Posted in Arthritis, Awareness, osteoarthritis, Osteonecrosis, Patient Leader, WegoHealth, WEGOHealthAwards, WEGOHealthAwards2020

I Am A Nominee In The WEGOHealth Awards 2020

I am so honored to share that I am a nominee in the WEGOHealth Awards for Best In Show – Community and Patient Leader Hero

#WEGOHealthChat #WEGOHealthAwards #PatientLeader #Osteoarthritis #Osteonecrosis #Grateful www,ChronicallyGratefulDebla.com and  https://avascularnecrosiseducation.com

 

My WEGOHealth Profile Link    Deborah Andio WEGOHealth Profile Link

Voting will begin in July and link will be posted then to vote.

Until then if you wish to nominate me or read about WEGOHealth or take the time to nominate other amazing hardworking Advocates please go to link below

WEGOHealthAwards Vote – Review Nominees – How It Works -The Judges

 

My Nominations

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Posted in awards,patient leader, Awareness

WEGOHealth Awards2019©

Wow I am beyond honored I’ve now also been

Nominated for Patient Leader Hero- Healthcare Collaborator – Rookie of The Year and Best In Show Blog

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Endorsements Now Open If You Would Like to Vote (link below)

I have been nominated for the past few years in various categories

Thank You for considering Endorsing my nominations

It’s deeply appreciated

My Profile and Info WEGOHealth Link

Avascular Necrosis-Osteonecrosis Education

FlexitarianForLife

My Links

https://avascularnecrosiseducation.com/

www.ChronicallyGratefulDebla.com

https://www.facebook.com/AvascularNecrosisEducation/

https://flexitarianforlife.wordpress.com/

 

https://twitter.com/debbiea001

https://twitter.com/OsteonecrosisMe

https://www.instagram.com/chronicallygratefulme/?hl=en

https://www.instagram.com/deborah_andio/

https://www.facebook.com/ChronicallyGratefulDebla/

 

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Posted in Ahlbacks Disease, Arthritis, Avascular Necrosis, Awareness, Bone Health, BreakThroughCrew, Chronic Pain, Clinical Trials, Diagnosed, Eat Healthy, Factor V Leiden, Hashimoto, Hypothyroidism, Life, osteoarthritis, Osteonecrosis, Pain, SPONK, Stem Cell, StopTheClot, Support Group, Hope, The Mighty, WegoHealth, WEGOHealthAwards, wellness

WEGOHealth Awards and How to Nominate Others

I’m honored to say I’ve been nominated for the #WEGOHealthAwards! These awards seek to recognize Patient Leaders who are making an impact with their advocacy. Learn more – nominate today.

Here’s how you can also nominate others who educate, advocate and make a difference!

Click link below

WEGOHealth Awards and Nomination Info

WEGOHealth Awards Link To Information

Think about the advocates and influencers you see leading Facebook groups, blogging about their health journey, speaking up and giving insights to healthcare companies, presenting on national stages, and running Twitter chats.

Patient Leaders have started non-profits, published podcast episodes, and authored books – there is no shortage of Patient Leaders’ contributions to the world, so let’s recognize as many of them as we can for their talents, contributions, and commitment.

Feel free to add their names and web info also in my comment section! And they can get some recognition here to !

Have a Great Day Everyone

Posted in Arthritis, Avascular Necrosis, Awareness, Bone Health, Eat Healthy, Food Is Thy Medicine, OA, osteoarthritis, Osteonecrosis, Pain, Thoughts, Uncategorized, Vegetables, WegoHealth, WEGOHealthAwards

The Food Your Eating Could Be Making Your Pain Worse.

Before you take one more bite or swing into that fast food place stop and consider how it affects your health. I have osteoarthritis (OA) and Osteonecrosis and what I eat definitely effects my levels of pain and inflammation.

So I started to help myself by eating mostly plant based but I am a flexitarian.

Did you know research shows that diets high in saturated fat – found in red meat, butter, cheese, lard and processed foods – can weaken knee cartilage, making it more prone to damage.

In a 2017 study published in Arthritis Care & Research, researchers followed more than 2,000 patients with OA for up to four years, checking disease progression  and diet at yearly intervals.

Participants who ate the most fat, especially the saturated kind, showed increasing joint damage, whereas those who ate healthy fats like olive oil and avocados had little disease progression.

Another recent animal study showed that it even may harm the underlying bone, according to Yin Xiao, PhD, a professor at Queensland University of Technology in Australia and lead author of a 2017 study that looked at the effect of diet on OA.

For me I went to a mostly plant based lifestyle to help ease my pain from Osteonecrosis and Osteoarthritis in late 2016. And I know that I have less pain.

I’m not cured and there are still days when I feel like crap. But it’s not everyday all day like it was before.

We have to fight back

The solution is to change the way we eat. Switching to an anti-inflammatory or Mediterranean-style diet can help you significantly improve your joint pain , and help your heart and  brain health and the food tastes great.

An anti-inflammatory diet is heavy on fruits and vegetables, whole grains, fish and healthy fats like olive oil, avocados and nuts.

Poultry’s and fish are allowed  now and then and you can have one glass of red wine or beer a day. Off the menu, as you might expect, are sugar, red meat, and processed foods.

For me it’s also gluten because I have a sensitivity to it.

It takes a little work in meal planning but the benefits are worth it.

Stay tuned an example of what to eat will be in my next post.

Remember

The food you eat can be either the powerful and healing or a form of poison.

You are what you eat.

Have a fantastic day

Deb Andio

xoxo

References

https://www.sciencedaily.com/releases/2017/05/170523190029.htm

https://www.health.harvard.edu/nutrition/can-diet-improve-arthritis-symptoms

Posted in Adrenals, Awareness, Chronic Pain, Coping with Stress, Diagnosed, Ease your Stress, Endocrinologist, Hashimoto, Meditation, Mindfulness, Naturopath, Thoughts, Uncategorized, WegoHealth, WEGOHealthAwards

Adrenal Fatigue

I find that more I learn about Naturopath’s the more I trust them. They explain things better, they take time to listen to you,they think outside the box.

My Naturopath Dr Danni is great she listens, actively listens when you talk to her.

My endocrinologist hears but doesn’t really listen. This happens often.

He finally listened to me when I asked for a Thyroid Antibody rest because I had a feeling for years I had Hashimoto and hypothyroidism. I mean you can’t feel this exhausted and foggy for no reason.

But many just snubbed me thinking they knew more than I did.

I was also told by many MDs adrenal fatigue doesn’t really exist……really?

So I did some checking…..

What Is It?

The term “adrenal fatigue” was coined in 1998 by James Wilson, PhD, a naturopath and expert in alternative medicine. He describes it as a “group of related signs and symptoms (a syndrome) that results when the adrenal glands function below the necessary level.” He says it’s usually associated with intense stress and often follows chronic infections like bronchitis, flu, or pneumonia.

Wilson says people with it may not have any physical signs of illness but still may feel tired, “gray,” and have fatigue that doesn’t get better with sleep. They also crave salty snacks.

The Theory Behind It

Your body’s immune system responds by slowing down when you’re under stress. Your adrenal glands, which are small organs above your kidneys, respond to stress by releasing hormones like cortisol. They regulate your blood pressure and how your heart works.

According to the theory, if you have long-term stress (like the death of a family member or a serious illness), your adrenal glands can’t continuously produce the extra cortisol you need to feel good. So adrenal fatigue sets in.

There’s no approved test for adrenal fatigue. Blood tests can’t detect a small drop in adrenal production.

The suggested treatments for healthy adrenal function are a diet low in sugar, caffeine, and junk food, and “targeted nutritional supplementation” that includes vitamins and minerals:

• Vitamins B5, B6, and B12

Vitamin C

Magnesium

Probiotics and a variety of herbal supplements are also recommended to help your body make more cortisol.

Is It a Myth?

There’s no science to back it up. The Endocrine Society, the world’s largest organization of endocrinologists (people who research and treat patients with diseases related to glands and hormones), flatly says that adrenal fatigue is not a real disease. And it says the symptoms of adrenal fatigue are so general, they can apply to many diseases or conditions (depression, sleep apnea, fibromyalgia) or stem from everyday life.

And the society says some of the treatments can be dangerous. Improving your diet will probably make you feel better, no matter what ailment you have, but taking supplements to help your body produce extra cortisol if you don’t need them may cause your adrenal glands to stop working, it warns

What Else Could It Be?

Symptoms such as being tired, lacking energy, and sleeping all day long could be signs of depression, sleep apnea, fibromyalgia, or a condition called adrenal insufficiency.

What Is Adrenal Insufficiency?

Unlike adrenal fatigue, this is a recognized disease that can be diagnosed. There are two forms of this condition, and both are caused by damage or problems with your adrenal glands that result in them not making enough of the hormone cortisol.

Symptoms of both forms include chronic fatigue, loss of appetite, muscle weakness, weight loss, and stomach pain. You might also have nausea, vomiting, low blood pressure, diarrhea, depression, or darkening of the skin.

Adrenal insufficiency is diagnosed with a blood test that checks to see if your cortisol levels are too low. If you have it, you’ll need to take a hormone replacement.

This taken from Web MD

Hmmmm so I personally don’t agree with all of that.

*Let’s read what a Naturopath says*

Adrenal Fatigue Explained

By Catherine Clinton, ND, Clinic of Natural Medicine

Questions about fatigue are some of the most common that naturopathic physicians hear from patients. We all become run-down now and then due to the stresses of everyday life and the demands of our busy schedules. Over extended periods this can overburden our bodies, creating a situation that’s not so easy to bounce back from. In particular the adrenal glands, being in charge of the release of various stress hormones, can become exhausted and unable to effectively do their job. This is referred to as “adrenal fatigue.” When this happens our fatigue can become chronic and be joined by other symptoms such as pain and inflammation.

The adrenal glands have many functions, including the secretion of cortisol and other hormones in response to stress. Stress can come from an emotional trigger like a fight with a loved one, trouble at work or a physical trigger like an injury or motor vehicle accident. When prompted by pain or inflammation cortisol is released from the adrenal glands into the blood. Cortisol modifies the inflammatory pathways resulting in a decrease in inflammation and pain. When a drop in blood sugar occurs cortisol is secreted to help balance the levels of sugar in the blood. Cortisol is also released from the adrenal glands in a 24 hour daily rhythm with a burst in the morning to help us awake and a decrease in the evening to help us sleep. When adrenal glands are required to secrete at high levels for extended periods of time due to prolonged stress, pain, or blood sugar imbalances, they can become fatigued or begin to secrete cortisol at lower levels. When this occurs it is common to see an increase in fatigue, pain and/or inflammation.

Naturopathic physicians usually test adrenal function with a salivary cortisol test. From this test naturopaths can effectively diagnose and treat adrenal issues. Some common treatments for the adrenal glands include:

• Rhodiola: This botanical has been extensively researched in Russia for its ability to increase physical stamina and increase the body’s resistance to stress. It is categorized as an adaptogen by Russian researchers due to its observed ability to increase resistance to a variety of chemical, biological, and physical stressors. Naturopathic doctors use it in adrenal fatigue treatments to combat stress and increase energy.

• Ginseng: The three ginsengs; Siberian, American and Asian, are all used to treat adrenal issues. Research shows that they increase energy, stamina, and reduce stress. A recent study in 2003 demonstrated how ginseng can effectively help to maintain healthy blood sugar levels as well.

• Stress management: With adrenal issues stress management is vital to any treatment. Proper sleep, stress reduction techniques such as deep breathing or meditation and exercise can all increase the body’s ability to handle stress.

• Nutrition/Blood sugar regulation: Eating a diet rich in fruits, vegetables, whole grains and legumes that provides antioxidants and nutrients is essential for adrenal health. The adrenal glands need a good diet rich in B vitamins, vitamin C, zinc and magnesium. Eating quality protein at each meal allows the body to maintain healthy levels of blood sugar without taxing the adrenals. Treating adrenal fatigue must address the diet and nutrition of the patient.

Addressing adrenal issues can have profound effects in patient’s lives. As with any medical treatment you should contact your local naturopathic physician to receive a treatment plan that fits your individual needs.

•Adrenal Fatigue

by Jennifer Abercrombie ND | Mar 11, 2013 | Articles By Our Doctors |

Do you feel exhausted in the morning or all day long, gain weight despite good diet and exercise habits, have difficulty sleeping, can’t get through the day without caffeine, have chronic gastrointestinal infections, retain excess water, have difficulty concentrating, suffer from multiple allergies, feel run down or worn out, have heart palpitations, or experience severe PMS? All of these can be caused by adrenal fatigue.

What are the adrenals?

You have probably heard about the adrenals as they are getting a lot of press lately, and for good reason. The adrenals are a big regulator in the body. They control stress and inflammation; they release hormones that control blood pressure (aldosterone), and DHEA and pregnenolone that convert to cortisol and sex hormones. Our bodies are designed as if we were still living in the era of cavemen. The stress response is designed to be a fight or flight response. Imagine you were just seen by a tiger in the wilderness, your adrenals release a relatively short burst of adrenaline that gives you heightened awareness and prepares your body to start springing if needed. But adrenaline is short lived in the blood so the adrenals then release cortisol to give you the capability to have a longer sustained muscle capacity and mental acuity to evade the tiger. Because the release of adrenaline and cortisol dramatically affect all systems in the body for the goal of saving your life from an acute threat, the body requires a period of rest and relaxation for the stress response to relax and for normal physiology to resume. This system isn’t created for the modern era where we have consistent stressors on a daily basis that do not allow the stress response to relax and recover.

What is “stress”?

Stress is more than just emotional and psychological. It can be physical such as inflammation, environmental toxins, and infections (viral or bacterial). Triggers for creating a stress response results from a poor diet that is high in simple carbohydrates and sugars, low or high blood sugar, lack of sleep, lack of exercise, menopause or andropause, environmental toxins, hormonal birth control, long term steroid use (they suppress the adrenals), street drugs, consistent stimulant use (coffee), hypothyroid state, and genetics. If your parents at conception had depleted adrenals and especially if your mother had adrenal dysfunction while she was carrying you in utero, you may be predisposed to having adrenal issues.

When stress becomes chronic

If any of the stressors become chronic and persist without giving the adrenals and the body a chance to recover, a sustained amount of cortisol is released. Too much cortisol suppresses the immune system. This is a natural defense as you don’t want to be exerting precious energy to fight off a viral infection while you are running away from the tiger.  The side effect is that you are left more susceptible to infection. When the stress stays for weeks to months, cortisol starts to get depleted as your adrenals burn through the nutrients that make cortisol. Too little cortisol from exhaustion, allows the immune system to run unchecked, resulting in increased inflammation. A heightened state of inflammation is implicated in advanced aging, hypertension, irritable bowel disease, high cholesterol, heart disease, depression, chronic disease, any autoimmune disease triggers, progressing cancers, and it creates a rocky transition into menopause.

Basic Treatments

Because everyone is an individual and the factors that create adrenal fatigue are a unique combination for each person, there is no one perfect treatment. Each person is going to require a different treatment plan. With that said, here are some basics:

• A modified GAPS/Paleo/Anti-Inflammatory diet that is specific to you

• Minimize simple carbohydrates, sugar, caffeine, and recreational drugs. Marijuana may relax you, but when used for stress management you don’t learn how to process stress properly and may become dependent on it and use it as a crutch.
• B Vitamins: whole grains, beans, peas, nuts, dark leafy greens
• Vitamin C: Fruits and veggies, especially papaya, cantaloupe, strawberries, bell peppers, broccoli, tomatoes, dark leafy greens
• Magnesium: Dark leafy greens, whole grains, nuts, seeds, legumes
• Zinc: Meats, seafood, poultry, pumpkin and sesame seeds, nuts, whole grains
• Fat: Good fat (including saturated fat) is needed to make cholesterol which makes DHEA, pregnenolone, and cortisol. Good sources are: organic meats, coconut oil, nuts, seeds, organic unsalted butter, avocado, and olive oil
• Water: Stay hydrated with clean, filtered water
• Sleep: A regular, consistent sleep pattern
• Light and exercise: Go outside, feel the sunshine, and to move the body
• Re-assess: Re-evaluate the stress in your life and any negative relationships. Find out how you can make changes to lower stress
• Connect with others: Foster and build strong, supportive relationships in your life
• Don’t over do it: Even when you are starting to feel strong, don’t burn yourself out with too many daily tasks, too much on the social calendar, or over-exercising
• Release: Find a way to release your stress. Examples include meditation, journaling, hiking, surfing, beach combing, walking barefoot in the sand, etc.

What bothers me the most is that MDs think that Naturopathic medicine is new , however most people don’t understand how long it’s been around.

I will write in this in the next few days.

Reference links

http://www.nawellness.com/adrenal-fatigue/

https://www.naturopathic.org/content.asp?contentid=314

https://www.webmd.com/a-to-z-guides/adrenal-fatigue-is-it-real

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, BreakThroughCrew, Clinical Trials, Diagnosed, Eat Healthy, Eye Exam, Factor V Leiden, Flush not Blush, Inflammation, Life, Meditation, Mindfulness, osteoarthritis, Osteonecrosis, Recipes, Stem Cell, StopTheClot, Uncategorized, Vision, WegoHealth, WEGOHealthAwards

Would appreciate your vote.

Just 2 days left to cast your vote , you can vote for each category I was nominated for. I would appreciate it very much.

Please take a moment to vote for me.

Link to vote.

WEGOHealthAwards

Blog

https://chronicallygratefuldebla.com/2017/08/20/2002/

Posted in Awareness, BreakThroughCrew, Clinical Trials, Diagnosed, Positivity, Uncategorized

Join The Breakthrough Crew

Become A member!

Who can participate?

Anyone and everyone! Patients, caregivers, healthcare professionals, and individuals who believe in the power of research to transform lives.

What does participation entail?

As an official Breakthrough Crew Ambassador, your role is to help achieve the above three core goals through the following (please note that completing each of the following is not a requirement; think of these as a list of friendly suggestions!):

Raising awareness via social media

Sharing your story via a blog, video, pictures, art, performance, etc.

Representing the Breakthrough Crew at local healthcare events

Proudly wearing your #BreakthroughCrew swag

Participating in #BreakthroughCrew Twitter chats

For more information

Breakthrough Crew

Posted in Arthritis, Avascular Necrosis, Awareness, Blessed, Bone Health, Cardiovascular, Chronic Pain, Diagnosed, Disclaimer, Eat Healthy, Factor V Leiden, Flush not Blush, Food, Homemade Syrups,Tinctures,Rubs, Inflammation, Life, Meditation, Mindfulness, OA, osteoarthritis, Osteonecrosis, Pain, Positivity, Rosacea, Stem Cell, StopTheClot, Support Group, Hope, Uncategorized, Vegetables, Vision, WegoHealth

I Am A Patient Leader to Help and Empower Others ~ WEGOHealth Awards 2017

 I would really appreciate your vote. Please read my story and why I became a patient leader and advocate. ThankYou.

I am so excited to announce that I have been nominated for several of the WEGO Health Awards in the

6th

Annual WEGO Health Awards.

WEGO Health is a mission driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.

Click link below to learn more about their

Patient Leader Network.

https://awards.wegohealth.com/nominees/12801

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice.

With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100,000 yep one hundred thousand inspiring Patient Leaders who raise awareness, share information, and support their communities but often without recognition.

I was diagnosed with osteonecrosis also known as avascular necrosis in late 2014. I was told it was due to the trauma I suffered to my knee(medial meniscus tear)

I remember how I felt, I remember how afraid I was and also a feeling of hopelessness.

If doctors couldn’t help or fix me or even try what was I to do.

I never want anyone to feel that way starving for answers to questions about a new diagnosis and no place to go and no one willing to take the time to explain your new diagnosis. I new others had to be feeling the same way as I was and what an awful feeling that was . Sure I have support from my family but they don’t really understand the pain no one can unless you have it.

So I started the support group Avascular Necrosis/Osteonecrosis Support Int’l to be a safe haven if you will, for anyone that suffers from the disease. On occasion we also allow a family member in the group if the member is comfortable with that so they can also see how this disease/disorder effects people, so they can learn from awareness and education, to have an idea just the type of pain their family member has.

The physical and psychological effects can be debilitating and isolating. Especially when you have what I refer to as a flare up of pain. You can’t plan to go to that wedding next month, you don’t know how you’ll feel in an hour.

The pain can be constant day and night pain or come at any time out of nowhere or in waves and they’re quite perturbing. It’s like a hot lightning bolt and a sledge hammer hitting you at the same time and it can be shocking to those around you,because you end up maybe screaming or yelling,sometimes swearing or just overall mood change because the pain is so intense words truly cannot describe. Some words are hot stabbing shooting debilitating and yet frozen , tourniquet like cutting off your blood supply cold pain that’s what we feel.

Its not just the pain that affects us , but also the sadness or depression that can often come with it. When we think about the future and pain gets in the way of all our plans expectations, it’s a bit shattering.

Everything seems to sort of fall apart and right now you can see only the broken image of the new you .

It’s like looking in a shattered mirror all these different fragments that no longer make you whole.

My life became very fragmented and it was a moment to moment thing because I didn’t know how I would make it through that particular day or make it through what’s going to happen tomorrow. When I was first diagnosed my mind was all over the place.

I’m not terminal but I felt like I was , because my life as I once knew it was done…over.

No doctor I saw had any plan of action to help me in fact I was told we will wait until the joint collapses then replace the knee . Talk about mind blowing!

Osteonecrosis took my career in optical which I loved. It took my hiking in the woods away which I enjoyed. It limits me which I hate. But it’s also given me a new purpose and that is spreading awareness, discussing new treatments, the chance to educate , and reaching out to others. I am a patient leader and activist. Making the invisible, visible

If you allow it, the pain and mental shit you go through when you live in pain and with a rare disorder to boot whether it’s constant or sporadic it can be toxic to the mind and soul sucking.

God forbid don’t ask for pain meds.

When I was first diagnosed my first Ortho said the pain will get intense as if it wasn’t already but I don’t give pain meds. I wondered how bad will it get? I’m already in such pain I can barely stand it. Thankfully my family doctor gave me some pain medicine.

It helped but I don’t want to take it. I’d much rather find out how to fix me.

I’m not some junkie looking for a fix, hell I don’t even want to be at a doctors office.

I would much rather be working or frankly doing anything but sitting in a doctors office.

There is so much stigma that goes along with having chronic pain .

The generalization that everyone is claiming they are in pain just to get drugs is unfair and incorrect, and I think we have to be very careful because pain for most of us is invisible,to others.

When we are out of balance mind ,body , and spirit it makes it so hard to focus.

It makes anything and everything worse.

So we have to change our mind set,respect and do what we can to help our body,and interact with others.

Usually I think people will find that in a support group even if they don’t talk they can listen to people who have the similar experiences, frustrations , challenges,pain, treatments or lack of treatment availability or just simple acknowledgement of I know what your going through, many days is a great help.

And it’s very hard to find that outside a support group.

I never insist a new member speak unless they want to. Some are just so devastated by the diagnosis that they have no words. When I see a new member especially a newly diagnosed one, my heart just knows how much fear they have and how afraid they are. I always let them know that can say anything here and it will remain here. But if they are not ready that’s fine to.

I also offer to send them a copy of a booklet I wrote about avn/on.

I know later their words will come. Right now they need to know they are not alone.

I also raise awareness by several

FB pages

Instagram

Twitter

Personal Blog on word press and blogger

Chronicallygratefuldebla.com

That’s why I am a patient leader and activist.

Here is the link to my WegoHealth profile.

I would appreciate your vote.

You can vote daily up until September 1, 2017.

Here is link

https://awards.wegohealth.com/nominees/12801

Thank you

Current Nominations in The 6th annual WEGO Health Awards

#WEGOHealthAwards

#PatientLeader

Please share this if you would be so kind.

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What is osteonecrosis?  The term literally means bone death -osteo =bone necrosis=death.