got the shot and asked him so what is osteonecrosis he said it when the bone dies.

All I heard was death…..I got very scared I asked what was in that shot as my knee is on fire he said cortisone…….

I’m like no way those make my pain worse

He then suggest i return in a few weeks and shifted my ass out the door.

No personality no explanation of what was happening or what i could do to my knee nothing………another dismissive docttor..

I  get in my car and i just cried , what is happening to me. Will this pain ever go away ?  Why have i neverheard of this osteonecrosis before.

And that’s where I chose to become a leader and pioneer for this cause…

Its a rare condition but you can get it many ways  yet it falls under rare disease

For the next few months day in and day out I read, spoke to many doctors some knowledgeable and some I wouldn’t want fixing a stuffed animal let alone my knee.

I found ut that more doctors know very little about this than are knowledgeable…

Thats how my awareness and advocacy started for Osteonecrosis aka Avascular Necrosis.

My plans were to gather all my info start a support group not a gossip page but an actual page where you can learn, I wanted to list good qualified doctors and eventually write a booklet and book and I am proud to say I have done all but the book  but I am working on that.

I am proud of my booklet that/s finished i mail it free to members of my group to help them see they are not alone and they can share it with family friends and doctors and they also can gain real understanding of what we go through. Because unless you have , you have no idea how painful it is.

Song Of The Day   Rob Thomas Published on Oct 1, 2009 The official video of “Her Diamonds” from my album ‘cradlesong’.

 

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So help me raise awareness if you like my post come back often, subscribe and have others subscribe as well.

I will discuss many issues and health education on various subjects

Like Eating to fight pain

Treatments

Recipes

Diets

General stuff

I so appreciate you taking the time from your day to read this and hopefully join me regularly …

Butterfly Ribbon (3)_resized

Now if you dont know what osteonecrosis is

Read here  I wrote this awareness Booklet  this is what I share and I want you to learn about it also

AVN Awareness Booklet

Osteo meaning bone and necrosis means death .
Most commonly this occurs in the knee, hip, shoulder, ankle, elbow,hand ,wrist but also can occur really anywhere else in your body that you have a bone   or joint . Including the jaw and spin

I started a fb support group because I know so many are suffering worse than I am and I am determined to make a difference.
If you have Osteonecrosis aka Avascular Necrosis or know someone please share the link to the support group and this blog
The AVN /ON Facebook group above is a private group, which I administrate and I also have some fabulous women helping me run it as well.
 This is a wonderful forum to ask questions, give our experiences and ideas but not medical advice  and help connect with others from all over the world.
The formal name of my f b support group is
We like to talk and educate share stories and jokes funny pictures and experiences we are not a gossip group and we have rules.
We also require anyone wanting to join to answer  three questions if they fail to answer them they are denied.
My other links
Thank You and God Bless you and I hope you have a pain-free day
Much Love

Debbie

 

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All files, art , logos and information contained in this Website or Blog are copyright by Deborah L Andio ©Debla2016 ,and may not be duplicated, copied, modified or adapted, in any way without my written permission.

Your use of my  Website, Blog or Booklet or Book does not constitute any right or license for you to use our service marks or trademarks, without the prior written permission.

Our Content, as found within our Website, Blog and Services, is protected under United States and foreign copyrights. The copying, redistribution, use or publication by you of any such Content, is strictly prohibited. Your use of our Website , Sharing of Blog, Logo’s Art Booklet or Book  does not grant you any ownership rights to my Content.

 

 

 

 

Song In Blog –  You’re Gonna Be Ok (Lyric Video) – Brian & Jenn Johnson | After All These Years. I own no rights or the song I just find it supportive and Inspirational